-
Fluoride Trays
Just found out yesterday that my Medical Insurance Company has approved 80% of my fluoride tray cost. I was initially told that insurance would not pay for them and my dental insurance did deny them but I tried again and it worked. My dentist had recommended these to be used twice daily to protect my teeth. He said he has…
-
Tingling and numbness (still) 2 years after surgery
Hello, I was diagnosed with small squimish cell carcinoma on the left side of my tongue. I had surgery to remove it and a graft was taken from my wrist to reconstruct my tongue. My question would be, if you had the graft taken from your wrist did you still have some tingling/numbness in your hand or arm or did it go away…
-
BelongIA - New App to Consider
Hello All. I somehow stumbled upon and downloaded a new app called BelongAI. It has to do strictly with cancer and is based on artificial intelligence answers to any cancer related question you might have. I tested it by asking a number of questions related to my diagnosis and the answers it gave, which came back in real…
-
Losing voice
Hi, My husband is six years out from treatment for throat cancer. For the past few months, he has been losing his voice toward the end of the day. He is in sales so he talks all day. Is/has anyone else experienced this?
-
assistance for aa friends mom
hi, i am a 58 yr old gay man living with my 2 year seperated husband of 20 years battling hiv and all that goes along with getting older with no money (savings of anykind), and not seeing any possiblity of ever being able to retire. having said all that i have been put into a caregiver position, not oficially, of a friends…
-
How to get rid of the worry and dread
Hi. I'm new. I've been struggling with opening up since Nov 2020. I was hit with lung cancer nov 2020, had a lobotomy. Thought I was in the clear, then in March 2021, was hit with ovarian cancer. I went from stage 1 to stage 4 in three weeks. Doctors were blown away I had 9 rounds of chemo, then put on rubraca . My hair…
-
3 vs 6 chemo?
My oncologist says 3 to 6 chemo are needed and I am thinking to just end it at 3. I will be going on letrozole afterwards though for a long time. My cancer is highly hormonal, and I am hoping that the letrozole keeps it away (ca 125 is down since surgery 12 then 11 after 1 round of chemo). Has anyone here with endometroid…
-
Active Surveillance continues
Results are back Total 19 cores taken Positive Prostate Biopsy Cores in Target Biopsies: (these cores were prior positives in systematic biopsies) Gleason 3+4=7 4mm (5 % Gleason pattern 4) occupying 30% of biopsy tissue Gleason Grade 3+3=6 involving 1 of 2 cores, measuring 1 mm, occupying 5% of biopsy tissue Gleason Grade…
-
Opinion on second treatment
so after five years, I have a reoccurrence. I chose radiation with one round of breaking therapy as a booster. Biopsy is showing very small tumor, but it looks like it is gleason 8 cribiform nature .. Doctor Who does cryotherapy suggested I’m a good candidate for that. He says the success rate is about 85% or better the…
-
How was your Liver biopsy?
My dad ubderwent CT and PET scabs that show 90% chance of cancer activities in liver, lungs, and stomach. Doctors recommend liver biopsy but daddy is undecided due to fears of cancer seeding. Anyone have any insights on personal or loved ones experiences?
-
Persistent SCC on my ear
I've had BCC and SCC appearing on my face, head and neck for over 10 years. Depending upon the frequency of its recurrence I visit my dermatologist every three months or every six months. Treatment regimen has included cutting, burning, freezing the sites or applying the 5fu ointment. Three years ago a BCC became invasive…
-
My story
Hi . I was diagnosed with colorectal cancer stage 4 that metastasized to my lungs, and liver in 2018. Actually, I didn't know it metastasized to my lungs until after surgery. I thought I was in the clear after removing the tumor . I definitely was not by far in the "clear" . My story is similar to a lot of patients. I have…
-
Treatments
Hi all, I was just wondering if anyone had any experience on treatments after progression on panitumumab/ folfiri combo? My dad has inoperable locally advanced rectal ca and was on it for about two years but just experienced progression. I’m heading avastin is the next line? Anyone with any experience on this? Thanks!
-
CEAs
I know everyone is different, but as I read previous posts (I was looking up liver mets), I see an occassional mention of a CEA in the low double digits and that was considered a problem. I would rejoice to have a CEA that low. Is my doctor not telling me something? What kind of CEA's has anyone else had.
