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Just diagnosed with Melanoma Colorectal Cancer...
Yesterday my Doctor called with the results of the test done on the hemorrhoid he recently removed - Melanoma Colorectal Cancer. It's very rare. I'm waiting to hear from my Doctor's Oncologist for an appt. I've been crying most of the day and have been talking with friends and family for support. I found this website from…
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do I take him to the ER?
My dad is entering his 6th week of chemotherapy and radiation. He's had a really rough go of it in general- lost 40 pounds, can't eat, lots of pain/burning/bleeding and bli.sters from the radiation, etc. The latest development is that his arm started swelling up- the arm closest to his port. According to my step mom they…
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Pain in the Butt
Has anyone had pain in the tailbone area (specifically between the buttocks, not the anal area, a little further back)? I'm 3.5 years post treatment and about a month ago I started having this discomfort that comes and goes in that area. I feels like when I fell on ice a few years ago,landed on my butt and bruised my…
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1 year
Hi everybody, I am not on this often, but would like to thank everyone for their input. Especially, Martha.I went in for my one year scope last week and my surgeon said NED. Pretty frightening minute of silence waiting for her to tell me that. Next time I hope she doesn't use a 2x4 lol. Take care everybody!
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Metastatic liver cancer inquiry
Hello everyone - New to this forum, but long time AC survivor. Hoping this will post to the AC group. Was former member of Yahoo Health Group for AC. Wondering if anyone in our group has been diagnosed with metastatic liver cancer following treatment for AC. Would appreciate response as to what type of treatment was…
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chemo after surgery
I had my surgery a week ago, have a tempory ileostomy. The pathology came back with a complete reversal, the surgeon says I don't need the second round of chemo, but the oncologist wants me to do it. The cancer came back a stage 2 Any thoughts?
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Stage 4 colon cancer with mets to the liver and now anal cancer diagnosis
Hello everyone, I'm new to this forum and wanted to reach out to anyone with any words of encouragement or just to talk because I'm a mess right now. Here is a quick rundown on my fight. I was diagnosed with stage 4 colon cancer in august of 2013 and had a colon resection in October of 2013. In November of 2013 I started…
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APR Surgery
Hi All; I'm freaking out a little (ok, a lot) because after 4 years I've had a reoccurance that is going to require a APR (Abdominal Perinuim? Resection) and I've done enough research to know that it is pretty major. * How did the surgery go? * Complications? * Recovery time before getting back to work? * Any pain after…
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It's Been Awhile
Hello everyone. It's been awhile since I have been on this board. I am one of the people who was so grateful for all the support given to me by the wonderful people that come here but also didn't want to come back. I really hope everyone is doing well. My 5 year anniversary is supposed to be December 21st but I am a bit…
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Friday, I celebrate!
Just a very quick update. I saw my colorectal doctor yesterday and, as usual, my time spent in the waiting room to be called back to an exam room was much longer than my time spent in the exam room. Finally, I was called back and she came in, asked me how I was doing and was I having any problems or concerns. I told her…
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Chatroom
Please come in chatroom. Would appreciate some company!
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Anyone who has liver mets?
Hello - I posted the last entry and was wondering if anyone on this site has been diagnosed with liver mets and could discuss their treatment. Thanks.
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SKIN CARE FOR ANAL RADIATION
HELP! I am having radiation to the anal area and I need suggestion on how to care for the skin ... YEs Im in touch with my Dr , but wanted to hear your experinces
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Bleeding
Hi, I am 5 years post treatment and doing pretty well. From time to time, I have bleeding after a BM. It really scares me a lot. Is this normal this far out from treatment? thanks.
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HPV vaccination: Slate, July 8, 2016 article.
