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Colorectal Cancer

Lonsurf Experience
What has been everyone’s experience with Lonsurf? I keep reading conflicting things regarding efficacy of this medication. Husband now has met all over the pelvis, peritoneum, bowels and now lungs. We have burned through all of the pervious chemo’s. Thanks in advance.
Good news
I have good news to share. I had MRI and CT scans last week and the results are good. I'm now 5 years out cancer-free. It took a couple of years to get my stage 4 colon cancer into remission. My cancer had spread to two lymph nodes, two tumors in my liver, and three in my lungs. I'm very grateful and hope my story can give…
Update
Hello friends I have not checked in this forum for months. I still have three mets in my lungs and was on maintenance chemo 5fu until today. My doctor ordered a blood /tissue test called Signatera which looks for cancer cells in your blood. The results came up negative so we decided to take me off all chemo and observe me…
My One Year+ Adventure, So Far
Nov 2020 diagnosed with colorectal stage 2. 1st step was radiation and then a month of chemo. This was to check to see if the mass might shrink. No change in 8 cm mass. On to surgery they call "abdominal pernial resection with external ostomy". 1st report no sign of "C'' in lmypth Glands. Dr suggested another round of…
Severe Cramps (Gas Pain) after radiotherapy
My dad completed his 25 radiations of 45gy just a week ago to sacral vertebra, mesocrectum and pelvis. Ever since radiations he been having radiation cramps and bowel movement issue. Since finishing it, the bowel movements seem alright but cramps pain have increased. He have been given Grade II RTOG Lower GI toxicity and…
BMI, Diet, and NED
Is anyone here at a higher BMI than they should be and long time NED? This study says it doesn't seem to matter for long term survival but I'm not sure if anyone has more info. Does body mass index impact the number of LNs harvested and influence long-term survival rate in patients with stage III colon cancer? - PubMed…
Clinical Trial KRAS G12C - Adagrasib (MRTX849) + TNO155 = Acne
Hello everyone, I have searched some terms and found no on point results, hence my new topic creation here. I have metastisised colon cancer with KRAS G12C mutation and have just started a drug trial with the new targeting drug, Adagrasib (Merati's MRTX849) combined with SHP2 inhibitor TNO155. I have 2 main side effects…
Stage 4 colon cancer continue…
Thanks so much for your support from another thread…I’ve asked his primary doctor to help speed up the process. He tried but no luck. I’ve been calling and planning to keep calling several time a day to see if any cancellations pops up. I’m also planning to get 2nd opinion from UCI colorectal surgeon to see what they think…
Ct Scan
Hello, Brand new here. I had a colonoscopy last week and a biopsy (no polyps) was taken in the cecum. The results: Diagnosis: Colon, cecum, submuocsal mass, biopsy: Colonic mucosa with lymphoid aggregate. My doctor ordered a CT scan and I was told I have somewhat enlarged lymph nodes (possible metastasis) in the same area…
3 pet scans in your life
had a pet scan for nov 24th after haveing nodes removed from groin but becuse im on medicare with humana and medicade seems only 3 petscans in your lifetime but unlimted cat scans this was part of the obama health care package
Cancer and now a STEMI - Heart Attack
February has been quite the month. At the beginning of the month I got my eight year NED news from my Oncologist, and this week I had a heart attack - (An ST-elevation myocardial infarction (STEMI) is a type of heart attack that is more serious and has a greater risk of serious complications and death. It gets its name…
low fiber/residue diet
My current plan of action is to avoid surgery until after I can finish another round of chemo and then portal vein embolization, so about another 6-8 weeks. After that time I would have surgery on both the colon and liver. I have had one bowel obstruction and am a good candidate for another. If I do obstruct again they are…
Stage 2 colon cancer and now concerning spot on my lung
I had lost this support group link so I hadn’t posted for a bit. I saw the cancer dr and she will be scheduling a new colonoscopy since the large tumor was removed and they can now see if there is further cancer. She said so far she considers it stage 2. We talked about radiation or chemo. She said at this point there is a…
Stage 4 with mets to skin
Hi all, I'm looking for some uplifting encouragement. My husband was originally diagnosed with stage 4 adenocarcinoma at the age of 32 in 2017. He underwent 12 rounds of FolFox, 5 weeks of radiation and a total colectomy. At the time of the colectomy he had 4 tumors in his colon but we were told he was left with negative…
Evusheld
"Evusheld, This treatment can protect vulnerable people from COVID. But many don’t know about it." Article: COVID-19 drug Evusheld for vulnerable people can be hard to get - Los Angeles Times (latimes.com)
