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Katie
I do believe Katie is in the hospital with pneumonia, there is a posting in my facebook timeline. Hope I am wrong
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dentist in Oregon
Hello I had tongue cancer and it spread to my lymphnodes when I was 21 years old. I'm 36 now and having constant dental issues because of the radiation. I just moved to Corvallis, OR and I'm looking for a Dentist who has experience with this issue. I'm willing to travel if there is an experienced dentist available. Any…
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Meegs...Rest in peace
Dear friends, I am so sorry to tell you that our friend Meegs passed away on 14/5/2015 at the age of 29. Her fight started with esthesioneurblastoma but then the reoccurrence reached her brain and then spinal cord. I glad that I met her here and chatted with her over the past year, she was such an inspiration and supported…
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Neuroendoctrine tumour
I seem to have hit the jackpot in cancers. My third cancer is very rare and hard to detect called neuroendoctrine tumour. I was diagnosed this month. My three cancers were unrelated. If I can get a hat trick in cancers why can't I win the lottery I would think the odds are the same. The tumour/tumours are in my small bowel…
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Being released
Got cellulitis again last Sunday and was admitted Tuesday. Been on IV antibiotics, got c diff so then more antibiotics. Difference of opinion between infectious disease doc and my ENT on long term antibiotics. ENT concerned for necrosis on right jaw so wants to be in prevention mode. Other Doc says no issues with…
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For Mother's Day(Not Cancer Related)
For all of you who remember me and those that don't know me, I hope eveyone had a pleasant Mother's Day. As you know, I lost my husband Ron two years ago followed by my daughter Debbie just ten months ago. It was a rather sad day for me as all holidays are for some of us. For the first time in nearly 50 years, I did not…
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Surgery to Repair Soft Palate
Hi everyone! I am 8 years cancer free after being diagnosed with NPC in 2006!! My soft palate was heavily scarred because of my radiation treatments and I have had problems with hypernasality, food and drinks going into my nasal cavity, and then subsequently aspirating that food into my lungs when I breathe sometimes. I…
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Cardboard
Hi. Here is a me, me, me message that leads to a question. I have base of the tongue cancer and I just finished my 3rd week with a combination of chemo and radiation. The treatment has killed almost all taste buds and many salivary glands. The total lack of taste has given me negative incentive to eat and I’m losing way…
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Elaineh
Just wanted to help out Elaineh, she's new here.... So I'm helping her get started with her introduction and her first post about herself here on the forum.. John
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Laryngitis and bronchitis after treatment for SCCa hypopharynx
Hi everyone. I was treated last year for piriform sinus Cancer with chemo then chemo radiation. I had an excellent response and am NED 15 months later. I did well during treatment, was able to eat the whole time and didn't lose an ounce of weight. I lost my voice for about a week. Then on completion of treatment late June…
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Seek bless and help
I came here first July, last year. At that time, i guessed i have a NPC since i have a family history and bleeding mucus in the morning and painless swollen lymph nodes on left neck. But through CT scan and nasal endoscope, everything is good. I have done biopsy with needle and came back with no cancer cells. So i think…
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what to do prior to starting treatment
Hi, I have just learned that I have stage 4 SSC of the tongue with 2 lymph nodes affected. I meet with the surgeon tomorrow to find out if I am a candidate for a hemi-glossectomy and I am assuming that a neck dissection is also in my future. The Radiation Oncologist told me that radiation treatments would be best after the…
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Radiation Induced LARYNGITIS -
Hi All - Had my ENT visit today and all looks good (scope and finger exam). He certainly heard my voice and agreed it sounded pretty bad, I have been fighting this very weak and hoarse voice for about 2 weeks + now. During the scope he said to the nurse (who was taking notes) "extremely dry vocals". Nothing on them, they…
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Dizzy spells 5 years after
Hello, I have just crossed the 5 year mark. Everything has been great but last month I started having dizzy spells. Saw the neurologist today and he thinks one of my arteries to the brain has harden. He says this can happen from people who have had radiation. Just wondering if anyone has heard of this happening to anyone.…
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Drinking Aloe Vera
has anybody tried Aloe Vera as a remedy for burns from the Rads internally,I'm just preping for the burn to come all info appreciated! Thanks to all you guys and my HEROS! Ed , .
