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high-grade serous carcinoma - likely uterus - experiences, thoughts, hope?
Hi, first time here. Got results from biopsy of a mammoth lymph node (inguinal) today--I have this type of carcinoma. CT scan received Sunday said I had what looked like a neoplasm that had invaded my uterus. Waiting to get a uterine biopsy, but I am hoping they cut straight to a radical hysterectomy, as the scan…
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connecting with others
My name is Carson. I was diagnosed with AML in February of 2023, I am 21 years old. I would just love to connect with others who are experiencing the same battle as me. Please feel free to reach out!
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The next "Step" after robotic prostatectomy
Good Day. I'm 64, and had a robotic Prostatectomy in Oct 2022. The Dr was confident all cancer was encased in the gland, but the 3 month PSA check was .29. Next PSA check 3 months later was up to .65 so a PETScan was scheduled. A tiny hotspot was on the Prostate bed, and Dr. is recommending radiation treatment. I am…
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My Mothers Diagnosis
Hello everyone, I am new here and I am fortunate to have found this website. My post is regarding my mother. A little backstory on how she got her diagnosis in 2020 right before the pandemic she started getting really bad stomach pains. Know if anyone knows my mother, she does not complain about pain one bit. She has never…
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Newly Diagnosed with MZL Lymphoma BUT aggressive (55 years old)
Hello, Starting chemo on Monday. pola r chp will be my treatment plan for six cycles. Looking for advice, encouragement, and wonderful connections. BTW, I'm scared. And I'm scared of relapsing since it's slow-growing lymphoma but aggressive. It seems I will be living with lymphoma.
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Potential Prognosis?
I have a family member who has stage 4 Grade 3 renal cell carcinoma that has spread to her lungs and brain. She had a nephrectomy of her right kidney to get rid of all of the cancer on her kidney. She is going to undergo Gamma Knife radiation and 2 infusions of immunotherapy. When I look online it shows that the prognosis…
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Under the rug - Sweep it or keep it?
Most of my life my mother has always tucked away her emotions. She never really let anyone see her hurting, scared, or doubtful. She has always been the saver when any of us had troubles or pains. She has always been that person that you can count on 100% to be the one to make it all better. For me.... there is no one that…
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The more I know the less I feel like I know.
Hi all, I had FIGO grade 1 adenocarcinoma with hysterectomy in 2019. I had bad medical care and my ovaries were left in place. After diagnosis I was referred to Siteman, had a PET scan that showed nothing and was monitored the next three years. In spite of multiple appointments due to cramping/bloating the only test…
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Platelets
Again my platelets are below 70 and delaying for the 3rd time. My doc wanted to do 12 treatments I’ve done 7. I’m not sure what will happen from here?
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Help me understand my path report
Histologic Type: Endometrioid carcinoma, NOS Histologic Grade: FIGO grade 2 Two-Tier Grading System: Low grade (encompassing FIGO 1 and 2) Myometrial Invasion: Not identified Uterine Serosa Involvement: Present Lower Uterine Segment Involvement: Not identified Cervical Stromal Involvement: Not identified Other Tissue /…
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Advice
I have been diagnosed with Stage IV colon cancer which had spread throughout my intestinal wall. It is treatable, but not curable. They have given me 6 mos to 5 yrs. If chemo doesn't help, they say the next step would be pallative/hospice care. I had to have emergency surgery because the stent perforated my intestines and…
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8 month post surgery problems.
