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11 Years Post Brain Cancer STILL having Heat Intolerance problems (concerned as Summer approaches)
I am an 11 yr Medulloblastoma Brain Cancer Survivor and I was just wondering if anyone else feels the way I do in the hot summer months. Whenever it's 80 degrees out, I feel like it's 90, and when it's 90 I feel like it's 100 etc. I also get very lightheaded and disoriented with sometimes neuropathy. I've tried everything…
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adult medullablastoma
We have just recently found out that my husband has medullablastoma of which he just went through surgery to remove the brain tumor from his cerebellum. I know this is rare in adults and am interested if there is anyone who has gone through this type of brain cancer? Any contact would be great.
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Anaplastic Astrocytoma Grade 3 Survivor
Hello all, my name is Thomas and I am an AA3 survivor and just recently found this site and have chosen to post my story for encouragement and inspiration to others that have been diagnosed with this or other cancers. I will give you a brief history so you can somewhat see WHO I am. I was born December 29, 1970, this is…
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Astrocytoma Grade 3 survivor
Hello! I am a 17 year (almost) Astrocytoma Grade 3 survivor. Diagnosed in 1997 at the age of 26. Tumor removed on Halloween! Chemo and radiation. Tumor completely removed it seems. I have been a 100% until recent seziures side effects in 2008 due to scar tissue in the surgrey area. If anyone needs more detail about my…
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Gliomatosis Cerebri
Does anyone out there have gliomatosis cerebri or know of someone who does?
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Gliosarcoma
Dear All, My friend (37 years old) was diagnosed with GLIOSARCOMA two and a half years ago. This is a quick rundown on what happened: - He is 37 (35) then. - He was in good health until this incident - about 2.5 years ago one day after lunch he complained about headache. - the headache became severe and by evening he was…
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Low grade astrocytoma starting chemo/radiation
Hi hoping for some guidance and advice on maybe what to expect. I had very bad pressure headaches in fall 2020 mri revealed I had a small mass blocking spinal fluid going to the brain had to do surgery and felt fine recovery time was about 2 months. Had a follow up mri end of January and found the mass/tumor had grown and…
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Glioblastoma Grade IV
5-30-09 My sister was recently diagnosed with Glioblastoma and we are wanting to know as much as possible on treatment options, effects of , and alternative therapies. We understand it is important to educate ourselves but then to decide what our own journey will look and feel like. We know the power of thoughts and how…
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Update 8 years out: Anaplastic Astrocytoma; read if looking for hope.
For anyone looking for hope, I leave (infrequent) updates about my sister. I know I read so many post and journal articles looking for data about long term survival when she was first diagnosed. She was diagnosed with an anaplastic astrocytoma (grade 3) brain tumor in August of 2011 when she was in her late 20s. Chemo, 2…
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Grade 3, an anaplastic astrocytoma
My nephew-in-law was diagnosed with an anaplastic astrocytoma, Grade 3, last December. He had surgery at MD Anderson Cancer Center, recovery, rehab (very little was required) and 6 weeks of radiation He's recovered great, is back at work and driving. I'm hoping to find someone who has beaten the doctor's timeline diagnosis…
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COVID VACCINE BOOSTER GUIDANCE FROM CANCER TEAM
An FYI for Brain as I was diagnosed with an anaplastic astrocytoma 10 years ago but will post to other threads as well... In consultation with my care team at Dana Farber here in Boston I was given the guidance that the current pembrolizumab regimen I am on (infusions every 3 weeks) qualifies me as immunocompromised and I…
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Esthesioneuroblastoma
Anybody out there know of or have information on survivors of olfactory (esthesioneuroblastoma). I am a 2 year survivor and would like to communicate with anybody that has info. Thanks!
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Optic Nerve Glioma
Hi all. i was recently diagnosed with optic nerve pathway glioma. i am being told it is a rare type of brain cancer and i am looking for anyone with this diagnosis to connect with. I am scheduled to start a 6 week course of photon therapy at the end of july. wondering about side effects and if anyone out there has or has…
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Family Member 6 Months Left To Live
My brother in law was diagnosed with brain cancer 15 months ago. A few months ago treatment seemed to work as the tumor shrunk. And then today the doctors said it grew significantly and estimated 6 months left to live. I am trying to be so strong for my wife because i know I need to be there for her. But this news has…
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Recurring medulloblastoma in grandson
September 2018 our 7 year old grandson was diagnosed with medulloblastoma. Everything was going well until October of 2019 when Cat scan showed a small tumor had reemerged. They treated with a different type of chemo but it was ineffective. he started having motor function issues with speech etc and they went to hospitol…
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New Here: Question About Gliomas
Hi! My mom was diagnosed with a mass, presumed a glioma, on her right temporal lobe. She has waited it out to see if it will grow. After almost a year it grew a little and the Doctor is recommending surgical removal. We are all distraught, of course. Can anyone share their similar experiences? Any feedback is appreciated.
