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Aggressive Digital Papillary Adenocarcinoma with lung metastases
I have posted elsewhere on this cancer (a type of sweat gland cancer). This is my diagnosis and I am seeking others who may have experience with this entity. I am always looking for the experience of others: treatments, cancer centers that may have particular expertise etc. etc. If you or someone you know/ care about has…
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Low Grade Endometrial Stromal Sarcoma
I know this is a very rare type and as such I don’t see much in here about it. Newly diagnosed and haven’t even seen my doctor post hysterectomy to discuss treatments. I would like to hear from others.
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Keytruda side effects
Hi my daughter is having hand and foot syndrome from keytruda is anyone else having these side effects and how are u managing them
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Ampullary Cancer
I was just diagnosed with ampullary cancer and would like to talk to anyone who has it or is familiar with it. Also I would like to know about the Whipple procedure and what all that involves.
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Bile Reflux post Stomach Cancer Gastrectomy
There are some serious posts in the last month from newcomers but I hope it is alright for me to raise a maintenance topic to see if anyone has a good answer to a difficulty. Four year survivor to Stage 3 Stomach Cancer. Chemo - Gastrectomy - more Chemo. Roux-In-Y reconnection. Currently two gall stones show on scans.…
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Thickness of Uterine Lining
New and Nervous. I'm 51 years old and admittedly overweight and pre-diabetic. I've been on seasonique (combination hormone birth control) for almost 10 years. In mid July I had spotting for a couple of days that stopped. I called my Gynecologist and she said it could happen. In August I had a normal pap. (I understand it…
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ALL
My daughter is 42 and was just diagnosed with ALL she needs a BMT
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Disability？
After undergoing a bone marrow transplant for ALL，is that still qualify as having a disability？
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Looking for someone who understands
This is my first time using this website but I just wanted to make a post to see if there was another 21 year old with stage 3 lymphoblastic lymphoma out there who can understand what I’m going through and maybe needs someone to talk to as well.
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Can someone please explain endometrial stromal sarcoma as ovarian cancer?
Obviously, I am new. So new, I haven't yet even got an oncologist. The gynecologist is personally calling around to find one for me. Two pathologists didn't know what I had so they sent it to Mayo clinic and the pathology report just came back this week. I was told this type is very rare. I had a large tumor on one ovary.…
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T Cell Acute Limblastic Lakemia treatments and things happened to me job wise so far
I Had chest Pain, really sharp left side on Sunday, and Noticed what I thought was a bug bite on my neck, I went to work Monday, and was having issues short ness or breath. That afternoon I went to the ER and they took X rays and did not see or catch anything, so I asked about the bug bite on my neck it had gotten bit…
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Pain urinating after pelvis radiation
Ive heard there isnt much you can do for the pain. But ive noticed alot of people talking about pouring warm water on their vagina while they urinate and that it helps alot. Im justt curious exactly how to do it. Do you get in the tub or just sit on the toliet? Ive been doing everything I can to avoid urinating for the…
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Xp11.2 2023
I just had a partial nephrectomy of a 2.2 cm xp11.2 It had gone into the fat but not beyond the fascia that surround the kidney. So the word was "clear margins." In 2023 I'm wondering if anyone knows the following: 1. What doctors by name specialize in this kind of cancer in what locations, and preferably for adults (I'm…
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Shocking result
After radiotherapy, unfortunately, the examination showed a significant increase in the size of the tumor (3.4 cm). Since February, when the tumor appeared, it was 1.9 cm in size. After chemotherapy, it became 1.1 cm in size. After that, I underwent 33 radiation sessions, and I was surprised by the increase in size. I was…
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tonsil cancer
I am a 54 year old woman newly diagnosed with tonsil cancer. My brother, who is 49, was diagnosed 2 1/2 years ago with the same cancer. He successfully underwent radiation and has been cancer free. The doctors are baffled. We are not, and have never been, smokers. We will soon be working with a geneticist to explore this…
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Starting chemo
Hello Everyone, I have stage 1B breast cancer. I had a lumpectomy and I'm starting chemo on Monday. Meds are Cytoxan, Neulasta, and Taxotere. Has anyone had this combo? What was your experience in terms of side effects? Many thanks!
