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Vitamin D, exemestane & joint pain
My nurse practioner at last visit told me to go get tested for vitamin D deficiency. She said that it is very common and contributes to joint pain in folks like me on an aromatase inhibitor. I'm on exemestane (aka aromasin). In spite of 3 glasses of milk a day, a multi-vitamin with D, and a calcium supplement with D, I was…
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Tissue expanders and radiation
Hello ladies. I met with the PS yesterday who shared with us his ideas about what I can do immediately following my mastectomy. He said that since I will have radiation and reconstruction will be delayed, he can put in an expander. Okay, I feel like that would be a good option. Something will be there when I finish…
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New Here, Need Spirts Up lifted
Hi, Iam 33 with a husband and 13mth baby girl, I have a tumor in both breast, one is a stage one the other is a stage 3. I meet with the reconstruction dr. yeasterday and became completely catatonic with a slight melt down. I just finished 4 rounds of A/C and will have a bylateral Myscetamy in two weeks. I am trying to be…
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Facing mastectomy
Hello! I'm new to the site. I'm 32 with invasive ductal carcinoma of my left breast. I had neoadjuvant chemo and will have my last Taxol on Thursday (yay!!) I'm going to have surgery next month, and am very nervous about it. I would love to hear your experiences about how to cope with a mastectomy. Also, I am constantly…
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bad fingernails
Since starting on Xeloda & Tykerb, fingernails developed ridge and catch on everything, fear ripping them off! suggestions?
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Thyroid problems after chemo
Hi to all my sisters. Was wondering if any of you developed thyroid problems after going through chemo. I had 8 rounds of Adriamycin and Cytoxan. I finished my chemo on Nov. 16th, and am now having complications that seem to be thyroid related. I have had an ekg and echocardiogram and my heart is good, but I am retaining…
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Intimacy following reconstruction
Hi,Ladies, I would really like the straight talk about sex and intimacy following reconstruction. I'm really going back and forth between having a unilateral vs. a bilateral mastectomy. I will have delayed reconstruction because of radiation treatments. My husband is 100% fabulous and has told me that he loves me (every…
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Mouth Rinse for Sore Mouth
My doctors gave me a mouth rinse for my sore mouth, throat and tongue - one of my side effects from cytoxan/taxotere. It worked. I was told to swish and gargle 4 -5 times a day. It doesn't taste great, but it sure soothes. Here is goes. You may need a pharmacist, chemists or someone good at conversions to put this into…
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Hair - How Fast Does It Grow?
My peach fuzz and stubble started to come back shortly after my first chemo. I was thrilled because it was a little reassurance that it would grow back. My final chemo is scheduled April 18th. Once I'm finished, how long does it take for your hair to really start growing and how long does it take until you can wear a…
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breast cancer to liver
Any one dealing with DCIS spred to liver? Would like to share experiences! Mine diagnosed 11/07
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Interim Chat site while we are waiting for CSN to get back ....
If anyone wants to email me, I can send you the link to the chatroom our csn Breat Ca survivor sister PatsyAnne and her hubby Jedisin have set up for us! LOTS of us from csn chat are there daily! The site is called Southern Hospitality, and it is a wonderful place to meet and chat...just like old times! Get in touch with…
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Some People Are Never Satisfied....
I am truly glad that this is a venting place~ I am positive I need my attitude adjusted, and you are The Women to do that for me! So I thank you in advance.... Saturday I went to a birthday party for my brother -in-law. My b/f and I drove 400 miles to surprise him and the family where they were having dinner. ( My sister…
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timing/starting chemotherapy
I had a mastectomy on Feb. 21. I have had some problems with draining that now appear to be on the road to resolving, but I am getting concerned that delaying starting my chemo may be dangerous to me (my doctors have said that first I have to stop draining before they can start the chemo). I read on the internet that chemo…
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Us and them
This is really in reply to Claudia's post about less than enthusiastic cheering for her five year mark. These thoughts may be off base so please let me know, ladies. Anyway, I think the worse thing about that silence on the part of the untouched by C folk is that it exposes the gulf that lies between them and me. It is a…
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Please Give Updates
Hey All My Sisterhood, Since the chat room has been down for several weeks, I find that I am in a total withdrawal. I miss hearing how everyone is doing and what is going on their lives. I feel disconnected with each of you because I found that I chatted daily and was really feeling connected with a "team of…
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Help
How does one pay their bills. I'm a single mom and my son is 19 and helps when he can. I'm not working at this time my disibility has ended. My doctor still has not released me yet, cuz I'm still doing the chemo. Waiting for my hair to fall out. But having trouble gettin my rent money. How does one do it? Any ideas...
