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Where do we start
My older brother is a mid-30's male who has never had any significant health issues until yesterday. He ended up having 2 grand mal seizures within 10 hours of each other, released from one hospital after the first one and threw the second one about 9 hours after the first. The located the mass, 7.5cm x 6cm on his left…
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Has anyone heard from CMB?
I haven’t seen any posts from her lately Has anyone heard from her I hope she’s ok
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If You Had A Glossectomy or Laryngectomy Or Both Find Help Here-Glossectomy Girl Website
I am not sure how I happened upon this woman's website but I have looked through it and I believe there are many helpful sections here for those on here who have had a Glossectomy or Laryngectomy Or Both. In fact this website is loaded with information and resources. This woman has had both and she goes on to live a full…
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TNBC radiation vs. chemo
Hello Everyone, I was diagnosed with TNBC a few months ago. It was caught early -- stage 1(b). I was told the best treatment would be 4 chemo sessions 3 weeks apart, then a break of a month, then four weeks (5X/week) of radiation. I've had two chemo treatments so far, and I'm having the WORST TIME. Oncology team told me…
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Vocal chord cancer
I had radiation for the cancer . It has been 8 weeks since last treatment and I’m still having burning in my throat - sore throat and horrible coughing and gagging (particularly at night). Anyone else have same experience and when do side effects stop!
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FASLODEX/KISQALI
Any success stories from anyone using Faslodex/Kisqali with Letrozole? My wife just started this combo for metastatic stage 4 breast cancer. Hers is HR+ HER2- variety metastasized to the skin. Need some encouragement.
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Verzenio medium to Long term prospects
Hello Folks, Question from a Caregiver. My wife was diagnosed with Stage IV cancer with mets to bone in Jan 2022 iBrance and Kisqali worked but had side effects. Since Oct 2022, my wife has been on Verzenio(Abemaciclib) and is tolerating it well with clear scans. Is there anyone who has been on Verzenio for many years and…
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Lidocaine cream for port doesn't numb.
Hi everyone. First time port placement last week. Had treatment yesterday and that lidocaine cream they prescribed didn't numb one bit. Site is still sore and bruised so the whole needle placement was not fun. Actually took about 30 minutes for it to stop hurting. My body also has that problem where local anesthetic…
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Surviving, and the long recovery
I'm sitting here tonight, 6 months after finishing my treatment for triple negative breast cancer, feeling gratitude for life and the cancer being gone. I'm looking for wisdom and encouragement about what it looks like to live as a cancer survivor. I need help managing expectations. The treatments saved my life, but they…
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Paresthesia of the tongue
I am new to this site as a result of my search for answers! I had a partial glossectomy on 4/20/16 and am so tired of the "pins and needles" feeling on my tongue. I am wondering if others have had this following surgery and how long it lasts?? It's really not that bad of a feeling but it's CONSTANT! I understand it's the…
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I start chemo Mon.-I'm terrified...
I start my first round of chemo Mon. I'm terrified...4 cycles of AC, then taxotere with Herceptin for 4 more. Then radiation...How do I cope? Anyone else that has gone through this, I'd love to hear from you. I had a 7cm tumor with 23 out of 23 nodes positive. Ct's and bone scan okay. God Bless all of you. Adele
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esophageal cancer
I just found out that I have esophageal cancer. Any one out there willing to talk to me about their experiences? plesase e-mail me at ebjohnson@charter.net. thank you
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Anyone have any experience on Femara (letrozole)?
Hi Ladies The ugly beast has raised it's head again and my latest CT/PET scan indicates that I have got my third recurrence. It's still confined to the pelvis (no organ or lymph node involvement by the looks of it), but my team reckon it is too close to sidewall to operate and get clear margins (although my scans are going…
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Ned since 2015
As you may remember, I underwent surgery in 2015, and shortly after, I faced the challenge of a cancer diagnosis at stage one with a 2.5 cm tumor. The journey has been marked by regular scans, tests, and a rollercoaster of emotions. However, the most recent chapter in my health story brings me immense happiness. Just a…
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Gleason 8 PSA 5
I was just diagnosed with prostate cancer. My urologist said 2 of the 10 samples tested positive for cancer, and he is going to schedule an MRI and Bone Scan to see how to proceed. He seems to be leaning towards a prostatectomy. Also, at this point I'm wondering with the PSA being 5, how likely it has spread outside my…
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Increased PSA
Hello everyone - first time poster. Had radical prostatectomy February 2022 (open). PSA undetectable until 2 days ago. Blood work came back at .23. Without thinking, had sexual activity about 1-1 1/2 hours before blood was drawn. Continence has been very good. No aches or pains or other symptoms. Can sexual activity cause…
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Any good stories of stage 1 and long remission rates?
