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Peritoneal Cancer

No Peritoneal Stripping/HIPEC Surgery for Me
Hi all: Well, just got some bad but not unexpected news about possible peritoneum stripping/HIPEC surgery associated with gallbladder cancer. Remember that I had my gallbladder and its tumour removed in April 2010 but that there was spread to the peritoneum and to the liver. Not much spread, but some nevertheless. I've had…
So pleased to find this website.
When you think you are fit and healthy there are few things more devastating than sitting beside an oncology surgeon who looks you in the eye and says the words " You have Cancer!" I heard these words on 12th November 2012. I had asked my GP to be sent to this particular surgeon as he had removed my gall bladder 14 years…
Just joined this forum
Hi! I just joined this board and am thrilled to have found it. I've had peritoniel cancer for just a little over a year and it's still a little frightening to me, but have already found reassurance here. THANKS for your many, many posts.
5 Year Survivor
Hi! I have just recently joined this network. February 18th will be 5 years since I was diagnosed with Primary Peritoneal Cancer stage 3B. On that day, I had surgery that removed all of the cancer. I started chemotherapy about 6 weeks later. I have been cancer free since the debulking surgery. I posted some information…
Order of posts on the discussion board
This is a sensitive topic so I'll try to be as sensitive as I can. When members message on the board, the reply makes an historic post move to the top of the board as if it's a new one. I find this distressing not least because the original postee may have passed on and ordering makes things look as if they are still…
Avastin, anyone? Did it work for you?
Hello, everyone-- I had surgery last week--what I guess you could call a combo laparoscopy/laparotomy. This was after the end in Dec. 2012 of my chemo on carboplatin/Taxol, a PET scan that potentially showed only scar tissue remaining, and a decline of my CA 125 number to 23 as of Feb. 11. On completion of the surgery, the…
My lovely mum has gone
Mum left us on the 1st of April ( her and dads wedding anniversary) she had been struggling to breathe despite having oxygen, dad called my sister and I to go over as she was struggling and within 10 minutes of me getting there she past away, she was in her bed surrounded by her family even the dog, she had desperately…
Tina Brown
It is with such regret to let you know that Tina has passed away. I had just gone to her facebook page to see if there was an update and I read the sad news. I had the privilege to meet Tina twice and she was a fine young lady who will be missed. Jenny
Tax
Has anyone heard off M D Anderson? I live in the Uk But would like to know more about this Texas Cancer Centre.
Introduction
Hello, my name is Theresa. I am 44 aDiana's diagnosed with PPC in October of 2010. I look forward to meeting others like me... In the PPC boat. Theresa
Cycloblastin (Cyclophosphamide) anyone?
Having had three rounds of Gemzar with falling CA125's unfortunately on the fourth round my numbers went up by 10 percent!. So so disappointing! I really thought is was onto the right chemo for me. However my Oncologist has added Cycloblastin which I take in tablet form, one 50 mg daily. Just wondering if anyone else is…
Yes...finally!!!
While getting my chemotherapy treatment today (Week 3 of my 2nd cycle of Taxol), my oncologist told me that the blood work done at last week's treament showed another decrease in my CA125 numbers. At the start of this current Taxol treatment, the numbers had been a little over 11,000, but after the first cycle was…
NY Times says only 1/3 of ovarian cancer patients get the best treatment
Must admit, it’s more than a little unsettling to come across articles like this one, which says only a third of ovarian cancer patients are getting the best treatment. http://www.nytimes.com/2013/03/12/health/ovarian-cancer-study-finds-widespread-flaws-in-treatment.html?pagewanted=all I was surprised to read some ovarian…
Gemzar going well for me
Hi All Glad to report the result of my second round of gemzar. My CA125 has fallen by another 25 percent - down from 306 to 223!! So thrilled that this third chemo seems to be doing the right thing for me. Side effects have been minimal - some lethargy and lack of energy and neuropathy in my feet continuing. I am now also…
Tina
