Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Peritoneal Cancer

Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
For Cheryl - Our experience of different types of peritoneal cancer
Hi, rather than answer Cheryl's question about what type of peritoneal cancer I have under the topic of Hair loss and changes, I thought it appropriate to start a new thread on the topic, since the two are not really related. Others on this board have different experiences of peritoneal cancer. Mine was found, not by the…
Surgery
they have not offered it to my dad either , after total gastrectomy he was cancer free from from December to April now his routine scan shows it spread to peritoneal cancer and they have not offered the surgery or Hipec …. only chemo which they keep delaying because of his health ( weight ) So they cancer is just…
Peritoneal Cancer Chemotherapy
Good morning, I was officially diagnosed with Peritoneal Cancer on 10/04/2024 so I am new to this and it is terrifying. I have a primary tumor and it has spread to a portion of my liver. The plan is to do three rounds of chemo Carbo and Taxol plus Avastin and then have surgery. My first chemo was scheduled for October 18,…
secondary peritoneal cancer
Hi, just sending new so far on my husband Ian, he had his last of 8 cycles of chemo today, for colon mets in peritoneum. Next step is ct on 13th and then results on 19th. He has done so well so far, the ascites has not returned while on the chemo, we are hoping that this will be it, and chemo finished for good!! Oh well…
Peritoneal and colon cancer
My husband was diagnosed in late september 2024 with Stage IV colorectal and peritoneal cancer (lining of stomach). He was very sick and had lost a good deal of weight and had a tumor obstructing the bowel (partially). He was in pain and felt bad or very bad almost every single day. After 6 rounds of chemo (48 hours each…
Turned down for cytoreductive/HIPEC surgery
My husband was diagnosed in early October 2024 with peritoneal and colon cancer (Stage 4). Tumor was obstructing colon (partial) and he started chemo in late October. Had 7 rounds (48 hours each time) and never got sick from chemo and it made him feel 90percent better after a few treatments. Its almost like I have to…
Biopsy Sample Delivery
I had a biopsy of a retroperitoneal mass 8 days ago (7/18/23) in Southwest Florida. That was a Tuesday. The discharge notes stated that results are expected in 3-5 business days. This past Monday I called to check on them. That would have been 4 business days. The person I spoke with said they received the results and…
Peritoneal Carcinoma - Ovarian cancer Stage IV .. How to tackle symptoms of disease after Chemo
I have been diagnosed with Peritoneal Carcinoma - Stage IV Ovarian Cancer. The diagnosis followed a hysterectomy in May 2024, and investigations in November 2024 confirmed the condition. I started my first cycle of chemotherapy (FOLFOX) in January 2025. Afterward, I experienced partial bowel obstruction, which led to an…
Laporoscopy results for Periotoneal/Colon/Stage 4
So.my husband (Stage 4 colon and peritoneal) had a laproscopy performed 2 weeks ago. 3 biopsies came back from peritoneoum and show NO CANCER, NO TUMOR. This is after 6 rounds of chemo. ANyone else get a positive result like this after chemo for cancer that we were told was diffuse and sprinkled throughout abdomen. We are…
My wife is diagnosed with Peritoneal Cancer Stage III - we are scared
Hi all, My wife, age 49, was diagnosed with Peritoneal Cancer Stage III three weeks ago. She had bloating and swelled abdomen, went to family physician for checkup. Physician sends her to ER and after CT scan news was revealed to us. We have four girls and younger is 12 years old. Then she went for surgery for remove her…
Peritoneal carcinomatosis
Hi, I have a dear friend who has just been diagnosed with Stage IV peritoneal carcinomatosis. The original cancer was ovarian but is now in the stomach lining. She has started chemo, consisting of a combo of carboplatin and Doxorubicin. Unfortunately the Doxo caused an instant allergic reaction, so they continued on with…
Peritoneal cancer
Hi. My husband was diagnosed end of may 2023 with stage 4 peritoneal cancer. After tests and immunotherapy he kept getting weaker. Not eating and throwing up. His sodium kept dropping. He passed away on July 2023. I am heartbroken. Today is his birthday. He would of been 71. Thank you for letting me tell his story
Newly dignosed Peritoneal Cancer
Hello,I was just dignosed few days ago.I have had Cancer several times.Three nodoes in stomach was biopsied.All three are Cancer.Waiting to talk to Cancer dr.Any advise on questions I should ask dr would be appriatted.Or someone who has been through this kind of Cancer.That could give me advice.Thank you.
Post Chemo Neuropathy Pain
My wife has had 2 surgeries: an emergency colostomy for an endometrial mass that blocked her descending colon at the sigmoid loop, and a successful reversal surgery 5 and a half months later to remove @ a third of her colon along with the mass which was believed to be benign based on blood tests. It wasn't. Cancer cells…
Severe Tightness and swallowing discomfort after chemo
My mom is getting 6 rounds of chemo for Primary Peritoneal Cancer and it is on the Omentum primarily. Dr said it looks like someone threw wet sand at a wall. The goal is chemo to reduce it as much as possible and then surgery. We are in the last of 6 chemo treatments ( paclitaxel and carboplatin). The last 3 chemo…
