Brain Cancer

Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Brain Cancer

Discussion List

  • User: "H0829"
    Looking to hear about any experience with clinical trials and specifically anything applicable to Anaplastic Astrocytoma. My husband was diagnosed recently and after radiation + temador and 4 cycles o…
    70 views
    2 comments
    0 point
    Started by H0829
    Most recent by kat96
  • User: "George gobrial"
    My name is George. My mom has GBM. we are interested in getting DC vaccines ttt. We can not find any clinical trial that fits. But found many centers in Germany that offer that for money. Anyone has e…
    36 views
    0 point
    Started by George gobrial
  • User: "afoo10027"
    Hello, my mother is a lung cancer patient with leptomeningeal metastases (LM). She is currently on Osimertinib, which I got for her from India. We are currently being treated overseas. (China) After s…
    83 views
    0 point
    Started by afoo10027
  • User: "Sybille"
    Hallo I am intrested in people who are deal with the same brain cancer. My husband had surgery (about 90 % resection) in october 03 (oligo grade II/III) and than he had radiation therapy (36 x , tot. …
    1901 views
    105 comments
    0 point
    Started by Sybille
    Most recent by brainep
  • User: "The Jedi"
    So my dad has had a regression he was on a steroid to help with swelling and after 3 weeks of chemo the popular temodar .. He suddently had weakness in his legs and severe tiredness. His blood sugar h…
    130 views
    1 comments
    0 point
    Started by The Jedi
    Most recent by brainep
  • User: "sunshine123"
    Looking to hear from others who have been diagnosed with PXA tumors. My son was diagnosed at the age of 15 with a PXA Grade II, but then after a second opinion after his 2nd surgery, there were concer…
    181 views
    6 comments
    0 point
    Started by sunshine123
    Most recent by Whim_zee
  • User: "JessAndBen"
    Hi all, In Feb 2016 my husband (aged 25) was diagnosed with Anaplastic Astrocytoma Grade 3. An orange sized tumour is directly in the middle of his brain stem and surgery isn't an option, as advised b…
    65 views
    1 comments
    0 point
    Started by JessAndBen
    Most recent by H0829
  • User: "Sofigirl"
    Husband has anaplastic astrocytoma Grade 3. Did 6 weeks radiation plus Temodar. Then Temodar 5 days out of every 28 day cycle for 6 cycles. Tumor has progressed. Soon he will begin Lomustine once ever…
    70 views
    3 comments
    0 point
    Started by Sofigirl
    Most recent by H0829
  • User: "fighter34"
    My husband was diagnosed in December of 2010 with a brain tumor. He had had symptoms of hand shaking, balance off, dizziness, nausea, and slurred speech. We then went down to Indianapolis, IN and had …
    62 views
    1 comments
    0 point
    Started by fighter34
    Most recent by MaryCD
  • User: "dogies4"
    Does anyone know if adults can get DIPG?
    71 views
    1 comments
    0 point
    Started by dogies4
    Most recent by dogies4
  • User: "lighterwood67"
    Has anyone had this treatment/ CAR T-cell therapy for glioblastoma: recent clinical advances and future challenges. ... In patients with certain hematologic malignancies, the use of autologous T cells…
    39 views
    0 point
    Started by lighterwood67
  • User: "regi1010"
    Hello! My name is Regina. My friend often has pains in the back of the head, and she also complains of headaches and nausea several times a day. I worry about her health, and I suspect that she is ser…
    47 views
    1 comments
    0 point
    Started by regi1010
    Most recent by tjarrod99
  • User: "Jasonsmom45"
    Hi, I'm writing to see if I can get some information from some of you out there that have survived medulloblatoma or have children that have survived. My son was 10 years old at diagnosis, had a resec…
    228 views
    15 comments
    0 point
    Started by Jasonsmom45
    Most recent by Maxie S
  • User: "jroby55"
    Hey Guys, I was diagnosed with RCC back in November and the pathology report and imaging suggests it was contained and did not spread. Back in November I also had a CT then a follow MRI of my brain as…
    29 views
    0 point
    Started by jroby55
  • User: "CherieLW"
    My dad had sinus cancer in the past... So I'm very familiar with what ask he went through and it was tough to watch. We just found out dad has a tumor on his forehead that went through his skull to th…