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Biopsy report in
Everybody knows my story, but if you don’t prostrate cancer five years ago, 3+4 radiation treatments plus the breakytherapy booster. Now five years later PSA dropped from its lowest point of 0.9 up to 1.9 but here are the results. Very confusing. I do have a follow up visit on November 8, looks like it’s 4+ 4 this time but…
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Small indeterminate kidney lesion - Very Nervous
Just had Abdominal CT Sscan due to right side cramp/discomfort and it found a 11mm indeterminate lesion on right kidney. I am in the process of getting an MRI as recommended by the reading radiologist. I am very nervous and just wanted to know your thoughts or any helpful guidance or insight. Thank you so much in advance.
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Undefined Renal Cell Carcinoma with Translocation Xp11.2
Just wondering if anyone has had experience themselves or family members with this sub-type of kidney cancer. We were told that this sub-type is usually seen in children, but is rarely seen in adults. My husband is 30 years old and had a radical nephrectomy of his left kidney back in February. Since surgery the cancer has…
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ROLL CALL 2012 - CLOSED. NEW THREAD STARTED
In year 2011, we had 89 folks who registered or checked back in. You now will have the opportunity to report/enroll for calendar year 2012. Please give a brief update of your status. If enrolling for the first time, please list your state, date diagnosed, type of cancer, treatment and your status. Adamson 091654, state…
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Low Grade Ovarian Cancer
Hi, I was diagnosed with Stage 3A low-grade ovarian cancer (micro-papillary serous carcinoma) in September, had an optimal debulking surgery (total hysterecotomy) and started chemo at the end of September. So far 3 rounds down, 5 to go. However, low-grade ovarian cancer supposedly means that it grows more slowly than the…
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Advanced Prostate Cancer
Hi, my father has just been diagnosed with advanced prostate cancer which has spread to the pelive bones and lymph.. gleason score 8 and his PSA was 2800 before we started hormone therapy and after one month of therapy came down to 16. Is there anyone else who has had a similar situation and got better with treatment.…
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MGus
Blessings to all, I was diagnosed with having MGus last year. My levels are low for right now. I was referred to this site as I was seeking out a support group. With so much information out there, I'm curious to find out how one is coping with this? I still have not received my Covid shot and was wondering who did/did not?…
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BiRads 5
Hello everyone. I am new here and am looking for some guidance and support. I had a mammogram yesterday where they found a lump in my right breast. After the mammogram, they did an ultrasound confirming what they had found. The report states that I am BiRads 5. Everything that I am reading online is telling me that I very…
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Breast Cancer
Hello everybody i'm new here to this group. i'm glad i have find a place to express how i'm feeling.i just find out i had breast cancer on nov.5 and on the 20th i had both breast removed.i just turned 44 this month...i'm really afraid that it will come back some place else now...my whole family has had breast cancer except…
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Melanoma
Hello Im new here. Was diagnosed with Stage 2B melanoma May 2023. I had a cyst on my scalp that was melanoma. Did surgery and removed alot of tissue from my scalp (22 staples and 4 stitches). My pet scan showed no other cancer. I started immunotherapy (Keytrunda?) in August 2023. I was doing great and then had a ct scan…
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Anyone have breast pain after lobectomy?
Hi, Up until now I've been an active, energetic person but things have changed. I was 70 in November. In December I had a scan for thyroid cancer (on hold for now) that revealed I had Stage II A, adenocarcinoma, a non-small cell cancer. The 6.3 cm (about 3 inches) tumor was completely removed, with all margins “clean” and…
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Hair Loss with Carboplatin Alone
Has anyone had experience with hair loss/hair thinning on carboplatin alone? It's very hard to find a consistent answer to this question. I've looked at all the most reputable sites, and the answer varies when it comes to how likely that would be. So. I'm hoping for information from women who have taken/are taking…
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Primary central nervous system lymphoma
Can anyone help direct me to a list of hospitals in Illinois that administer high dose methotrexate? My wife was diagnosed with PCNSL in October 2021. She did not do the HDMTX treatment at that time but her cancer has returned and we are considering that treatment option this time. I had found a list somewhere that only…
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38 yo female - worried.
I was having frequent UTIs and I got sent for an ultrasound. I had no other symptoms. Otherwise healthy, no diabetes, not over weight, don't have high blood pressure. Bladder was fine but there is a serious problem with the kidney (as per the technicians comments). He said "it was serious".. I get my results in 2 days but…