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Cyberknife + PMSA = Prostatectomy + Node Biopsy
I won’t consider Lupron, Why do it if post Cyberknife I get a PMSA PET scan to confirm intracapsular eradication and clean nodes. If the nodes are cancerous either way I will need systemic therapy. In addition, the PMSA agent that is specifically absorbed and lights up on a scan, also has a therapeutic analog. The…
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Cyberknife vs DaVinci Prostatectemy
With regard to Cyberknife, do they prescribe MRI’s to confirm tumor destroyed? If Statistics indicate near equal success in tumor eradication, is the only advantage of surgery that nodes are removed for biopsy? Do they always get every node out? All indications from CT and MRI show nodes are at normal size. So if I am…
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Jaw replacement surgery
Hello, it's been awhile since I have been on this site. Brief history: 2016 HPV 16 tonsil/ base of tongue. 35 Radiation at highest level allowed, 2 of 3 cisplatin treatments taken. Took almost two years to get into a natural rhythm of daily life. 2021 started having jaw pain. Last two years spent, trying all easy…
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Recent MRI Findings
Hello Everyone, 🙋♀️ My name is Beth. I recently had an Abdominal MRI w/without contrast at Mayo Clinic in Jacksonville Florida. Here is the Abdominal MRI report impression: IMPRESSION: Questioned sub-centimeter nodule-in-nodule arterial enhancement and washout in hepatic segment IV. While findings are indeterminant for…
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Wishing Everyone A Blessed And Joyous Christmas 2023 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Christmas time is one of the highlights of the year. It’s a time of gathering with family and friends. Sharing gifts, and creating memories. It’s also a time to bless and encourage each other. So this is especially the time I would like to…
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Choose your Dr.
Since I have hit the 5 year milestone, I feel compelled to add a little advice to ones who are just starting this journey. I am old but not always wise! Lol. I would say to first get a list of Oncology Ob/Gyn Drs that your insurance accepts. Then decide if you want a male or female Dr. (In my case I wanted a female Dr)…
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Thanking All of You and Wishing You a Happy Holiday Season
Hello, friends-- Today I had a check up in at OHSU--Oregon health sciences university. I see Dr. Munro there, a great oncologist for me. The difference between my first cancer clinic--Compass Oncology--and OHSU is like night and day. Night being a dark, scary place; day being a bright, cheerful place where my questions are…
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Headaches during Radiation
I am on my 13th day of radiation therapy for breast cancer. I have been having severe headaches during the last two weeks, and this morning woke up with one. I was not stressed-out and slept well. I hardly ever have had headaches in my entire life, so I believe this must be associated. It seems that whenever I ask the…
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Leaning cryo seems like only choice
many of you know my story i’ve had a reoccurrence after five years of external beam and a booster. Below is the report of my biopsy, which I am having problems making heads or tails of the bottom line is being told. I have a high risk tumor. The cryotherapy specialist is now telling me that no matter what treatment I…
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5 years no recurrence uterine serous with isolated cells in sentinel node
Just had my 5 year anniversary, no evidence of recurrence. Had a total hysterectomy for uterine serous/clear cell, staged at 1a with tumor in fundus, but had isolated tumor cells in one of two sentinel nodes sampled. Had 6 rounds of chemo (cisplatin, taxol, herceptin) followed by IMRT pelvic radiation (not just vaginal…
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New To Anal Cancer Diagnosis
Hello, I know for those who have been here for a while these questions are so repetitive and I apologize. I have read some of the survivor stories and they give me some hope for a future with my family . While some stories are terrifying . So on December 1 (officially diagnosis October 31,2023) it will be officially 30…
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Recurrence
Does anyone know of any one who has only had Ovarian cancer one time? I have met many who have had it more than once. I don't want to scare any one in this group and it has been a long time since I have been here and that is not my intention. I have my next CA125 in 4 weeks and my sister just died of Non-Hodgkins and I am…
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tall cell thyroid cancer
any one have tall cell thyroid cancer id like to hear your story
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How to live through remission without being afraid all the time?
Hi I am not to sure how to start this of but I guess here goes nothing. First off I am 25 currently and was 21 when I was diagnosed with ovarian cancer on my right ovary. They found a 25 pound tumor in my abdomen attached to the ovary. I am currently in remission but I do carry a gene mutation for being predisposed to…
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SCC of the nasal passage
I had SCC of the septum. Most of the tumor was removed July 2022 and the remaining 5% was killed off by radiation treatment. It was a high dose radiation treatment (5 sessions over 2 weeks). Its been a year but the inside of my nose has not healed. In fact I fear it may have come back. Going to my Doctor Friday and…
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Scared Mom
My daughter got a diagnosis Monday of Cancer after a DCS. On Tuesday the results came back as Carcinosarcoma. At first, on Monday, I just kicked into high gear of we are going to kick this, no problem, but after reading the survival rate, I cannot keep my mind from going to a very dark place. I don't have a great support…
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5 Year Anniversary
Five years cancer free today. In the early days I couldn’t imagine what survivorship would look like in 5 years. And here I am. Thank you to so many women here who offered encouragement, love and hope to me years ago when I was terrified and uncertain.