Suggested break during radiotherapy
My dad is currently having radiation for pelvic recurrence and sacral mets. He still have final 5 radiations left of his 5 weeks treatment but he been having continuous cramps from today morning so doc advised to take a break for 2-3 days because they say these cramps are because of radiation. The side effects of…
New to CSN and a little lost
I’m new here and I’m not sure if this is where I should introduce myself (I did look for a category for newcomers but didn’t see one) but I also don’t want to be thought of as a “lurker” so here goes – short story: colon cancer (tumor removed in 2019 along with resectioning) that metastasized in the liver after a few…
Lower Anterior Resection Syndrome
I just found out that the interesting bowel habits I have had since my surgery back in 2012, has a name - Lower Anterior Resection Syndrome. Why did my Oncologist or Radiation Oncologist not tell me that before? It has always just been a side effect, and now I have a name for it. Somehow, it makes me feel good, to be able…
LARS Question/resection with no ileostomy
Looking for some info on what to expect post-op as related to the possibility of dealing with LARS, I am 3 weeks post op, was able to lobby for a laparoscopy, and no ileostomy. That went well and so far so good. I was T3b N1M0, tumor higher in the rectum. Had FOLFOX and radiation pre-surgery. Was told to expect some bowel…
Anyone done an Ion Cleanse?
What's your opinion? Better to let the chemo linger in ya or get it out quickly and completely?
Bad reaction to my last Oxiplatin infusion
I knew beforehand that the last infusion, yesterday, wasn't going to be easy. Had no idea how bad:0( Was only able to take a third of the bag before a few hives, severe lower abdominal pain, and profusely sweating. Took about an hour and a lot of Benadryl and passing out for 30 minutes before I woke and felt better. Hope…
Neuroendocrine tumor
Has anyone had a neuroendocrine tumor of the rectum, anus, or colon? I was diagnosed with rectal cancer, a neuroendocrine type, in 2002 at age 32, and I am told it is a rare type of tumor to occur in the rectal/anal area. I had chemo, a colostomy, radiation in 2002-early 2003, then a recurrence this past Sept. 2003 in my…
y90 is a complete load of crap
Yes that's true, the treatment stinks and it made me even worse. The tumor they went after increased in size and I even have some new tumors. I'm done with the fake promises of wonder drugs. The name of the game is money and they are raking it in.
Devastating update
Hello All, I don't write much here but periodically update here with all our optimistic approaches but now it feels like we may have reached close to the end. Here is my last post where we hoped he get liver surgery and the doctor was super optimistic that he can do it…
Possible recurrence of colon cancer
Hi I was diagnosed at 43 with stage 3 colon cancer back in 2018. All labs and CT scans and colonoscopies were NED. I have had my routine CT scan and they informed me of a small cystic adnexal mass 3.9 cm. I’m so scared! I can’t stop the impending doom that I’m about to walk through. I can’t eat, sleep function. I was…
A big fat update
It's been a while... So, I died. Yep, you read that right. I’ll explain. For those who don’t know, you can read about my previous experiences in my bio (I hope most of it remains there since the site update). In short, I have Metastatic Colon Cancer with spread to the liver. I was “fortunate” to have relatively few mets…
Our friend, abrub, has passed away
I have just found out, that our forum friend, abrub, has passed away, after many, many years of fighting Appendix Cancer. She was doing so well, nine year NED, I believe, and the Cancer returned. She will be truly missed. A great lady! Tru
Pelvic Recurrence with Sacral Mets
My Dad was diagnosed with Adenocarcinoma Rectum in 2017. For which he got LAR and ileostomy bag and then also got 6 months of FOLFOX. But we never had radiation. Then in 2017, PET CT came clear. In Dec 2018, PET CT found some pelvic recurrence with some SUV value but I don't know we also got biopsy done which came out OK…
Treatment ‘options’
I’m just curious if there are others out there who said no to adjuvant Chemo and how you feel about it now. I’m roughly 5 1/2 months post ileostomy take down and 7 1/2 since the LAR. And I’m kinda plagued by the ‘did I make the right decision?’ I’ve apparently got a new chronic anxiety now, thanks to cancer. I was in no…
Seeking information on Colorectal cancer and CDiff infection regarding surgery
My husband's pathology report just confirmed colon cancer. He was also battling CDiff infection, lab test recently came back, he is negative for CDiff after treating. My husband has consult with surgeon to discuss surgery and treatment. I am needing guidance in this area.

Colorectal Cancer

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