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Weakened Immune System
Hello, I am almost four years out of treatment (lumpetomy, chemo, rads, now on Tamoxifin) and I find that I am sick all the time. I have a two year old in daycare, so I am on the frontline for some major germs. Every week for the last six months, I've either had a stomach bug, bronchial infections, bad cold, etc. I get…
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Chat
If the chat room ever opens is it open all the time or just certain times or days? When I found the site a week or two ago the site was down. I wish it would hurry up and be fixed. I emailed this site to find out when it would be fixed but never got a response. Thanks
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In a tailspin
I thought I was dealing with my cancer real well until two weeks ago. At that time I received word that my brother passed away. He died from lung cancer that had spread to his bones, liver, and brain. What has me in a tailspin is he wasn't dx until two weeks before his death. He only had a pain in his hip. He was also the…
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Cherish this Day
Our trees are beginning to bloom here in the South. A few days ago I saw a bluebird sitting on my deck rail, singing to his heart's content. I just stood there with tears flowing, thankful that I get the privilege to see another spring. What is everyone doing to enjoy each day this springtime?
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discouraged about Oncotype test
I have invasive intraductal cancer and had a mastectomy on Feb. 21. I am hoping someone can say something encouraging or at least help me to put into perspective the results of my Oncotype test. Until I got the results this past Monday, I was actually pretty hopeful: my cancer is estrogen positive, the tumor was only 1.1…
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THE DRAIN IS A PAIN
I had a mastectomy on 3.4.08. Three weeks later, I am still draining at the rate of 60 to 70 ml....The surgeon says it has to drop to 30 before I get it out. Has anyone else had the problem? Is there anything I can do to reduce the drainage (surgeon said nope, just time). I will be doing chemo and Herceptin. I would be…
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Greatly Humbled
Hi Everyone.. Tonight a most remarkable thing happened to me. I go to school two nights a week besides working a full-time job. Usually the last two weeks of the month I work 10-12 hours starting at 3 or 5 am. So on the Tuesdays and Thursday nights that I go I usually get very little sleep and don't eat dinner. Well,…
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Your response to my stage IV post
Thanks to all of you for your words of encouragement and I will definitely look for the chat room to reopen and get to "meet" you.
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Awaiting Hair Loss
I started my treatment almost two weeks ago and I am wondering how long I have before my hair comes out? Can anyone help me!
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GLAD TO BE A PART OF THIS GROUP
I just had to write to say that even though I don't respond to every post, I do read them and feel so proud to be a part of such a great group of women. You are all so supportive. When I was first diagnosed in 2006, I was directed to this site immediately, and it has been a constant help reading the posts. When you come to…
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Thank You.
I just wanted to thank everyone for words of encourgement on the site. I feel like I have so much to work out in such a short time. I will have my bilateral mastectomy in two weeks, I have not worked out the child care, sleeping arangements in my home so my husband can get a good night sleep, he has to work, My mom will…
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bilateral mastectomy
Hi...just wondering what those of you who have had a bilateral mastectomy wear now? Do they make a prosthesis that is lightweight? I got the staples out today...and now i have seroma..they drained it today and will again next week...sometimes all this treatment gets you down..I'm just looking forward to getting on with my…
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problems with plastic surgeon/updated
To everyone who wrote me about the problems with my plastic surgeon (recap: I had my surgery on Feb. 21 and my plastic surgeon has not seen or talked to me since that day: his Physician's Assistant is seeing me). I wanted to tell everyone what happened: I called the office and was very confrontative: I said that I had…
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Quick update on recurrence w DCIS
Saw the surgeon yesterday. He looked at the mammo and the MRI film and he feels that there may be a place deeper in as well as the calcifications. He can see that the calcifications could be attributible to the fat necrosis of my mastectomy scar but he also did my bilat mastectomy and knows my history. So, he sent my film…