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A wives journey
Husband (66) has been diagnosed with low grade PC. PSA doubled to 5.6 in one year. MRI confirmed 2 lesions prompting a biopsy. 6 out of 12 core samples 3+3, one core sample 3+4. Gleason 7. Husband opted for AS at this time with Doctor’s approval. Doesn’t want radiation nor HT. Refuses 2nd opinion. that was 3 months ago.…
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T-shirt slogans we would love to see
There are a lot of cancer slogans for T-shirts to be found on the internet. Having had a go round with surgery for prostate cancer, and now having a recurrence, I was looking for somethng regarding prostate cancer. I saw the "Piss on Prostate Cancer" T-shirts, but for a lot of prostate surviviors, that shirt isn't quite…
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porocarcinoma survivor story... please
I was first diagnosed with Squamous cell, but when the labs came back it was worse, porocarcinoma which is apparently much nastier and easily spreads, I think. Did a CT which came back normal. (yeah!!) I have a great doctor with a postitive attitude, but they all talk about the best case scenario. I have a small wonderful…
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Nervous
Hi I just joined today. I'm in my early fifties and I've been diagnosed with colon cancer 2 days ago ... i have had absolutely no system..needless to say I'm nervous. I'm scared I just lost my husband of 33 years to covid. I have 2 sons 3 grandbabies. Why do I have to wait so long to get scans? They're making me wait 2…
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HPV throat cancer - website for treatment and recovery. "My Throat Cancer Story - 2015"
Hello Everyone, I just finished my HPV throat cancer treatment 8 months ago and recently created a website that discusses all the things that I did to help with treatment and recovery. "My Throat Cancer Story - 2015". DryMouthThroat.com I will be adding more to this website over the next few months. Robert
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Cancer Survivors Inspire
This short video is not of H&N cancer survivors but cancer survivors just the same and I believe our journeys are very similar with similar modes of treatments and the same physical and emotional load and challenges involved in cancer treatment and survival. I hope you get some inspiration from this and a connection and…
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Just had first chemo
I had my first chemo with Keytruda on Thursday. During the night, I started having severe leg, ankle and foot pain. Like muscle or bone pain. And leg weakness. It has continued all through the day. Tramadol, Tylenol and ibuprofen aren’t really helping. Has anyone experienced this? Did you find anything to help? Is it a…
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Surgery 5 years ago today
Just sharing, 5 years ago today I was recovering from a few hours post surgery, scared of the results, even though the surgeon said there was nothing else seen. A week later I got the pathology results, no malignancy seen in the hysterectomy specimen. I still did not believe it. Here it is 5 years later I am starting to…
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Treatment for Oropharyngeal Cancer: Investigating Ways to Do Less Harm
Please check out this article. More information for us. From The National Cancer Institute. Take Care, God Bless-Russ UPDATE (February 28, 2022): This story has been updated to reflect new information, including new data from two clinical trials.
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Volunteer drivers
My mother was just diagnosed with lung cancer. She lives in J.E. den beach Florida. I cannot always be there to take her to all her appointments. My girlfriend recommended me contacting this site to see if I can find volunteers to help . please let me know how I can get started with finding volunteer in her area Thank you…
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Kidney removal surgeon Central Florida
Hello; My 88 yr old brother needs to have a cancerous kidney removed asap. I do not know how to find the best surgeon to perform the procedure. ER suggested a clinic that does it on outpatient but that doesn't sit right with us. He is in good condition for his age.
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I am selfish?
Hi everyone. I'm new here and so grateful to know that this exists. My partner of more than 20 years was diagnosed with Glioblastoma during the height of COVID. I like to think that we are still very young people. He was diagnosed at age 36. We have had a pretty rough and toxic relationship over the years. I took care of…
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Dilation
I received radiation in 2015 for vaginal cancer and have diligently dilated 2-3x's a week for 8 years. This year the cancer came back as vulvar cancer and I had to have surgery in February 2023. I could not dilated during the 3 month recovery and now I have severe vaginal stenosis. I was wondering if anyone out there had…
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zetapup checking in for the first time
Dear fellow cancer fighters, so glad to find this discussion board about anal cancer. In this post, I am going to give you a capsule version of my experience. I'll be chiming in to other threads and posting on expanded remarks in the coming weeks. Take care everyone !!! Zetapup I am a 60 year old woman with no prior…
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breast cancer
I had a mactomey of my left breast I was devastated I am still struggling with how I look and I am thinking about having the reconstive surgery but really scared need advice and help
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Focal laser ablation
I just received FLA for my 2 lesions of cancer in my prostate. Has anyone else had this procedure and what are long term successes even though it is relatively new. Thank you!
