Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Anal Cancer

Recurrence - really?
A litle background: last April I discovered a lump on my leg, embedded in my calf muscle. Don't worry, can't possibly be a met, anal cancer never goes to the extremeties. That from my onc, my radiation onc, the onc nurses, the surgeon who did the biopsy, but of course they were all wrong. It didn't bother me much so for…
Vaginal Bleeding
SO, I'm five years post treatment and I've recently noticed some vaginal bleeding in addition to the fairly regular rectal bleeding. Has anyone else experienced this. I haven't been to the gynecoligist in a couple of years, because she was unable to do any kind of internal exam due to the mess that radiation left. The…
searching for the best anal specialists in United States
Hello members I was recently diagnosed with anal cancer stage IIIB on Dec. 17, 2015 and underwent the 6 week treatment of radiation and chemo. My first follow up appt. consisting of digital exam is scheduled for March 31th. I have been reading that an experienced physician seeing at least 20 cases per year is vital for…
Bleeding in center of 2012 treatment area
I had some unexplained bleeding right around New Year's Eve, my surgeon said it appears right in the center of the old treatment area it may have been bleeding. He said the same thing during one appointment, then 3 months later. He also said I have 2 internal hemorrhoids and 1 external hemorrhoid. He plans to do an…
Pelvic Radiation Disease
http://www.macmillan.org.uk/Documents/AboutUs/Health_professionals/P215TRMGIBooklet_AW.pdf This is guidance for professionals for GI symptoms post pelvic radiation. i hope the link works Liz
Secondary brain tumour
Hi, my mum was diagnosed with anal squamous cell cancer in August 2014, she had chemo/radiotherapy and was in remission June 2015. Start of June she had a seizure, MRI showed a mass in her brain, left frontal lobe. She had surgery at the end of June 2015 followed by whole brain radiotherapy in August 2015) to remove it and…
Hello to all
It's been so long since I checked in to the board that I had to play around with my sign in before I could get on. I hope you are all doing well. Scans this Thursday and of course scanxiety is setting in. Last anoscopy went well however I have increased bleeding lately. The doc says it's radiation damage but we all know…
Colonoscopy hip pain
So, I had a colonoscopy 3-31. I get the polyps also as well as being 5 year survivor. Anyway the had my on table two hours to remove two polyps. Still two Moe in there, but report says they did not remove due to length of time. Anyway, my left hip has been hurting ever since. I talked to nurse, doesn't have an idea why. I…
Next Round
My last CT scan was not as bad as I had expected, all the little critters are still growing of course, but not by too much and those wonderful little yttrium 90 spheres are holding the flanks and killing off the middle of the tumors in the liver, hopefully allowing it some relief. So, having suffered the Erbitux acne/rash…
Invasive Squamous Cell Carcinoma in the Perianal Margin
Hello Everyone, I am so happy I have found this forum. Last Thursday, I was diagnosed with SCC in the anal margin, moderately differentiated. No HPV was found. The tumor size is a 4 mm in thickness. The suture tagged deep margin is negative for tumor involvement. I still have cauterized tumor cells present at the radial…
Now it's the other end
Since it's been almost 5 years (March) since I was diagnosed with anal cancer, I was hoping I would be finished with doctors. I had a stereotactic breast biopsy Tuesday. My oncologist called today. He said it wasn't cancer, but precancerous DCIS. If I waited six months to a year, it could turn into cancer. So I have to…
Hello!
Hi all....I just happened upon this site as I was doing some research regarding my previous cancer. I was diagnosed and went through treatment in 2009, so this year will be #7 for me! I continue to have some skin issues from the radiation from time to time, but other than that, I think I can contribute most of my other…
One year since diagnosis....
Hi there, im coming up on my one year since being diagnosed with AC. I feel great other than trying to keep my stools Soft. I'm on miralax almost evert night. I developed an anal fissure early on and I feel it's finally getting healed. I still go to the bathroom at least 2-3 times a day or more but all and all everything…
Five years...
Five years ago this month I was diagnosed with stage 2 anal cancer - my, how time flies! Now I'm dealing with DCIS (Ductal carcinoma in situ) - it's either one end or the other. This was day 6 of radiation treatments and 29 more to go. It's still early, but so far so good (knock on wood). I smear on emu oil when I get home…
An update - it's been FOR.EV.ER!