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Dumb question but WHY do side effects vary so much person to person?
First post (sorry, might be long): A had to have a hemorrhoid operation about 3 months back. The Colon surgeon found what the thought was a "wart" near the hemorrhoid and removed it during the operation, and sent it in to be biopsied. Came back positive for Cancer, allegedly a stage 1, but did reach the sphincter muscle…
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update on chemo
Hi to all, my husband Ian had his 2nd round of iv chemo on thurs, and this time he is coping much better, no reaction! he has started to eat and has gained weight, the ascites has not returned, so all in all not too bad. He has 2 more rounds of chemo, ( he also takes tabs at home xeloda ) to do then a scan, we both wonder…
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Sense of urgency?
My brother was just diagnosed via CT scan on 12/12 With colon cancer with extensive liver Mets and possible lung. He plans to go to Mayo in Rochester, MN for care but they won’t schedule appointment until they receive pathology report. Local hospital rescheduled CT guided liver biopsy from 12/26 to 1/15. That would mean a…
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Tougne ulcer
Hi all. Sorry for starting a new post but when I post this I'm my original topic it doesn't show up as posted. I'm not healing that great from having 12 healthy teeth removed. After 2 weeks the pain got worse. I went to the surgeon Thursday and it's hard for him to see if the gums or whatever are infected because of the…
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Help regarding tube feeding
Hello all, The peg tube ligation was completed today and shortly before we were discharged from the hospital. Tomorrow I have an appointment with the nutritionist.But I ask you about the products that you used and got good results from.I ask you, should I just continue feeding with ready-made formulas, or can I make…
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Tongue Cancer - to get tongue reconstruction or not?
Hi Team, I am at 32 yr old Male and was diagnosed with Squamous Cell Carcinoma, Well Differentiated in the tongue. We think we caught it early -- I went to an ENT in September right after it got suspicious, she said everything looked ok. In November decided what the hell let's get a second opinion and biopsy this thing -…
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Remission Blues?
My husband was diagnosed with Stage 3B colon cancer in May. He’s 47 years old and father of two kids under 5. It had spread to two lymphnodes. He had successful surgery and three months of chemo (Capox). In September once chemo ended, first scans were clear. We just had second round of three month scans and they were also…
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Hip replacement
David had chemo this morning and will continue on a Monday schedule. We saw the orthopedic surgeon today. He has spoken with our hematology oncologist and they have decided David needs a hip replacement. So we go on March 7 for a hip replacement at UK and will stay a few days and then David will do intensive therapy at…
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Newbie here. So glad to have found this!
It’s all just happening right now. Saw my doctor for inverted nipple/misshapen breast/twinges of pain in late October. One appointment with Breast doctor mid November, MAMMO followed by ultrasound same day. Dr went from - oh likely just cysts to scheduling core biopsy because looks like cancer. I get the core biopsy this…
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Anastrozole Joint Pain
I was diagnosed with stage 2 invasive ductal cell carcinoma in June 2022. I received 4 cycles of chemo, last cycle was in December 2022. I have been on Anastrozole for about a year and have recently started to experience fairly severe joint pain, primarily in my knees. I have also been experiencing carpal tunnel symptoms.…
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30gy radiation and 2 cycles of chemo
Dear all, I am part of a clinical trial for 30gy radiation and 2 cycles of chemo cisplatin. Anyone participated such trials? If so how long ago, what was the outcome, acute and long term side effects and how long did the side effects take to clear out. Appreciate if anyone can provide insights. Thanks and god bless!
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Merkel Cell Carcanoma
I have Mekel Cell cancer; this was found in the lymph nodes last November. I have found four other Viet Nam Vets with the same cancer. How many other Viet Nam Vets exposed to agent orange are out there have this cancer? The VA is saying it is not on thier list so no compensation is allowed. Merkel cell is a rare cancer and…
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Questions for first meeting with oncologist
For all you fighters out there. I am new to this network and to this board and I have my initial meeting on Dec 20th with my oncologist and urologist together. I have plenty of my own questions and have been working hard to educate myself but my question for all of you is looking back, what are the 3 best questions to ask…