Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Just found out
It's difficult for me to position myself as a "survivor" in the context of colon cancer because I just found out a few days ago and I don't even know what stage I'm in, but I am a survivor. I heard the gastroenterologist say the tumor was 2 cm (transverse colon), and the biopsy "shows cancer" (what the GS doctor said) and…
Stage IV Colorectal Cancer
Dear All, On December 31st, 2021, my mom was diagnosed with Stage IV Colorectal cancer ( What a great way to receive the New Year). She has one tumor on her lung, and 7 in her liver( the largest being 3.2cm). She started with FOLFOX, but after her fourth round she was completely constipated, and surgery had to be performed…
Quality of life after ultra low or very low anastomosis?
If you’ve had very low rectal cancer and received Total Mesorectal Excision and a very low colo-anal anastomosis surgery is your bowel emptying function OK, or do you have severe, persistent fecal incontinence and other LAR syndrome symptoms? Are you constantly on a look-out for a toilet? Can you make it on time or are…
Efficiency of reduced CAPOX scheme
Hi all, i was diagnosed for an adenocarcinoma last year September, followed by surgery early October. Chemo started in November following the CAPOX scheme. After second infusion of Oxaliplatin i was left with paralyzed face and hands, so the onco decided to stop Oxaliplatin and go for a 6 month capecitabine (Xeloda) mono…
surgical side effects
I was diagnosed with Stage II rectal cancer in May. The lower pelvic anastomosis was done in early August. I am six weeks past my temporary ileostomy reversal and currently doing the adjuvent therapy. My anastomosis is really low (tumor was 6cm from sphincter) and curious if there are any other men out there who started…
How is everyone holding up?
The world seems a scary place, I try and remember that most of human history has been scary but it’s not a very reassuring thought. More importantly though I always come back to how hard it is for everyone on these boards. I miss when it was easier to navigate but anyway if anyone feels like commenting how they are doing…
Bowel obstruction
How do you know you have an obstructed bowel? I have been having some abdominal pain and constipation and wondered if it could be? when i was diagnosed it was “near obstructing” and I was told it was a concern but never given a “what to watch for” list. thanks
Normal to wait three months for scan?
I haven't been here for a while, so I just thought I'd say hello and hope you are all doing okay. Last week I finished the the last of my 12 infusions. Now I just have to wait three months for my ct scan. Is that normal--to have to wait three months?
Stage IV mCRC... technically - Chemo or no?
Hi everyone! Long time lurker but my first post. Looking for thoughts and perspectives from fellow survivors. About 5 years about I found that I had stage 1B CRC in the Sigmoid - followed by successful resection with clean margins. Based on that the onco did not prescribe chemo. It was a 5-year waiting game, and if clear…
Pat treatment depression
I was strong as nails when told about each cancer (3 at once). Went through treatment and still worked full time. With a lot of time off. Upon hearing I am good I fell apart. Several months ago was told I am cancer free. But now I breakdown and cry and hide often. I look at it as I was strong enough to face the “headwinds…
CEA and CA19-9 levels
Hi, my dad was diagnosed with colon cancer and he’s been undergoing chemo for the past 6 months. He started with a CEA of 29 and a CA19-9 of 97. CEA went from 29, to 10.5 and then started increase to 10.1, then 10.3 and now it’s at 12.9. CA19-9 kept going down and went from 97 to 37, then 38, and now it’s 33 and normal. I…
Hi I'm new to this site
Hi I'm new to this site I'm not sure what to do I'm looking to meet people who are dealing with rectal cancer
Advancing from infusions to pill
First, just dropping in to say thanks to those who welcomed me to this group awhile back. To back up some, I had a cancerous colon tumor removed in 2019 along with part of the colon. Awhile later I was diagnosed with liver cancer (actually “colon cancer” due to the cancer metastasizing to the liver}. The prognosis was grim…
8cm in liver
Just was told my cancer in back in my liver two lesions on 8cm and 1 2 cm. My fourth go around. First time posting could use some advice and support. I just turned 50!!! Ready to battle it out again but know things look up hill!!! We’ll do a biopsy next week!!!! Thanks
Mother Newly Diagnosed with Stage 4B
Hello, I am new. My 81-year-old mother was just told she has stage 4B colorectal cancer. So far, we only have the CAT Scan and small biopsy results from colonoscopy. Quick summary of what looks terrible...she has 40 nodules in lungs, 3 lesions in liver, the primary is the sigmoid and it is in the lining of her abdomen. We…