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Help for hiccups after starting FOLFIRINOX?
Yesterday was my first day of chemo - FOLFIRINOX for liver-only colon cancer (colon mass was removed by hemicolectomy). I have the pump giving 5-FU for another two days. The day went really well, almost no side effects. But since last night - not long after taking my sleeping med - I've had near-constant hiccups. If you've…
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Nervous about upcoming mamogram
I was diagnosed with breast cancer 4 years ago and I get extremely nervous every time I need a mamogram. I am scheduled for one early August and find myself in tears thinking about it… how does everyone cope with their exams?
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Thyroid cancer
Hi I recently had my thyroid and lymph node removed, They diagnosed me with stage 2 thyroid cancer. They want me to have Immontherapy, Does anyone know about Immunotherapy? Also support groups.
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NSCLC STAGE 1B need opinions n support prior to 2nd onc opinion
I recently joined the group and enjoy reading and learning from some of you. I am 60 yrs old and in good health other than Stage 1B NSCLC squamos cell. I had a 4.3 cm tumor with left lung lobectomy and lymphadenectomy in Nov. Ended up stage p2a NO MO with clear margins, moderately differentiated, spiculated egdes and…
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Liver resection
Has anyone has surgery for metastatic colon cancer of the liver? I only know I have a small malignant mass that will be treated with surgery. I’m confused about additional chemo, or if it’s possible the surgery gets the cancer, and additional treatment may not be needed? I’m scared, and would love some help from this…
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CLL vs. MBL
Hi, I'm new here and am anxiously waiting a diagnosis based on a bone marrow biopsy and other tests. It sounds like I could have minimal involvement of a low level B-Cell lymphoproliferative disorder or MBL (monoclonal B-cell lymphocytosis). Can anyone shine a light on the differences between these two diseases and what…
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Humbly Asking for Guidance - Stage 4 Adenocarcinoma
On March, 24th, I sat with my dad at his oncologist's office. My dad sat in the patient's chair, and I sat next to him on a cold steel chair. My hands were sweaty and clammy...I was anxious, nervous, hopeful, scared, but all I could do was look back at my dad and ask, "Are you okay?" My dad was like always, calm & cool,…
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Free LE ( lymphedema ) Alert Bracelet
I have seen several posts on here about lymphedema and remembered that there was a site that many of us got free le bracelets. They were really bright pink, almost neon, for your wrist, but, you want it to get attention. They also have neon green for your ankle. I ordered one awhile back when I went in for some outpatient…
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chemoradiation w/5fu/Xeloda
Hi Everyone, For those of you being treated with radiation w/5fu do you receive your 5fu with the pump or do you take Xeloda (5fu in pill form). Also for those who do receive it with the pump any helpful tips for showering. Do they make waterproof bags in medical stores for the pumps.
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Hello. New here and cancer is back
Hello, New here and looking for knowledge from others on this board who might have similar circumstances. Original diagnosis 2014 - Prostate biopsy - Radical prostatectomy with Gleason of 4/3. 2016 rising PSA - MRI confirmed tumor on bladder - Scope of bladder confirms no perforation - 40 courses of radiation at MSK -…
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My marriage is falling apart since my husband's diagnosis
I swore that I would never join one of these group's and talk about my feeling with strangers but I need people who understand what I am going through and won't judge me. It all started in December of last year husband had not been feeling well for months and I kept begging him to call the doctor but he refused said it was…
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Dad is almost 2 years NED
I believe I started counting NED status for my dad based off of his follow up visit after having finished chemo, so technically if we go from surgery its been longer but I prefer to underestimate. I suppose I am just putting this out there for the timelines sake and also to let people know its possible. While I am so…
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T-Lymphoid markers positive
Hi Everyone, I am new to this forum. My brother (Age-32) who is in India had a Flow Cytometry test and the T-Lymphoid markers came positive.To be specific CD3,CD5,CD 7 -positive ,CD4,CD8- double positive ,CD 10 is positive The doctor ruled out Leukemia and is suspecting T cell Lymphoma. The CT scan report of the chest also…
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genetic testing and assays
There a few newer members here, and while I know the board has been on the quieter side, and these articles have been posted before, I wanted to share them so everyone can see that things are continually changing and getting genetic testing may discovered some of the new drugs are showing promise where the chemo/radiation…