-
Pain management
My husband had stage 4 scc lower right jaw bone. They removed that side of his jaw, replaced the bone with left leg fibula-free flap. 10/19/2022 cancer came back in cheek prior to radiation 35 radiation therapy- 7 weeks chemo - finished up first week of April has had 2 pet scans since - NED post treatment has been rough -…
-
AITL T-Cell Lymphoma & Returning Rash
Husband had a bad rash all over his body last November with swelling in his hands and ankles. His rash lasted 2 months. He didn't get an official diagnosis until September of this year. He's had 2 rounds of CHOEP and the rash is starting to return. Has anyone had the rash return while on chemo?
-
Prostate Cancer Research Institute
Hi everybody- I just found this amazing resource on YouTube- Search for " Prostate Cancer Research Institute" - I have gained so much information today just after watching a couple of the videos- If you haven't heard of it, check it out! - It's a MUST! I tried to post the link, but apparently, I'm too new here! So, just…
-
Anyone have a cervical cancer recurrence 9 years later?
Hello all! I used to be on the older CSC network discussion group when I was diagnosed with Stage 1B Cervical adenocarcinoma in 2014, had a radical hysterectomy and that was all that was needed. Then I got breast cancer (2021), early stage, with bilateral mastectomy and that was all that was needed. THEN I started having…
-
Zinc a possible therapeutic to Cancer?
I've read messages here about people with tongue cancer using Zinc to restore taste disorders and I wanted to share my own personal study consisting of over a thousand studies proving mostly in in vitro and in vivo models that zinc is extremely anti cancerous. Also it shows that Cancer correlates with having low zinc…
-
Nerve Damage from Nephrectomy
Hi there: 13 weeks after my Nephrectomy, I am still experiencing significant pain. I was referred to a pain specialist and was diagnosed with extensive nerve damage. I have been on a nerve blocker for a few weeks, which has helped, but I am certain the dosage has to be increased. The pain is debilitating and keeps me…
-
High d dimer.. lung nodule..
I just seem to be having a not great time..sorry.. just a vent with a bit of an I'm scared pity party... I had chest pain so bad .. I can't think of another time I've had pain that bad.. To ER.. labs, xray etc.. ok but ddimer was over 1000.. so ct to check for blood clot.. No clot but 7mm nodule in left lower lobe.. and…
-
Immunotherapy
After 90 days PET scan shows cancer gone but I need Immunotherapy probably for life. Can I get some feedback on what to expect with this type of therapy.
-
Statins
I've no cardiac issues. My cholesterol is a bit high based on the newer guidelines so doctor recommends I start a statin before beginning treatment.. He says chemo or radiation either one will increase the cholesterol and I should do this now. Have you heard of or done this? With everything else I'm going through I don't…
-
Radiation and catheter
Hello I am undergoing radiation and chemotherapy for colorectal cancer that's actually in my vagina which is very rare I have found out but nevertheless I am receiving radiation to my pelvic and abdomen starting my fourth week I begin to get severe burns in the genital area I have tried all kinds of things to stop the pain…
-
Bosniak 3 kidney lesion
I have a kidney lesion 3cm big that i have been following for about 6 months. 60% of being cancer and i am sitting on it.. As i am Completely afraid of doing surgery i have chosen to follow the mass. My question is i have a doctor who wants to do the Partial Nephrectomy. And another who wants to do thermal ablation. The…
-
Treatment options
am 53 years old and got diagnosed with Esophageal cancer in the lower esophagus Stage 3. Non-smoker and no family history. Would like to speak to someone who has had proton therapy I m discussing treatment options with MDA
-
Post surgery late acid reflux
Hello to all, This board helped a lot early on in my husband's esophageal cancer journey. He is 6 years out from chemo, radiation and Ivor Lewis surgery at Mayo Clinic and has "graduated" out of the cancer department. The past year, he has started to get bad acid reflux in the middle of the night, even almost wake up…
-
Cold Caps
Has anyone tried cold caps? Do they work with AC & Taxol?
-
Post-Op Partial Glossectomy - Please Help
Hello All - I had a partial glossectomy yesterday for the left side of my tongue. It resembles a “cookie bite” out of my tongue but goes down to the floor of my mouth. My throat and tongue are so swollen I can’t speak, it’s incredibly painful. The outside of my throat is huge from the breathing tube. Has anyone else had…
-
Flank Bulge after OPN
Had an OPN last week. I feel great except I unfortunately developed the dreaded flank bulge….Are these common with OPN and if so do they go away on their own or do they require surgery to fix?