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Peritoneal Cancer

Hipec
My father was diagnosed with peritoneal cancer in March. He is 84 years old and going to see a doctor about hipec. Just wondering if anyone who has had hipec has any input about this. I am very worried about his age and recovery.
Signet ring cell cancer...please help
My father was diagnosed with signet ring cell cancer stage 4 in March and it has spread to the abdominal walls. They said surgery is not possible. Started chemo with Oxciliplatin (is supposed to be the strongest) in March. Had the 5th cycle on Wednesday and a check up soon. He is in his late 60s. His state of mind is very…
Lymphedema
I'm curious to know if any of you suffer from lymphedema. About six months ago my legs and feet became very swollen, to the point where walking and climbing stairs became almost impossible. My oncologist referred me to a vascular specialist, who diagnosed it as lymphedema, caused primarily by my cancer. My lymphnodes are…
My results on Topotecan and New Picture
I have now had results of my CA125 after the first round of Topotecan and unfortunately not great - up another 97 points to 423! So disappointing!! However this week I have had a further 3 infusions and in two weeks will have another test. I am hopeful I will start to see a downward trend at the end of this cycle. Does…
Feeling Devastated
Yesterday I saw my Oncologist for CA125 result etc to receive news that for the 3rd time in a row my numbers have increased! (179-203-265-329) I have had 5 rounds of Gemcetabine and oral cytoxan (cycloblastin) so those aren't helping! Next week I start on Topotecan - treatment 3 days in a row and again in 21 days. This…
Mum with Stage 3C Primary Peritoneal Cancer and a partial obstruction, currently in a hospice. Can a
Hi guys, My mum is 69 and lives in the UK. She was diagnosed just over 2 years ago with PPC (Low grade serous papillary adenocarcinoma) . She had gotten sister mary joseph nodules in her navel which is why she was tested. Her CA125 was approx 120 She had a biopsey taken and an exploratory surgery. They decided that she had…
No Peritoneal Stripping/HIPEC Surgery for Me
Hi all: Well, just got some bad but not unexpected news about possible peritoneum stripping/HIPEC surgery associated with gallbladder cancer. Remember that I had my gallbladder and its tumour removed in April 2010 but that there was spread to the peritoneum and to the liver. Not much spread, but some nevertheless. I've had…
So pleased to find this website.
When you think you are fit and healthy there are few things more devastating than sitting beside an oncology surgeon who looks you in the eye and says the words " You have Cancer!" I heard these words on 12th November 2012. I had asked my GP to be sent to this particular surgeon as he had removed my gall bladder 14 years…
Just joined this forum
Hi! I just joined this board and am thrilled to have found it. I've had peritoniel cancer for just a little over a year and it's still a little frightening to me, but have already found reassurance here. THANKS for your many, many posts.
5 Year Survivor
Hi! I have just recently joined this network. February 18th will be 5 years since I was diagnosed with Primary Peritoneal Cancer stage 3B. On that day, I had surgery that removed all of the cancer. I started chemotherapy about 6 weeks later. I have been cancer free since the debulking surgery. I posted some information…
Order of posts on the discussion board
This is a sensitive topic so I'll try to be as sensitive as I can. When members message on the board, the reply makes an historic post move to the top of the board as if it's a new one. I find this distressing not least because the original postee may have passed on and ordering makes things look as if they are still…
Avastin, anyone? Did it work for you?
Hello, everyone-- I had surgery last week--what I guess you could call a combo laparoscopy/laparotomy. This was after the end in Dec. 2012 of my chemo on carboplatin/Taxol, a PET scan that potentially showed only scar tissue remaining, and a decline of my CA 125 number to 23 as of Feb. 11. On completion of the surgery, the…
My lovely mum has gone
Mum left us on the 1st of April ( her and dads wedding anniversary) she had been struggling to breathe despite having oxygen, dad called my sister and I to go over as she was struggling and within 10 minutes of me getting there she past away, she was in her bed surrounded by her family even the dog, she had desperately…
Tina Brown
It is with such regret to let you know that Tina has passed away. I had just gone to her facebook page to see if there was an update and I read the sad news. I had the privilege to meet Tina twice and she was a fine young lady who will be missed. Jenny
