Primary central nervous system lymphoma

RetiredChief

Can anyone help direct me to a list of hospitals in Illinois that administer high dose methotrexate? My wife was diagnosed with PCNSL in October 2021. She did not do the HDMTX treatment at that time but her cancer has returned and we are considering that treatment option this time.

I had found a list somewhere that only had 4 hospitals on it but I cannot find that list now. Anyone have any suggestions?

Thank you!

ReginaMarie

Hello! I'm sorry, I do not have an answer to your question, but I wanted to say, please be careful with methotrexate. My father used it to treat his rheumatoid arthritis and no one told him about the high risks of it causing liver cirrhosis when it is used over a long period of time. I just wanted to let you know, just in case. I wish your wife the best of luck.

PBL

https://csn.cancer.org/discussion/326934/primary-central-nervous-system-lymphoma

Hi RetiredChief,

Sorry to read your news.

Your best bet is to look up the closest/most accessible hospital among the NCI-Designated Cancer Centers here: https://www.cancer.gov/research/infrastructure/cancer-centers/find

In Illinois specifically, there are two: the Robert H. Lurie CC and the University of Chicago CC.

I hope this helps. Do let us know how your wife fares.

PBL

RetiredChief

Thank you both for your comments. I appreciate the help and information.

po18guy

That is a listing of the National Cancer Institute designated comprehensive cancer centers by state. They are the best of the best. If it helps, had I not gone to such a facility, I would not have made it past 2009.

https://www.cancer.gov/research/infrastructure/cancer-centers/find

Evarista

Suggest reaching out to LLS.org for some assistance with this: https://www.lls.org/ The Patients & Resources tab has a link for Contact an Information Specialist. Best of luck with it.