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Post-Op Partial Glossectomy - Please Help
Hello All - I had a partial glossectomy yesterday for the left side of my tongue. It resembles a “cookie bite” out of my tongue but goes down to the floor of my mouth. My throat and tongue are so swollen I can’t speak, it’s incredibly painful. The outside of my throat is huge from the breathing tube. Has anyone else had…
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Flank Bulge after OPN
Had an OPN last week. I feel great except I unfortunately developed the dreaded flank bulge….Are these common with OPN and if so do they go away on their own or do they require surgery to fix?
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New Diagnosed
I was diagnosed with invasive ductal carcinoma earlier this year. I've had my mastectomy and in about 2 months I will have my next reconstructive surgery. I feel extremely lucky since I do not have to do any radiation nor chemo. My lymph nodes were clean, and my index score came back as only a 10 so I am ER+ PR+ HER2- N0…
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Clear Cell Sarcoma of the Kidney
Our son was recently diagnosed with Stage 1 CCSK. He is currently undergoing chemo per the COG protocol (Regimen I). It has been very difficult and terrifying but we are trying our very best to stay strong and positive. We would love to connect with any family out there who is going through this rare diagnosis of CCSK.
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New to this and lost
I looked for advice online and was surprised to find I already had an account here. A few years ago I was told while waiting for biopsy results it was 50/50 that I would have uterine cancer. Luckily I did not. 12 days ago I had a routine mammogram, followed by ultrasound, followed by biopsy, followed by a breast cancer…
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Cancer Antigen 19-9
Hello, My husband was recently diagnosed with pancreatic cancer. He presented with bad gastritis and quickly became jaundice. He was admitted to the emergency room where several tests revealed a mass at the head of his pancreas. There does not seem to be evidence of spread. The recommendation is for 3 months of chemo (on 3…
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Pancreatic and Gastric cancer simultaneously
Has anyone else been diagnosed with pancreatic cancer as well as a totally unrelated gastric cancer at the same time? Were you given any hope?
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The hardest thing is making decisions
Between short periods this year, I am put to the test of making fateful decisions for my father. After total laryngectomy, the disease recurred under the left jaw. And after chemotherapy TPF protocol. After 33 sessions of radiotherapy. Now, 4 months after the end of radiotherapy, there is a narrowing of the pharynx and…
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Transperineal biopsy options
I am looking for doctors who perform transperineal biopsy in California preferably in a large health system. I have an appointment in late Jan but trying to see if I can get anything earlier. Also any experience in getting appointments with mayo in Arizona, MD Anderson. How quick/easy was it to get one. thanks
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Meloxicam
Anyone been on meloxicam and have a really low psa, but still have stage 4 with bone cancer?
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radiation
I have to start radiation tomorrow after 12 year post prostectomy. Anyone have salvage radiation and if so what are the side effects like?? Do you need to run to the head like you drank water in Mexico if it irritates the bowel?? Does your urine control go ? TY
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Reconstruction
I’m experiencing a lot of delays with my care. I did not require chemotherapy or radiation so my reconstruction has been almost immediate. My first stall was having to wait too long for drain removal. As a result, I had an infection and needed to wait until the new stitches were removed. The second stall was having half…
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Node Testing for Prophylactic Contralateral Mastectomy?
