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Anal Cancer

Friday, I celebrate!
Just a very quick update. I saw my colorectal doctor yesterday and, as usual, my time spent in the waiting room to be called back to an exam room was much longer than my time spent in the exam room. Finally, I was called back and she came in, asked me how I was doing and was I having any problems or concerns. I told her…
Chatroom
Please come in chatroom. Would appreciate some company!
Anyone who has liver mets?
Hello - I posted the last entry and was wondering if anyone on this site has been diagnosed with liver mets and could discuss their treatment. Thanks.
SKIN CARE FOR ANAL RADIATION
HELP! I am having radiation to the anal area and I need suggestion on how to care for the skin ... YEs Im in touch with my Dr , but wanted to hear your experinces
Bleeding
Hi, I am 5 years post treatment and doing pretty well. From time to time, I have bleeding after a BM. It really scares me a lot. Is this normal this far out from treatment? thanks.
HPV vaccination: Slate, July 8, 2016 article.
This article imparts some useful information in a national forum. And although I don't usually support Big Pharma ads, the one in this article is dramatic and important. I'm glad I had my boys vaccinated 10 years ago, as was their pediatrician. Spread the word http://www.slate.com/blogs/xx_factor/2016/07/08.…
GiGi's Anal Cancer Story - "I believe"
Hello, October 28, 2012 My name is Genevia but affectionally known as GiGi. This is my story of anal cancer diagnosis. For me, finding this site has been a blessing and I want others to know my experience and that they are not alone. I'll update this post as the future unfolds. I appreciate your prayers. Me: I'm a happily…
Colostomy After Anal Cancer
My husband was diagnosed with anal cancer a year ago (squamous cell). It may have recurred (we will know within a week after several tests). Has anyone had this experience and if so, can you tell me if you had to have a colostomy? Any info you can give me about colostomy would be appreciated.
Hope for others and a survey on oncologists
First of all, I have been a medical transcriptionist for 40+ years and know a little more than the average person. Which isn't always good, but has kept me from having at least 1 operation before the diagnosis was made that would have screwed me up for the rest of my life in terms of cancer elsewhere. I am now 2 1/2 years…
Stage 3B Anal Cancer
My mom has been diagnosed with Stage 3B anal cancer, so I just wanted to see if there were any survivors out there who had conquered this stage of the disease. And if so, I was wondering if you wouldn't mind taking me through your experience. What was your course of treatment? Were you responsive? And so on and so forth.…
Immunotherapy
Interesting series of articles in the New York Times (31 July) on immunotherapies. A trial for a.c. at MD Anderson is mentionned.
Level of impairment during/after treatment
I was just wondering how you guys fared during/after treatment? Were you able to drive yourself to treatments, or did you have to have a friend or family member drive you? Did you continue to work? Were you able to grocery shop, pick up prescriptions, make meals, etc.? If not, at what point did you notice the change, and…
How to support dad while he waits for treatment
Hi, all, My dad was diagnosed with squamous cell carcinoma of the rectum 2 weeks ago after months of (unsuccessful) treatment of internal hemerrhoids...which turned out to never have existed in the first place. Now that we finally know what has been causing all of his pain and bleeding for the past few months, it feels…
Anal Cancer & nearby lymph nodes T3 N1
hi there, I found this great website and am wondering about some personal experience views. My mum was diagnosed with anal cancer a tumor growing in the sphincter muscle. as it only showed in a Pet scan as a small growth and nearby lymph nodes the medical team went with chemo and raditaion to try and shrink it, apparently…
GI Cancers Alliance
http://tinyurl.com/hhnrprb Check out this article on improved ollaboration in GI oncology...note the member organizations of the GI Cancer Alliances. I sent a copy of this to the HPVAnal Cancer Foundation. We definitely need more visability and support!!!
TEN years NED today....Stage 3
Hey again, Today, I'm inspiring myself and maybe one or two of you as well. I made it to TEN years cancer free today with Stage III. Very few long term effects and although I won't say that I am cured, it simply feels outstanding to get HERE. Cancer is not a death sentence and I was diagnosed when my son was only a few…
