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Metastatic Melanoma
Diagnosed with metastatic melanoma June ‘22, surgery in August… removed 5” from scalp, rt parotid gland, and 50 lymph nodes from neck (14” incision). The surgery went well. I have been on immunotherapy for 12 months which has eliminated 10 more tumors (as of September ‘23). But, in January of ‘23 when multiple tumors were…
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BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER
This covers baroreflex receptor and other problems related to radiation. this is an answer and information from Dr. Itzhak Brook MD. This is a question posed to Dr. Brook and his answer to it. The Question: Dr. Brook, thank you for sharing your article. I survived Stage IV throat cancer that started in my tonsil in 2014. I…
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Please help my sister - Tonsil cancer and Covid
Hello all, My sister is 63 years of age and has been diagnosed with tonsil cancer more than 3 years ago. 1after radiation treatments, she can't eat any more and has to use the feeding tube since and the cancer is still with her. She recently got covid and getting weaker and weaker...All the nurses and emergency Dr sent her…
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MMMT survivors
Hi to June, Jan and all the other MMMT ladies Just wanted to check in with you. I had a check-up today with my surgeon and all seems to be fine. It was just a physical exam - they don't believe in routine scans at UCLH - but I feel reassured. Just fyi I was stage Ia and had TAH/BSO in November 2010 with removal of several…
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Permanent hair loss after chemo
There's an attorney running a commercial here for class-action clients who have had chemo and suffered permanent hair loss. Supposedly, the drug company knows the probable outcome, but there are no warnings and there are other drugs that would work just as well. They do not name the drug or the drug company in the…
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Looking for advice/ similar experience
I’m 41. I had my tubes tied 13 years ago. I’ve struggled with horrific periods. Blood gushing when I stand up, terrible cramps, anemic, long heavy periods. Spot in between periods. I went to the GYN who initially thought I had adenomyosis. He said my uterus was globally slightly enlarged “8-10 weeks”He suggested a…
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MANTLE CELL LYMPHOMA
ANY ONE WHO HAS MANTLE CELL LYMPHOMA. I WAS DIA. JANUARY 2010. I AM IN WAIT AND WATCH STAGE. I WAS TOLD IVE HAD THIS FOR AT LEAST 2 1/2 YEARS ACCORDING TO PREVIOUS BLOOD WORK. I WOULD LIKE TO KNOW WHAT IM IN FOR.
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double mastectomy
Hello ,I will like to talk to womens who had double mastectomy with (Diep) I have to make a decesion soon
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!st Chemo Down
Had !st chemo treatment on Wed and it has been ruff. Joint pain , pain in my feet and my heart was doing flip flops yesterday but it stopped. I didnt think it was going to be so painful
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Essiac?
Has anyone tried Essiac tea? A friend of mine insists it helped her father-in-law with his cancer, although not kidney. Just wondering if this is yet another way to get me to spend money and not be helpful.
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Nutrition and the Cancer Patient
I have come to the conclusion (opinion only - I am not a doctor) that one of the biggest misconceptions about cancer is that it is treated as some kind of foreign invader when in fact it is not foreign at all. Cancer is part of you just the same as healthy tissue. This struggle is a civil war - brother against brother.…
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Financial Support Referrals
Hello everyone, I am living with my sister (we own a house together). She was diagnosed with breat cancer in Dec 0f 2022. She did her first 6 rounds of chemo and is awaiting surgery options. We found out she is being laid off in Aug 2023 since they are closing their entire manufacturing facility. She is currently on state…
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Chat Room
I will not mention any names but I am new here. I joined chat one night and because I used terms like CA and was able to text a little..... someone private messaged me and acted like I had ill intentions to be in the room. I was a little to saavvy for them apparently.... anyway.. it bums me out and I have not been back…
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Just Released A New Video "Recurrences" On My UPSC YouTube Channel
Just released episode 8 to my YouTube channel. I decided to cover "Why Does Cancer Come Back". If interested, you can watch this episode by clicking on the link below. Thank you all for your suggestions for this episode! ❤️ https://www.youtube.com/watch?v=Ca8VXeOKNCI&t=8s
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Eccrine Carcinoma
Just diagnosed two days ago with (cutaneous eccrine carcinoma). Not a ton of information online about this outside of stuff that scares the hell out of you. Most of the feeds are pretty old which leaves me wondering if folks got better and went on with their lives or .....not so much? I'm really anxious and scared still…
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Contralateral lymphnode metastasis
Hello, has anyone been diagnosed with CAM? I had my biopsies, right breast was diagnosed as IDC with DCIS, left breast was DCIS, after surgery, right breast pathology was IDC and left breast upgraded to IDC. I recently saw my pathology was updated to Contralateral lymphnode metastasis.....
