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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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Going for changes in my care
So yesterday was supposed to be the last of 6 cisplatin treaatments. My dr and I decided to cancel it because I am NOT tolerating them well. Any how thanks be to God for that. Also as you know I have started to use my peg and what a debaucle that has also been. Cant keep the Boost down no matter how I try so as of now I am…
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Finished this week!
My hubby rang the bell Monday, one day early... Due to snow On Tuesday. So happy to be done with treatment. Y'all were not kidding- the last 2 weeks were rough. Today is his birthday, so we are definitely celebrating putting treatment behind us and getting to the healing. He has a checkup today with the chemo doc. I…
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Sad News- Loss of a Valued Member
Good Morning All As an infrequent poster anymore, I hate to be the bearer of sad news. However, I learned from his wife that Longterm Survivor - Pat, passed away this morning. There have been many, many posters on this board that have provided humor, hope, inspiration and helpful information. I don't think anyone could…
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Hospice
Made the decision to go on hospice as I'm too weak to do more chemo and it might add only a few months. Pain is increasing and I want that under control. I have been thinking about this for the past 2 months and I figured it is time to make that next step. Its been hell for 3+ years, no reason to prolong the agony. Doctor…
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Can taste buds grow back ?
Hi there, just wondering if taste buds can grow back ? I have very smooth sections on my tongue and have to confirm in 2 wks with my oncologist that this is geographic tongue, my go has already said yes. Had a good look at my tongue and there is red very smooth sections, can taste buds grow back ? This is the result of the…
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Ok, you guys...
This will be my last shot at any internet access for a couple of weeks. Know that I'm thinking about you all, even if you don't hear from me. If I can figure out a way to get on here while on vacation, I WILL do it!!! You all are in my thoughts....that's just how it is with people you care about...right? Greg and I are…
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Emergency room again
Hi all, We are having a horrible day today. Quite frankly we are running in fumes and just don't have much left. So this is when I keep telling God that I know His power is made perfect in our weekness and that I know he doesn't give us more than we can handle. I just don't want this any more. We are so, so tired. I want…
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Puts things in perspective
Last night there was a house fire in North St Louis. Two little girls were rescued by firefighters but sadly one lost her life shortly thereafter from smoke inhalation, she was 7. This morning I went to hyperbarics and they brought the other little girl by ambulance from Children's Hospital, she is only 6 years old. She…
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laryngoscopy.????
has anyone else had to do this after treatment? It was just sprung on me and no way with my anxiety could I do that without being knocked out. They only told me when they called as a reminder for my pet scan which scares the hell out of me anyway. Is it common? Necessary? Other options?
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Choking
Hello! My mother is a 2 time cancer survivor of nasopharyngeal cancer. She is and always has been a non-smoker and very healthy. She had radiation for both treatments, first in 1997 and then again in 2000. She suffers from severely dry mouth, hearing loss, tooth loss (recently received permanent false teeth on the lower…
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Acupuncture - UPDATE
Hellow fellow boardies, I don't post much nor frequent the boards and I do apologize. I posted my reasons and I'm sure you understand. That being said I have a question. Has anyone tried acupunture to help alleviate post treatment symptoms? At my last appointment, my surgeon recommended it for saliva producton and chronic…
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tonsil cancer caused by HPV-16
Anyone with tonsil cancer caused bt the HPV-16 virus should read the article on "nature.com" it tells the story about who and how it was discovered and the theory behind they think it attacks the cells. Also the new methods on how it's being treated. So if you get a chance please read the article as it only talks about…
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Alternatives for what to put into feeding tube vs Jevity 1.5 which makes my husband sick.
Hello...my husband is in week 7 of radiation & chemo for head & neck cancer and the formula (Jevity 1.5) that we put into his feeding tube is making him sick every day! He hates it & we would love any recipe for a high calorie subsitiute that we can purchase of that we can make naturally in a jucier. PLEASE HELP! thank…
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Checking in and more prayers please
It has been over a month since I checked in here. I was saddened to learn of Pat's passing and problems others are having. Especially sad to see so many new diagnosis. But it was good to see that John, Skiffin is on the upside of recovery and finally fishing. Oh how I would love a plate full of Specs right now. I have…
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20 down,10 to go!
