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2nd "Anniversary" Stage 4
Two years ago today, I was diagnosed stage 4 w. mets to node and liver. It has been a long journey, for sure. In addition to dealing with this disease, I face near-daily assault of insurance mistakes and related issues. Finances are always a concern. But it's not all bad, of course. There have been many miracles along the…
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I was told no side affect for 3 weeks
I started my treatment monday last week around 10 by 8 i was throwing up the doctor said it not chemo or radition. But im only on half the dose because i dont poses it. So tueday i was so weak and still getting sick i went to the clinic. They stop treatment and said i had the flu. By wed i was red has a lobster. I only had…
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My Visit with the New Oncologist and Update
As you all know, I was scheduled to meet the oncologist who took over my case due to the death of my doctor back in December. I saw her on the 25th. and I like her very much. She seemed familiar with my case history, so she had obviously done some homework prior to my arrival. She is very young, but I see that as a good…
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Help with Clinical Trials
I am going to post this on the colorectal forum as well as its a general topic. My first scan to see the efficacy of Erbitux is in a couple of weeks. As I have never had a chemo that has made a dent on my liver, lymph etc. mets, I don't hold out much hope here either, so I've been researching clinical trials, again. How is…
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Martha (mp327) you are an Angel!
I wanted to express my appreciation to you for staying on the board and putting in such a great effort to advise and comfort for other members here. Almost 3 years ago it was a member with anal cancer who brought me to this forum. Turned out I had rectal cancer, but I revisit this forum to check how I can still contribute…
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Long time survivor
I thought I would share something from another forum. Someone has recently joined or at least recently started posting. She is 26 years out of treatment!!!!!! Not without her problems due to treatment, but 26 years!!!!! Thought you'd like to know Liz
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New Hope for Anal Cancer Patients
Please check this out! http://www.onclive.com/onclive-tv/dr-eng-on-emerging-agents-for-treatment-of-anal-cancer
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Treatment is over-am I cancer free
I finally finished my treatment-2 weeks post radiation...now I find my self wondering if the cancer is gone (stage 2 no mets no nodes). I guess I just have to wait ?
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anal ulceration improving
Have been off this board for a while. Honestly, due to anal ulceration, it is often hard to sit and write anything. Had done radiation last spring. Which was successful in treating primary anal cancer and met to node. I'm still having issue w mets to liver and lung. Doctors want me to continue chemotherapy treatment. I've…
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Any ideas?
I am about 4 months post treatment. About a week ago I noticed and felt some small bumps in my rectal area. My wife said they looked looked like pimples or small boils. Any thoughts? Steve
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Problem with Port
When I went for my bi-weekly Erbitux infusion yesterday, the nurses couldn't access my port - no flush and no return. I've had a lot of trouble with the port in the past but we've nearly always got it to work eventually. My oncology nurse and her supervisor said that the port was broken and because of its positioning they…
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More side effects of cancer therapy of which to be aware.
"Heart doctor uses cancer battle to fight for her patients" - http://www.msn.com/en-us/news/us/heart-doctor-uses-cancer-battle-to-fight-for-her-patients/ar-BBprhLJ Dr Sabaliauskas is a cardiologist who started a cardio-oncology program at her hospital to evaluate heart problems prior to cancer treatment and then follows up…
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Regret..
does anyone regret having chemo/radiation? If you had known the side effects would you have chosen differently? Would you do it again? Thanks, Lorikat
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Body fuilds
I had read when doing chemo that you should take caution that your body fuilds shouldnt touch others like get sick and even kissing. I was wandering because i have my gran baby who lives with me and other gran children i sure dont want to hurt them.your if they take a drink from my glass. Please help.
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Gas and pain
The Gas i have. Is very painfull. I haven't started treatment but any one every had gas and crampes really bad and the pain in my back is terriable its going done my legs. And i know that feeling like have to go is part of it. But the pain is terriable im crying and scaring . its making me sick. Is this normal.
