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Invasive Lobular Carcinoma and Other Issues Need Guidance ASAP
72 and have ILC in left breast, hypercalcemia and parathyroid removal, osteopenia, bone density issues left arm, hearing loss right ear only all in the past 4 years?
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New Forum Format: Feedback for Administrators
As the blue box seems to indicate, the administrators are briefly open to users' feedback about the new format. Here is mine: The format is cluttered and confusing. The "features" are meaningless to me. I have disabled all notifications. The old format (pictured below,) functioned as a bulletin board that I could quickly…
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Darker Skin, Hair Growth, Neuropathy and Water Rention
I had my last chemo on October 5, 2022. I wanted to know if anyone had any tips on when my hair might start growing back and any tips on helping it grow back sooner. I don't want to use Biotin as it breaks out my skin. My chemo nurse was saying sometimes people's hair grow back different or even a different color. I can't…
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BC, Triple Positive - Newbie
Good Afternoon from Cleveland! I am a newbie on this board. I had my first mammogram in July of 2022, as a prerequisite for breast reduction surgery - and it was negative. By the grace of God, the pathology post reduction surgery showed what the mammogram didn't: Stage 1, Invasive Ductal Carcinoma - triple positive - right…
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Fungating Tumors
Anyone dealing with these types of tumors? I have searched the boards but didn't find much information. My husband had surgery for oral cancer of the inside of his cheek as well as a neck disection. After some mis-diagnosis about what the pockets of fluid were along the outside of his cheek, if was determined to be more…
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Anyone chose mastectomy over lumpectomy????
Is there anyone who was given the choice of mastectomy or lumpectomy? What did you do and how did it go for you afterwards? I am newly diagnosed and struggling with the decision. Thank you for sharing your experience. 🙏🌺🌹🌼🌻
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Cobalt radiation as toddler for tonsillitis-Late rffects
I am an MD and practiced Pediatric Oncology. I have a story of my own to tell In the late 1940s and the 1950s, infants and children and teens were given Cobalt radiation for tonsillitis, acne, thymus gland, feet-for proper shoe fitting. All benign conditions I was 4 years old when I had Colbalt radiation to “shrink” my…
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Shoulder/arm/neck pain
Maybe this is not surprising to others on this list, but 6 weeks after I finished all my scheduled treatment (4 rounds A/C, mastectomy, 4 rounds Taxotere, 28 radiation sessions), I suddenly developed a moderately frozen shoulder within a period of 2 weeks. I am so glad that I went to physical therapy yesterday to find out…
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Returning to work after a single mastectomy?
I know it's different for everyone, but how quickly did you all return to work after your mastectomy? I'm not having reconstruction. I'm 40 and otherwise healthy. Office-type job, not strenuous, although I would need to drive to it. When did you start to feel "better" again?
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CHEK2 Mutations for Breast Cancer
Here I go again. Had BC when I was 49 on the RT, and now in the LT breast at 68. Since I had a family history of BC and everyone seems to die in my family from cancer, I opted for the genetic testing. Knowledge is powerful but living with the results are scary. IS THERE ANYONE out there that has been through this? I am…
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Advice Please
Background: 54 yr old female. Thyroid cancer in 2014, heart disease/open heart surgery 2016, Diagnosed with Multiple Sclerosis in 2017. My mom passed away 25 yrs ago at the age of 49. She wasn’t feeling well, went to hospital on a Tuesday, chest X ray showed nodules in her lungs. Two days later, on Thursday she had a…
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glioblastoma treatment
What was your treatment and what do you know of the side effects , results, experience patient or caregiver. please state patient age as I want to research this for my 75 yo mother.
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CPT 11 and immunotherapy
Hello my dad's latest petscan showed 2 pen tip metasis in lung and on 1 on liver, Dr put him on cpt11 with immunotherapy. He just had first round and so far he is experiencing alot of bone and joint pain we have been givening him tylenol and ibuprofen mix it tends to help some but he breaks out in a cold sweat... has…
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Lymphovascular Invasion
I just had mastectomy. On pathology report, lymphovascular invasion is present and micrometastatis on sentinel node. No other lymph nodes were removed during the surgery. how common and how significant is it for invasive ductal carcinoma to be “lymphovascular invasion”? Does anyone have the same experience?
