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Seek bless and help
I came here first July, last year. At that time, i guessed i have a NPC since i have a family history and bleeding mucus in the morning and painless swollen lymph nodes on left neck. But through CT scan and nasal endoscope, everything is good. I have done biopsy with needle and came back with no cancer cells. So i think…
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what to do prior to starting treatment
Hi, I have just learned that I have stage 4 SSC of the tongue with 2 lymph nodes affected. I meet with the surgeon tomorrow to find out if I am a candidate for a hemi-glossectomy and I am assuming that a neck dissection is also in my future. The Radiation Oncologist told me that radiation treatments would be best after the…
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Radiation Induced LARYNGITIS -
Hi All - Had my ENT visit today and all looks good (scope and finger exam). He certainly heard my voice and agreed it sounded pretty bad, I have been fighting this very weak and hoarse voice for about 2 weeks + now. During the scope he said to the nurse (who was taking notes) "extremely dry vocals". Nothing on them, they…
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Dizzy spells 5 years after
Hello, I have just crossed the 5 year mark. Everything has been great but last month I started having dizzy spells. Saw the neurologist today and he thinks one of my arteries to the brain has harden. He says this can happen from people who have had radiation. Just wondering if anyone has heard of this happening to anyone.…
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Drinking Aloe Vera
has anybody tried Aloe Vera as a remedy for burns from the Rads internally,I'm just preping for the burn to come all info appreciated! Thanks to all you guys and my HEROS! Ed , .
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Checking In - 3 Years
Hi All I just wanted to check in as I haven't been on in quite some time. I was diagnosed with MEC back in 2012. All is well with me, and I went past 3 years all clear in March this year on my latest scan. This place was a fantastic help when I was 'on the bus', and for all of you in the early stages after diagnosis there…
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GoodMorning
Just Checking in to See How everyone is Doing
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Do you ever stop worrying
now I'm swallowing again, which im over the moon with...I've started to worry ....what if.....the liquid or food dribbles into my lungs while it's going down. Do you know/feel if it's going the wrong way. I shouldn't be worrying about this, I read about people going into hospital because they get pneumonia from food going…
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Pancreatic cancer
My friends mom was diagnosed with pancreatic cancer but I don't see a room for pancreatic cancer- any suggestions anyone?
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Post ENT visit~
I finally saw the ENT again today and he reviewed the CT sinus scan and double checked some other things! It was very comforting news as he said I have a turbinate dysfunction caused by severe allergies! That is what he thinks has caused the swelling! He believes the headaches are caused by the congestion I have…
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Snuc : Protons therapy or Tomotherapy ? Seeking advice
Dear Snuc survivors, My husband (35 YO) was diagnosed with a snuc two months ago. He did respond very well to the first two first rounds of chemo. The tumor is almost all gone. He is now scheduled for a 6 weeks radiation treatment with chemo. He should be treated with Tomotherapy. Altough, i've recieved a different advice,…
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checking in
Hi! just wanted to say hi. Dima is doing really well! The only issue we are having is that he is not gaining weight (currently 125). Other than that, he is doing really well He does deal with neuropathy, food still doesn't taste all that great and has dry mouth BUT he is getting better and better everyday. It is great to…
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New to group - My mom was diagnosed with a Glioblastoma in February
Hello, In FEB my life changed as I found out my mom had brain cancer. In the beginning of Mar, she had surgery to remove some of the mass and to test it to confirm it was cancer. After the operation, she had to wait 4 weeks before treatment could start. When she had the MRI prior to her radiation treatment starting, the…
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Checking in -- More fun on the horizon
I've been reading CSN on and off for the past several months, but have not posted since we lost Pat (aka, 'Longtermsurvivor'). Part of it has been that my ORN continues to be a problem, even after a left jaw resection last May. The latest is that I am scheduled in June to have some bone and other tissue taken from my left…
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Post CT Scan~
I saw my PCP today and wished I had more specific info but did find out that nothing too significant was seen on sinus CT scan except swollen turbinate. Doc wants me to see ENT which is sceduled May 8th. I know this is good news to some extent but will be more relieved to see ENT next week for more specifics! Doc also…
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Nasopharyngeal Carcinoma
Hi My Name is Sam! I'm Happy To Say I Have Been In Remission For 4 Years! i Was Diagnosed At 19 With Nasopharyngeal Carcinoma Stage 4! i Did Chemo And Radiation And It Was A Very Tough Time In my Life But I Am Hapy to Be On The Other End It Has Greatly Changed my Life And To this Day i Still Deal With Side Effects....One…
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Eye cancer
Can't remember if I told you all that my mom now has cancer in her eye. Don't know if anyone here has delt with it but apparently it is included as a head and neck cancer. She was diagnosed with lung cancer and two lymph nodes over two months ago. The Oncologist doesn't know what to do about treatment and keeps changing…
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*New* Question about hot spots on PET
I had my first PET scan after surgery and radiation for SCC of the tongue. The primary site and side looked good, however I had some hot spots pop up on the opposite side in my tonsil, a jaw muscle and a lymph node beside the jaw muscle. My radiation doctor said not to worry Because it was on the opposite side, and I'd…
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Prostate
Don't know if I posted anything much about my diagnosis of prostate cancer a couple of years ago. I had a biopsy due to the fact that both my dad and brother had prostate cancer. The biopsy showed a minimal amount of cells in the prostate. Classified as gleason 6 which is the lowest it can go. Recently had a follow up…
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Looking for tips!