It is kind of disappointing when someone dies that made you have hope. My mother is upset and she hasn't really talked to Tina much. I know there are success stories but now she is thinking, well why bother going through all this if in the end you just pass away. Very sad.
2 Years
Two
Lymph nodes...
Hello all... Just returned from my GP... Local doctor. I've had a small lump come up under my left arm. Been nearly 2yrs NED from PPC 3c and have been feeling very well. Doctor wants to refer me back to my Oncologist and I am happy for that but can PPC metastasize to lymph nodes? Want to be a bit discreet from my family…
re: mum with stage 4 ppc metastasised to lungs
Hello everybody, My mum, who is 58, was diagnosed with Primary peritoneal carcinoma stage 4 in August 2012. Initially, we took her to the hospital because she couldn't breath properly. Turns out she had pleural effusion in her right lung. After draining litres of fluid and suspecting it might my TB, eventually they found…
What comes next?
Hi everyone, I write because my 63 year old mother in law was told last week that her PPC is back. She has a peanut size tumor in the abdominal cavity, between the main vein and the aorta. She was initially diagnosed with this in the summer of 2010, and went through eight months of super agressive chemo, plus it took her…
Good news!
What a long time I've waited to say this: I'm normal! Blood drawn on New Year's Eve shows my benchmark CA 125 marker is in the normal range -- 31.2. Happy New Year! Just had to share the good news. I hope it lasts.
NOT QUITE THERE YET. NOW WHAT--SURGERY?
Happy New Year, everyone! Yesterday I got the results of last week's PET scan. I was hoping for the status of N.E.D.—no evidence of disease. Not so fast. There was no uptake of the scan’s radioactive dye, meaning there’s no metabolic activity in the tumor, which of course is good news. There would be no value in further…
Vomiting
I am currently in hospital with relentless and ongoing vomiting. I started a new chemo regime 3 weeks ago called oral etopocide. You take tablets for 7 days and then have 2 weeks off. Well on day 6 I could not stop throwing up and I was admitted into hospital. I have been in here on and off for weeks. I have severe…
I guess it is back again (think it never really went away)
Just coming to the end of my "chemo break" as my oncologist suggested. I had a CT scan and my bloods done last week and will be getting the results in 2 days. I do not have a very good feeling about this. My stomach is bloating, which is a sure sign that the cancer seeds are growing and squashing everything inside. Don't…
prognosis
hi....my grandmom was recently diagnosed with cancer....she had stomach ascites that developed recently.....she also has shortness of breath and back ache ..when the ascitic fluid was tested it showed atypical cells.....but her organs like liver, kidney and her gastro intestinal tract and the intestines are found to be…
Alexandra
You were talking about going into have your tummy done. Did you do it yet? If so, how did you make out?
My story
Let me tell you a story about me. First thing is I have cancer(C). I have been living with it for 4 years. End of May last year they told me that I have 7 years to live. Second thing I want people to understand that I have Learning disability (LD). L D makes things challenging to live with never mined C. The thirs thing I…
Hope for our daughters
This story from the NY Times tells how in the future there may be a test for ovarian cancer short of removing ovaries to biopsy them. I can appreciate how welcome that might be -- 4 years ago, long before my PPC was diagnosed, I was suspected of having ovarian cancer and had a hysterectomy/oophorectomy. Results then were…
Diagnosed each year
Does anyone know how many people are diagnosed approximately each year with primary peritoneal cancer? Can't find that info anywhere? Thx !
If I request a pet scan
hello I am just wondering if I pay for a pet scan would that show if I have peretoneal cancer or should I just have exploratory surgery? My gyn said come back in 3 months since the abdominal/ pelvis MRI, tv ultrasound and tumor markers were negative. She said that pelvic free fluid on an MRI of the pelvis is NOT considered…
Happy happy New Year
Hi All After 3 rounds of Caelyx (Doxil) with awful awful side effects and rising CA125 I have now completed my first round of Gemcetabine (Gemzar). Thankfully no side effects at this stage however first blood tests have shown my CA125 has DROPPED from 425 to 306!!!! I am so excited!!! After several months of bad news at…

Peritoneal Cancer

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