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    Brain Cancer

     

    Discussion List

    • User: "H0829"

      Anaplasic Astrocytoma Clinical Trials

      Looking to hear about any experience with clinical trials and specifically anything applicable to Anaplastic Astrocytoma. My husband was diagnosed recently and after radiation + temador and 4 cycles o…
      70 views
      2 comments
      0 point
      Started by H0829
      Most recent by kat96
      Brain Cancer
    • User: "George gobrial"

      DC vaccine therapy ?

      My name is George. My mom has GBM. we are interested in getting DC vaccines ttt. We can not find any clinical trial that fits. But found many centers in Germany that offer that for money. Anyone has e…
      36 views
      0 point
      Started by George gobrial
      Brain Cancer
    • User: "afoo10027"

      leptomeningeal headache management question

      Hello, my mother is a lung cancer patient with leptomeningeal metastases (LM). She is currently on Osimertinib, which I got for her from India. We are currently being treated overseas. (China) After s…
      83 views
      0 point
      Started by afoo10027
      Brain Cancer
    • User: "Sybille"

      Oligodendroglioma

      Hallo I am intrested in people who are deal with the same brain cancer. My husband had surgery (about 90 % resection) in october 03 (oligo grade II/III) and than he had radiation therapy (36 x , tot. …
      1902 views
      105 comments
      0 point
      Started by Sybille
      Most recent by brainep
      Brain Cancer
    • User: "The Jedi"

      Glioplastoma stage 4 dad has 9 treatments left.

      So my dad has had a regression he was on a steroid to help with swelling and after 3 weeks of chemo the popular temodar .. He suddently had weakness in his legs and severe tiredness. His blood sugar h…
      130 views
      1 comments
      0 point
      Started by The Jedi
      Most recent by brainep
      Brain Cancer
    • User: "sunshine123"

      PXA tumors

      Looking to hear from others who have been diagnosed with PXA tumors. My son was diagnosed at the age of 15 with a PXA Grade II, but then after a second opinion after his 2nd surgery, there were concer…
      181 views
      6 comments
      0 point
      Started by sunshine123
      Most recent by Whim_zee
      Brain Cancer
    • User: "JessAndBen"

      Anaplastic Astrocytoma Grade 3. Without Surgery.

      Hi all, In Feb 2016 my husband (aged 25) was diagnosed with Anaplastic Astrocytoma Grade 3. An orange sized tumour is directly in the middle of his brain stem and surgery isn't an option, as advised b…
      65 views
      1 comments
      0 point
      Started by JessAndBen
      Most recent by H0829
      Brain Cancer
    • User: "Sofigirl"

      Lomustine (CCNU)

      Husband has anaplastic astrocytoma Grade 3. Did 6 weeks radiation plus Temodar. Then Temodar 5 days out of every 28 day cycle for 6 cycles. Tumor has progressed. Soon he will begin Lomustine once ever…
      70 views
      3 comments
      0 point
      Started by Sofigirl
      Most recent by H0829
      Brain Cancer
    • User: "fighter34"

      Adult Medulloblastoma

      My husband was diagnosed in December of 2010 with a brain tumor. He had had symptoms of hand shaking, balance off, dizziness, nausea, and slurred speech. We then went down to Indianapolis, IN and had …
      62 views
      1 comments
      0 point
      Started by fighter34
      Most recent by MaryCD
      Brain Cancer
    • User: "dogies4"

      DPIG

      Does anyone know if adults can get DIPG?
      71 views
      1 comments
      0 point
      Started by dogies4
      Most recent by dogies4
      Brain Cancer
    • User: "lighterwood67"

      CAR T-Cell

      Has anyone had this treatment/ CAR T-cell therapy for glioblastoma: recent clinical advances and future challenges. ... In patients with certain hematologic malignancies, the use of autologous T cells…
      39 views
      0 point
      Started by lighterwood67
      Brain Cancer
    • User: "Rcobble"

      I don't know where to start? My 16 year old

      30 views
      0 point
      Started by Rcobble
      Brain Cancer
    • User: "regi1010"

      Question

      Hello! My name is Regina. My friend often has pains in the back of the head, and she also complains of headaches and nausea several times a day. I worry about her health, and I suspect that she is ser…
      47 views
      1 comments
      0 point
      Started by regi1010
      Most recent by tjarrod99
      Brain Cancer
    • User: "Jasonsmom45"

      Medulloblastoma Survivor help

      Hi, I'm writing to see if I can get some information from some of you out there that have survived medulloblatoma or have children that have survived. My son was 10 years old at diagnosis, had a resec…
      230 views
      15 comments
      0 point
      Started by Jasonsmom45
      Most recent by Maxie S
      Brain Cancer
    • User: "jroby55"

      Question

      Hey Guys, I was diagnosed with RCC back in November and the pathology report and imaging suggests it was contained and did not spread. Back in November I also had a CT then a follow MRI of my brain as…
      29 views
      0 point
      Started by jroby55
      Brain Cancer
    • User: "CherieLW"