    32 views
    3 comments
    0 point
    Started by CherieLW
    Most recent by tbret
  • User: "alishawith4"
    So my son Zakk has finiished his brutal radiation/chemo treatement--one year and two months of that, WOW!!! Alternative treatment that i wanted was thrown out as soon as the idea came out of my mouth,…
    29 views
    0 point
    Started by alishawith4
  • User: "triley66"
    My fiancee was diagnosed with PNET in early June after surgery to remove a golf-ball size tumor from his brain. He's recovered very well from the surgery and is due to start treatment (radiation plus …
    597 views
    38 comments
    0 point
    Started by triley66
    Most recent by Patyserrano
  • User: "Darkdancer333"
    Long story short this been a rough few months. I am 4 months post radiation for BOT HPV+ Cancer My grandson lives in the Republic of Georgia and Sept 29th he was diagnosed with medullblastoma. He is 6…
    36 views
    2 comments
    0 point
    Started by Darkdancer333
    Most recent by Darkdancer333
  • User: "umcrn"
    Hello all! I am new to these boards and was trying to find anyone who has been diagnosed with PXA w/ anaplastic features? My surgery was 6 months ago, I had a gross total resection and no other treatm…
    293 views
    27 comments
    0 point
    Started by umcrn
    Most recent by Koda
  • User: "cindysuetoyou"
    My 26 year old son was diagnosed with an anaplastic oligodendroglioma in May of 2009. He had a craniotomy and they felt like they got all of the visible tumor out. He then had 6 weeks of radiation alo…
    4932 views
    204 comments
    0 point
    Started by cindysuetoyou
    Most recent by tarawiseg
  • User: "Freddy"
    Hello Friends, Between 1998 and 2003 I used my phone extensively for 4 to 6 hours, and In 2003 I had started have headaches after 3 days I went to my Physician and he told me to get scanned so I went …
    387 views
    1 comments
    0 point
    Started by Freddy
    Most recent by tarawiseg
  • User: "tarawiseg"
    Anyone here with stories advice anything really, My Dad (64) healthy, was diagnosed with a brain Tumor. Specifically Angioplastic Oligendioma grade 3. Im frustrated, scared and dont want to lose my da…
    56 views
    0 point
    Started by tarawiseg
  • User: "stuffy"
    using CBD oils for controling serizures . I was hoping to find someone with good information on these products
    50 views
    0 point
    Started by stuffy
  • User: "gdpawel"
    The treatment method recommended for brain metastases of large solitary tumors exceeding 2cm in diameter is surgical resection followed by 5 fractions(at 2.0gy per) of focal radiation to the local tum…
    1457 views
    13 comments
    0 point
    Started by gdpawel
    Most recent by Whuppiedu
  • User: "Melissa123"
    My dearly loved 28 years old boyfriend has recently diagonosed with brain mets (5 tumor, the largest one has been surgically taken out), the primary is colon cancer. He has just finished 10 treatments…
    504 views
    5 comments
    0 point
    Started by Melissa123
    Most recent by csn_jeff
  • User: "SaraD"
    I was just reading some of the posts in the brain cancer topic section. I noticed that people are lookiing for survival stories...well, I guess I am one! I was diagnosed with stage 4 GBM located in my…
    116 views
    2 comments
    0 point
    Started by SaraD
    Most recent by suncali81
  • User: "annstillhere"
    I have been reading your posts for a few months now and have been inspired by your thoughts. I am a 59 (almost 60 yr old woman)2 months ago I had a seizure at my work, and was ultimately diagnosed wit…
    257 views
    14 comments
    0 point
    Started by annstillhere
    Most recent by Leentje
  • User: "steve68"
    Hi, I was diagnosed with diffuse astrocytoma grade II (gliomatosis cerebri) in September 2009. Inoperable. We have found it difficult and confusing to understand the treatment options and prognosis. W…
    385 views
    33 comments
    0 point
    Started by steve68
    Most recent by Leentje
  • User: "Sameh shaaban"
    My son 7 years old diagnosed medulloblastoma 11/5/2017.Done surgery 11/9/2017 . The surgeon was able to remove it all . Pathology revealed classic medulloblastoma . Spine tap negative . .then 42 days …
    47 views
    3 comments
    0 point
    Started by Sameh shaaban
    Most recent by Sameh shaaban