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Recurrent Ovarian Diagnoses
If someone could give me their thoughts I would really appreciate it very much. I am so worried and hoping to hear from others. In 2020 I was diagnosed with ovarian cancer and had a full hysterectomy and six rounds of chemotherapy. My CA 125 score was reduced to 18 and for two and a half years I was in remission. In April…
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Radical Prostatectomy Recovery Tips
My 55 YO husband is having RP in early September. I'm looking for any tips, ideas to help him recover. Anything I should/shouldn't do? I'm turning our spare room into a guest room with adjustable bed frame bed and tv (w/Netflix)... Any other ideas of what would help him relax and recover? He's a busy body so being down…
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Parotid Cancer survivor - regaining nerve function?
What experience have others had when it seems like the facial and neck nerves are beginning to function again after 47 years? Read my bio for the background.
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Planning return to work after BMT
I had ALL relapsed and received BMT 2022. Currently, I am under LTD benefit from my company. I have diabetes insipidus, which means I am going bathroom more frequent . Now I am planning to return to work, my position is a service agent, have to stay online all the time once the customer called in. what i am thinking about…
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Multiple myeloma
Anyone here been tested for MM and test negative, then years later test positive ?
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High LDL
I have been experiencing High LDL since 2008. I have ruled out its not Diet, Thyroid or Genetics. Statins do not lower my numbers and they cause muscle pain. Nexletol/Ezetimibe did not lower my numbers either. My last idea, is another late effect from chemo and radiation? Even So, what are the alternative options for…
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New to this
Hello. My mom was diagnosed with Stage 4 colon cancer with metastases in the liver and lungs back around Christmas 2022. Surgery was not an option due to many fistulas and cancer in her pelvis basically “sticking” everything together. She has been on chemo every other week since her port placement in January. Started with…
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Getting it together
I know that my mom is the one who has to go through the disease and I cant imagine what it is like inside her head and heart. Shes always been one to keep her feelings and fears and etc to her self. I have seen her fall apart half way twice since this diagnosis and I can be honest.... it was totally heart breaking. I am an…
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Has anyone had the "WHIPPLE " (PPPD) procedure completed?
Hello, My name is Jayda. I'm a 26 year old MBA student who works full time. My mother, who is 54 years old, is currently lying next to me at North Side Hospital in GA and has completed the CT, MRI, and MRCP scan. For the past week she is showing all the positive symptoms of pancreatic cancer. Grey stools, dark urine, itch…
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HDR Brachytherapy
My question is to those who experienced HDR Brachytherapy, the treatment and the post surgery results. Recently diagnosed with Pi-RAD 5 lesion. Extracapsular extension suspected. PSA went from 6.9 to 11.5 in 3 months but now 9.0. Urologist offered radical surgery. 2nd Urologist said I should do something so sent me to…
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LAUNCH OF MILITARY CANCER SURVIVORS' DISCUSSION
After a little cajolling, I have convinced the CSN that there is a need for a discussion for military cancer survivors. The purpose of this discussion is to give military folks a safe place to go and ask questions about treatment, administrative issues, performance evaluations, etc. that are unique to military cancer…
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New Diagnosis
Hello, I have been following this board for some time trying to educate myself on PCA. I had a PIRADS4 lesion from MRI ( 6.1 PSA 4K of 27% ) and I attached the results from a just completed fusion biopsy. I do have a Gleason 6 reading. The atypical small acinar proliferation concerns me but I don't see anything over a 6. I…
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After surgery pains
Hi all! I am 1 week post surgery and the past two days have been my best feeling days. I am not in any real pain, not super tired, probably because I slept so much the first 5-6 days it was crazy! So I am a very active person normally and I have been walking around my house as often as I can and me and my husband decided…
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How to Reply
Comoro thank you. Couldn't get the reply button to work properly. Take good care.
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Sharing Summer Pictures With Everyone
Summer is winding down quickly and we will be heading into fall soon. I took some pictures over the summer and would like to share some of God's Great Blessings and creations with others. I apologize if there is some repetition. I am sure many of you have wonderful pictures yourself so feel free to add on to this posting…
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obstructions anyone?????
