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Brain Cancer

I am a Grade 3 Anaplastic Ependymoma Survivor: Survivorship Story
Hello. I learned about this group during my most recent clinic visit. I want to connect with others who have undergone or can relate to my treatment story. In 2016 I turned 18 years old. Three weeks later I was diagnosed with a Grade 3 Anaplastic Ependymoma. I had attributed 6 months worth of daily headaches to being a…
High grade brain tumor treatment side effects
Hello. My husband had a partial resection of his brain tumor and radiation 10 years ago. It was a low grade Glioma at that time. For the past 10 years we have just monitored with MRI's. Minor growth until recently. Now it is growing fast and presents as either anaplastic astrocytoma or a glioblastoma. The doctor said it…
Looking for help
My daughter and 4-year-old grandson are in Utah's Children's Hospital and I am trying to find some help for her. My 4-year-old grandson named Zane has Pinoblastoma. (sorry if I spelled it wrong.) He has just gone for his 3 surgery already. He was supposed to come home to Reno, NV. But needed another surgery. I am grandma…
42yr old sister diagnosed with Glioma
My sister was diagnosed with a glioma a few weeks ago. She had brain surgery within 2 days and all was removed. Her prognosis, as you know, is 12-18 months. I am up and I am down. Life is more precious than it even was before. I can’t fix this for her. I am so sad I burst out crying without even knowing I was going to…. I…
Glioblastoma with changing behavior
Hi all. My mother in law was diagnosed with glioblastoma back in November 2022. A few months back she started getting really confused and would call myself if her son anywhere between 30-70 times in a 8-hour period, as if she just couldn’t remember calling and speaking with us. Every week thereafter things were only…
Juvenile Pilocytic Astrocytoma Recurrence - Starting Chemo
Hello - My 3 year old grandson was recently diagnosed with a JPA in December 2018. The surgeon was able to resect what she felt was 100% of the tumor. 10 months later, the MRI show a recurrence of the tumor and his oncologist wants to immediately put him on a chemo regimen of Carboplatin and Vincristine. We were told that…
Glioblastoma grade4
hi, I have just been reading your stories about alternative therapies. I AM a 58 year old female after a week of losing ability to use my r,hand and then arm, an MRI was done and on 11/28/16, an MRI showed a tumor about the size of a small orange, 1 week later it was resected with the surgeon saying. He got 99% of it. 2…
Glioblastoma
Experiences with glioblastoma II on radiation and temodar following surgery
Total shutdown after being pulled from steroids
Hi, my loved one was diagnosed with glioblastoma, they had surgery, went through the 6 weeks of radiation/chemo combo, and is now taking infusion once a month and chemo 5 days a month every month for six months (she is on month 2 now). This entire time she has been on steroids and recently we pulled her off, but she…
Rate pineal tumor
7 yrs of fighting and watching my sweet son have seizures since age 16 and other awful symptoms. The tumor initially being missed and told he has epilepsy which I never believed! The fight to find a nuerosurgeon capable of resecting this mass has been tremendous, now very short notice after consulting with his nuerosurgeon…
feeling helpless and feeling my marriage is falling apart
My husband was diagnosed 10 years ago with an astrocytoma stage 4. they couldnt operate because of where it was. they radiated and he has been in remission up until 2 months ago. He had surgery 3 weeks ago and what a struggle that has been. He is not the same man that he used to be. He is so bitter and angry and directs it…
acoustic neuroma
i was recently diagnosed with an acoustic neuroma, I have no hearing loss or tinittus, no facial paralysis, only slight vertigo. my tumor is 1.8 cm long, so not large yet, but it's touching the brain stem already. What are the risks connected with the tumor touching the brain stem? Does anyone know what the chances are of…
Adult w/ ependymoma
I was diagnosed at age 51 with a brain tumor in 2019 and had it removed in October of 2022. It never really gave me any major problems until about 12 months before surgery. I began having minor dizzy spells and double vision, only when I looked left. My surgeon removed all of it. I had 6 weeks of radiation. My issues now…
Burning out my support system
After undergoing chemo and radiation in October of last year, my monthly chemo cycles go for another year through Nov '23. (Grade II Inoperable Brain Stem Astrocytoma.) I have good days and bad days, and feel as if I am burning out my support system (friends and husband) on my bad days. I know this is a "new normal". I…
Astrocytoma Grade III-Survivor