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Avastin alone, no chemotherapy with it?!
My husband, Jacob received the first infusion of Avastin yesterday ( failed temodar).It was Avastin alone , no chemotharapy added. When I asked the NO, he said there is no proven benefit of using chemo ( and there is a risk of platelets go down!). However, I read everywhere some type of chemo is always give along with…
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Ladies out there dealing with hair loss
Okay, I realize that in the grand scheme of things, hair loss from radiation is not really that big of a deal - but now that radiation is over (ended mid-September 09) and I'm on the Temodar cycles, I am seeing NO real re-growth! It's frustrating. With a limited life expectancy at this point, I really am trying to enjoy my…
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Medulloblastoma - stronger medication
Our grandson has braincancer medulloblastoma. He is about 17 months post rad and chemo. Last week he was back in Rome to have his nomal scan. My wife is worried because the parents won't divulge why the doctor recommended stronger medication. I have a feeling the cancer returned. Is there anyother reason why the doctor…
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Glioblastoma diagnosis - 58 year old male
I have seen some forum topics here on Glioblastoma, but am searching for the most recent information available. A family member was recently diagnosed with Glioblastoma (58 year old male), had surgery and has now started on chemo and radiation. Doctors are expecting he will survive between 18 and 24 months. Knowing this is…
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Chemo for brain tumour
My wife just finished 6 weeks of chemo and radiation. During the last week she started getting a bad itchy rash. It covers her back, legs, bum, arms, breast and arm pits. She finds it extremely itchy. I put cream on her and she ices it and it helps. It has now been over a week since she stopped having to take chemo pills.…
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Glioblastoma multiforme
This is so bizarre that I have not slept in 2 days. My husband was diaganosed with a glioblastoma multiforme in January that is in the shape of a butterfly across his left and right frontal lobes and crossing the corpus crossum {sp}. He had 31 days radiation, and round of temador. Dr's said he had 3-6 months to live. He…
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HOMEOPATHY & DIET for treatment of GBM IV -
Hello all...it's been 5 months since my diagnosis of GBMIV. It's been a tough journey but I'm staying strong. After getting the first round of chemo (40 days) and Radiation (30 days) I had decided to stop these treatments based on material I have researched and personal choices. In place of the ideal treatment of chemo and…
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PET/CT Scans
How many brain PET/CT scans have people had? How frequently? Are the follow ups done indefinitely?
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Help
So I dont see many actual patients posting here. Just a lot of caregivers. I'm 32. Don't really have much for a support system. Not emotional anyways. My wife was in the process of leaving me when we found out. i rapidly lost feeling in my right hand and arm and I quickly developed a limp. Doc quickly prescribed Avastin…
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Squamous Cell tumor Cavernous sinus
Brain Cancer Cavernous Sinus Squamous Cell Primary tabs * View(active tab) * Edit Sat, 02/08/2020 - 2:52pm — Ingleside I recently got good news. On July 3, 2019 I had a crainiatomy at Baylor in Huston Texas. On December 14. 2019 i finished my 9th Chemo Treatment and 33rd Radiation treatment. On Jan 24, 2020 I had an MRI…
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glioplastoma
My husband was diagnosed with grade IV glioplastoma 2 months ago. He had surgery 2 days later to remove the 8 CM tumor and has been undergoing radiation and chemo. He has only 4 treatments left. I am wondering how extensive the family activities should be this summer. Our children have suggested a cruise with the family…
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My dad is fighting brain cancer and mom is struggling.
So at the beginning of this year my dad began to deteriorate. Dad is a tough patient and he hates going to hospitals. We begged him to see a doctor. He was not listening till we finally got him to a local hospital they did a ct scan and found a tumor 4 days later he had the operation to remove 80 % of it. He has now been…
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Primary CNS Lymphoma
I am a healthy 32 year old male recently diagnosed with Primary CNS Lymphoma. I have been through 3 cycles of high-dose methotrexate with doses of procarbazine every other treatment and so far my progress has been great. I am writing because - from what I know about CNS Lymphoma of the brain - I am a very unique case.…
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Juvenile Pilocytic Astrocytoma treatment - Carboplatin and Vincristine
Hello - My 3 and a half year old son was recently diagnosed with a JPA on the tectal plate of this brain stem. The surgeon was able to resect 50% of the tumor and added that complete resection is possible, but may lead to long term effects, such as loss of hearing. His oncologist wants to immediately put him on a chemo…