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Brain Cancer

Grade 3 Anaplastic Oligoastrocytoma Diagnosed.
Hi, My father is 50 yrs old & has been diagnosed a non malignant Grade 3 Anaplastic Oligoastrocytoma in left brain. He got operated on 30th Nov. & is recovering well at the moment.Visible Tumor has been removed completely & he has been advised to undergo Radio & chemo therapy.Dr. says regardless of the fact that it has…
Nongerminomatous germ cell tumor
My son was diagnosed with a NGGCT of the pineal gland in 2009, he was 13. Happy to share stories if anyone else has had similar. I cannot find anyone in Australia who has had it.
New DIPG Diagnosis
Hello. I was diagnosed at the beginning of the month with a Grade 4 Diffused Intrinsic Pontine Glioma (aka diffused midline glioma). It's about halfway up the brain stem and into the thalamus. I start radiation and chemo pills next week. Looking for other people's experiences with treatment, resecution, etc. Thank you!
Brainstem Glioma
Are there any brainstem glioma survivors out there? My son-in-law in 31, and was diagnosed in September. He has done radiation, chemo, and natural supplements. What else can we try? We have been told this is a death sentence. He and my daughter have a 1 1/2 year old and a 4 year old.
DIPG
My daughter was diagnosed with a DIPG 1-26-2012 at the age of 21. I am just looking for people that may be going through the same thing...We were told that is very rare for someone of her age. FearlessMom
Adult fight with DIPG
Hi. Just to add to discuss my sister age 22 is diagnosed with a dipg and i am not able to find the same case in previous three months , if any one is in the same fight please help and share
My second husband with Brain Cancer :Inoperable DIPG
I am looking for anyone who has dealt with adults with DIPG. A lttle background, I have a deceased husband who passed away after fighting 1 year and 10 days with GBM IV in 2002. My current husband has been diagnosed with dipg, even though it is supposed to be low grade, the hystology suggests aggressive form. According to…
Rare brain tumor....DIPG
I am looking for other adults who have been diagnosed with a DIPG (diffuse intrinsic pontine glioma )
Need Advice inoperable brain tumor
My 58 year old husband was diagnosed September 12, 2017 with a brain tumor, via MRI. He had been experiencing muscle weakness on his right side for a week and complained that it felt numb. Since then he has had another 2 mri’s and a biopsy only, as the tumor was in his left temporal and a finger into cerebellum. The…
my Dad- mood swings, agitation, on hospice
So I'm not new here but this is new for me. I lost my mother 3 years ago to uterine cancer and now I'm back here with my father. I feel very alone. My father was diagnosed a year ago August with stage 3 lung cancer. A couple weeks ago I took him to the ER with what looked like signs for a stroke. Come to find out he now…
Malignant diffuse midline glioma H3 K27 mutant. 55 yrs. old
any information on treatment or success stories. Have gone thru radiation and chemo; tumor has grown. Per last MRI.now starting Avastin. One treatment and already having nose bleeds.
Metastasis Brain Cancer
in May 2002 my husband had surgery for colorectal cancer. It has spread to the lymph nodes so had radiation and chemo for 6 weeks. Then in October he had chemo again for 4 months. In May of 2003 he found the cancer had metastasis to the brain, a large tumor in the cerebellum and a smaller one in the thalamus. He…
MRI done but defect found
My oncologist had me do an MRI of my brain. My brain came back normal but it also said there was an isolated defect about 4mm and my oncologist said your good there is no cancer there. I also had a pet scan from my head to mid thighs which showed no activity in my brain. My oncologist told me that for my cancer which is…
Glioblastoma IV
My dad (76) was diagnosed February 2017 with inoperable GBM stage IV. He completed 6 weeks of radiation and chemotherapy and although weak and fatigued, tolerated it well. He was on Temzolomide as maintainace and had a COPD exacerbation that hospitalized him. Before this he was ambulatory but slept most od the day. He came…
Low-grade brainstem (pons) glioma?
Hi, I'd like to ask if anyone here had a similar experience. My wife is 24 and she has done an MRI scan in July, because of some mild tinnitus. The scan showed a structure in the brain-stem, pons area, 12x7mm. The first neurosurgeon we consulted said that it's inoperable and that it's basically a death sentence. We have…
Anaplastic Astrocytoma Grade 3 - Trying to Understand
Please help me to understand. My girlfriend has been diagnosed with AA3 - again. She's 22: In December 2016 she had her brain tumor surgically removed. She did not undergo chemotherapy nor radiation because she was told at the time that the chemotherapy would not help the specific cancer that she had, and was not…
