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Treatments
My husband was diagnosed with Glioblastoma Multiforme on June 15, 2017. We went to see the Dr on July 11, 2017 and he said he wanted to have a Functional MRI done to see if the mass can be operated on. The MRI is scheduled August 23rd. He is currently taking the Steroids and Anti-Seizure Meds, but how long after the…
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Cargiving husband with brain cancer
Does anyone have any experience to share? I'm in month five and am struggling. Glioblastoma grade 4. Craniotomy, radiation, temodar and avastin. Still on decadron and walking is very limited and only with a walker.
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Glioblastoma- lack of symptoms?
Hi- My 77 year old mother just passed away 3 months ago from Glioblastoma. Now that time has passed I am more and more confused about her death because she had no real symptoms (at least that she told me about). She was found unconscious, rushed to the hospital and died 3 days later. We tried to get her to surgery (which…
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spinal astrocytoma
has anyone had experience with a Grade 3 astrocytoma in the spine? I was dx'd a year and a half ago, had 30 radiation treatments, was on temodar for a year, took a short break and am back on it now. I would appreciate hearing about anyone else's experience.
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Anaplastic Astrocytoma G3 in the Spinal Cord
Hi, My father was diagnosed in Dec 2008 with anaplasic astrocytoma in his spinal cord. He'd had symptoms all year that started with a numbness in his feet which crept all the way up to his rib cage. Initially the neuro called it neuropathy, but it didn't relate to anything and it kept progressing. In August 2008, when he…
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Father with Stage IV Glioblastoma - extreme anger issues, paranoia
Hi everyone, my dad was diagnosed with stage 4 glioblastoma in January after initially having a seizure in November. A little backstory, my dad has had anger issues since I was a child. The smallest thing could cause him to fly into a fit of rage, whether it was someone not answering his phone call or being 15 minutes late…
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Muscle twitching
My father is 56 yo and Here is the summary of events: Diagnosis: January 8, 2013. GBM Grade 4 (37 mm x 22 mm x 10 mm) Left frontal lobe Biopsy results: EFAP: Positive, Cytokeratin (AE1/AE3) Negative, p53: (1+), KI-67: %28 Surgery: January 24, 2013. Established mass was tracked down to ventricular holes and completely…
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Anyone Still On Here From 2009,2010,2011 with Anaplastic Oligodendroglioma Grade 2,3?
Looking for survivors from when I first joined this site in 2010 with the same tumor as my husband? Anyone out there? I would like to hear how things are going.
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My mother was diagnosed with lung cancer and then brain mets
Hello, I'm from Bangkok, Thailand and 2 years ago, my mother was diagnosed with lung cancer. (The information I'm writing might not be in detailed). After surgery and chemotherapy, she did a PET scan where it showed no signs left of cancer, we were so relieved. Unfortunately, after 6 months, with a follow up of PET scan, a…
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I'm trying to prolong his life... GBM gradus IV
Hello My father has brain cancer. Glioblastom multiforme in corpus callosum, gradus IV. (butterfly) The tumour's location is in the center of the brain, is not possible to perform the operation. After consulting Doctors Advisory Board, as a therapy in the treatment suggested the Chemotherapy and Radiation therapy. (Due to…
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GBM - WHO Grade IV, patient needs your help!
On June'15 my brother was been diagnosed with a Brain Tumour (GBM IV). The tumour's location is on the left frontal lope, it was about 7 cms. big. Later on there was a resection surgery done, followed by 1 month of radiation therapy & 1 year of chemotherapy (TMZ). At present he has finished his chemotherapy, and has been…
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Father with Stage IV Glioblastoma - very angry
Hi All, I'm new to the discussion board, but am hoping for some help as I am feeling very alone and frustrated. My dad was diagnosed about 5 weeks ago with stage four glioblastoma. The tumor a butterfly glioma that spreads across his frontal lobes; this effects personality and emotion. My dad has always been a lover not a…
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How is everyone?
I've found myself here like many of you have. MRI on March 12th straight to crainiotomy on March 13, 2017 for a total gross removal of a 7cm tumor on my right frontal lobe. Pathology came back mostly grade II at first, but the center contained grade III A.A. and turned our world upside down. I will admit I have laid in bed…
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9 year survivor testimony.
