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Peritoneal Cancer

Hyperthermia in Germany - Request experiences & Clinic info.
Although I was diagnosed as having Stage IV adenocarcinoma of the colon with mets to the peritoneum, my CA19-9 marker is above 40,000 (as of 4/28/2014) which is more typical of other cancers, possibly including cancer of the peritoneum. I have no elevation of the CEA marker. I have only months to live as my cancer has…
Sue (sk_Nebraska) how are you doing?
We haven't heard from you since your surgery in April. I hope you've recovered and are doing well. Please come back and update us. Many hugs, Alexandra
happy news . . . .
Just wanted to pass along that my CA 125 number, after my latest recurrence of PPC, is down to 74 & descending at a rate that may put me in the NORMAL range next time it's measured in 3 wks! I'm thrilled. After my 3-mo "chemo holiday" Jan--March, CA 125 was up to 327. After 1 infusion of Carboplatin, it went down to 165; &…
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
I'm in tears. . .
. . . because I’m so happy. Yesterday, had my 2nd infusion on this round of Carboplatin to tackle the recurrence of PPC. I’d been told to wait until after at least 2 infusions before looking for improvement. I also feared I’d have to skip yesterday’s infusion due to a bad cold. But I was judged well enough for chemo, and…
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
HIPEC April 16th--getting jittery
Hi! I have seen most of you posting on the Ovarian board, but will post here since technically we still don't know what the primary cancer is. It's been quite the 8 weeks waiting for clearance of a neurologist after a TIA to have an exploratory laproscopic surgery then the Hipec the neext weeek. Getting bombarded by spleen…
Mom has PPC, bowel obstruction, vomiting, what next?
Hi My mom has had PPC for 4 years, and things are going worse now, since she ate something that made her sick and got so dehydrated and hadn't eaten. Now the fluid in abdomen and possible tumors on bowels/intestines are preventing her from eating anything, or keeping liquids/food down. Seems from searching this board and…
Mom diagnosed 11/13. Hospice was called in
My mom is 59 years young. She was diagnosed with PPC November this year. She had her chemotherapy treatments at Memorial Sloan Kettering. They did 4 rounds of carbo/taxol 1 round carbo/taxol/Avastin and one treatment of Doxyl. CT scan showed peritoneal thickening had slight thinning happening and the tumor has slightly…
Juliebelle
I have posted some sad news about Juliebelle on the Ovarian Cancer Board , many of you will remember her.
where is everyone?
No one has written in forever. Hoping all is well. .
My CA 125 is heading up & my "chemo holiday" is over.
Remission was sweet, but it seemed SO short. For weeks at the end of last year, every time I worried about my escalating CA 125 number my oncologist said, "But it's still in the normal range!" That was true until December, when it went up to 44; but I was soon advised to take a 90-day "chemo holiday." While I did, I tried…
paracenthesis vs catheter placement?
Hi all, Our struggles with my mom's PPC continues. In one of my earlier posts I explained our situation (she has/had (?) lymphoma also, you'll see several posts of mine in the NHL discussion boards too). In any case, they said no more chemo and sent us to hospice care on 10/30/2013. Her CA-125 was 245 when released from…
Drs Say Mom Has Couple Months After Stage 4 Peritoneal Cancer Diagnosis - Opinions Please
My mom was diagnosed with Stage 4 Peritoneal Cancer in October 2012, she did three months of chemotherapy then had major surgery to remove her uterus, ovaries, and her fatty tissue in her abdomen. She followed that with three more months of chemo. After all of that, her bloodwork looked great, we were told she went into…
Can't beat free!
This author is offering her book on ovarian cancer, Cured, My Ovarian Cancer Story, free for the Kindle version on Amazon for the next few days. She's also offering another of her books, on breast cancer, free. I believe the 2nd book is titled My Breast. I have the ovarian cancer book in my Kindle library but haven't read…
Alternative treatments