Hi Everyone, 10 days to go! This has been a rough ride. I can hardly look at my husband without bursting into tears at times. He has lost 20 lbs so far. The nutritionist told him he HAD to start drinking more calories. He is getting about 2600 calories a day now which I know isn’t a lot, but he has not lost any weight in…
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Disability
Well I been working in the Oil Patch from 1972 and I did just about every type of job there was to do except drill for Oil. In my 43 years I seen a lot of ups and downs but through it all I always had a job and was always able to take care of my family. Well the children are all grown-up and married with families of their…
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For those of you that had Mucous
Anyone take Musinex? It's supposed to thin out and help expectorate. Did it do any good? I'm making massive amounts today. Thanks, Joe Cortney Dallas, TX
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New pic
I got fed up with seeing my face on my site so posted a pic of two of my great grand children Jasmyn and Harrison, she's three and baby's 6 months
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ok I am going to give in and use the PEG
So I am not getting enough water or food in me and have decided to use the peg for a while and see how it goes. I do not remember exactly howto use it tho. I want to just use the bolus(sp) method but do you push the boost down or just let it drip? Do you dilute it? I feel kind of ignorant because its been so long since its…
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Fentanyl (Duragesic) patch
I want to share this about the fentanyl patch. The starting dose is based on how much you're taking of other narcotics - not based on age, weight, etc. I found a dose calculator and it recommended a dose for my husband that was the lowest strength patch available as he was only taking liquid Norco about 6 times a day. He…
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very interesting video and wonderful hope
this doctor is amazing and giving real hope to cancer patitents. shame on our government for no help with this research!!! i am amazed by this doctor, his desire to fight/disrupt cancer and the fact that he has spent his own money to do so. enjoy. http://www.cbsnews.com/news/the-billionaire-shaking-up-the-world-of-cancer/…
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A card...
A man whom I didn't know gave me this card as I walked out of the hospital. I thought I would share it. Made me cry....in a good way, Support the fighters Admire the survivors Honor the taken And never give up hope.
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Great news ...The best news!
Great news! I got great news today. I am NED !!!! And no nasal surgery!!! Seems the tumors melted away, and no need for anything else except monthly check-ups. Doc did warn me to not stay too excited as I won't be announced cured for 5 years. But I am still celebrating!! Besides it's Mardi Gras here time to go to parades…
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Emergency room. So tired of all this
Hi all, We are having a horrible day today. Quite frankly we are running in fumes and just don't have much left. So this is when I keep telling God that I know His power is made perfect in our weekness and that I know he doesn't give us more than we can handle. I just don't want this any more. We are so, so tired. I want…
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Wasn't home long
Wasn't home long. My brother got me home Saturdsy at 530 and went to pick up scripts. By 730 I was back to hospital via ambulance. Vomiting and dry heaves. Was worried sick about tearing out surgery. Not sure if too many narcotics or last minute switch in narcotics as I left hospital or obstructed bowel. Couldn't keep down…
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Throat
going for my throat opening op tomorrow, fingers crossed.
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inspired by you guys - need ur opinion
Hello all. Sorry I haven't been posting lately .i am trying to get back on track, to find a job, get healthy.... I was treated in the best, actually the number 1 hospital in my country. Medically speaking they are veryyyy professional and the staff is amazing. But.. I have noticed that i wasn't approached or accompanied by…
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20 yr old son diagnosed and I need words of wisdom to help him
My son has struggled with severe asthma since before he was a year old. Now, we find out that he has Stage 2 (pending MRI) ONB. The tumor was surgically removed into the negative margins, but he suffers from some loss of vision, fatigue and difficulty breathing. The PET scan showed several small spots in both lungs as…
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Cancer Survivor X 2
I was diagnosed with Stage II colon cancer Jan. 2013. Had surgery and my sigmoid colon was removed. Never had chemo afterwards because all the 24 lymph nodes taken during surgery tested negative for cancer. November the same year (2013), I was diagnosed with Stage III follicular thyroid cancer. Had thyroidectomy and high…