Hello! I am so grateful this board exists! I was just diagnosed with high grade, hormone receptor positive DCIS in my left breast (by mammogram and biopsy.) In hopes of avoiding radiation and hormone therapy, and for symmetry, I am wanting to do a bilateral mastectomy with aesthetic flat closure. I was told my surgeon…
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femur replacement
I've had 17 surgeries trying to give or save my hip. I had two surg as a teen.june 2002 to feb 2003 a dr gave me 8 surgeries and my present dr 7. six were total hip replacements & 1 for reconstructure of the fractured femur after their 2nd attempt.My femur has crumbled about 3 inchines & the july surg did not take either.…
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First post
Hello, Sisters in Pink, This is my first post here and I just wanted to introduce myself. I was diagnosed with Breast Cancer earlier this year. Left breast, ER/PR+ HER-, no lymph nodes involved. Since the tumor was large (3.9 cm at its widest) and I didn't want to undergo a mastectomy, I opted to get neoadjuvant…
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Shocked, devastated, and need help with doctors in Atlanta, Georgia
Short: Is anyone here from Atlanta and can recommend a superstar gynecologic oncologist? And other doctors you'd recommend, including primary physician ? Or did you go out of state for your surgery/treatments? Long: A few days ago I got a devastating radiology report - CT/MRI showed ovarian malignancy on right kidney,…
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Second Opinion Question
Hello again. I went for my second opinion last week at Duke Medical in Durham North Carolina which, from what I understand is a top treatment center for prostate cancer and met with one of the teaching doctors/urology oncologists who has over 20 years experience and does 150 open radical prostectomies per year. I also met…
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Bowel frequency after reversal
My husband had stage three colorectal cancer. He had a resection and a temporary colostomy bag. He has since had his bag reversed but, ever since then he has been dealing with frequent bowl movements. He will need to use the bathroom up to 15 times a day and each time he will pass just a small amount of stool. Has anyone…
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Helpless
I'm posting on behalf of my mother, but we are both at a loss as to what to do. In March my 71yr old father had his bladder and prostate removed due to bladder cancer. He recovered quickly from the surgery and adjusted to his new stoma. In July he started experiencing back pain, he went to a chiropractor, physical…
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ACS travel assistance (hope Lodge/hotel)
I am so disappointed in the ACS decision to stop assisting cancer patients who do not need a caregiver with lodging assistance. Now not only do I have to travel out of state alone for treatment (I'm an elder orphan) I have to find a way to pay full cost of lodging. I have no relatives or friends that can travel with me. I…
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Comparing CT Scans
I have breathing issues. I had a CT with the VA 10 weeks ago. They found a 5cm opacity, a 9.2mm nodule and several other sub 5mm nodules. I was concerned about the 5 cm opacity. And, assumed the worst, which is why I'm posting in Lung Cancer. Three weeks later I had another CT with a private pulmonologist. No mention of…
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Numbness after surgery
I had small nodule on right upper lung. Stage 1A. Just had a lobectomy 4 weeks ago. The incision on my back and the two chest tube incisions are doing well. I am experiencing numbness and burning sensations in my right breast and right side of abdomen (directly across from one of the chest tube sites). Has anyone…
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Side pain after ovarian transposition
Last year, when I was 18, I was diagnosed with Ewing's Sarcoma in my lower abdomen, and I received chemo and radiation treatment, which I finished in January of this year. Before starting radiation, in October 2022, I had my right ovary moved up out of the radiation field to try and preserve it, they didn't move my left…
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Pain with NSCL cancer… malignant pleural effusion
I’m wondering if there’s some tips how to care for someone with severe pain from malignant pleural effusions. My uncle is taking MS Contin 30mg bid, dilaudid 2-6mg PRN and Ativan PRN… nothing seems to take the pain away… we just added the Ativan and it helps but sedates…. Also he can only sleep upright… any pain or chair…
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New Diagnosis Multiple Organ Cancer
Good afternoon, My husband was just diagnosed with cancer in the liver, pancreas and lungs. This was a surprise diagnosis because we went in due to symptoms of a stroke. I am trying to navigate finding an oncologist. He was referred to one while in the hospital but though he seems quite nice my concern is the reviews on…
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survivor remorse
I'm not sure if anyone has this issue. I've looked for years for people treated in the 1970s. No luck so far. It gets difficult thinking I'm one of a very few number.
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A new battle
Hi everyone! We got my dads CT results from his oncologist Friday and he’s all clear on his colon cancer which would put him 2 years NED. The only thing is they found a 6mm nodule on his bladder. His doctor referred him to urology for a cystoscopy so now I have to hope and pray this isn’t a new cancer that wants to invade…
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Very confused
Ok, this may be a little long but I need to explain. I was diagnosed with Triple Negative however my oncologist could not find a definitive location that the lump nodes that were cancer came from the breast. I said that it is most likely. I went through chemo and the lumps swelling went down drastically. Oncologist wanted…
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Wishing A Happy And Blessed Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2023 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
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Head & Neck Radiation Recovery
I had 30 radiation treatments for a tumor in my neck, which ended 6 weeks ago. Since that time, my hearing has gotten worse and I had to have a tube inserted to drain that ear. Also, I still have ulcers in my mouth, which come and go. One doctors told me I would be fine by now - another tells me it is a rebound effect. Has…