Hello, I am new here. This is a very painful topic for me to discuss, but I need to practice for a testimony I will be doing at my church. When I was 15 in 2007 I had it all going for me..I was young, funny, full of life, and had many friends to hang out with. I had decided to set an affrimation for my sophomore year; I…
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My Cancer Experience: Germinoma Brain Tumor
Hi everyone, my name's Lewis. About four years ago, I was diagnosed with and underwent treatment for brain cancer. Fortunately, the treatment was successful with few long-term side effects. I am writing this in hopes that those who are currently battling cancer may stay hopeful and confident in their battle. In 2012, I was…
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CNS Lymphoma post radiation hair growth
Hello! I am a Lymphoma survivor. I had 3 lesions in my brain, did chemo as well as radiation. During my chemo treatments, my hair was growing back in between treatments but with radiation, I cannot say the same. I look like an elderly balding man. My hair is thin and I have major bald spots. I was told today to use Nioxin…
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GBM Grade IV and going back to work?
My husband David (46) is a federal employee and a US Army Reservist. Diagnosed in October 2010, he has not been back to work until recently (both with the US Army Reserves and his federal job). Since the diagnosis, David has had such a hard time keeping track of time, his things, events, etc... mainly short term memory…
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Astrocytomas - questions, concerns, and introduction
Hello CSN members, I'm brand-new to this group, so I'm kind of introducing myself as well as asking the several questions I have about Astrocytomas. My boyfriend was diagnosed with them 5 years ago (before I knew him), and the doctors found them inoperable because of where they were located. Even though I'm told he had…
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Brain cancer in in kids AT/RT atupical teratoid rhabdoid tumor
Brain cancer in in kids AT/RT atupical teratoid rhabdoid tumor has anyone any knowledge about this type of cancer my 10 months old son was diagnosed with it i there any survivors doc gave less then 10% chance to live
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Gliomatosis Cerebri - Anticipating Care Needs when husband has Parkinson's
I am so thankful to find this site as we are desperate for advise regarding caring for my in-law from this point forward. My beautiful, brilliant, vivacious 70 year old mother in law's preliminary ongology came back as Grade 2 Gliomatosis Cerebri last week. The surgeon said it is diffused through her entire brain. She…
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Memory improvement/cognitive function after treatment/surgery
I am writing to help a dear friend who is experiencing memory problems. She is not able to recall what she did the previous day, what she ate for breakfast. She may know something in broad detail e.g. that she has received an invitation to a friend's party, but cannot tell you when it will take place or more information…
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Oligodendroglioma II /radiotherapy question
I am 24 years, diagnosed with oligodendroglioma grade 2, went into surgery removed 80% of the tumor, As a treatment plan, they suggested chemo with radiation, but told me that radiation is once in lifetime !!! I decided to save it as a golden card and just go with chemo, but when I searched on internet I found some ppl…
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Cns lymphoma confusion
Hello my dad is 75 and had brain surgery to remove his tumor of pcns lymphom On dec 5. the high dose chemo was extremely tough on him. were extremely concerned because his confusion is actually worse. I know it's almost 4 months but shouldn't the confusion be getting better? To make a longo story short he is currently not…
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When you have no insurance?
My mother has lung cancer with mets to the brain. She has undergonce several surgeries the last being brain surgery to remove the tumor that was causing her to have seizures, and lose use of her left side. She is 59 years old this year. In the last 2 day she has fallen repeatedly, and has had a progressive change in…
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So confused - brain tumor, help me navigate these first few days and surgery day opinion please
Unfortunately a few days ago my best friend's husband called me to tell me my friend, Krissy, had backed out of her driveway and had a violent seizure. A 2.7cm brain tumor was found and they transported her to Vanderbilt (we are in Nashville). PET scan showed no spread. When I asked how the neurosurgeon appointment went…
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Imagery for your brain
Hello cancer-cousins, Before I start, I believe four things are key to a cancer patient's survival: 1) fight - don't give up, don't give in, when you get knocked down, stand back up. Much of this process is mental and if you can get through the mental fight, your body will come along for the ride. 2) love - share your…
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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GBM exhaustion
Hello My daughter was treated in 1995 for GBM and is currently a survivor. The Seattle Cacer Care Alliance has had no luck at treating her constant exhaustion. I am hoping someone here might have a suggestion. Thanks much.
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25 year old female with grade IV glioblastoma
Hi- I was recently diagnosed (September 15th) with a brain tumor; grade IV glioblastoma in the left frontal lobe of my brain. I was having an abnormal headache behind my eyes, nose, and sensation above my teeth which led me to see a doctor, get a CT, MRI, etc. A few days later I had surgery at the University of Penn and…
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Duke
Not much luck at Duke. They did not offer Immunotherapy. Only standard meds. Stated new tumors were inoperable. Discouraged gamma knife . Previous team ( having moved quite a distance from original team) looked at MRI....said gamma knife would be fine or even surgery. The message is: KEEP TRYING! GET MULTIPLE OPINIONS!