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Leg weekness paralysis
Two weeks out of surgery for rectal cancer. Stage 2. Already completed radiation and first round of chemo. Legs very week, especially the right. Also numbness from ankle to knee on right. Tumor was located against the rectal muscle. Surgeon said got clear margins. Permanent colostomy. Just didn't know it was going to…
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Condyloma with high grade squamous intraepithelial lesion (AIN 2 and 3)
I'm so scared that I have a recurrence. Any words of advice or encouragement are appreciated. The surgeon wants to do another exam in six months. It's been four years...does it really ever go away?
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My cancer has metastasized to my bones my hip
I have anal, colorectal sigmoid/rectum, breast and non Hodgkins Lymphoma. I have done chemo/ radiation and am still doing it but I was in the hospital last week and my left hips was popping and hurt did a PET and bone scan. My hip has bone cancer . I had surgery. I still have a temporary ileostomy and had a left…
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Anal fissures
Good morning, April will be two years since I finished treatment. Everything is good. I go in every three months to see my colorectal doctor. Im beyond thankful, it was caught earlier and I pray I have several more years to celebrate! The only thing I have had since radiation finished is an anal fissure that will not go…
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Sorry for TMI
Hey all! I began treatment for anal squamous cell carcinoma (3 cm tumor and possible involvement of one node) on 1/16/17. I have had one round of mitomycin/5FU and 8 radiation therapy sessions so far. I had a somewhat hard stool today, and noticed a little bit of blood. Could this be due to inflammation from radiation or…
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Notes From Conference of International Neoplasia Society 3/17/15
Reposting as requested. Notes from conference I have gone over my notes from the conference yesterday and will try to summarize as best I can. Dr. Eng and the two other professionals who spoke were quite squeezed for time, so they zipped through everything really fast, so my notes are sketchy, but here goes. Dr. Eng * The…
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Recurring symptoms
I finished treatment on December 14 and have been doing great. I started having some itching again yesterday. Has anyone else had this? I am worried it's not gone, should I be? I don't have a follow-up until March 29. Wendi
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Anal paps and other prevention
is anyone getting anal paps after treatment to determine early AIN and or reoccurrence? are any of you getting high resolution anoscopy routinely? is anyone getting any reoccurrence preventative treatment such as topical medications? Is anyone aware of any preventive treatments being provided Anywhere? thanks
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5 Year Anniversary and 2 Days Later a Growth on Kidney
Hi everyone. I hope you are all doing good and will doing even better soon. I can't believe that on Dec 21st I celebrated my 5 year anniversary and then on Christmas Eve I had a CT scan at the ER because of adominal pains and they found a 2.8 cm growth on my left kidney. I am trying to not to freak out but honestly, I have…
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bun Wipes
Hi group ... has anyone found a good flushable "wet one" for use post BM? My skin is permanently damaged and sensitive (as many of you also struggle with) ... something that cleans well, yet moisturizes? You might think I'd have this figured out at 6 years out, "butt" my skin is getting worse with time. Thanks ... sending…
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Sound familiar?
hello, about 6 months ago I started getting diarrhea /loose stools. Three months ago hemorrhoid symptoms started...itching, bleeding, and my vaginal area got dry, not inside my vagina but all the outer areas. While using hemorrhoid cream I noticed a lump inside my anus. pea size. had precancerous cells on cervix in 90s and…
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Recurrence Symptoms
Has anyone had a local reoccurrence? If so, when was your initial treatment? When was your reoccurrence? What were your symptoms? How was reoccurrence treated? Thanks ... fearing a local reoccurrence 6 years after treatment and follow up.
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New Here...PET SCAN Results
Hello all I have been lurking for about a week now...You all have truly been my lifeline in the last week... My question is my PET SCAN came back showing lymph node near cancer is questionable they now want to do a needle biopsy before a treatment plan can be established (I found out last week I have Anal Cancer) how much…
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SOME QUESTIONS
Hi everyone, hope you all are doing well and that our new year has been good to you. I have some questions that I'm hoping some of you might be able to answer and put to rest my curiosity, but let me give you some details which might help I finished treatments as of 12/27/16 I had radiation for 6 weeks, and two rounds of…
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PET scan surprises?
