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beverage suggestions
Hi all, My brother Bob is trying to find things he can drink....getting kind of tired of warm tap water. I got him coconut water and he liked that. Has a little taste but isn't overpowering or sugary. Something with calories would be good too. Just thought I's see what worked for you. He's coming up on first pet 3/16, tube…
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Dilations
had my fourth dilation today and the tube keeping my throat opened was taken out. I swallow better with it out. I have a bit of a problem since my throat was opened, with bile and acid i had the problem before but it didn't reach my throat and mouth. I hate the burning and bitterness of the bile.ive been on ranitidine but…
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for those who can't swallow
a cancer pt on FB had said that radiation had burned her throat up so bad that her doctors told her she would never swallow again and be on peg feedings the rest of her life. she did some research and found a doctor who gave her other options and much hope. Well, he was able to repair her throat and now she can swallow and…
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Prednizone
I have come back from the other side. :{ It is amazing how the support differs so much from one discussion board to another on CSN. As I told you all earlier my mom has recently been diagnosed with lung cancer with mets to medial lymph and hylar lymph. They also saw a place on her L4 vertebre that is likely metastic. She…
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G tube removal
I just came upon this website tonight and have been reading all the posts about pain after radiation treatments have ended. My husband completed his 30 radiations one week ago today. We knew that the throat/swallow pain relief wouldn't be immediate, but they said he'd be much better in two weeks when he returns and his…
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Tooth extraction yesterday-no hyperbaric-watching for healing process
Hi everyone. We have been having this discussion for some time now and thought I should update everyone on my progress. I had the molar, number 19 extracted yesterday after an experimental trial of a wire and rubberband extraction failed. This was an alternative method proposed by my dentist using leverage to remove the…
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Two Years Ago
It was two years ago this past Monday that I stepped through doors of the radiation center at MD Anderson in Houston to start six weeks of treatment. The mask had been fitted, I had eaten at every favor resturant and had really not slept well that night. My wife and yes even my two kids walked in with me as we were…
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First Post Treatment PET
Hubby had his first PET last week (2 weeks shy of 6 months post treatment) at MDA and it came back with no lights. His scattered <3mm lung nodules appear to just be the way his lungs are as they come and go continuously, so the thorasic guy said he's just a nodule-y person and not to worry about those. All good news! Next…
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Aspiration??
I have been having severe heart burn whenever I use my peg and it doesnt matter if I am using food or water in it. Could this be a sign of aspiration? I am going to talk to my Dr about this, but I wanted to know if anyone else has had this problem?
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What where your signs and symptoms for tongue cancer?
Hello all, ive come to this site seeking for information. For almost 2 months I have been feeling with pain in my mouth, it all started after a dental visit on January 7th. After some feelings my mouth has been in pain till this day. At first it was just pain In the areas worked on then started to have pain in all my…
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Locked jaw
Has anyone experienced a seizure after their jaw has locked up? Husband drinks a lot of water and drinking ensure after his jaw lockec up but sodium level dropped and caused a seizure. laurabeau
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dizzy with pain question
I had laryngeal, stage 4 cancer, finished with chemo and rads 2 years ago, neck disection Dec. of '13. For the past 8 months or so, once or twice a week I get dizzy/light-headed and nauseaous, usually along with a sharp pain in my jaw or side of my face. I've had 2 MRIs of brain and neck, chest x-rays, all check-ups NED.…
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about to complete 1 yr
Day after tomorrow i am taking my father for the monthly check up). Its been long and toughest year for our family.Last April My father was detected with cancer IVA of Pyriformafossa from then long 8 months suffer continued(Chemo, radiation then surgery on october and after surgery complications continued for 3 months…
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Good News
22 Months post treatment. NED! I saw my Medical Oncologist and Speech Pathologist and was told to book an appointment for 1 YEAR! I see my Rad Onc and ENT in May and if all goes well, next appointment will be November. I'm basically at the 2 year mark (April 24th is the official anniversary) and that, as we know, is the…
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just wondering about tounge flap
Hey gang just being curious if anyone else had the tounge flap to replace tounge?They took part of my thigh to rebuild what they had to remove.Everything is going well at least that is what my doctor.Says the swelling is way down and healing better then he thought at this time which has been a year now.Anyway have been…
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Seeking feedback from anyone who has undergone jaw replacement
I've already communicated with some really wonderful people on this site & hope to connect with more. It was suggested I open up another Forum Topic to engage more members. I have suffered from jaw issues as my jaw was radiated when I was 17. I'm now 54 & as time goes by the joy of a radiated jaw does not get any better.…
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Update - biopsy results
So I went back to the ENT today as my biopsy results were in. I am back in limbo again with more testing and more waiting. My DR said that the mass at the base of my tongue that he took 5 pieces of tissue from definitely is NOT showing as normal or benign, but the pathology report did not show a definitive cancer either.…
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KTeacher and CivilMatt Join Forces and Meet
Friends, I met Bev and her posse (husband, daughter and granddaughter) yesterday and it was great! Bev is a real sweetie and meeting her increased my “happiness quotient” 10 fold. It is interesting how we share some H&N side effects (eating, talking, swallowing, etc.), it made me feel very normal. I guess it takes one to…
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need some help....
