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WE GO TO THE ONCOLOGIST TOMORROW MONDAY TO SEE IF WE ARE STILL CANCER CLEAR!!!
Hello all Well we are nine months from when we were first diagnosed with this ugly disease we call EC CANCER, we have had to go to the doctor if not every month every 3 months, this is our 3 month check up to see if we are still cancer free since surgery. Please continue to pray for us and wish us the best for the results…
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Long Island,NY North Shore LIJ Hospital??
Just wondering if anyone is from NY that might have had their surgery at the North Shore LIJ hospital? If so can you please tell me about your experience? Thank you Dorothy
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Nancy new to site
I was told I had Esophageal cancer Nov 2009. Went tot he Mayo Cinic her in Fla and it was reconfirmed. Surgery is scheduled for 11 Feb. I am luck I am told mine is just in the lining caught very early stage. I am scared!!!!! Lots of questions. Will I be able to eat regular food again? HELP I am losing it
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my esophagial cancer - metastatic to bone
Hi Everyone, Here is an update on what has been going on with me. During the holidays, I broke my neck, don't ask me how, but the pain was excruciating. I went to the ER with a severe neck & head pain and that's when they discovered it was broken. I was having trouble with my neck for about 2 months before. I thought it…
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Anyone here being treated at Johns Hopkins in Baltimore, MD???
Hi, Just curious if anyone is being else is being treated at the same place as my father. Thanks!!! Erika
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chemo what should I expect?
Hi I'm new here my name is Jim. I have EC. I have to start chemo tomorrow at Sloan Long Island. I dont think I have any restrictions as far as eating before treatment. Any advice would help should I eat breakfast first? Thanks Jim.
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prayers and help!
I am shaking so bad I can hardly type. Just got off the phone with onc. Dan's cancer is mets. Into lungs, aorta, lymph, etc. He suggested chemo. Dan is out of house with daughter. How can I tell him??? I'm so confused??1!! First they say no chemo because it will damage kidney, now that is our only option. Who do we believe…
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Thank you to Betty and Layne
Thanks to Betty and Layne for meeting with us yesterday. It was fun to meet both of you and enlightening to see Layne relaxed, eating well and seeming to be totally comfortable after such invasive surgery a short time ago. Jim's PET scan was today and he did well, although it hurts his shoulder to lie still with his arms…
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Update on Dad and a little help needed
So dad ment with the Surgeon again and then the Onc. Dr on Thursday! Since his set back he was only allowed to have clear fluids. Well they released him and said he could finally eat. FOOD!!! he was very happy, he still has to keep his Jtube in, well b/c you know he has to eat tiny amts and he needs ALOT of calories. They…
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Finally Home
Hi All, Al is finally home and is not in pain. He is so medicated right now that I am a little concerned. I'm sure come tomarrow he will be a little more with it. I have taken control of the meds for now because I don't think that he will remember what he has and hasn't taken. We go back to the oncologist next week and the…
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Surgery or no surgery?
The chemo and radiation treatment were not easy, but after discussions with the doctors and surgeons about surgery,I am left me with many questions. Should I have surgery or not? I have stage two. The tumor had gone through the wall of the esophagus, preventing my food from stay down. Radiation and chemo did shrink the…
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update
Hmmmmm where to begin. Well, first of all, our scans were great. Nothing on them. However, our pathology from the surgery could have been better. The margins were clear, but close. The tumor was more viable than they would have liked...and they would have liked it have all been dead. Therefore, Layne has been given clean…
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Got a 2nd opinion
Hi, As you know my brother works at the hospital where Al is, when I talked to him last night he gave me the name of another neurosurgeon to give a consult and 2nd opinion. Al is now scheduled to have his vertibre cemented tomarrow. I just find the entire thing very interesting, first there sending him home or to a rehab…
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Dad and esophageal cancer...