Hi again, all! I hope you are all doing well! I was wondering if anyone here had anything surprising show up on a PET scan that didn't show up on their CT scan? I have been told by 5 different doctors that my CT scan was clear aside from the original mass and possibly a couple lymph nodes right near it. If that's the case,…
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CT/PET scan versus CT contrast
I have a question about PET versus CT scans. My metastatic (to liver) anal SCCA responded well to systemic chemotherapy (6 rounds of cisplatin and 5FU). The PET scan following the completion of chemo shows no uptake at all (SUV zero everywhere). CT scan shows 65% decrease in the linear size of the liver mets (RECIST…
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Sleep Apnea
It's been a while since I've posted here. In Dec 2016 I turned 3-years NED from anal cancer. And I hope I continue to have a clear call from my Oncologists in Feb 2017. The reason why I'm coming here today is to ask a question or two and possibly get some feedback on a health issue I have. In Oct 2016 I was diagnosed with…
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Second opinion?
Hey all! I'm back again. One more question...did any of you get a second opinion after your dx? Would it be beneficial in any way? I don't want to delay getting treatment, but a friend who survived triple negative breast cancer suggested it. Thoughts? -Amy
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Freaking out. Could use a friend.
Hey all. I had my first ct scan this morning and won't receive results until Tuesday morning at the earliest. I keep trying to replay the doctors words in my head, "caught it early, 3 cm, didn't feel lymph nodes, not a large cancer..." But I can't help but freak out because I haven't gotten the actual scan results. As I…
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Bright blood
Just had my flex sig done week or so ago. Dr said it looked good. Well tonight I use the bathroom and notice blood on the toilet paper. Not constipated either, believe me im never that haha. was wondering if it could be scar tissue? I am five months post chemo and radiation. That happen to anyone else that is a Anal cancer…
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New here. So scared.
Hi everyone. My name is Amy and I was just diagnosed with Squamous Cell Carcinoma Anal Cancer. I've been reading some of the posts here and they are helpful, but I'm absolutely terrified roght now. I am only 36 and I have 3 gorgeous babies that I need to live for. I am going for my first CAT scan tomorrow and then I will…
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Merry Christmas
Hi everyone, I just wanted to wish you all a very Merry Christmas and hope you are all blessed with health and happiness in the New Year. My holiday season was spent mostly at Froedtert Hospital in Wisconsin as about 2 weeks ago my husband was dx with a large cancerous tumor on his spine (a recurrance of a previous dx of…
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JUST AN UPDATE
Hi everyone, wishing you all a happy upcoming holiday! Just thought I would touch base with were things are at with me since my last posting. I have completed the second round of chemo, and needless to say I hope I will never have to another, for some reason the second round seemed a lot worse than the first, I had a lot…
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IUD and pelvic radiation-helpful hint
If you are just getting started with pelvic radiation treatment and have an IUD I would suggest getting it removed. I was told to just leave mine alone and it has scarred in and can't be found by my gyn. She says it's no big deal but I don't like the idea that it's there and can't be removed.
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Hair question
I have been off chemo since the 11th of November, while on it I had no side effects what so ever, however after being disconnected I developed such bad mouth sores that my diet consisted of liquids. They finally went away 2 days before Thanksgiving which made me really happy and I was able to not miss out on all the great…
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Gastroparesis registry.
I don't remember who it was here who was struggling through gastroparesis, but I happened to see this request for registration and for a questionaire: http://iffgd.org/clinical-trials-studies/nih-other-sponsored-clinical-trials-and-studies.html ,
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Lost trust in VA
You can read my story under (misdiagnosed by VA). Due to the misdiagnosis (almost costing my life), I have lost all trust in the VA. The VA being my only health care (cancer being treated outside VA, at there cost under Tri West), I have only seen my primary once. I have been thru 3 primaries in 3 yes because they keep…
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AM I A WORRY WART OR WHAT
I'm sure by now everyone on this forum must be sick of me, I think for the last four days I have posted either a question or concern regarding my treatments. I am starting treatments this Monday, and having extra anxiety over it, I was initially diagnosed in September, the only scan I had was a pet-scan on the 28th of…
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Surgery in the morning
Well at 6 am I'm going into surgery for anal cancer and breast cancer! I'm scared silly
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Newbie
Hi everyone, recently I found this much needed site and I can't thank you all for sharing your stories and experiences. In February of 2016 I was diagnosed with anal cancer, and by June I finished chemo and 7 weeks of radiation. Recovery has been toughish - but the cancer is gone. I wish I had found this site before I had…