Tax
Has anyone heard off M D Anderson? I live in the Uk But would like to know more about this Texas Cancer Centre.
Introduction
Hello, my name is Theresa. I am 44 aDiana's diagnosed with PPC in October of 2010. I look forward to meeting others like me... In the PPC boat. Theresa
Cycloblastin (Cyclophosphamide) anyone?
Having had three rounds of Gemzar with falling CA125's unfortunately on the fourth round my numbers went up by 10 percent!. So so disappointing! I really thought is was onto the right chemo for me. However my Oncologist has added Cycloblastin which I take in tablet form, one 50 mg daily. Just wondering if anyone else is…
Yes...finally!!!
While getting my chemotherapy treatment today (Week 3 of my 2nd cycle of Taxol), my oncologist told me that the blood work done at last week's treament showed another decrease in my CA125 numbers. At the start of this current Taxol treatment, the numbers had been a little over 11,000, but after the first cycle was…
NY Times says only 1/3 of ovarian cancer patients get the best treatment
Must admit, it’s more than a little unsettling to come across articles like this one, which says only a third of ovarian cancer patients are getting the best treatment. http://www.nytimes.com/2013/03/12/health/ovarian-cancer-study-finds-widespread-flaws-in-treatment.html?pagewanted=all I was surprised to read some ovarian…
Gemzar going well for me
Hi All Glad to report the result of my second round of gemzar. My CA125 has fallen by another 25 percent - down from 306 to 223!! So thrilled that this third chemo seems to be doing the right thing for me. Side effects have been minimal - some lethargy and lack of energy and neuropathy in my feet continuing. I am now also…
Tina
It is kind of disappointing when someone dies that made you have hope. My mother is upset and she hasn't really talked to Tina much. I know there are success stories but now she is thinking, well why bother going through all this if in the end you just pass away. Very sad.
2 Years
Two
Lymph nodes...
Hello all... Just returned from my GP... Local doctor. I've had a small lump come up under my left arm. Been nearly 2yrs NED from PPC 3c and have been feeling very well. Doctor wants to refer me back to my Oncologist and I am happy for that but can PPC metastasize to lymph nodes? Want to be a bit discreet from my family…
re: mum with stage 4 ppc metastasised to lungs
Hello everybody, My mum, who is 58, was diagnosed with Primary peritoneal carcinoma stage 4 in August 2012. Initially, we took her to the hospital because she couldn't breath properly. Turns out she had pleural effusion in her right lung. After draining litres of fluid and suspecting it might my TB, eventually they found…
What comes next?
Hi everyone, I write because my 63 year old mother in law was told last week that her PPC is back. She has a peanut size tumor in the abdominal cavity, between the main vein and the aorta. She was initially diagnosed with this in the summer of 2010, and went through eight months of super agressive chemo, plus it took her…
Good news!
What a long time I've waited to say this: I'm normal! Blood drawn on New Year's Eve shows my benchmark CA 125 marker is in the normal range -- 31.2. Happy New Year! Just had to share the good news. I hope it lasts.
NOT QUITE THERE YET. NOW WHAT--SURGERY?
Happy New Year, everyone! Yesterday I got the results of last week's PET scan. I was hoping for the status of N.E.D.—no evidence of disease. Not so fast. There was no uptake of the scan’s radioactive dye, meaning there’s no metabolic activity in the tumor, which of course is good news. There would be no value in further…
Vomiting
I am currently in hospital with relentless and ongoing vomiting. I started a new chemo regime 3 weeks ago called oral etopocide. You take tablets for 7 days and then have 2 weeks off. Well on day 6 I could not stop throwing up and I was admitted into hospital. I have been in here on and off for weeks. I have severe…
I guess it is back again (think it never really went away)
Just coming to the end of my "chemo break" as my oncologist suggested. I had a CT scan and my bloods done last week and will be getting the results in 2 days. I do not have a very good feeling about this. My stomach is bloating, which is a sure sign that the cancer seeds are growing and squashing everything inside. Don't…
prognosis
hi....my grandmom was recently diagnosed with cancer....she had stomach ascites that developed recently.....she also has shortness of breath and back ache ..when the ascitic fluid was tested it showed atypical cells.....but her organs like liver, kidney and her gastro intestinal tract and the intestines are found to be…

Peritoneal Cancer

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