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Post RP and SRT journey - oh joy
Hi all I thought I would start a fresh thread as things have changed dramatically. My PSA has rised to 0.24 and I have now started HT (casodex with two three monthly injections of Triptorelin). Back story. PSA rose to 4.0 early last year. Biopsy suggested G7 (4+3). RP surgery (bilateral nerve sparing) confirmed the Gleason…
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Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
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Recommendations for Pain Meds (non-narcotic)
Hello - I've found all your posts very helpful, and this is my first time posting. I have base of tonsil HPV+ SCC. I've had two surgeries, and I'm currently close to half-way through 35 radiation treatments (mix of proton and IMRT). No surprise, swallowing is starting to really hurt. I started Lyrica last week, but I don't…
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A positive message of hope
Hello all, My name is Marci and I come here ocassionally to tell you that there can be light at the end of the tunnel. I am a caregiver to my husband, who was diagnosed with esophageal cancer aged 66. He had adenocarcinoma at the junction to his stomach. He had the normal chemo and it did not touch his tumour which was…
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Caregivers Chatroom
We are trying to get a caregivers chatroom together. We are meeting in room 2 @ 7 pm est, 6 central, 5 mountian, & 4 pacific. All caregivers & surviving caregivers are welcome. Please come & join us. Paula
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A roller coaster ride…
I had a new Internist that was a Neurosurgeon in India. He was the only doctor taking new patients in my town (former doctor moved into a clinic with a Chiropractor to save funds on facility costs, but the DC would review the MD anytime he wrote a prescription for a Controlled Substance). My doctor left and decided to just…
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MMMT Stage IV
Hello all - My Mom was very recently diagnosed with MMMT - malignant mixed Müllerian tumor. At first they thought it was localized to her uterus, and were confident it was Stage I or II, but her CT scan shows a mass in her lung as well, making it Stage IV. She's having a total hysterectomy next week, and chmo following. We…
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Hair color and rinses
So, lucky me, the hair is coming back mostly gray. But, it is coming back...slowly. My MO said it's okay to color it but to use a rinse rather than a permanent color. Any recommendations on brands to use? Bonnie
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19 years since my Surgery Trifecta began
08/01/2002 Left Nepherectomy done Laprodcopically 09/30/2019 Robtic Prostetectomy 12/31/2019 (New Year's Eve) Open Gallbladder Removap All surgeries on first or last daY OF Month No new surgeries scheduled/ Was 78 years young, 10 days ago. icemantoo
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Newly Diagnosed
Greetings to all you prayer warriors! We got some not so good news on Friday, but we’re trying to stay positive. After an ultrasound and D&C, I received preliminary results stating I have Endometrioid endometrial carcinoma, FIGO grade 1. My GYN told me that I will need to have a hysterectomy to start with. So, we have…
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BARTHOLIN GLAND CANCER / VULVA CANCER
Has anyone out there been diagnosed with Bartholin Gland Cancer / Vulva Cancer?
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Got a letter from the Oncologist...
This one was more of a "Dont' let the door hit you on the butt on the way out." kind. It was addressed to my PC doc, letting him know that I was to be under his continuing care, and would not be seen by my oncologist in the future, as I was deemed to be not at risk of having a recurrence. HOORAY! It's only taken 17 years…
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Feels like I’m going to a funeral.
What do I say.. double mastectomy august 17. I’m so sad. That’s it Cancer Free tho. Thank God for that Indeed. My feelings are still hurt tho.
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Financial Assistance
Does anyone have any referral for resources for financial assistance?
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Mosquito bite reaction after chemo
Does anyone out there have allergic reactions to mosquito bites after chemo. Mine are horrible. What do you do for relief?
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Skin problems during/after chemo
Just wondering if anyone else had this experience and could offer some tips. Once chemo began and I lost my hair I discovered a few pimples along the hair line in the back of my neck. A couple of days later my entire head was full of pimples. Not only was I a bald woman, I was a pimply bald woman. grrrr !!! Anyway, once…
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Hi
Hi. I have not been diagnosed with AC but I am having a routine colonoscopy this Thursday. For the past few weeks I’ve been having slight uncomfortableness or tenderness when have a BM. Actually, it starts right before I go to the bathroom. Almost like a heaviness. As it passes through, it gets less uncomfortable; however,…
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Recurrent Ovarian Cancer
Hello, here are some studies I came across and experience with recurrence. I would like to share them with you: Recurrence of Ovarian cancer— according to many studies has the highest recurrence rate and very aggressive. If you have a recurrence—stay with chemo if you had success with it. Daily maintenance— I was in PARF…
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HAI pump - what to expect and the treatment
My husband has stage 4 colon cancer in various places in the liver. There has been no spread to any other organs. Oxaliplatin and 5-FU treatments have been very effective and they are now discussing installing an HAI pump, at which time they would also take out the colon tumor. We will know more soon and I know our doctor…
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2-year Update
Hello everyone. It’s been a long while since my last post. This is because (I’ll cut to the chase) I had a recurrence on my 13th month after pronounced in remission. To recap, I had my first diagnosis of ovarian cancer stage IIA on 8/27/21. I had surgery and 6 rounds of chemo then was placed on Zejula. On my last blood…
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Refusing any Treatment for Esophagul Cancer
I'm early stages T1b, but don't fancy the Ivor Lewis treatment and what can come with it, so I know that my chances of survival are low. But how low, I don't know and how long before symptoms. The information out there is shockingly scant.
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I’m New Here And In Search Of Help
Hello, I am a almost 39 year old male who was diagnosed with Barrett’s Esophagus in on St. Patrick’s Day 2011 when I was 27 years old. When I was diagnosed I immediately tried to get ablation surgery but because my spots were some of the smallest another doctor had ever seen it was denied and I instead recommended to do…
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16 months after partial nephrectomy for stage1 PRCC Grade 4
Hello everyone. I hope everyone is doing well. I haven’t been on here since I had my partial nephrectomy April of 2022. I felt like a new person after surgery in regards to my energy level. I felt like I walked out of a fog a few weeks after surgery . I wanted to get as far away as I could emotionally from being told I had…
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I think I have kidney cancer
a few weeks ago I woke up with severe lower left abdominal pain. I almost passed out . Could not stand up and I was sweating profusely and felt like vomiting. It lasted about an hour after that my abdomen was tender. Three days later I went to the ER. They did a CT scan with contrast to rule out diverticulitis. The doctor…
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What's is like after kidney removal
Just told my left kidney has to come out due to a tumor. The only symptoms I've had is the usual blood in urine, fatigue, weight loss and slight back sensation. The actual description is: Left upper tract TCC. Discussed robot left neph-U. Recommend intravesical gemcitabine. The urologist didn't indicate that there was any…
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Need some help for my husband
Hey everyone I was wondering if someone could help me out. My husband has stage 4 Colorectal cancer and his treatments aren't working anymore. New mets have been popping up and also he has a fistula that has formed . So the Oncologist suggested going on Lonsurf.(He has been on FOLFOX and also FOLIRI) Is it a good idea for…
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anxiety
I have alot of anxiety ive tried yoga. Mediation. The Dr did put me on medsfor it but it still comes. How do some of u cope? Its my 2 nd reacurrance since 2003 and I seem to be having a harder time dealing with it then I before. And last time I was stage 3 inflamotry breast cancer with the her2 positive gene. Pregnant with…
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Gleason 7 Active Survellance
Yesterday I had a consult with a very good surgeon at the UNM Cancer Center. He does a lot of prostate removals with a high success rate and low side effects. He said because of my previous TURP and bladder opening scaring he would not recommend surgery, as it was sure to cause incontinence. He thought I should try active…