I am interested to hear about alternative treatments/diet etc that any of you are trying and feel have helped or not. I was diagnosed with PPC in December 2011, have had 7 rounds of Carbo/Taxol, pleurodesis surgery on right lung and debulking surgery. After 2 months remission CA125 has gone from 21 to 459 and now on Doxil…
What to expect from chemo
i am new to this board and new to this disease. i found out on Dec 11, 2013 that my pap had cancer cells and it's been a whirlwind since. I had a ct scan that showed growths in my omentum so I had it removed along with all my female parts on Jan 6. I'm still recovering from this and we are trying to set up my chemo. I am…
Lost a Friend on Monday to Peritoneal Cancer (Stage 4)
I am a a cancer survivor so far of uterine papillary serous carcinoma also known as UPSC (stage 1) and was diagnosed back in February of 2011 (nearly 3 years ago). My cancer was caught early as I am very grateful as I wanted to have surgery and at that time did not know this was cancer until the pathology report came back,…
FAQ about CSN study
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
Recurrance...can anyone offer insight?
Hello everyone- My Mom was diagnosed with Primary Peritoneal in June of 2013. She had gone in for a routine physical and asked for a annual exam which hadn't been done in two years because her Dr. didn't feel as though she needed one the previous year. Mom is 60 years old and beat breast cancer 19 years ago. Anyway, those…
Can we change our fate?
My beautiful mom passed away last night from PPC. I am stunned with grief as well as fear. I feel like there is nothing we can do to catch this disease early. Her sister and aunt also had PPC. I am frustrated there is no stage l or ll because there isn't any test or warning or possibly visible cancer at those stages? I…
Second opinion? How do you know when you should seek one?
Got the results from my latest CT scan last week. Long story short, it shows “something” on my spleen. My gyn/onc surgeon thinks it may be a recurrence of my primary peritoneal cancer. My CA-125 number has been slowly rising since summer & is now 44. The surgeon presented several options but recommended a 90-day period of…
Thinking of you Carole
and hoping and praying that you get good news!! Sending positive vibes and cyber hugs. Julie x
Dog detects ovarian cancer tissue 100 percent of the time.
We always knew they were our best friends! "Ohlin Frank, a chocolate lab whose focus has the intensity of Sherlock Holmes, is only on his fourth training session at Penn Vet Working Dog Center, but he has been able to detect ovarian cancer tissue 100 percent of the time. He and his fellow trainee, McBaine Chamberlain, a…
Im Back!!!
Hi All Sorry for my absence. I have had another stint in hospital (11 days) with infection problems. 3 my Onc thinks! My Picc line (which was removed and another put in on the other arm), shingles and a chest infection! Consequently he threw all sorts at it and finally we pulled through. This was a tough one and even…
Hello everyone!
Just checking in. Always hate to see that someone has passed away from the group. We have lost Tina and now Westie. Stella's mom. It's too sad. My mom just finished up more chemo. She was on doxil which did absolutely nothing. So she really wanted to go back on the carboplatin but she is severely allergic. So they sent her…
Good News
Hi ladies, I just wanted to let you know that I got good news this past wed. CT scan was good showing that I am responding to the chemo. CA 125's have came down from 3028 to 1504 after 2 rounds of doxil and 8 weeks of Amg386. The problem is I didn't get to take my doxil treatment wed because I am having issues with my…
Westie
Did anyone hear fom Westie. love P
I have a diagnosis - Shingles
Wow that was a surprise. Gout and infection were high on the list of suspects but Shingles it is. Cheers, Julie
On my second bout of chemo.
Hi all I have been reading your posts for awhile now. It is nice to hear from others with this dreaded disease. Good and bad. I was diagnosed just over two years ago. I was told I had ovarian cancer, and that they where going to do a total hysterectomy. Excuse my spelling. The operation was Oct 21 2011. (Also my birthday).…

Peritoneal Cancer

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