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Just beginning
Tuesday I finally saw a GI for what I thought was a fissure. She felt a mass and ordered a colonoscopy for Wednesday. Today is Thursday and her office called to see me tomorrow morning. I'm very scared. I'm 63,female who has had ibs symptoms for a couple of years. Just dealt with it until an extended period of constipation…
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Im scared
Im going to start treatment in a week. My health isnt good to start with how well radiation and chemo. Affect my other issues like i have ibm and cronic pain all the time. Whats the long term issues.
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Hair lost
I havent started treatment yet and you guys have been get helping me. One question did any of you guys lose your hair on the head i was just wondering.
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HPV from husband's affair
I have been married 12 years. I accidentally caught my husband 56 year old having an affair. The affair lasted 15 months. The woman, an ex girlfriend, lived just 3 blocks away and he was begging her for sex. They both swear they did not have sex, that it was only text, pictures and phone conversations. The woman died a…
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Tumors on the Run!
My trip to Houston last week was not much fun as I still had (and have) a stinking cold and cough. I was so afraid that I was going to have a coughing fit while on the scanner that I took a Lorazepam (anti-anxiety) along with a hefty swig of cough medicine right before, and no, I didn't tell them. The scan showed that the…
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Pap Tests\.HPV test
Ihave never had a "suspicous" pap test . Because of my older age, and 3 years of normal pap smears, I had discontinued having Pap tests and, only had a gyn exam every other year. I was considering lengthening the times between those exams. Now, given my a.c. diagnosis, and the fact that I was HPV positive (although the…
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Great News
Yay! I just passed my two year mark NED and get to have my port taken out. Encouraging news for all of us! This was from Stage 3B, chemo radiation and no surgery. With God's grace I will be working on bringing up those percentile statistics for 5 year NED next. Merry Christmas, Good Dog
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Happy Valentine's Day!
Happy Valentine's Day! May life surround you with people who adore you and appreciate your love. Laz
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Erbitux
I got my second dose of Erbitux Friday and so far so good. I usually react very badly to chemos - mucho diarrhea and vomiting and even heart spasms from 5-FU, so I was a bit apprehensive even though they told me the worst side effect is a rash. I was good for about 10 days then woke up with about five or six of those…
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Hey everyone
Hi Guys, It's been a long time. I was expecting to write a "6 month NED" post on here this week, but unfortunately on my mum's PET scan they found a micro hot spot on her operation site. For anyone who doesn't know, she was diagnosed nearly 2 years ago with t1/no/mo anal cancer and unfortunately her treatment didn't work,…
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can this cancer spread quick
I was diagnois in dec and had my test done by the first week of jan. Now they found a spot in the gion so they are doing an other mri can it spread that fast.
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Surgery or not
I have read a lot of responses from people were staged the same. Some received surgery first before chemoradiation, others didn't. Does anybody know what determines the decision on treatment? Steve
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Good for today.....and thats ok!
Hi everyone, For those who don't know me...... (I was initially dx with Stage 3 anal cancer in 1-2011 and treated with chemo/rad and what was meant to be reversable ostomy surgery but due to excess scaring the ostomy became permanent. In 3-2012 I was dx with a rare breast cancer (unrelated to the anal ca) and treated with…
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possible recurrence
Hello I had anal cancer in 2011 and did the chemo/radiation treatment. Everything has been ok except for the incontinence and leakage I have permantly. My doctor always told me he had never seen it come back after three years. Anyways I just had my scope done yesteday and she the new Dr (mine retired) :( thought she felt…
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Pain in hips. buttocks, legs and groin area after radiation and chemo for anal/ rectal cancer
Hello, I am new here and not sure how this all works, but here goes. I am a rectal cancer survival of 1 yr. I have consistently experienced pain in my hips, buttocks, legs and groin area. Some days are worst than other but I hurt everyday. I get very stiff when I sit for periods of time and it hurts if I stand for too long…