I was just diagnosed with stage 3 neck cancer. It bagan in My left tonsil then moved to two lymph nodes in my neck. I had surgery to remove the tonsil and the two lymph node. I had My firts chemo treamment yesterday (2/26) and I am going to have My first chemo treatment Monday (3/2). I am having chemo one day a week and…
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Questions for the veterans: 3 months post radiation: very hungry and "stinky" sorry for the TMI
Hello all I am now 3 months from my last radiation and my recover is going pretty well; my energy and stamina are improving every day, I can now exercise 60 min every day and feel great afterward. my taste buds are all back and I do not longer have dry throat, just minor dry mouth. I will start my facial therapy to help…
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well one week down..
Well one week down and 6 more to go....chemo is one a week and I am taking Cetuximab which is suppose to increase the affectivness of my rad treaments too....lets hope so!! The Cetuximab has caused My face/forhead/upper chest to break out in a rash....much like having acne....lol....never had acne in my life and here I am…
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DONE and thank you!
hi all, We are D O N E!!!!!!!!
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confused about mets
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Nasopharyngeal cancer - recently diagnosed
Hey all, I've been recently diagnosed and am in the process of creating a treatment plan with the medical professionals. I've been seeking others with a similiar diagnosis for support and mentorship. I'd love to hear from others who might be interested in walking through this process with me, as I prepare for the jouney.…
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New here
Hello everyone, This is my first post.. Not all that happy about being here, but this is where I am...This is my story:My Husband of 20yrs Yesterday, Yes Happy Anniversary to me:) whom is 52 yrs old has stage IV, base of tongue cancer. Diagnosed 8/14. Has had 35 rounds of Rads, and 3 LOOOOng sessions of Chemo at Sloan..No…
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Lymphedema After Cancer Treatment
Hi Everyone, Actor Kathy Bates has been speaking publicly about the lymphedema she recently acquired in both arms from a double mastectomy after a breast cancer diagnosis. It's sad that she too must suffer from this, but encouraging to me that we have such a fantastic advocate for lymphedema awareness and research. Kathy…
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anyone with eye cancer?
I was wondering if there was anyone out there who have had adenoid cystic carcinoma of the lacrimal gland (eye) I had tohave my eye removed, exenteration, because of this.I know it is rare, but I feel it would help to talk to someone who has gone through this. I am facing chemo and radiation in the near future
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Hubs First PET scan today. Scanxiety
Hubby had his PET today. I am nervous and scared about his future. I have been trying to find patients that have my hubbys diagnosis/treatment so I can feel like im comparing Oranges to Oranges..Im not an Ostrich about this whole thing..on the other hand my hubby likes to be.. I want to know what to expect, whats down the…
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Radiation is OVER
Just finished my last radiation and I am so happ to be done with that! Now to cook a few weeks and see the results. I am a bit apprehensive tho of this next part.
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Update: Radiation Burn NO. Likely Shingles!
Original Post The other day, I noticed a good size blister that formed along the side of my neck where I received radiation treatment. It has drained. Now today, I'm seeing splotches of what looks like smaller blisters forming in the same area. No other place but on the side of my neck. No itching. Now this? I'm 6 months…