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Update T1A
Jim's surgery scheduled for the 23rd at UT Med Center in Knoxville has been canceled after closer inspection of the endoscopy ultrasound. Two nodules were discovered around the area that will be extracted; however the doctors believe that chemo will be needed prior to as opposed to after. Originally we were not…
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husband seems to be giving up?????
Since Ed got the bad news a week ago that the pet scan showed first three rounds of chemo did nothing in fact, the cancer grew, he has basically stop eating and drinking. He lost five pounds in three days and we are suppose to start new chemo regimen tomorrow. I am basically very very concerned about starting any new chemo…
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sherri-please answer me ok
you and I have talked before Sherri, his doctor does not want to put in a feeding tube nor does eddie want one right from the beginning. We see an oncologist where there are four other doctors, should I ask for a second opinion before we start chemo tomorrow. I have thought about this before but ed just says "no" leave…
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CHAT
I TRIED TO GET ON THE CHAT BOARD AND IT DOESN'T COME UP. DOES ANYONE KNOW WHY? lUCILLE
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gained weight finally!!!!
Hi, I am still so sad over the bad news about Al because he got his surgery just before I got mine and I was hoping all would go well for him and Kath and then Weezies husband has gone on as so many of our friends here have, that like Lori says in her post you feel guilty when it is going okay for you. I have had my ups…
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Vitamin D
Hello All, Good Morning America just had a segment on Vitamin D and cancer. I know this is not new for a lot of us.....Sherri, I think you turned us on to this months ago. I am sure you can find the segment on line....just go to GMA's website......and start taking your Vitamin D. I added it to Charlie's meds (with the Dr's…
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Al and Kath (mumphy)
I spoke with Kath this morning. I'm sorry to pass on this sad news. Al has lost his battle to this ugly cancer at 5:30 this morning. Please say prayers, extra prayers for their family. His family waw able to come up and visit. Kath will write more when she's able. Just please keep praying for them all. Erika
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Naseau and vomitting
Ed has not had chemo for three weeks, as you all know, he did three rounds of cisplatin and campostar and last week's pet scan showed it did nothing at all, in fact, this horrible cancer even grew more to his liver and abdomen. Now he is suppose to start oxalipatin by iv and xeloda six pills daily starting this upcoming…
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Al will not be with us much longer
Hello, I am posting to tell you all that Al has lost the battle with this disease. We met with all of the Dr's today and it has spread to the point that it my be in his brain we opted not to do any more scans. His liver is failing and will no longer be able to with stand any type of aggresive chemo therapy. He will only be…
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First trip to the Oncologist
Lyle has his first appointment scheduled with the Oncologist this Friday. We have questions like...How will the treatment effect his dialysis. What should we expect? What are some other questions we should ask to be informed about his treatment? I appreciate your guidance! Thank you, Susie
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TIRED OF BEING SICK
HELLO, MY HUSBAND WAS DIAGNOSED WITH EC APPROX. 2 AND HALF YEARS AGO. HE DID NOT OPT FOR SURGERY, BUT RADIATION AND CHEMO. HE IS NOW ON HIS THIRD SESSION OF CHEMO. THE CANCER DID SPREAD TO HIS LYMPH NODES. HE HAD HER 2 IN HIS TISSUE AND IS TAKING HERCEPTIN 2 WHICH IS FOUND IN BREAST CANCER PATIENTS. HE IS TIRED OF BEING…
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We saw the oncologist...
Well...Lyle and I went to the Oncology appointment and was greeted by a surprised doctor who didn't seem to know the Lyle is a dialysis patient! So...We left without a plan...paperwork to make a PET scan appointment...a promise that the radiologist will be calling us to schedule an appointment...a request for another blood…
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Burning feeling on tongue
My dad was diagnosed with EC-Stage IV a few days before Christmas 09. He's on his second cycle of chemo and has started to have a burning feeling on his tongue. It's making it difficult for him to eat certain foods. Does anyone have tips on how to relive the burning sensation? Thanks so much! Carolyn
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Update on my dad
Well I'm writing again with sad news. He's still in the hospital and is still sick. Hopefully he'll be better tomorrow. The oncologist called me mother to say that she needs to talk to them about discontinuing chemo on my dad. I'm outraged about this. She hasn't seen my dad and to be so cold as to call my mom and say this…
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bile duct blockage
My husband was having lots of pain Tuesday and was becoming jaundice, he was scheduled for chemo but wasn't able to after his blood work came back. He had elevated levels of bilirubin and many other things. He had a CT scan to confirm a bile duct blockage and ended up having surgery yesturday to insert a stent to drain the…
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I FEEL SO BLESSED, AND WE HAVE LOST SO MANY ON THIS SITE IN THE LAST SIX MONTHS
Hello everyone, I just wanted to post something and hopefully everyone will feel the same, we have lost so many of our friends on this site in the last six months because of this ugly beast we call esophogeal cancer. Kathy aka Mumphy signed up on this site about the same time, as I did we have become close cyber friends.…
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Side effects?