Hi my name is Shar I am now taking care of my dad after his surgery. My dad was diagnosed with esophageal cancer last sept. and had done chemo up to Nov. My dad had his esophagogastrectomy, with regional lymph node dissection. I got his pathology report and really don't understand it much. Dr. did say after surgery that it…
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Al's back procedure went well
Hi All, Al had his kyphoplasty this am and so far so good. He is still pretty druged up. The Doc said that it should help his pain. We will have 2 more radiation treatments and hopefully by next week get some chemo to get the rest of the beast out of his body. I thank all of you for your prayers and support. I will keep…
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good news from drs visit
Hi, We got great news from the drs yesterday. First the tumor was completely obliterated when they did the surgery and the positive node was right in the tumor area and not far away so that is all good news. The best news was that I will not have to have the inpatient chemo like I did before surgery. I will only be getting…
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Our first scans are Monday
We fly to Houston on Monday and do scans from 3:30-7:30. Then Tues we meet with Onc, Surgeon and Weds the Radiologist. We'd appreciate prayers, of course. I figure we have a total of 8 scans before we can breathe ...and 12 scans before we are declared cancer free at 5 years. I'm going to celebrate each set on the way. :)…
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Esophageal cancer RESEARCH!!! Lets GO!
Hi all---my EC CSN friends that are so intimately affected by EC. I don't want to repeat my (and my dad's) whole story bc it is so similar to all of yours and we are all in this together.---but if you want more info---just ask- :) I have been very involved in my dad's journey with EC and know it is far from over. I have…
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vomiting white foamy stuff---anyone psot surgery have this?
HI all, My dad is having some issues and my parents are having trouble figuring out what is a problem and what isn't. He has had some bouts with vomiting a foamy white material---he felt nauseous--but he says from "low" --just above the belly button area. I have read a long time ago of others having this---but can't find…
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a question for William Marshall
Hi, I am new to this site but noticed you are always on it with such great opinions and advice so I thought I would write to you. My husband, age 55, was diagnosed with stage four with mets to liver, stomach and behind lung in October 2009. We went to three oncologists for their opinions and all pretty much said the same,…
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Now the insurance says he can't stay
Hi All, Just had a heck of a day trying to figure out what to do with Al.. The insurance co.says he can't stay for pain control and for radiation treatments that can be done as an out patient, but he is to weak to come home so now they are trying to get him into a short stay facility. This all Suc-----. I am a mess. The…
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A milestone
Today marks the end of Paul’s first full week back at work. It sounds strange, but I am so proud of him. To be honest, I had my doubts about him going back, if he would have the strength and stamina after completing treatment. It helps that he likes his work. I told a couple of friends, but they just didn’t understand the…
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Betty just saw your question about my mentor
Hi Betty, Did not see your question on the board about my mentor till now. My cancer drs pick a survivor who had the same kind of cancer and things in common with you and assign them as a mentor. Mine is a wonderful 75 yr old lady named Mary who calls me and answers any questions I have about the surgery and her recovery.…
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ONE PRAYER ANSWERED AND MANY MORE TO GO
I just wanted to share some GOOD NEWS!!!!!!!!!!! we don't usually get to share good news its usually always bad news, so with that thought I had to share that Jeff got approved on SSD and it was less than 2 months when we got our first check. We went through a firm his company he worked for recommended and with the…
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Status Report on Al
Hi All, Thank you all for your prayers!!!They have been answered. He is being admitted to Shadyside Hospital this afternoon. They are going to have the neurosurgeon look at his back and hopefully fix it before his is discharged. He will also be getting the radiation treatment started,,They figured out that this is the best…
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Feeding Tube Question?
Well, I think we finally have my dad to a point to agree to the feeding tube? There are 2 different one's, Jtube and Gtube??? Does anyone have any information on either or which they would prefer. The nurse was suggesting both, at the same time. I'm going to do my research, but wanted to get the question out there. Also,…
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hair loss due to chemo???
my husband is on cisplatin and campostar...the dr said he will definetly loose all of his hair...has this happened to everyone on these drugs or does it vary from person to person?? please let me know thanks linda
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IS ANYONE HAVING PROBLEM WITH THE CHAT
HI AND GOD BLESS EVERYONE. I AM NEW TO THIS, BUT I WOULD LIKE TO CHAT WITH ANYONE WHO IS IN NEED OF A FRIEND AND ESPECIALLY THIS TYPE FO CANCER.
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Complementary Medicine-- Experience?
Hello. My father was recently diagnosed with esophageal cancer. He has an appointment with the oncologist tomorrow to further discuss his prognosis and treatment plan. He is not eligible for surgery because the cancer has advanced to his arm. He is a non Hodgkins lymphoma cancer survivor and has been cancer free for 30…
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New to this board
Hello, everyone. I am usually on the colon cancer board as my husband had colon cancer last year. I have a question for anyone who can help. My husband just had his first after chemo CT scan and it showed no metasizing. GREAT NEWS. Surgeon calls, because he is to have his first colonoscopy next week, post treatment and he…