My presence here today is to offer hope to those who are fighting. This board brought me great comfort as I fought my way back to normalacy following the years after treatment for Stage 3B squamous cell carcinoma. I am happy to report that in November I had my final annual check up with my surgical oncologist at Baylor…
Vitamin B17 and/or Apricot Seeds - Any success?
Hello everyone: Anyone tried the Vitamin B17 and/or Apricot Seeds with good success in their cancer symptoms on this forum? What stories can you share with me? I respect everyone's opinion on what they believe in help with alternative medicine. Appreciate any comments offer. Thank you very much for taking the time to post.…
Sarah Cannon Research Center
It's been a while since I posted to the CSN. I was diagnosed with a reoccurence of inoperable anal cancer about a year ago. My first occurence I went through concurrent chemotheraphy and radiation and was given a 90 percent chance of living. Things were good until last April/May when I experienced severe pain. An ER visit…
Perianal Invasive Squamosh Cell Carcinoma - Another Re-Excision or Chemo/Radiation Therapy
Hello Everyone, Today, I had my first appt with the Oncologist. My PET/CT scans came back clean. No cancer inside my body or lymph nodes. What a blessing!! The Oncologist is suggesting chemo/radiation, because, the SCC is still at the margins. My tumor size was only a 4 mm, very small. I asked the Oncologist about having…
Pelvic Radiation Disease Article from Oncology Nurse Advisor
This is an interesting article from the website Oncology Nurse Advisor. Radiotherapy side effects: Understanding pelvic radiation disease Radiotherapy side effects: Understanding pelvic radiation diseaseAs many as 50% of patients undergoing pelvic radiation therapy define their quality of life as degraded due to subsequent…
Cetuximab-based treatment of metastatic anal cancer
http://www.ncbi.nlm.nih.gov/pubmed/19923868
2nd "Anniversary" Stage 4
Two years ago today, I was diagnosed stage 4 w. mets to node and liver. It has been a long journey, for sure. In addition to dealing with this disease, I face near-daily assault of insurance mistakes and related issues. Finances are always a concern. But it's not all bad, of course. There have been many miracles along the…
I was told no side affect for 3 weeks
I started my treatment monday last week around 10 by 8 i was throwing up the doctor said it not chemo or radition. But im only on half the dose because i dont poses it. So tueday i was so weak and still getting sick i went to the clinic. They stop treatment and said i had the flu. By wed i was red has a lobster. I only had…
My Visit with the New Oncologist and Update
As you all know, I was scheduled to meet the oncologist who took over my case due to the death of my doctor back in December. I saw her on the 25th. and I like her very much. She seemed familiar with my case history, so she had obviously done some homework prior to my arrival. She is very young, but I see that as a good…
Help with Clinical Trials
I am going to post this on the colorectal forum as well as its a general topic. My first scan to see the efficacy of Erbitux is in a couple of weeks. As I have never had a chemo that has made a dent on my liver, lymph etc. mets, I don't hold out much hope here either, so I've been researching clinical trials, again. How is…
Martha (mp327) you are an Angel!
I wanted to express my appreciation to you for staying on the board and putting in such a great effort to advise and comfort for other members here. Almost 3 years ago it was a member with anal cancer who brought me to this forum. Turned out I had rectal cancer, but I revisit this forum to check how I can still contribute…
Long time survivor
I thought I would share something from another forum. Someone has recently joined or at least recently started posting. She is 26 years out of treatment!!!!!! Not without her problems due to treatment, but 26 years!!!!! Thought you'd like to know Liz
New Hope for Anal Cancer Patients
Please check this out! http://www.onclive.com/onclive-tv/dr-eng-on-emerging-agents-for-treatment-of-anal-cancer
Treatment is over-am I cancer free
I finally finished my treatment-2 weeks post radiation...now I find my self wondering if the cancer is gone (stage 2 no mets no nodes). I guess I just have to wait ?
anal ulceration improving
Have been off this board for a while. Honestly, due to anal ulceration, it is often hard to sit and write anything. Had done radiation last spring. Which was successful in treating primary anal cancer and met to node. I'm still having issue w mets to liver and lung. Doctors want me to continue chemotherapy treatment. I've…
Any ideas?
I am about 4 months post treatment. About a week ago I noticed and felt some small bumps in my rectal area. My wife said they looked looked like pimples or small boils. Any thoughts? Steve

Anal Cancer

Discussion List

Discussion Boards