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Are there any chat lines for breast cancer on the internet?
I have been waiting forever for the chat line to be back up and running. Is there anywhere else just for breast cancer that has a chat line?
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Cataracts and chemo
I had my last chemo treatment in December [A/C x4 then Taxol x 12]. Now I have developed a cataract that is developing quickly. My eye Dr said that is normal for a chemo induced cataract. Anyone else out there have the same problem?
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Itchy palms and feet??? Dry eyes
I've been on taxotere and cytoxan. I have one more chemo left. However, after the last round, I developed some new side effects. Most aggravating is the dryness of the skin on my hands and feet. And, they itch like crazy. Has anyone else experienced this, and if so, was there anything other benedryl that helped? I've also…
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Silicone vs Saline
Help me decide which is better. I was really ready to go with saline, my PS wants me to have silcone implants - spec: cohesive gel as part of Mentor CPG continued access study. Surgery is 4/14. Any/all advice is welcomed. I miss u all! Cathe
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hair loss/Taxotere
I am due to start my chemo soon which will be four treatments every three weeks of Taxotere/Cytoxin. I know you can't believe everything you read on the internet, but in the Forum (email discussion) section of breastcancer.org, some people wrote in that in a small number of women, taxotere can cause PERMANENT hair loss!…
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10 thoughts...
1. Learn to PLAY--it's the source of youthful energy. 2. PAUSE before you eat; reconnect with your sense of taste. 3.Small, conscious actions can sustain your SPIRIT. 4. PACE yourself. Fatigue has a way of sneaking into our lives. 5. Set LIMITS. No one said you have to do it all. 6. Desire is an EXPRESSION of your deepest…
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How is everyone.
Sorry chat down, but am to help. Going on the 6th year here of breast cancer free in PR. So Lucky. Cindy
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fear of the unknown .....
I joined CSN back in January '06 as a caregiver to my husband who was just diagnosed with tongue cancer. I met so many great people who helped me through some trying times and I like to think that I was able to be there for some of you who needed an ear to just listen, words of encouragement to hang in there, a prayer…
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Vitamin D, exemestane & joint pain
My nurse practioner at last visit told me to go get tested for vitamin D deficiency. She said that it is very common and contributes to joint pain in folks like me on an aromatase inhibitor. I'm on exemestane (aka aromasin). In spite of 3 glasses of milk a day, a multi-vitamin with D, and a calcium supplement with D, I was…
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Tissue expanders and radiation
Hello ladies. I met with the PS yesterday who shared with us his ideas about what I can do immediately following my mastectomy. He said that since I will have radiation and reconstruction will be delayed, he can put in an expander. Okay, I feel like that would be a good option. Something will be there when I finish…
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New Here, Need Spirts Up lifted
Hi, Iam 33 with a husband and 13mth baby girl, I have a tumor in both breast, one is a stage one the other is a stage 3. I meet with the reconstruction dr. yeasterday and became completely catatonic with a slight melt down. I just finished 4 rounds of A/C and will have a bylateral Myscetamy in two weeks. I am trying to be…
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Facing mastectomy
Hello! I'm new to the site. I'm 32 with invasive ductal carcinoma of my left breast. I had neoadjuvant chemo and will have my last Taxol on Thursday (yay!!) I'm going to have surgery next month, and am very nervous about it. I would love to hear your experiences about how to cope with a mastectomy. Also, I am constantly…
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bad fingernails
Since starting on Xeloda & Tykerb, fingernails developed ridge and catch on everything, fear ripping them off! suggestions?
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Thyroid problems after chemo
Hi to all my sisters. Was wondering if any of you developed thyroid problems after going through chemo. I had 8 rounds of Adriamycin and Cytoxan. I finished my chemo on Nov. 16th, and am now having complications that seem to be thyroid related. I have had an ekg and echocardiogram and my heart is good, but I am retaining…
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Intimacy following reconstruction
Hi,Ladies, I would really like the straight talk about sex and intimacy following reconstruction. I'm really going back and forth between having a unilateral vs. a bilateral mastectomy. I will have delayed reconstruction because of radiation treatments. My husband is 100% fabulous and has told me that he loves me (every…
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Mouth Rinse for Sore Mouth
My doctors gave me a mouth rinse for my sore mouth, throat and tongue - one of my side effects from cytoxan/taxotere. It worked. I was told to swish and gargle 4 -5 times a day. It doesn't taste great, but it sure soothes. Here is goes. You may need a pharmacist, chemists or someone good at conversions to put this into…
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Hair - How Fast Does It Grow?