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Med side effects
I am a female about to start chemo + radiation. The chemo meds are Mitomycin and Florouracil (5FU). My treatment plan is 30 rounds of radiation, with the addition of 5 days of 24 hour chemo the first and last weeks. What were your experiences?? Am I likely to have hair loss? My Oncologist has said hair thinning, but I have…
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Post RP and SRT journey - oh joy
Hi all I thought I would start a fresh thread as things have changed dramatically. My PSA has rised to 0.24 and I have now started HT (casodex with two three monthly injections of Triptorelin). Back story. PSA rose to 4.0 early last year. Biopsy suggested G7 (4+3). RP surgery (bilateral nerve sparing) confirmed the Gleason…
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Any survivors of follicular lymphoma out there
Hi Any survivors of follicular lymphoma and for how long? I was diagnosed last april and have since been in remission. Do the doctors know if they can retreat the disease if it relapses? Real life experiences mean more than what statics say. Thanks Richard
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Recommendations for Pain Meds (non-narcotic)
Hello - I've found all your posts very helpful, and this is my first time posting. I have base of tonsil HPV+ SCC. I've had two surgeries, and I'm currently close to half-way through 35 radiation treatments (mix of proton and IMRT). No surprise, swallowing is starting to really hurt. I started Lyrica last week, but I don't…
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Deleted - accidental duplicate
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A positive message of hope
Hello all, My name is Marci and I come here ocassionally to tell you that there can be light at the end of the tunnel. I am a caregiver to my husband, who was diagnosed with esophageal cancer aged 66. He had adenocarcinoma at the junction to his stomach. He had the normal chemo and it did not touch his tumour which was…
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Caregivers Chatroom
We are trying to get a caregivers chatroom together. We are meeting in room 2 @ 7 pm est, 6 central, 5 mountian, & 4 pacific. All caregivers & surviving caregivers are welcome. Please come & join us. Paula
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A roller coaster ride…
I had a new Internist that was a Neurosurgeon in India. He was the only doctor taking new patients in my town (former doctor moved into a clinic with a Chiropractor to save funds on facility costs, but the DC would review the MD anytime he wrote a prescription for a Controlled Substance). My doctor left and decided to just…
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MMMT Stage IV
Hello all - My Mom was very recently diagnosed with MMMT - malignant mixed Müllerian tumor. At first they thought it was localized to her uterus, and were confident it was Stage I or II, but her CT scan shows a mass in her lung as well, making it Stage IV. She's having a total hysterectomy next week, and chmo following. We…
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Hair color and rinses
So, lucky me, the hair is coming back mostly gray. But, it is coming back...slowly. My MO said it's okay to color it but to use a rinse rather than a permanent color. Any recommendations on brands to use? Bonnie
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19 years since my Surgery Trifecta began
08/01/2002 Left Nepherectomy done Laprodcopically 09/30/2019 Robtic Prostetectomy 12/31/2019 (New Year's Eve) Open Gallbladder Removap All surgeries on first or last daY OF Month No new surgeries scheduled/ Was 78 years young, 10 days ago. icemantoo
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Newly Diagnosed
Greetings to all you prayer warriors! We got some not so good news on Friday, but we’re trying to stay positive. After an ultrasound and D&C, I received preliminary results stating I have Endometrioid endometrial carcinoma, FIGO grade 1. My GYN told me that I will need to have a hysterectomy to start with. So, we have…
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BARTHOLIN GLAND CANCER / VULVA CANCER
Has anyone out there been diagnosed with Bartholin Gland Cancer / Vulva Cancer?
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Got a letter from the Oncologist...
This one was more of a "Dont' let the door hit you on the butt on the way out." kind. It was addressed to my PC doc, letting him know that I was to be under his continuing care, and would not be seen by my oncologist in the future, as I was deemed to be not at risk of having a recurrence. HOORAY! It's only taken 17 years…