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Total shutdown after being pulled from steroids
Hi, my loved one was diagnosed with glioblastoma, they had surgery, went through the 6 weeks of radiation/chemo combo, and is now taking infusion once a month and chemo 5 days a month every month for six months (she is on month 2 now). This entire time she has been on steroids and recently we pulled her off, but she…
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TESTOSTERONE SUPPLEMENTATION AFTER RADIATION AND FIRMAGON
HAD RADIATION AND FIRMAGON 5YEARS AGO .CANCER IS GONE BUT SO IS MY TESTOSTERONE .IT NEVER CAME BACK .DR RECOMMENDED TESTOS TERONE SUPPLEMENTATION.HAS ANY BODY TRIED THIS?
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Highlights from SGO Meeting for Endometrial Cancer
Hello everyone! If you are interested, I am so hoping you can click on the link below and watch the eight, short videos from recent Society of Gynecologic Oncology meeting that just took place. They touch on the RUBY and GY018 studies that show some interesting promise on treating our cancer.…
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Chemo with kidney removal
I was prepared for the surgery to have a kidney with a tumor removed. Now the doctor says he just got new guidelines for my issue. That is to have weekly chemo for 3 months prior to the surgery instead of after. I wasn't aware of going to be having chemo after but he said that after surgery he would send me for an…
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New Thyroid Cancer Patient
Good evening, I am feeling tired, anxious, and not quite like myself after my recent thyroidectomy. I had papillary thyroid cancer. The cancerous portion of the tumor was 3.3cm. I am two weeks out from a total thyroid ectomy and feel out of sorts. I feel sad, anxious, tired, shaky, achy, and just not quite like myself. I…
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Fallopian tube recurrence in lung?
Hi, Ladies. I haven’t created a new post here in a very long time. And I’m just sick (and furious) that I have a reason to do so now. In late 2020 diagnosed Stage II FTC with secondary peritoneal. Remission 2021. Last fall my CA125 rose very slightly and so GYN/ONC was insistent I have CT. I was so devastated and so ill…
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Not sure where to go from here
I'm a 35 year old male, married, with two daughters (9 and 3). Last month I started having heavy rectal bleeding, including black tar like stools. I went to the ER and they recommended I go for a colonoscopy. After fighting to find somewhere that could get to me before November, I was able to get in this Wednesday, August…
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Taking Supplements DURING chemoradiation?
Hi All, This is the first thread that I have started on this very helpful and inspiring web site. Before I get to the subject of this posting, I guess I should introduce myself and provide some background information. I am a 58 year old male who has recently been diagnosed with a fairly early (T2N0M0) stage of rectal…
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Nauseous
I am a 3 time cancer survivor. 16 years ago I had stage 3 breast cancer and then early 2021 (I believe) I was diagnosed with stage 3 anal cancer. Two weeks into my treatment for anal cancer I was diagnosed with breast cancer again. I was so overwhelmed I made a radical decision to have a bi lateral mastectomy. I have been…
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Treatment Centers/Anal Cancer
Hi, all - admittedly, never did I think I’d be doing a Google search for anal cancer…of course, I don’t think anyone has that as a bucket list item. Since this cancer has nowhere near the the “press” as other cancers, I know it’s important to be treated at places where they see more than one of these cases a year. Can…
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26yr female peritoneal ca
My name is shannon and I'm from kalamazoo, MI. I was diagnosed in June with stage 3c primary peritoneal ca, had a full hysterectomy and had 6 rounds of carbo/taxol.. just married and was hoping for children. I am considering adoption but should I wait a few years to make sure I've beat this? My last CT and PET scans were…
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Pancreatic cancer
Is there anyone on here for stage IV pancreatic cancer? In my case, my husband is the patient. He has pancreatic cancer which has spread to his liver. He is undergoing chemotherapy.
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Photodynamic Laser Treatment for Osteoradionecrosis?