Low carb and bm's
About a year ago, I started eating low carb to see if it would make a difference in my BMs as I was having 10-12 a day. This is my only long term side effect from radiation. I have to say that it was the best thing I ever did. We all have take control over our health and for me anyways, fibre is NOT my friend. After eating…
Pain during BM ?
I have Stage 3b anal cancer. I completed treatment (chemo and radiation) on April 18th and I am still having terrible pain during every bowel movement. Is this normal? When does it start getting better??
mets to lymph node
I was diagnosed with anal cancer in early 2013. I had the standard Nigro protocol which was interrupted for two weeks when I was hospitalized with an ileus – ouch – but I eventually finished the treatment, put it all behind me (har har) and went on with my life. I was sadly suprised last month when a PETscan and needle…
Oncologists, PET scans, second opinion
Dating
I have been diagnoses with rare anal malanoma cancer. They are going to start radiation as well as chemo to try to shrink the mass. After that they will do surgery. If the mass still remains the same size because of the location they will do a radical surgery and I will have to have colstomy bag. I am a 58 year old widow.…
Anal structure?
Hi all its been a while since I've been on but I do check in time to time. My mom was diagnosed with stage 2 anal cancer in January of 2015 had the standard treatment 5fu/radiation. She was cleared NED in June of 2015. In the past month she had experienced constipation which is rare for her so she went to her oncologist…
Follow-up Scans-how often for Stage 1-2
I have the 2016 NCCN guidelines and see that annual CT scans are for Stage 3-4 patients. It seems that many of you are having scans more frequently. I am Stage1-2, node negative. My onco started out mentionning every 3 months. I think that is alot of radiation (I also have had breast cancer in each breast),the scans for…
Good news from Laz
Got my test results back and it's all good. My CEA is 2, but it's been always fluctuating around here and the oncologist says it's cool. Well what's is he gonna say? So I'm ok with it too. Worry never ends though. Will be 3 year NED in October. I come here every day to check on you and trying to support those who need it.…
Proton therapy vs IMRT
I have stage III a squamous cell carcinoma. I was wondering what side effects people have experienced from doing IMRT (radiation)? I am looking into doing proton therapy as well, but there is not a lot of evidence yet as to success from it. I welcome thoughts and experiences.
Is this possible?
I went to my surgeon six weeks ago, she scoped me and said everything looked good only scar tissue. This week I passed a small amount of blood during a bowel movent . Today I don't have pain but rather just a soreness. Could something happen that fast?
http://www.analcancerfoundation.org/
oHPVAnalCancer Foundation has updated it's website and has a wealth of information. Check it out! NYTimes Magazine section for 5/15/16 is devoted to several interesting articles on the latest translational research directions. Our protocol is 30 or 40 yrs old! There are practically no new clinical trials for a.c ,and a…
Update
I saw my colorectal doctor last Thursday for my 6-month routine follow-up and all looked good. Of course, she asked me when my last colonoscopy was done and I told her 2-3 years ago. And before she could say a word, I spoke up and said I was not ready for another one for awhile. I proceeded to tell her about my recently…
Where we live and Where we were treated
there have been many questions from new members and others about Drs and treatment centers. Perhaps it would be helpful to list where we . liveand where we were treated. Tanda Philadelphia, PA...treated by GI cancer team at the University of Pennsylvania...MitomycinC (only 1 initial treatment), Xeloda and Proton Radiation.
Relay Time.....
Hi all, Hoping today finds everyone with at least some sense of well-being along this adventure! So, I live in a rural area and most residents that care to participate attend the relay in a close neighboring town that does a big event. While my town does a relay, we are included in the same district and ours is much…

Anal Cancer

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