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Just diagnosed stage 3-Many questions
First off this is my first post on the board but I have read it and it's been an invaluable resource for some of my concerns.I am a 61 year old male who had been in excellent health except for type 2 diabetes.. After thinking I had reflux I finally went to my doctor when I started to experience regurgitation after some…
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Any reccomended EC Center near Tallahasse, FL?
As some of you know my uncle is now going through the staging/diagnosing process for EC. They live in Tallahassee, FL. Is anyone (William?) aware of anywhere close by for them to look for treatment, staging etc? I can' believe they have to go through this now too... kim
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abdonimal pain
my husband is having abdominal pain, following dinner. He said that he ate too much, but he ate maybe a cup of food. any ideas on what to do
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A 4 min video from Dr Oz's show about Esophageal Cancer
Hi all You can share this with family & friends--to help prevent EC--just cut and paste address below. Kim Kardashian's father Robert (of O.J. fame) died of Esophageal Cancer after suffering with heartburn for years. Here she is on Dr. Oz's show last week talking about the link between heartburn and cancer. Very graphic -…
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Xeloda for Lyle
We saw the oncologist yesterday. She took Lyle's case to the Tumor Board and the group of radiologists and oncologists agreed that Xeloda pills would be the best course of treatment for Lyle due to his kidney failure and dialysis. They are concerned that the lack of kidney function will cause him to become too toxic.…
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Update on my dad
Well, the news is grim for my dad. The oncologist apt. yesterday didn't go so well. She feels my dad is too weak to continue with chemo. She says the chemo will kill him. He is very thin and pail and now VERY depressed. When I was visiting them on Sunday, he looked good to me, besides what I mentioned and I was fully…
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my husband has EC
I've always been too shy to participate in a message board. But this one I must join in. I found CSN yesterday while once again researching EC. I can read article upon article and it's all starting to repeat what I've already read. Then I came to CSN and started reading.You all seem like such caring and knowledgeable…
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just found our ANOTHER family memeber has EC....
Sadly, I just found out last night that my uncle (My dad's brother-) was diagnosed with EC> My dad just under went surgery for EC 12/7/09. I am so sad. They have not staged it yet. My cousin is a PA so she will be able to help and support him. Kim
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Chemo, working and weight
So dad is going into his 3rd chemo treatment. With the first one he did good, now with the second one he had trouble, he was sick and wasnt eating that much. So They are now putting him on steriods continuously and he will also be on the ktyril patch.They also put him on ativian which seems to be helping with his sleeping…
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pain
how long does the pain in the side rib cage continue after surgery. also, chest?
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Diagnosis of Barrett's Esophagus Saved My Life
I have been around a bout a week reading all of your post's and gaining a lot of information which has really helped me. My heart goes out to each and everyone of you,and your families. All of your stories are so much worse than mine. I just wish more people had more knowledg of Esophageal Cancer so there would maybe be…
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New here....My mom was just diagnosed with esophageal cancer
Hi everyone! My name is Jennifer and my mom, Nicky, was just diagnosed with esophageal cancer. It is a complete shock to everyone as she does not fit any of the risk factors and cancer does not run in our family. She is 57 years old and healthy otherwise. She wasn't feeling well since October of 2009 and had cold/sinus…
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In Loving Memory Of Albert R. Franko
To My CSN Family. This is the poem that was on the back of Al'S Memory Card. God saw you were getting tired, and a cure was not to be. So put his arms around you and whispered. "Come to me" With tearful eyes we watched you, and saw you pass away. Although we loved you dearly, We could not make you stay. A golden heart…
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How to explain this to my children
Hello, My mom is 55 and has stage 4 esophageal cancer. She was diagnosed the end of November 2009. Treatment seemed to be going well and then the pain hit. She has finished her chemoradiation and is waiting on scans. The pain is sometimes so much for her that she just rocks back and forth and moans. Last week it was found…
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For all the new ones to this site-OR if you want to make a difference...