Please members make note of this, it may be helpful someday to you. Although not the frontline treatment on this a fellow CSN'er, Mavish, recently posted this as an add-on and update into another posting. I think this subject and this option is important enough to share as a posting to the group and the public at large.…
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Mom with Stage 4 NSCLC
Hello, My mom has been receiving treatment for NSCLC for about 6 months now and she has been so resilient but it has pushed her to her breaking point. She says she is traumitized and can't imagine going back to get another chemotherapy session, the tasteless food, vomiting, constipation, mouth/ throat sores and now skin…
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Mom newly diagnosed
Good Afternoon Hello Everyone Hope all is well! Thank you in advance for your support. My mom will be undergoing a surgical biopsy for ADH bordering DCIS and will need radiation afterwards. We received the news a week ago and we are trying to process it all. I am reading, researching and feeling overwhelmed. When the…
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Small Lung Cancer
My mom was diagnosed in December with stage 4 small lung cancer. It is the type of lung cancer that is aggressive and is neoendocrine. I am really struggling because I do not live in the same state as her and my sister. My sister is on the front line. I also have PTSD, General Anxiety Disorder, and Depression. On top of…
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Devastated and confused
I'm a 62 yr old female and was recently diagnosed with tongue cancer. I will be having a total glossectomy Sept 5, followed by radiation. My drs have said it's likely I will have a trach and feeding tube the rest of my life. I'm devastated because at this point in our lives my husband and I thought we would be selecting an…
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Primary small cell carcinoma of the breast
Hi everyone, I wanted to reach out to see if anyone else has had, or has known someone with, primary small cell cancer of the breast. What has your experience been so far? I was diagnosed in March 2023 with both invasive ductal carcinoma and primary small cell cancer of the breast with a neuroendocrine component, with the…
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Update: Husband’s NavDx Test Result Pre-Treatment
Hi Again, I posted a few weeks ago we went down to NW-Chicago for a second opinion on my husband’s Stage I base of tongue (left side 1.2 cm on PET 7/19) and 2 involved left lymph nodes so all on left. HPV+ 16 from biopsy. The only reason we made the 2 hr one way drive down was to find out more about their Proton radiation…
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start treatment
Getting ready to start radiation and chemo . Got fitted for the mask yesterday. My how things have changed since 2014. Back then they did not cover your face but left eyes ,nose and mouth out. I am worried I will have a panic attack. My neice says that is what Zanex is for. I will talk to the Dr.about it. I thought I read…
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Gemcitabine Complications
I am trying to process some complications that my 83 year old father is having with his PC treatments. He's stage 4 and was given 6 months, diagnosed about 2 weeks ago. He has been administered Gemcitabine via injection the past two Wednesdays. This past Wednesday about 4 to 6 hours following his injection, he woke from a…
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Panic attack during change in radiation machine rotation
I was given no information on how the radiation machine rotated and how many devices it entailed. After 5 days of the same rotation, I had gotten to the point of feeling like I knew how it worked, and felt like I could cope. Bam, the next day , the treatment was done in a reverse order with extra xrays taken, and it scared…
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Chemo cold caps
Suggestions, comments, thoughts? My hair stylist said to get this since many of her clients used them and it saved a great deal of their hair? Interested in what you have to say. Thanks
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thelazyaranch4
I can not find your previous post and would really like to know the path you have traveled. Marla Keeth
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Seeking advice and support (husband - colon/liver cancer)
Hello. My husband was diagnosed with Stage IV colon cancer this week, spread to the liver. He had a sigmoid colectomy and now has an ostomy. Once he heals from that, we will meet with the oncology team to find out what the plan for attacking the cancer is. We have 2 boys, 21 and 11, who don't know yet that he has cancer. I…
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Ibrance--Pfizer patient assistance
Hi everyone, I'm writing to share our experience with the Pfizer patient assistance/oncology together program. My mom was prescribed Ibrance for her recurrent MMMT based on the genomic testing results (CCND1 amplification, which may be targeted by Ibrance). Ibrance is not FDA approved for uterine cancer (just breast cancer…
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Ibrance and Aromitase Inhibitor
Hi there, After two recurrences, I was put on Ibrance and an aromatase inhibitor. I am in remission for now. I've been on this regimen since December, 2017. Is anyone else on this combo? If so, for how long? Thanks.
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Dysphasia after TORS and Neck Dissection
It’s been a month after TORS and neck dissection and I have a sore jaw, mucus, feels like there is a string in my throat constantly, food gets stuck in throat, etc. Anyone else have these symptoms? Does it get better or is this my new norm? I haven’t started radiation yet and can’t eat a hot dog. My jaw gets too sore and…
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Sore muscle opposite side of kidney with tumor removed.
So I had my left kidney removed on july 5th, I’m just about 6 weeks post surgery and the right side of my back is sore and has been sore since the surgery. Has anyone else experienced this? I did mention it to my oncologist, but he didn’t say anything about it. I have told my surgeon too and I am waiting a response. I’m…
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What Are The Symptoms?
Hello everyone. I am a 12 year prostate cancer survivor. Recently, I've been having stomach issues...colicky...not feeling empty after a bowel movement...occasional blood in the toilet. I have a colonoscopy scheduled next week. My last colonoscopy was four years ago and it was clean and they said don't come back for 10…