Weakness in legs after brain tumor removal
I am writing to understand the complications after Brain tumor removal - meningioma. This is about my grandfather. He is about 83 years old at present. The first time when the cancer was discovered was about 7 years ago, and since then he has had two surgeries and two radiotherapies. He had first surgery about 7 years ago,…
Mom with glioblastoma stage4
My mom was diagnosed in March 2016. She had the surgery, followed by radiation and chemo. Then was on chemo for 1 year, one week on...4 weeks off...etc. Her last chemo treatment was in June 2017. She did great that whole 18 months! With 3 months of nothing she had her follow up MRI early September 2017 and it showed…
Recently diagnosed and in need of helpful info
Hi. Out of the blue last week, my normally healthy 31 year old wife had a seizure at work and was rushed to the ER. After a few MRIs and CAT scans, it was determined that she has a 3cm mass in her left frontal lobe. Needless to say, with 2 small children (3 year old & 8 months) we were completely caught off guard. So far,…
Pushing Away Loved Ones
I fell completely head over heels in love with a man, who from the start, told me he had cancer. At the time, it was nothing I was afraid of. I knew at some point things would get hard but I didnt realize how soon and how hard. He told me that the doctors told him he had 7 years. This was about 2 months ago. Last Friday he…
A Care Givers Dilemma...
I am representing my wife on this forum and as a novice to forums, I apologize and hope I do this correctly. This is her story... with a question enclosed. After a hysterectomy, my wife was told that some of the histology showed evidence of endometrial cancer. It had not reached the lymph nodes, but had reached the…
looking for other germinoma brain tumor survivors
Hi I'm james at 15 I was diagnosed with a germinoma brain tumor. I now am high tone deaf, heat intolerance. would like to talk to anyone with a germinoma or anyone with the same side effects from treatment that I have. thanks
Dad has glioblastoma stage 4
My dad is 66 and was recently diagnosed with glioblastoma stage 4. They were able to remove his tumor but they say it grows back aggressively and quickly. He is in rehab right now and we hope he will be back home within the week before he begins chemo. We are hoping for a year left with him. No doctor has given him a set…
Ependymoma Grade II
My son is 13.5 old, has been diagnosed with Ependymoma Grade II. He had his surgery in February and radiation Therapy for 6 week has been done. He is doing fine after that but I am very concerned about his future health. Can anybody guide with some tips for care?
Looked like MS, but now more like tumors
My vision is terribl... waiting on lumbar puncture results which yielded initial high spinal fluid and lots of white blood cells.... they are sure I don't have an infection. several rounds of IV steroids have helped with the swelling in my brain, but the demyelination is still there. Of of course I don't have a diagnosis…
Pleomorphic Xanthoastrocytoma with anaplastic features
Any info on treatment greatly appreciated my daughter is only 26 and has been given not much encouraging hope
Astrocytoma support
My 19 year old daughter just had surgery Wednesday to remove a tumor on her left lobe close to her motor strip. We found out yesterday that is a astrocytoma grade 3. The Doctor is 95% confident he got all the tumor but we will be starting chemo and radiation in 2-4 weeks after her head heals. I'm in shock, I've cried,…
Grade III Astrocytoma inoperable - help please
Hello, My husband was diagnosed with grade 3 astrocytoma and it is inoperable. It has spread throughout the brain, the two hemispheres and the corpus collosum. He is due to start RT and chemo. He has been unresponsive to steroids so far. Can someone please give me hope that we can beat this. Do people make it without…
Pathology Report Help
Good morning. This is my first time to post and I'm hoping I can get some help :) My dad had his first surgery 7 years ago and was diagnosed with Oligodendroglioma. He had a second surgery about a month ago with a different surgeon to remove part of the tumor that had grown significantly since his last MRI a year ago.…
Inoperable glioma anaplastic astrocytoma brain stem grade 3
My close friends was diagnosed with 2 tumors in June. Drs removed one through surgery; however, the one left is on the brain stem and is inoperable. He will be starting chemo and radiation in a week. Since his diagnosis and surgery he has deteriorated. Can hardly walk, left side is almost useless and left eye is crooked…

Brain Cancer

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