This article imparts some useful information in a national forum. And although I don't usually support Big Pharma ads, the one in this article is dramatic and important. I'm glad I had my boys vaccinated 10 years ago, as was their pediatrician. Spread the word http://www.slate.com/blogs/xx_factor/2016/07/08.…
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GiGi's Anal Cancer Story - "I believe"
Hello, October 28, 2012 My name is Genevia but affectionally known as GiGi. This is my story of anal cancer diagnosis. For me, finding this site has been a blessing and I want others to know my experience and that they are not alone. I'll update this post as the future unfolds. I appreciate your prayers. Me: I'm a happily…
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Colostomy After Anal Cancer
My husband was diagnosed with anal cancer a year ago (squamous cell). It may have recurred (we will know within a week after several tests). Has anyone had this experience and if so, can you tell me if you had to have a colostomy? Any info you can give me about colostomy would be appreciated.
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Hope for others and a survey on oncologists
First of all, I have been a medical transcriptionist for 40+ years and know a little more than the average person. Which isn't always good, but has kept me from having at least 1 operation before the diagnosis was made that would have screwed me up for the rest of my life in terms of cancer elsewhere. I am now 2 1/2 years…
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Stage 3B Anal Cancer
My mom has been diagnosed with Stage 3B anal cancer, so I just wanted to see if there were any survivors out there who had conquered this stage of the disease. And if so, I was wondering if you wouldn't mind taking me through your experience. What was your course of treatment? Were you responsive? And so on and so forth.…
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Immunotherapy
Interesting series of articles in the New York Times (31 July) on immunotherapies. A trial for a.c. at MD Anderson is mentionned.
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Level of impairment during/after treatment
I was just wondering how you guys fared during/after treatment? Were you able to drive yourself to treatments, or did you have to have a friend or family member drive you? Did you continue to work? Were you able to grocery shop, pick up prescriptions, make meals, etc.? If not, at what point did you notice the change, and…
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How to support dad while he waits for treatment
Hi, all, My dad was diagnosed with squamous cell carcinoma of the rectum 2 weeks ago after months of (unsuccessful) treatment of internal hemerrhoids...which turned out to never have existed in the first place. Now that we finally know what has been causing all of his pain and bleeding for the past few months, it feels…
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Anal Cancer & nearby lymph nodes T3 N1
hi there, I found this great website and am wondering about some personal experience views. My mum was diagnosed with anal cancer a tumor growing in the sphincter muscle. as it only showed in a Pet scan as a small growth and nearby lymph nodes the medical team went with chemo and raditaion to try and shrink it, apparently…
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GI Cancers Alliance
http://tinyurl.com/hhnrprb Check out this article on improved ollaboration in GI oncology...note the member organizations of the GI Cancer Alliances. I sent a copy of this to the HPVAnal Cancer Foundation. We definitely need more visability and support!!!
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TEN years NED today....Stage 3
Hey again, Today, I'm inspiring myself and maybe one or two of you as well. I made it to TEN years cancer free today with Stage III. Very few long term effects and although I won't say that I am cured, it simply feels outstanding to get HERE. Cancer is not a death sentence and I was diagnosed when my son was only a few…
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Low carb and bm's
About a year ago, I started eating low carb to see if it would make a difference in my BMs as I was having 10-12 a day. This is my only long term side effect from radiation. I have to say that it was the best thing I ever did. We all have take control over our health and for me anyways, fibre is NOT my friend. After eating…
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Pain during BM ?
I have Stage 3b anal cancer. I completed treatment (chemo and radiation) on April 18th and I am still having terrible pain during every bowel movement. Is this normal? When does it start getting better??
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mets to lymph node
I was diagnosed with anal cancer in early 2013. I had the standard Nigro protocol which was interrupted for two weeks when I was hospitalized with an ileus – ouch – but I eventually finished the treatment, put it all behind me (har har) and went on with my life. I was sadly suprised last month when a PETscan and needle…
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Oncologists, PET scans, second opinion
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Dating
I have been diagnoses with rare anal malanoma cancer. They are going to start radiation as well as chemo to try to shrink the mass. After that they will do surgery. If the mass still remains the same size because of the location they will do a radical surgery and I will have to have colstomy bag. I am a 58 year old widow.…