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Checking In - 3 Years
Hi All I just wanted to check in as I haven't been on in quite some time. I was diagnosed with MEC back in 2012. All is well with me, and I went past 3 years all clear in March this year on my latest scan. This place was a fantastic help when I was 'on the bus', and for all of you in the early stages after diagnosis there…
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GoodMorning
Just Checking in to See How everyone is Doing
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Do you ever stop worrying
now I'm swallowing again, which im over the moon with...I've started to worry ....what if.....the liquid or food dribbles into my lungs while it's going down. Do you know/feel if it's going the wrong way. I shouldn't be worrying about this, I read about people going into hospital because they get pneumonia from food going…
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Pancreatic cancer
My friends mom was diagnosed with pancreatic cancer but I don't see a room for pancreatic cancer- any suggestions anyone?
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Post ENT visit~
I finally saw the ENT again today and he reviewed the CT sinus scan and double checked some other things! It was very comforting news as he said I have a turbinate dysfunction caused by severe allergies! That is what he thinks has caused the swelling! He believes the headaches are caused by the congestion I have…
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Snuc : Protons therapy or Tomotherapy ? Seeking advice
Dear Snuc survivors, My husband (35 YO) was diagnosed with a snuc two months ago. He did respond very well to the first two first rounds of chemo. The tumor is almost all gone. He is now scheduled for a 6 weeks radiation treatment with chemo. He should be treated with Tomotherapy. Altough, i've recieved a different advice,…
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checking in
Hi! just wanted to say hi. Dima is doing really well! The only issue we are having is that he is not gaining weight (currently 125). Other than that, he is doing really well He does deal with neuropathy, food still doesn't taste all that great and has dry mouth BUT he is getting better and better everyday. It is great to…
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New to group - My mom was diagnosed with a Glioblastoma in February
Hello, In FEB my life changed as I found out my mom had brain cancer. In the beginning of Mar, she had surgery to remove some of the mass and to test it to confirm it was cancer. After the operation, she had to wait 4 weeks before treatment could start. When she had the MRI prior to her radiation treatment starting, the…
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Checking in -- More fun on the horizon
I've been reading CSN on and off for the past several months, but have not posted since we lost Pat (aka, 'Longtermsurvivor'). Part of it has been that my ORN continues to be a problem, even after a left jaw resection last May. The latest is that I am scheduled in June to have some bone and other tissue taken from my left…
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Post CT Scan~
I saw my PCP today and wished I had more specific info but did find out that nothing too significant was seen on sinus CT scan except swollen turbinate. Doc wants me to see ENT which is sceduled May 8th. I know this is good news to some extent but will be more relieved to see ENT next week for more specifics! Doc also…
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Nasopharyngeal Carcinoma
Hi My Name is Sam! I'm Happy To Say I Have Been In Remission For 4 Years! i Was Diagnosed At 19 With Nasopharyngeal Carcinoma Stage 4! i Did Chemo And Radiation And It Was A Very Tough Time In my Life But I Am Hapy to Be On The Other End It Has Greatly Changed my Life And To this Day i Still Deal With Side Effects....One…
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Eye cancer
Can't remember if I told you all that my mom now has cancer in her eye. Don't know if anyone here has delt with it but apparently it is included as a head and neck cancer. She was diagnosed with lung cancer and two lymph nodes over two months ago. The Oncologist doesn't know what to do about treatment and keeps changing…
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*New* Question about hot spots on PET
I had my first PET scan after surgery and radiation for SCC of the tongue. The primary site and side looked good, however I had some hot spots pop up on the opposite side in my tonsil, a jaw muscle and a lymph node beside the jaw muscle. My radiation doctor said not to worry Because it was on the opposite side, and I'd…
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Prostate
Don't know if I posted anything much about my diagnosis of prostate cancer a couple of years ago. I had a biopsy due to the fact that both my dad and brother had prostate cancer. The biopsy showed a minimal amount of cells in the prostate. Classified as gleason 6 which is the lowest it can go. Recently had a follow up…
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Looking for tips!
Hi there I'm new to the site but have found it to be a great resource so far. I am 30 years old and was diagnosed with SCC of the tongue HPV negative, in October. (When I was 18 weeks pregnant!) I went through two surgeries, one being a hemiglossectomy the day after Christmas. luckily, the cancer was just localized to the…