Stage 4 colon Cancer moved to Lungs for the 2nd time AGE of Patient 55
Age: 55 male Living in Mexico and will fly anywhere in the world for top notch care Current medical provider: Kaiser SoCal Treatments/Diagnosis: Jan 2019 colonoscopy found a tumor. No sign of cancer in my blood. CEA normal. March 2019 colon resection to remove stage 3n2 tumor and lymph nodes of descending colon. After 3…
New and a bit lost
I am 51 and was diagnosed last week with Stage 4 colon cancer that has progressed to my liver and potentially adrenals. From what I understand I have over 30 lesions in my liver and some are very large. My initial consult with the oncologist left me feeling hopeless-no clinical trial options or even a sliver of hope for…
Infections Caused By Cancer Tumor
Hi, Does anyone have experience with infections caused by a cancer tumor? I'm Stage IV, diagnosed 2020. I had an abscess/bacterial infection in February which has recurred twice. I'm on antibiotics. Today I learned that there are now multiple abscesses in pockets that cannot be reached for testing which means that the…
Father is pain free now Forever
Hello All, Yesterday morning my father was relieved at our home from all his pain after fighting the beast for about 3 years , he never feared even when he was told no more treatments 10 days ago. Don't know how he was getting all the strength. It may sounds crazy when I saw him sleeping calmly it felt good , I was sad but…
PET/CT 5 weeks post rads revealed increased SUV
So my dad went 25 fractions of radiation (45 Gy) for pelvic radiation and sacral met which he finished on 11 May, 2022. Last PET scan was done in Mar 2022 and the recent PET scan was just done yesterday in (June 2022). ill defined soft tissue lesion in pelvic cavity (SUVmax 8.54 vs 8.16, 46x43 vs 45x41 mm). It was SUVmax…
signet ring cell carcinoma of colon
my 69 yr old fit and healthy husband had surgery last week for srcc in his colon with 2 lymph nodes involved. We're meeting with oncologist Weds. He only has 1 kidney due to a previous cancer. Not sure how that will affect any chemo regimen. If chemo is even effective with srcc. Any comments?
Extreme Belly and Back pain due to Gas, Bloating, and Constipation. Reusing 5fu for progression.
Hello All, This is going to be a long post. The past few weeks were very rough on dad, he is usually not the one to complain but he was moaning with abdominal pain so we took him to ER. The initial scan shows signs of inflammation in the intestine and colon which didn’t get better with steroids. Neither his oncologist nor…
There is always something new right around the corner. . .
First human patient injected with revolutionary cancer-killing virus (yahoo.com)
This trial had good results
I don't have a mutation so this isn't a trial for me. But the results sound incredible. This article showed in my newsfeed, so thought I would share. I was in an immunotherapy trial that didn't work. https://www.mskcc.org/news/rectal-cancer-disappears-after-experimental-use-immunotherapy
It has been 6 years since my stage 4 diagnosis!
Well, I just keep right on going with this stuff. I would love to be able to tell you that I've been in remission, or that I have a break in treatment or something like that, but all I have at the moment is an extremely stubborn will to keep going, and a reasonably good response to treatment. Today I'm in the middle of my…
New diagnosis
I was diagnosed via colonoscopy after a positive Cologuard result. Having my CT Friday. My main concern is that the DR couldn't push the wand past the mass even though I've had no change I bowel movements. It's lower left so most of the bowel remains un checked at this point. He said the mass was wrapped around the inside…
Large masses
Are large colon masses usually an indicator of advanced disease?
Rash after stopping Folfiri+Cetuximab
My father stopped chemo after 6 full cycles of Folfiri+Cetuximab (with no more cancer showing up on scans, CEA, or Signature), and another few cycles of 5fu+Cetuximab maintenance chemo. He had some rashes from the Cetuximab during treatment, but the antibiotics the doctor prescribed seemed to help. About 3 weeks after…
Lonsurf Experience
What has been everyone’s experience with Lonsurf? I keep reading conflicting things regarding efficacy of this medication. Husband now has met all over the pelvis, peritoneum, bowels and now lungs. We have burned through all of the pervious chemo’s. Thanks in advance.
Good news
I have good news to share. I had MRI and CT scans last week and the results are good. I'm now 5 years out cancer-free. It took a couple of years to get my stage 4 colon cancer into remission. My cancer had spread to two lymph nodes, two tumors in my liver, and three in my lungs. I'm very grateful and hope my story can give…

Colorectal Cancer

Discussion List

Discussion Boards