Hi all my csn friends, I love you all, but am sad by the losses we have had recently and that we actually get new people frequently---that reminds that this disease is not as rare as some think! I want to share this educational site again---it has great info and would be good to share with family and friends.…
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1st Discussion Post
Although I have been ‘lurking’ on this discussion site for a couple of weeks now just getting the feel of things, this will be my first post to the site. My name is Michael and I was diagnosed with adenocarcinoma of the esophagus on Jan. 18th, 2010. I have been a member of another listserve site for several weeks now since…
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loss of memory
Hi all, over the past few days my husband's memory has significanly deteriorated. Yesturday, I had to remind him 5 or 6 times it was Thursday, he doesn't remember conversations with the doctors or the kids and many other things. I've never delt with cancer before, but I assume it's not just the medications he's taking and…
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PET scan results
We got Lyle's results today from the PET scan. They found one lymph node but right next to the esophagus. Soooo....it turns out to be T3N1M0...same as you, William. We will meet with the oncologist next week...get the port...meet with the surgeon to be sure Lyle is a candidate for surgery before the doctors finalize the…
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Cough
Jim has developed a terrible cough over the past week. Last night he coughed for 5 minutes without stopping, causing him to become nauseous. We have Zofran dissolvable tabs for that and, luckily, they work instantly. He hates the codeine based cough syrup because he can't shake the drowsy feeling during the next day if he…
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New here and Baby Sister has EC
Hi my name is Tina and I have been a peeper on here for some months now. I want to convey my deepest sympathy to everyone who has lost a loved one to this horrible disease. My baby sister age 35 was diagnosed with ec and stomach cancer in November 2009. She is a stage T3N2M0. It is a very rare signet ring cell type. The…
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Update on new chemo treatment this week
Eddie had his first new chemo session this past monday,iv oxalipatin and six pills daily of xeloda., well things are not going well. He came home Monday at 4pm and has been in bed since, literally, in bed other than going to the bathroom. I cannot get him to drink more than three drinks a day, therefore, I believe he is…
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Radiation/Chemo question...
Lyle and I have an appointment with the radiologist tomorrow and then the PET scan later this week. In the meantime...I'm having some chest pain...reflux? Heart? Well I went to check it out and have to have a procedure just to make sure I don't have any blockage. Great timing...right? The cardiologist says stress will do…
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LETS START OUR OWN TRIBUTE TO KATHY IN MEMORY OF AL FRANKO
Kathy, My heart and love are with you during this difficult time in your life, Please know I am here for you along with all your other CSN friends, just remember all the good memories you two have, and lets continue to fight this disease we call CANCER. GOD BLESS Lori (moe)
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To my CSN Family
I just wanted to let you know that I am doing O.K., Al is in a better place and I thank God that he took him when he did with his children and grandchildren were here. I am sure that one of the last sounds that he heard was his gradaughters laughing and playing. This is about all I can post right now. William thank you for…
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Thanks for prayers
Hi all, Well, the funeral was yesterday. It was beautiful, if a funeral can be. It was so conforting. I am truly exhausted! I do miss him so! I know he is in a better place. I did't mention it before, but we had lost our 21 year old son 6 years ago. I know Dan is with him now. That is my peace.I wrote a few words that were…
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Just left M D Anderson, and am very confused
Hi Everyone, I just left MD Anderson and am very upset at the conflicting advice I got. First I saw a radiologist that said there was no need for radiation since I had had the surgery and there was nothing to radiate, but that the medical team had agreed to chemo. Then I saw the head of the oncology department that said no…
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I went to funeral today....
For all of my friends on this site---keep these words close when you are sad about recent losses here. "Blessed are those who mourn, for they will be comforted." Matthew 5:4 These were just SOME of the words that have spoken to me lately. Even though this friend had lived a full productive, giving, Christian life, it was…
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Kim's dad-doing well---those with EC-keep hope!
Hi everyone, I am very torn writing this---so sad for recent passing of CSN friends..,It doesn't seem right to tell you that my dad seems to be doing very well-(except not gaining weight yet-but not loosing either). But--Lori (AKA Moe) said I should.... And I know my dad would want those that have EC--"Don't give up--have…
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AL HAS PASSED AWAY
Hello all, Ericka posted a previous note stating Al passed away early this morning, he fought a hard battle and Kathy aka Mumphy, was a EXCELLENT care giver. Please keep her and his family in your thoughts and prayers. Just wanted to put another title out so everyone would know Thanks Lori aka Moe
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Sad news but no more suffering
Dan lost his last battle at 5 am yesterday morning. Sorry but cannot even type or think right now. Just wanted to let you all know. Thanks for prayers and support through this horrible journey. I continue to pray for all of you, that you may succeed in your battle. Keep the Faith!