Post yours
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15 Years Later
Hello Everyone: For those of you who don't know me I was diagnosed 15 years today, the day before Thanksgiving. I was having bleeding and the doctor thought it was hemorrhoids, and since I was 50, the doctor thought I better have my first colonoscopy. Well, it turned out I had a rectal tumor about the size of a nickle. I…
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Old Timer check in...
It's been a long time so I am poking my head in to say stage IV survival is possible. I was diagnosed with colon cancer 15 years ago at the age of 39. I had liver mets and ovary mets and two colon surgeries. With a total of 4 surgeries including HIPEC and a year and half of chemo in a five year time period. My youngest who…
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Rock Guitarist Ronnie Montrose Dies at 64
http://www.billboard.com/news/rock-guitarist-ronnie-montrose-dies-at-64-1006357152.story Dan Fogolberg died 56, Frank Zappa 52, Johnny Ramone 55, and the list goes on and on….Donate to research!
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Carcinoma renal
Soy de España. Lo ciento no se inglés pero os estoy leyendo y aprendiendo muchísimo. Operada de cáncer renal. Tumor de 7 sm. Estadio, g2 el día 18 de septiembre. De momento sin recidiva. Deseo a todos mucha suerte
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Living without an Epiglottis
I wonder if there's anyone on here that has had cancer of the epiglottis? Mine was successfully removed November 2 ,2011.Lymph nodes removed, but tested NO cancer, so I did not have chemo or radiation, Thank God. The surgery was done by Robot at the James in Columbus, Ohio. I am eating soft foods, and since January has…
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Newly Diagnosed - How did you evaluate your treatment options?
I’m 68, active, and in good health. I just received my diagnosis yesterday and evaluating my options and making appointments. Clinical Stage=T1c; PSA=6.4; from the 13 biopsy samples taken, 2 are Gleason 7 (4+3) and 2 are Gleason 8 (4+4), all on the left side. All other samples are benign. What did you find useful to help…
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3 + 4 Gleason 7, PSA 5.8, Exo dx 35- leaning cyberknife no lupron
I am 66 and healthy. After biopsy I am {3 + 4 Gleason 7, PSA 5.8, Exo dx 35} 2 of 14 core samples showed cancer, one 3 + 3 Gleason 6 and the other as above. Core abutment with no bulging, nothing outside Prostate I had a CT and no lymph nodes of increase size. My prostate is not enlarged and no abnormal digital exam. I am…
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Free PSA % testing
Has anyone had this test done? I have done a lot of research and found that this is an accurate test for determing cancer. I understand the lower the % the greater the chance of prostate cancer. My husband's psa went from 1.1 to 5.3 in one year. A second test was run using free PSA and it came back at 2%. He has had a…
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Cyberknife + PMSA = Prostatectomy + Node Biopsy
I won’t consider Lupron, Why do it if post Cyberknife I get a PMSA PET scan to confirm intracapsular eradication and clean nodes. If the nodes are cancerous either way I will need systemic therapy. In addition, the PMSA agent that is specifically absorbed and lights up on a scan, also has a therapeutic analog. The…
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Cyberknife vs DaVinci Prostatectemy
With regard to Cyberknife, do they prescribe MRI’s to confirm tumor destroyed? If Statistics indicate near equal success in tumor eradication, is the only advantage of surgery that nodes are removed for biopsy? Do they always get every node out? All indications from CT and MRI show nodes are at normal size. So if I am…
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Jaw replacement surgery
Hello, it's been awhile since I have been on this site. Brief history: 2016 HPV 16 tonsil/ base of tongue. 35 Radiation at highest level allowed, 2 of 3 cisplatin treatments taken. Took almost two years to get into a natural rhythm of daily life. 2021 started having jaw pain. Last two years spent, trying all easy…
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Recent MRI Findings
Hello Everyone, 🙋♀️ My name is Beth. I recently had an Abdominal MRI w/without contrast at Mayo Clinic in Jacksonville Florida. Here is the Abdominal MRI report impression: IMPRESSION: Questioned sub-centimeter nodule-in-nodule arterial enhancement and washout in hepatic segment IV. While findings are indeterminant for…
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Wishing Everyone A Blessed And Joyous Christmas 2023 And Great Hope For Tomorrow
Hello and Blessings to all on CSN and especially to our group in the H&N section Christmas time is one of the highlights of the year. It’s a time of gathering with family and friends. Sharing gifts, and creating memories. It’s also a time to bless and encourage each other. So this is especially the time I would like to…