Hi there I'm new to the site but have found it to be a great resource so far. I am 30 years old and was diagnosed with SCC of the tongue HPV negative, in October. (When I was 18 weeks pregnant!) I went through two surgeries, one being a hemiglossectomy the day after Christmas. luckily, the cancer was just localized to the…
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Question About Treatment
I have just started treatment for Oropharyngeal Cancer tonsil stage 4. Radiation and chemotherapy. I have been doing some research alot of research and found this from the The New England Journal of Medicine. http://www.nejm.org/doi/full/10.1056/NEJMoa0912217#t=articleResults Please help me with the answer-it is very very…
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Vertigo
As Roseann Roseannadanna used to say, "It's always something" but this might be a new one for us here. I am 5+ months out from a jaw resection--left side, and 5+ years past my successful rads and chemo gig. Not too long after the jaw surgery I started to have some periodic dizziness that was originally attributed to some…
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Cancer spread to port site
My husband was 4th stage Squamous Cell Carcinoma on base of the tongue. He had 35 radiation treatments and 7 chemo treatments. He also got MIRSA from all the burned skin on his neck. The cancer in his neck was gone, but months later a tumor grew in the port site in his chest. On Oct. 30, 2013 that was removed. This is the…
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2 years - UPDATE - NED!
This just in... May 19th 2015 - Follow up at Johns Hopkins... NED! Next appointment in 6 months. Hard to believe.... April 24th 2013 I returned home from Baltimore 65lbs lighter with a PEG tube hanging out of my stomach. I'm two years out, gained back around 30lbs and still NED. The "New Normal" certainly has it's ups and…
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Katie
Have just read a post by Katie on facebook, she needs our encouragement badly, things are too much for her at this point.
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Better news than expected
I had a PET scan on Tuesday and went back yesterday (Friday) for results. Comparing Nov scan to this week, cancer in Maxillary sinus is much smaller. I will continue with chemo (taxol). I do have a yeast infection in sinus, have been treated for the last month for bacterial infection. Stopped antibiotics and will be taking…
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5 yr check in
hello one and all. Wife here.... been a while, think you many of you often. We (my husband) has reached his five year mark. He is doing well, has been a grandpa for 5 months!... actually talking about retirement :) hope you are all well ... and for new members...if you are just beginning I won't sugar coat it... it is…
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Another Check-Up
While I don't post here often anymore , I do check in and read the posts ..I saw my oncologist today and am now officially 40 months cancer free, the only thing is she said she wants me to loose 20lbs by the time she sees me again in October, she won't let me out of the 6 month routine until I hit the 5 year mark, my ENT…
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i am new normal are you?
Friends, March 23rd marks 3 years post, the day I wore the mask for the last time. I wish to thank everyone who participates in the H&N forum and all the good advice that comes from radiated heads. Still batting NED! Matt
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Checking in
going to see my ENT TOMORROW - good to see the regulars still being regular- glad John is feeling better - seems he had a " bump in the road" glad all seems well now. It's hard to believe it has almost been 2 1/2 years since my last treatment. I have just been feeling some discomfort in the area where the lymph nodes were…