I have just returned home from my 12 and 13 hospital admissions. I was discharged once and ended back in the hospital in less than 48 hours. It was good to sleep in my own bed last night.. I had been sick since 1/6 - my birthday. I had a small bowel obstruction that was slow to resolve. I have dodged the surgery bullet for…
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Drivingdaisy (Lisa) A Dear Member And Friend Of Our H&N Group Has Passed
It is with great sorrow that I bring this news to the Head & Neck group. Not being able to contact her for a while a couple of the members were trying to find out about her and make contact. After getting some new possible contact information I made a phone call and left a message and soon received a text containing news I…
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Neuropathy
My last chemo was in July 2018 but after 5 years I still experience neuropathy. It is mostly at night and interferes with my ability to sleep. It always starts in my toes and front part of both feet. It is a weird tingling/numb feeling. Occasionally it goes all the way to my knees. Hot baths help but the gabapentin my doc…
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lung cancer now in remission
after failing immunotherapy, then 2 kinds of chemo, switching oncologists, and finally having undergone imrt radiation, my stage IIIb non-small cell squamous lung cancer is (very surprisingly) in remission. even the current oncologist said it was atypical. i’m not even happy about it because now i’m living in poverty with…
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NSCLC LUNG SQUAMOUS CELL SURVIVORS NEEDED
Hello, I am writing this post to receive some guidance after my mothers recent diagnosis back in April of this year. When she was first examined, scans showed localized but large (about 9cm) mass on her right lower bronchio (squamous cell carcinoma). Started treatment with chemotherapy (Carbo & Taxol) however, received…
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Advice please. Colon cancer or something else?
i would really love some advice if anyone else has experienced anything like this. 2 years ago after a sinus surgery I got super constipated from all the pain meds. Nothing worked to get me back to being regular. Along side that recover my ENT put me on generic Prilosec for what she believed was silent reflux (even though…
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Topics for Next YouTube Episode
Hi everyone, I will be working on episode 8 of my UPSC YouTube channel and wanted to get your input as to what you would be interested in hearing about. I was considering 1)What causes cancer to recur 2)Medical marijuana 3)Keytruda....I asked this question in the Facebook group and got a few ideas and am leaning toward…
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Recurrence / double radiation
So it’s been a LONG time since I posted, but as a search for the NAVdx on Google brought me back and I thought I would update my story. BTW I am a huge proponent of the NAVdx and trust it more than a PET or CT scan for HPV cancer. I was originally diagnosed in October 2020 with tonsil cancer with one lymph node involved,…
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Nervous and looking for words of support
Hi Group, I am nervous and sad to have to reach out, but I'm really hoping for some comforting words from others that may be in similar boats. Last year, very suddenly my husband received a diagnosis of stage II testicular cancer. He is 35 and I am 31 so for seven months we were really in a spiral of, well what cancer does…
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Any diagnosed with endometrial cancer and then breast cancer?
I as dx with endometrial cx 5 years ago. In May I was diagnosed with triple positive breast cancer. Has anyone been diagnosed with these 2? If so, how far apart? Thank you
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Extra Sensitive to Mosquito Bites?
Wondering if anyone who is going through chemo or has finished with chemo has grown more highly sensitive to mosquito bites. I've always been sensitive and tend to get welts when I am bitten by mosquitos but since I finished chemo a year ago, the bites turn into HUGE welts. I had one on my cheek a couple of weeks ago that…
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Any survivors of Non-Hodgkin's lymphoma lymphoma out there??
Are any survivors of Non-Hodgkin's lymphoma out there? Anyone from India or Bangladesh?
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I’m new here
Hello. I’m 53 years old and newly diagnosed with Stage 3 rectal cancer found during my first colonoscopy. I will be seeing Oncology on Monday. I saw my surgeon earlier this week who said that rectal cancer is often treated successfully with chemo/radiation only. So surgery might not be in my future. My husband and I have…
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Diagnosed with endometrial cancer---18 years post hysterectomy
Would be helpful to hear from others who have experienced with type of cancer, and especially from those who have had a full hysterectomy years before the diagnosis.....
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Total shutdown after being pulled from steroids
Hi, my loved one was diagnosed with glioblastoma, they had surgery, went through the 6 weeks of radiation/chemo combo, and is now taking infusion once a month and chemo 5 days a month every month for six months (she is on month 2 now). This entire time she has been on steroids and recently we pulled her off, but she…