      Asking for advice and prayers

      My dad had sinus cancer in the past... So I'm very familiar with what ask he went through and it was tough to watch. We just found out dad has a tumor on his forehead that went through his skull to th…
      32 views
      3 comments
      0 point
      Started by CherieLW
      Most recent by tbret
      Brain Cancer
    • User: "alishawith4"

      alternative treatment never to late i hope

      So my son Zakk has finiished his brutal radiation/chemo treatement--one year and two months of that, WOW!!! Alternative treatment that i wanted was thrown out as soon as the idea came out of my mouth,…
      29 views
      0 point
      Started by alishawith4
      Brain Cancer
    • User: "triley66"

      adult PNET

      My fiancee was diagnosed with PNET in early June after surgery to remove a golf-ball size tumor from his brain. He's recovered very well from the surgery and is due to start treatment (radiation plus …
      597 views
      38 comments
      0 point
      Started by triley66
      Most recent by Patyserrano
      Brain Cancer
    • User: "Darkdancer333"

      medulloblastoma in grandson

      Long story short this been a rough few months. I am 4 months post radiation for BOT HPV+ Cancer My grandson lives in the Republic of Georgia and Sept 29th he was diagnosed with medullblastoma. He is 6…
      37 views
      2 comments
      0 point
      Started by Darkdancer333
      Most recent by Darkdancer333
      Brain Cancer
    • User: "umcrn"

      Pleomorphic Xanthoastrocytoma with Anaplastic Features

      Hello all! I am new to these boards and was trying to find anyone who has been diagnosed with PXA w/ anaplastic features? My surgery was 6 months ago, I had a gross total resection and no other treatm…
      293 views
      27 comments
      0 point
      Started by umcrn
      Most recent by Koda
      Brain Cancer
    • User: "cindysuetoyou"

      Grade III: Anaplastic Oligodendroglioma lifespan?

      My 26 year old son was diagnosed with an anaplastic oligodendroglioma in May of 2009. He had a craniotomy and they felt like they got all of the visible tumor out. He then had 6 weeks of radiation alo…
      4934 views
      204 comments
      0 point
      Started by cindysuetoyou
      Most recent by tarawiseg
      Brain Cancer
    • User: "Freddy"

      Anaplastic Oligodendroglioma

      Hello Friends, Between 1998 and 2003 I used my phone extensively for 4 to 6 hours, and In 2003 I had started have headaches after 3 days I went to my Physician and he told me to get scanned so I went …
      387 views
      1 comments
      0 point
      Started by Freddy
      Most recent by tarawiseg
      Brain Cancer
    • User: "tarawiseg"

      Brain Tumor

      Anyone here with stories advice anything really, My Dad (64) healthy, was diagnosed with a brain Tumor. Specifically Angioplastic Oligendioma grade 3. Im frustrated, scared and dont want to lose my da…
      56 views
      0 point
      Started by tarawiseg
      Brain Cancer
    • User: "stuffy"

      CBD oils for serizures control

      using CBD oils for controling serizures . I was hoping to find someone with good information on these products
      50 views
      0 point
      Started by stuffy
      Brain Cancer
    • User: "gdpawel"

      Brain Radiation Necrosis

      The treatment method recommended for brain metastases of large solitary tumors exceeding 2cm in diameter is surgical resection followed by 5 fractions(at 2.0gy per) of focal radiation to the local tum…
      1459 views
      13 comments
      0 point
      Started by gdpawel
      Most recent by Whuppiedu
      Brain Cancer
    • User: "Melissa123"

      is it normal to sleep all day after whole brain radiation?

      My dearly loved 28 years old boyfriend has recently diagonosed with brain mets (5 tumor, the largest one has been surgically taken out), the primary is colon cancer. He has just finished 10 treatments…
      504 views
      5 comments
      0 point
      Started by Melissa123
      Most recent by csn_jeff
      Brain Cancer
    • User: "SaraD"

      GBM Survivor

      I was just reading some of the posts in the brain cancer topic section. I noticed that people are lookiing for survival stories...well, I guess I am one! I was diagnosed with stage 4 GBM located in my…
      116 views
      2 comments
      0 point
      Started by SaraD
      Most recent by suncali81
      Brain Cancer
    • User: "annstillhere"

      gliomatosis cerebri

      I have been reading your posts for a few months now and have been inspired by your thoughts. I am a 59 (almost 60 yr old woman)2 months ago I had a seizure at my work, and was ultimately diagnosed wit…
      257 views
      14 comments
      0 point
      Started by annstillhere
      Most recent by Leentje
      Brain Cancer
    • User: "steve68"

      Diffuse Astrocytoma Grade II/Gliomatosis Cerebri -- anybody out there?

      Hi, I was diagnosed with diffuse astrocytoma grade II (gliomatosis cerebri) in September 2009. Inoperable. We have found it difficult and confusing to understand the treatment options and prognosis. W…
      385 views
      33 comments
      0 point
      Started by steve68
      Most recent by Leentje
      Brain Cancer
    • User: "Sameh shaaban"

      Medulloblastoma

      My son 7 years old diagnosed medulloblastoma 11/5/2017.Done surgery 11/9/2017 . The surgeon was able to remove it all . Pathology revealed classic medulloblastoma . Spine tap negative . .then 42 days …
      47 views
      3 comments
      0 point
      Started by Sameh shaaban
      Most recent by Sameh shaaban
      Brain Cancer
     

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