Well, we don't know if they are side effects, or if Jim caught a bug of some sort. He has a bad productive cough, so the PA called in a scrip. Then he was nauseous for the first time since starting chemo. Took the Compezine and it worked for a little while, then not. Don't know what to think. We see the PA this afternoon,…
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Re-Starting Chemo Tomarrow
Hi All, Al has his f/u appointment with all of the Dr.s tomarrow. First we see the neruosurgeon to see whats going on the the mets in his spine. Then we go to the oncologist to see about re-starting his chemo. Thank God for Hillman Cancer Ctr. all of the Dr.s are there on Thursdays so we go from the 3rd fl. down to the…
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Does anyone know what to do about the foamy substance that develops
Hi All, Has anyone experienced that foamy substance that develops in your stomach? I've had it for the last few nights and it is very discomforting. Have you found a way to treat yourself when it happens or even know what it is, and why it happens>? Any information would be a big help. Thanks. God Bless!!!
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Here is the latest on my dad.
He is doing good, you know the saying, one step and day at a time. Thats how we take it now.. He had his 1st chemo treatment on the 28th of Jan, he did good. Didnt get too sick but for sure during that first week he didnt wanna eat at all. He lost 6lbs. He did feel the cold sencetivity right away. They switched his nause…
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Update on my dad
Well I'm writing again with sad news. He's still in the hospital and is still sick. Hopefully he'll be better tomorrow. The oncologist called me mother to say that she needs to talk to them about discontinuing chemo on my dad. I'm outraged about this. She hasn't seen my dad and to be so cold as to call my mom and say this…
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Hi, All! I'm new to this and am looking for some support and information
I was diagnosed with EC on 9/25/09 afte an EGD. I had been experiencing stomach pain, inability to keep food down and dramatic weight loss. I tried to ignore this out of fear, but of course, that didn't work. I have had one full 6-rounds of chemo and was told I was in remission on 12/22/09. On 01/21/10, I had surgery in…
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update on my dad - not good
Things aren't going well at all. He had his G tube and that went well. Friday night he ended up in the ER with a swollen stomach and an oozing tube. It's infected. They cleaned it up and sent him home with antibiotics. Yesterday he had his 1st chemo, 5FU and oxiplatin. They got home late, around 9 and my dad starting…
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New chemo treatment have lots of questions
My husband did three rounds of cisplatin and campostar, recently pet scan showed it did nothing in fact, his cancer grew more, more mets to liver and stomach. So the doctor today changed up his treatment plan to: Oxalipatin done by vein once every 21 days xeloda three pills in am and three pills in pm (500 mg each pill) I…
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My husband just diagnosed
I am seaching for answers and many are scarey! My husband is a dialysis patient and began having trouble swallowing. The endoscopy found cancer...about 7 cm tumor...seems small. Next test was a CT scan which we were told no spread of cancer...but no one could give us a stage. Later that night the doctors office called…
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Both Parents Diagnosed -- I think things are about to get challenging
Hello. My parents and I have always been relatively healthy, until now. In August of this year, my mother was diagnosed with breast cancer. A month after that, my father was diagnosed with esophagus cancer. I joined this site because I think things are about to get more challenging with my parents, and all of this is new…
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what is the name of oral form of 5fu?
My husband's doctor may be changing him to this oral form of 5fu, what is the oral name and how big are these pills as he has a swollowing issue? what other chemo drug is it usually put with? Is 5fu stronger than cisplatin and campostar which he did three rounds and the pet scan showed it did nothing and actually his…
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oral 5fu
Has anyone tried oral chemo 5fu, two pills daily along with vein chemo. My husband's oncologist may be suggesting this treatment plan next week and I would like opinions. I thought 5fu was given intravenously. thanks
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Trying to get Dr. Oz to do piece on EC
Hi, I wrote an email several weeks ago, asking the Dr. Oz show if they could possibly do a show on EC since we have so many people find out in the later stages that they have this terrible disease. I mentioned I did not want to be on the show just thought that he does so many public service shows where he tries to make…
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T3N0M0
T3N0M0 - is the result of Lyle's endoscopy with ultrasound. Next step, they tell us it to see the Oncologist and then the surgeon. I'm curios to see what the doctors have to say...considering Lyle is also a dialysis patient. I have a hard time wrapping my mind around how all this is going to work with his current health…