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Am I a horrible caregiver?
I’ve been giving care to my mom with lymphoma this past year. For the most part, it’s been an honor to provide support. It has been a lot of appointments, calling providers, getting medications, managing side effects, talking through issues, all of it. Now I am burnt out. I have the small kids including a newborn. I have a…
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New Dx -- Reaching Out For Support
Hi, I'm Tom, and I'm very scared. So, I've just got the initial diagnosis of CLL yesterday, and I'm reeling. I'm alternating between depression ("what's the point? I'm just going to get sicker and sicker, until I die...") and anxiety ("oh god, every new ache and pain is the cancer taking over!"). I am not religious, but I…
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Modified Appleby Procedure
Husband is a Stage 4 pancreatic cancer patient. Currently going through treatments. Drs are now recommending the Appleby procedure. I have read about it but looking to connect with anyone who has had this procedure.
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Prostate cancer returned twice
My husband had his prostate removed (RRP) in 2004. In 2010 his PSA increased and he had radiation and hormone therapy. His PSA has been very low or undetectable since then. Now in 2023, thirteen years later, his PSA level has doubled in the last six months. What are the chances that it has metastasized? Twice we were told…
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Early PSA Results
I usually get my PSA test once a year in late February or March. Also, I go for my semi-annual check up with my Primary Care Provider around every 6 or 7 months. Prior to this check up (Sept) I have to get several panels of blood test. Well, this time they went ahead and did a PSA test also. Here are the results: PSA,…
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tonsil cancer question, diagnosis and symptoms
I am sure you are all asked this many, many times, so I apologize if this is redundant. I have not been diagnosed, but currently taking all steps to figure out what is causing my tonsil pain. I had dysplasia on the roof of my mouth before, so not sure what is going on with my tonsil, but I have very localized pain (on my…
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Boron Neutron Capture Therapy (BNCT) (Informational)
This is from the National Cancer Institute in a small description. I am posting this as information because at this point it is not widely available. I understand the most activity on this is in Japan. It seems there is strong renewed interest given the technology improvements. There are quite a few being built around the…
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Glioblastoma grade4
hi, I have just been reading your stories about alternative therapies. I AM a 58 year old female after a week of losing ability to use my r,hand and then arm, an MRI was done and on 11/28/16, an MRI showed a tumor about the size of a small orange, 1 week later it was resected with the surgeon saying. He got 99% of it. 2…
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Glioblastoma
Experiences with glioblastoma II on radiation and temodar following surgery
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Loss of figure after tug flap
I’m looking for some advice on fat grafting after TUG flap breast reconstruction. I had this procedure done 12 years ago, and since then I’ve had several fat grafting sessions to fill in my breast. However, I’m very unhappy with how my body looks now. The fat grafting took away the curves from my hips and thighs and…
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Any local support groups?
Hello, I’m looking to understand if there are any local community support groups for a caregiver. I am struggling with lack of anyone to talk to about what its like to watch someone you love in so much pain. I’m the daughter of a mother with ovarian cancer. Welcome any advice on where to go or resources I can reach out to.…
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hair loss with Avastin?
My mother (3c/4 Feb 09) received two infusions of carbo for recurrence, which made her hair thin a little but didn't make it fall out. Last week Avastin was added -- she got her first infusion of it, along with carbo #3 and a neulasta shot on Friday. Today she read that hair loss is on the list of side effects experienced…
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kidney cancer
I am so scared. There is a cyst on my kidney. Have had an mri and ct...They are suggesvine of renal cell..I do not have a support system or anyone to talk to. My husband passed in 2011..Dont know what next step is they will take...