Hello everyone, I am 56m have a history of tobacco abuse for at least 40 years. Last year September I was diagnosed with stage 4 squamous cell carcinoma in the oral cavity. The doctors told me the lymph nodes have been affected and I need to get rid of my lower jaw and have a bone transplant from my leg to the site. I had…
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Robotic Radical Prostatectomy and Rising PSA 15 Years Later
I had a radical prostatectomy at University Hospital in Birmingham in 2008 at age 59. In 2023, at age 74, my PSA had risen to 0.19. I am currently 1/2 completed with 38 radiation treatments at the Cancer Care Center in Jasper. Thus far I have zero adverse reactions. I was a serious life long runner until hip replacement in…
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Metastatic Melanoma
Diagnosed with metastatic melanoma June ‘22, surgery in August… removed 5” from scalp, rt parotid gland, and 50 lymph nodes from neck (14” incision). The surgery went well. I have been on immunotherapy for 12 months which has eliminated 10 more tumors (as of September ‘23). But, in January of ‘23 when multiple tumors were…
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BLOOD PRESSURE INSTABILITY FROM RADIATION THERAPY FOR HEAD AND NECK CANCER
This covers baroreflex receptor and other problems related to radiation. this is an answer and information from Dr. Itzhak Brook MD. This is a question posed to Dr. Brook and his answer to it. The Question: Dr. Brook, thank you for sharing your article. I survived Stage IV throat cancer that started in my tonsil in 2014. I…
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Please help my sister - Tonsil cancer and Covid
Hello all, My sister is 63 years of age and has been diagnosed with tonsil cancer more than 3 years ago. 1after radiation treatments, she can't eat any more and has to use the feeding tube since and the cancer is still with her. She recently got covid and getting weaker and weaker...All the nurses and emergency Dr sent her…
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MMMT survivors
Hi to June, Jan and all the other MMMT ladies Just wanted to check in with you. I had a check-up today with my surgeon and all seems to be fine. It was just a physical exam - they don't believe in routine scans at UCLH - but I feel reassured. Just fyi I was stage Ia and had TAH/BSO in November 2010 with removal of several…
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Permanent hair loss after chemo
There's an attorney running a commercial here for class-action clients who have had chemo and suffered permanent hair loss. Supposedly, the drug company knows the probable outcome, but there are no warnings and there are other drugs that would work just as well. They do not name the drug or the drug company in the…
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Looking for advice/ similar experience
I’m 41. I had my tubes tied 13 years ago. I’ve struggled with horrific periods. Blood gushing when I stand up, terrible cramps, anemic, long heavy periods. Spot in between periods. I went to the GYN who initially thought I had adenomyosis. He said my uterus was globally slightly enlarged “8-10 weeks”He suggested a…
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MANTLE CELL LYMPHOMA
ANY ONE WHO HAS MANTLE CELL LYMPHOMA. I WAS DIA. JANUARY 2010. I AM IN WAIT AND WATCH STAGE. I WAS TOLD IVE HAD THIS FOR AT LEAST 2 1/2 YEARS ACCORDING TO PREVIOUS BLOOD WORK. I WOULD LIKE TO KNOW WHAT IM IN FOR.
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double mastectomy
Hello ,I will like to talk to womens who had double mastectomy with (Diep) I have to make a decesion soon
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!st Chemo Down
Had !st chemo treatment on Wed and it has been ruff. Joint pain , pain in my feet and my heart was doing flip flops yesterday but it stopped. I didnt think it was going to be so painful
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Essiac?
Has anyone tried Essiac tea? A friend of mine insists it helped her father-in-law with his cancer, although not kidney. Just wondering if this is yet another way to get me to spend money and not be helpful.
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Nutrition and the Cancer Patient
I have come to the conclusion (opinion only - I am not a doctor) that one of the biggest misconceptions about cancer is that it is treated as some kind of foreign invader when in fact it is not foreign at all. Cancer is part of you just the same as healthy tissue. This struggle is a civil war - brother against brother.…
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Financial Support Referrals
Hello everyone, I am living with my sister (we own a house together). She was diagnosed with breat cancer in Dec 0f 2022. She did her first 6 rounds of chemo and is awaiting surgery options. We found out she is being laid off in Aug 2023 since they are closing their entire manufacturing facility. She is currently on state…
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Chat Room
I will not mention any names but I am new here. I joined chat one night and because I used terms like CA and was able to text a little..... someone private messaged me and acted like I had ill intentions to be in the room. I was a little to saavvy for them apparently.... anyway.. it bums me out and I have not been back…
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Just Released A New Video "Recurrences" On My UPSC YouTube Channel
Just released episode 8 to my YouTube channel. I decided to cover "Why Does Cancer Come Back". If interested, you can watch this episode by clicking on the link below. Thank you all for your suggestions for this episode! ❤️ https://www.youtube.com/watch?v=Ca8VXeOKNCI&t=8s
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Eccrine Carcinoma
Just diagnosed two days ago with (cutaneous eccrine carcinoma). Not a ton of information online about this outside of stuff that scares the hell out of you. Most of the feeds are pretty old which leaves me wondering if folks got better and went on with their lives or .....not so much? I'm really anxious and scared still…
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Contralateral lymphnode metastasis
Hello, has anyone been diagnosed with CAM? I had my biopsies, right breast was diagnosed as IDC with DCIS, left breast was DCIS, after surgery, right breast pathology was IDC and left breast upgraded to IDC. I recently saw my pathology was updated to Contralateral lymphnode metastasis.....
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Med side effects
I am a female about to start chemo + radiation. The chemo meds are Mitomycin and Florouracil (5FU). My treatment plan is 30 rounds of radiation, with the addition of 5 days of 24 hour chemo the first and last weeks. What were your experiences?? Am I likely to have hair loss? My Oncologist has said hair thinning, but I have…