The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Xp11.2 2023

judygompers
judygompers CSN Member Posts: 5 *
edited November 2023 in Kidney Cancer #1

I just had a partial nephrectomy of a 2.2 cm xp11.2 It had gone into the fat but not beyond the fascia that surround the kidney. So the word was "clear margins." In 2023 I'm wondering if anyone knows the following: 1. What doctors by name specialize in this kind of cancer in what locations, and preferably for adults (I'm 77), though it usually shows up, less aggressively, in children. 2. What therapies work well as followup. 3. How frequent should follow up imagery be? Of course I'm frightened. I'm looking for a second opinion on how to proceed, a consult with someone who has experiential knowledge.