Looking for support
Last year I was treated for Stage 4 appendix cancer that metastasized to the peritoneum. I'm in the monitoring stage which, for me, post-cancer has been difficult. Having hard time adjusting back to normal routines & activities. I start work about May 9th & chemo fog & lack of concentration along with memory issues have me…
Hamzah_mohd~Here R web links 2 help U find answers 4 Mum's rare cancer~hope it helps!
Have chosen to create a new forum topic since "hamzah_mohd" has entered into a discussion that took place in 2011. More than likely many of those are no longer posting, but if they are, they can still answer but I doubt that many replies will come from people who posted in that particular time frame. Nevertheless, I would…
My wife
My wife was recently diagnosed with peritoneal cancer. They were suspect of her ovaries, but found her stomach wall had thickened and had a colonoscopy and endoscopy done. A big mass in her stomach was found. Biopsies showed a late stage tumor in her stomach that has spread to her lymph nodes and 2 different linings in her…
Encouraging words for you with peritoneal cancer
Hello, My name is Cindy Baker. In May of this year 2017 I was diaganosed with primary peritoneal cancer. Talk about being numb. You see, three years ago, I found out I was diaginosed with the BRAC II mutation. I had another relitive, cousin, and then his daughter die of cancer. In 1979 I had lost my oldest sister who was…
update on chemo
Hi to all, my husband Ian had his 2nd round of iv chemo on thurs, and this time he is coping much better, no reaction! he has started to eat and has gained weight, the ascites has not returned, so all in all not too bad. He has 2 more rounds of chemo, ( he also takes tabs at home xeloda ) to do then a scan, we both wonder…
Peritoneal carcinomatosis
I have PC, and have had 2 surgies and countless chemo. Chemo before HIPEC surgery and after, still showing signs of cancer via blood tests, HIPEC surgery completed 10 months ago and they also reconnected my colon, removed spleen, gallbladder, ovaries, uterus, and scraped diaphragm 💙 on FU chemo and MVASI, anyone heard of…
Peritoneal\ovarian
Hello! I am writing for any perspective on what my mom is currently going through. In mid-August I took her to ER with a distended belly, after a CT, was told she had metatstatic cancer but as they were not sure of the primary source, ordered a bunch of diagnostic tests. Everything came back fine, aside from a comment…
Best Hospital or the most success and experience with Peritoneal Cancer
My mom was diagnosed with metastatic ovarian cancer mid last year. She has had 7 rounds of chemo. By the end of last year her c125 numbers had returned to normal range but the ct showed no shrinkage of the "tumors" (Mucinous Adenocarcinomas). She had a consult at MDA. We were hoping for HIPEC. They pegged the cancer as…
Cancer with a transplant organ
I'm searching out to see of anyone knows or is a transplant recipient with cancer. My husband (56 years old) had a kidney transplant in 2019 and was diagnosed with stage 3 kidney cancer 4 months later and then in 2020 was diagnosed with stage 4 as it progressed to his lungs. As of Feb 2023 it has progressed to his…
PMP - debulking, omentum,peritoneum,chemo
I was recently diagnosed with PMP (pseudomyxoma peritonei). Only one or two people in a million get this. It basically is a tumor on the appendix that creates a jelly in the abdomen. The tumor can spread to other organs and tissues. I had the debulking and the HIPEC treatment. *Regular chemo does NOT work on this…
Dealing
Almost exactly a year ago I was diagnosed with peritoneal cancer. Went to urgent care thinking I might have covid, just feeling blah, and hubby had just finished surgery and chemo for lung cancer. Wanted to make sure I didn't expose him to covid. Sent me to er because I had chest congestion. Had ekg and blood work. Blood…
Bowel obstruction with Peritoneal Cancer
Bowel obstruction with Peritoneal Cancer Hello, My mother has peritoneal cancer and has finished chemo. She is now doing infusions, but they are not eliminating stomach issues and the beginnings of bowel obstruction. These things did get better with chemo. Does anyone have advice about how to deal with the particular…
Goblet Cell Appendiceal - Stage IV
Since my husband's diagnoses of goblet cell appendix cancer (with abdominal and pelvis spread), on July 3, 2014, I've found it helpful to read about other similar cancer stories. I'd like to provide that same support to others, as well as hear more of others' experiences. This has been our experience, so far: July 3, 2014…
Peritoneal Cancer - Various Treatments
Hi all: I am collecting, to have on hand for my oncologist (who is an amazingly intelligent man), the various treatments that folks with peritoneal cancer are getting or have had. I am interested in both primary and secondary peritoneal cancer treatments including surgery and various chemotherapy regimes. For example, I…
chemo for peritoneal cancer
Went to see the oncologist today to see how my husband was getting on after 3 rounds of chemo, he has decided to continue the chemo a further 3 rounds, as it seems to be keeping the ascites at bay, he will be having a scan in October, with the results 27Th. I wonder how long anyone can stay on chemo? can you have a chemo…

Peritoneal Cancer

Discussion List

Discussion Boards