If any one needs help please let me know, I went through brain cancer and have lived. My calling is to help others survive also. Jose
Radiation Recovery
On 9/8/22 I was diagnosed with low-grade glioma of the brainstem. I underwent surgery on 8/23. Resection was not possible. I completed 6-weeks of radiation treatment on November 11. I am seeking to understand what recovery looks like. I am still quite sick. Mornings are typically best, but by 1:00 pm I am 'sick'. It's…
Grade 3 papillary tumor of the pineal region
Hello, I’m new here. this is my first post so I will tell my story, I’m 27 and was diagnosed with a brain tumor in November 2022. In December I had a partial resection because of where the tumors are the doctor couldn’t safely remove because the main artery in my brain that Carrie’s blood to the brain is wrapped around the…
Glioblastoma Patient in Need of Temozolodine
Hi everyone, my father (96 years old) was diagnosed with Glioblastoma about three weeks ago. They cannot remove the tumors so the only option is radiation and chemo (Temozolodine/ temodal), which we are would slow the growth and increase survival. Aside from the physical and psychological pain that this has caused our…
Lightening Sickness and Brain Tumor Survival Story
I want to share part of my brain tumor survival story. I've always gotten sick with lightening, then a few years ago I got blasted with really strong electromagnetic fields while working on a grounding mat and received brain tumors; I have gotten concussions when I was a child, damaging my brain. Since then I started…
glioblastoma treatment
What was your treatment and what do you know of the side effects , results, experience patient or caregiver. please state patient age as I want to research this for my 75 yo mother.
WHOLE BRAIN RADIATION
Doctors are recommending whole brain radiation. Has anyone had a good outcome from whole brain radiation? Thanks for any feedback. Rocky
Hello
New here. My Dad died 2 weeks ago. Aged 94. Took 8 weeks off of work to care for him. Beautiful and hard times. I found him passed and got my Mom when he died. Dysfunctional family. I gave his care my heart and soul and still can’t find time to grieve. How do I settle down. I only just got home after being on the east…
Brain cancer(Glioblastoma grade 4)
My mother was diagnosed with a brain tumor in June. Two days after her diagnoses she had brain surgery. They removed it in pieces. It was the size of the bottom of a 32oz. cup. They didn't get it all. She came out of sugery well. She does have some side effects of the tumor. Her memory and thought process isn't the same.…
Anaplastic ependymoma
I have a brother who had anaplastic ependymoma He underwent an operation to remove the tumor and received radiation treatment, then the tumor receded again, received radiological treatment, and took six doses of chemotherapy. This month, tumors appeared in the x-rays, and he had no other operations or chemotherapy, so…
Astrocytoma Grade 2
I was recently biopsied and diagnosed with an astrocytoma grade 2 tumor. With the exception of the symptoms that led me to my Doctor I've only dealt with the side effects of being on Decadron and more harshly of trying to be OFF Decadron. My first set of Doctors said there is no cure and to enjoy the 3 to 5 year expectancy…
CURE
New method eradicates deadly brain tumors by 'starving' them of energy source Go to Science Daily for article.
Brain Cancer from Mets Breast Cancer
I am on the EC forum because of my mom's resent diagnosis, but my SIL has been diagnosed with brain cancer from her ongoing battle with breast cancer, so I find myself on this forum too. Two spots on the brain (eye and ear areas) that are too dangerous to operate on. She will be undergoing whole brain radiation treatment…
A life of Brain Tumors
Both my twin brother and I are childhood brain tumor (pineal germinoma) survivors. He was diagnosed at the age of 7 and I was diagnosed with the same tumor 5 years later at the age of 12. Fortunately both were successfully removed via surgery, chemotherapy, and radiation although we both still deal with effects now as…
Great Update 10 years later anaplastic astrocytoma
When my sister was diagnosed in 2011 with an anaplastic astrocytoma, I must have read every single piece of scientific article and testimony from people surviving, ane surviving well. I am a little early, but my sister has been doing great. It has been 10 years since both surgeries, chemo, radiation. She is right now…
Secondary Cancer resulting from Brain Radiation
Hey all, I’m new to the group. My husband was diagnosed 6 years ago with an Anaplastic Oligodendroglioma. He had surgery, radiation and PC chemo - he’s been stable since. This past May, he discovered a small bump along his incision line and about a month later, after a biopsy, he was diagnosed with a radiation-induced…

Brain Cancer

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