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Late effects of Cobalt radiation in childhood
Looking for others of us who had Cobalt radiation in childhood for NON-cancerous, normal things such as enlarged tonsils, acne, thymus gland, feet for shoe fitting. These people are having late effects of Cobalt decay that start popping up in ones 60s. Some late effects are life threatening and certainly quality of life…
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My radiation mask is too tight....what can I do
Hello I'm so glad I found this site. I have head and neck cancer and I'm currently getting radiation treatments. Two weeks in and my mask has become extremely tight....especially choking me and crushing my already sore adam's apple. It's excruciating and I just can't endure it anymore. My oncologist cut a hole next to my…
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WHOLE BRAIN RADIATION
Doctors are recommending whole brain radiation. Has anyone had a good outcome from whole brain radiation? Thanks for any feedback. Rocky
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does this sound like I might have lymphoma?
Hey everyone, i would like to thank you in advance for your availability and for helping so many people. im an 18 years old white girl and I’m a little concerned since I’ve had a weird lump on my left groin for quite some time. 2 years, if not more. I’ve had one in the right area a couple years ago but it went away, not…
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What type of dr for ovarian surgery
Hi I see a lot of confusing stories . I am waiting on my ultrasound reading from my dr did the test on Friday morning results and imaging is in imaging website. Images show highlights in blue and red areas in some of the images. Again like most of you my brain is not letting me relax. My left ovary has a 9 cm complex…
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Side affects chin and lip numbness
Hi to everyone, I am 5 and 1/2 years post treatment of base of tounge cancer. Dealing with many side effect of 35 radiation treatment and 3 doses cisplatin chemo. Sides effects include damaged thyroid, blood pressure issues, cervical issues,dry inflamed mouth and throat neck spasms and the list goes on. Managing all these…
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Nerve damage Side affects from Radiation Therapy of the Face
One year ago I had radiation therapy as a preventative precationary treatment: after excision of a maglignat melanoma tumor from beneath the skin on the right side of my face. The cancer I had is know as "desmoplastic neurotropic melanoma". The radiation thereapy went well and I wore a mask over the untreated area during…
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ATTN: All military veterans on this forum... new VA PACT Act passed 2022
I have not yet contacted any veterans organizations to get the ball rolling; however, as a former Marine '88-'93 (12 months of that in the gulf.. so, I should be covered by what have read so far), I am going to start making some calls asap. If any other veteran has had any experience with this new PACT Act, please let us…
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Invasive urothelial carcinoma, high-grade, invasive of muscularis propria (T2)
Hi, I'm new here. I was just diagnosed with the following a couple of weeks ago after TURBT: Invasive urothelial carcinoma, high-grade (grade 3 of 3), invasive of muscularis propria (T2) I don't know yet how it will be treated. The hospital I'm going to has a tumor review board, and because of high demand, I won't be…
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Possible Mets
Hello, Has anyone had the experience where the radiologist has said mets on a MRI result and your CEN is lower than 3 and you CTDNA is 0. Right now, Doctor wants MRI's every two months and if CTDNA comes back positive, mri's every month. I have been diagnosed with stage 3 C on 12/2019. Had a sigmoid ectomey with Capeox…
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Right Hilar Mass
Hi there! I am new to this as I just had a CT scan with contrast completed and the following was sent : 1.2 cm right lower lobe pulmonary nodule with additional 2.2 cm right hilar mass versus adenopathy. Findings are concerning for neoplasm. Bronchial wall thickening with bronchiectasis. Findings suggest underlying…
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Mammogram
Does anyone Know if there is a standard of practice for mammograms after having cancer when you have dense breast.
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I feel so lost....
This is fight two for my mother. The first was when I was 16 and we had no support system but what we could figure out on our own. She had Chemo and Radiation then. She ended up in the hospital once, besides the treatments and surgery. This time I am 42, we have a great support system but it seems worse this time. She is…
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surviving colonrectal cancer
Is there anyone outthere that has rectal cancer with med to liver, lungs and bones? I would like to know other treatments that are available. MY husband has been on the regiment for 23 treatments and I think it is time to try something else. His cea is steadly going up and ct shows not improvements. Doctors just keep going…
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Liquid Biopsy blood test - anyone tried ? I m considering but so expensive....
Liquid Biopsy blood test - anyone tried ? I m considering but so expensive.... anyone have more info here ? thanks
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Just diagnosed and found my husbands been cheating… now what?
Recently having been diagnosed with stage one cancer I found out the day after my My diagnostic ultrasound that indicated I needed to go for a biopsy and ultimately to my diagnosis, my husband had somebody who had shown an interest in him and he liked it, So after thinking about it I went to him and asked if he would be…