My peach fuzz and stubble started to come back shortly after my first chemo. I was thrilled because it was a little reassurance that it would grow back. My final chemo is scheduled April 18th. Once I'm finished, how long does it take for your hair to really start growing and how long does it take until you can wear a…
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breast cancer to liver
Any one dealing with DCIS spred to liver? Would like to share experiences! Mine diagnosed 11/07
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Interim Chat site while we are waiting for CSN to get back ....
If anyone wants to email me, I can send you the link to the chatroom our csn Breat Ca survivor sister PatsyAnne and her hubby Jedisin have set up for us! LOTS of us from csn chat are there daily! The site is called Southern Hospitality, and it is a wonderful place to meet and chat...just like old times! Get in touch with…
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Some People Are Never Satisfied....
I am truly glad that this is a venting place~ I am positive I need my attitude adjusted, and you are The Women to do that for me! So I thank you in advance.... Saturday I went to a birthday party for my brother -in-law. My b/f and I drove 400 miles to surprise him and the family where they were having dinner. ( My sister…
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timing/starting chemotherapy
I had a mastectomy on Feb. 21. I have had some problems with draining that now appear to be on the road to resolving, but I am getting concerned that delaying starting my chemo may be dangerous to me (my doctors have said that first I have to stop draining before they can start the chemo). I read on the internet that chemo…
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Us and them
This is really in reply to Claudia's post about less than enthusiastic cheering for her five year mark. These thoughts may be off base so please let me know, ladies. Anyway, I think the worse thing about that silence on the part of the untouched by C folk is that it exposes the gulf that lies between them and me. It is a…
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Please Give Updates
Hey All My Sisterhood, Since the chat room has been down for several weeks, I find that I am in a total withdrawal. I miss hearing how everyone is doing and what is going on their lives. I feel disconnected with each of you because I found that I chatted daily and was really feeling connected with a "team of…
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Help
How does one pay their bills. I'm a single mom and my son is 19 and helps when he can. I'm not working at this time my disibility has ended. My doctor still has not released me yet, cuz I'm still doing the chemo. Waiting for my hair to fall out. But having trouble gettin my rent money. How does one do it? Any ideas...
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Weakened Immune System
Hello, I am almost four years out of treatment (lumpetomy, chemo, rads, now on Tamoxifin) and I find that I am sick all the time. I have a two year old in daycare, so I am on the frontline for some major germs. Every week for the last six months, I've either had a stomach bug, bronchial infections, bad cold, etc. I get…
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Chat
If the chat room ever opens is it open all the time or just certain times or days? When I found the site a week or two ago the site was down. I wish it would hurry up and be fixed. I emailed this site to find out when it would be fixed but never got a response. Thanks
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In a tailspin
I thought I was dealing with my cancer real well until two weeks ago. At that time I received word that my brother passed away. He died from lung cancer that had spread to his bones, liver, and brain. What has me in a tailspin is he wasn't dx until two weeks before his death. He only had a pain in his hip. He was also the…
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Cherish this Day
Our trees are beginning to bloom here in the South. A few days ago I saw a bluebird sitting on my deck rail, singing to his heart's content. I just stood there with tears flowing, thankful that I get the privilege to see another spring. What is everyone doing to enjoy each day this springtime?
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discouraged about Oncotype test
I have invasive intraductal cancer and had a mastectomy on Feb. 21. I am hoping someone can say something encouraging or at least help me to put into perspective the results of my Oncotype test. Until I got the results this past Monday, I was actually pretty hopeful: my cancer is estrogen positive, the tumor was only 1.1…
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THE DRAIN IS A PAIN
I had a mastectomy on 3.4.08. Three weeks later, I am still draining at the rate of 60 to 70 ml....The surgeon says it has to drop to 30 before I get it out. Has anyone else had the problem? Is there anything I can do to reduce the drainage (surgeon said nope, just time). I will be doing chemo and Herceptin. I would be…