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8 weeks post treatment “backsliding”
My husband is 8 weeks post treatment. Standard protocol for treatment, chemo and radiation. No feeding tube(but definitely should have). The last week of treatment and the following two weeks his palliative care doctor put him on morphine for the severe pain. He only used the morphine about 10 days. He was eating some…
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Just Plain Tired
Tonight, I’m tired. Tired of waiting for test results. Tired of waiting for the doctor to call. Tired of putting on a brave face. Tired of going to appointments. Tired of being behind. Tired of trying to catch up. Tired of waiting for surgery. Tired of dreading it. Tired of being patient. Tired of being a cancer patient.…
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1st Mammogram after treatment
Can anyone tell me your experience with your first mammogram after treatment? My breast is still so sore I guess from the radiation plus surgery etc. I can’t imagine how they are going to be able to do this. I have my first mammogram in 11 days and worried it is going to hurt too much to get a good image. Finished…
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I’m a survivor but never dealt with cancer
Hello Ny name is Rich and I’m 56. I had kidney cancer at age 35. I’m lucky and blessed that my cancer was contained within my kidney. I had a RT Nephrectomy with no chemo or radiation at age 35. At that time I was a carpenter and my wife also worked and we had a 6month old son. I thought I had another kidney stone but it…
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Just Checking In
Hi everyone! I had my Nephrectomy Aug 2021....stage1 grade 1. I'm 2 years out and still NED. Seems surreal sometimes, like it happened to someone else. It's weird. I can remember two years ago and thinking that I would never feel the way I do now about it, I was sure that I would never feel better about it. I do though, so…
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The wheels are in motion
Saw the GYN onc today, I need labs next week because I am diabetic and I'm going to have a CT chest/abdomen/pelvis with contrast on Aug 8, then I need to get an appointment w/my PCP to get clearance for surgery and having a robotic hysterectomy (everything) on Aug 29. My postop for the D&C is this coming Tuesday, still…
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Proton or Convention
Hello all, I’m recently diagnosed with prostate cancer. Moderately aggressive. 1 spot on anterior. 4+3 Gleason. Surgery not recommended because of my weight. Radiation is recommended but I’ve heard that proton theirs is the best way. What are your thoughts? Nearest proton therapy is 3 hrs away and I must be home everyday
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Newly diagnosed
Hello. I was just diagnosed with small lymphocytic lymphoma. I see a medial oncologist September 7th. I’m not sure what to expect. I’m not sure how to even feel about things until this appointment or even afterwards. Any suggestions or help. Especially with my anxiety! Thank you
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Constant pain from surgery
I'm 6 weeks out from an upper left lobe lobectomy. My cancer was a stage one. I had vats surgery. There was one complication where I started bleeding. They had to go back in to restitch. The problem I am having is on the left side. I have a raised area in between my ribs about 1" thick by 3" long. It gets red at times.…
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About Abita...
Hi everyone. As you can tell from my username, I'm Abita's cousin. Her last post on the boards was about her brain metastases and subsequent surgery. She had successful surgery and radiation, but unfortunately, as soon as that was over, she had another growth right behind her eye, which caused her to go blind in that eye.…
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Pace is peace
Yesterday was a great day with mom. She was in an upbeat mood. Interested in the things we were doing together. Tapping into that strong woman I have always know. It felt as though I had MOM back. I am blessed and so grateful for the minutes and seconds we had yesterday. I am focusing on allowing an emotion or an incident…
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Getting so concern!
My husband had prostate cancer in 2005. Prostectomy completed and radiation immediately. PSA went completely zero (.01). However, urologist shared that cancer was quite aggressive after his surgery. Five years after- PSA starts increasing very slowly. PSA took years to over 4- no changes but to watch until it gets to 4.0/…
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History of understanding cancer
I wish to learn about the history of understanding cancer. Anyone here expertises on this topic, please share your understanding. Thank you!
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Immunotherapy
I have vaginal cancer - serous adenocarcinoma. I've been through carboplatin and taxol, and external & internal radiation. I'm supposed to start immunotherapy this next week. Keytruda and Lenvima. Was curious as to anyone's experience with these drugs. How were your side effects? How long before side effects appeared.…
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Guilt
My wife, who is just beginning treatment for Adenocarcinoma, and I were sitting together yesterday. I was looking at her and out of nowhere I felt a sense of guilt; guilt that she is suffering with this cancer and I am still healthy. It came on pretty stong and then tapered off. Now it just sits there, not saying anything…
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angry patient=husband
Vent: I am so OVER being treated like dirt by my husband who has cancer. I do , and have done, everything in my power to make life as good as it can be for him, but it's never good enough. All he does is complain, yell, scream, curse etc. It's getting more and more ugly by the day to the point where I can hardly eat and…
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appendiceal adenocarcinoma/Small bowel cancer
Hi, I’m new here looking at all of your questions and the answers and it’s been wonderful to see everyone helping. I come here for my mother, who was diagnosed with appendix, cancer, early 2020. Her appendix ruptured, and the mucin seeped out and is now in her colon, causing her to have small bowel cancer. Her CEA number…