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How does everyone cope with scope appts ?
Hi all, Just had my 4th, 3month follow up anoscope appointment yesterday, good news is all still looks clear. I finished my treatments in Sept 2022. So I am one year out and have at least another year of scopes every 3 months. And then we'll see about adjusting the time line? I am not a wimp, in fact I'm pretty damn tough…
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5 year anniversary
Just wanted to post an update on my health. September 20th was 5 years since I finished my treatment for HPV 16 tonsil cancer. I was stage 1 on the revised staging system. Was considered stage 4 the year b4 my treatment. The staging was changed for HPV 16 cases only. Anyway, I have not been on the site much since they…
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Sole caregiver. RCC and parapelgia
I don't even know where to start. I just signed up and put this in my bio. Long story short, I am completely and utterly heartbroken and overwhelmed. Our lives feel like a **** nightmare we can't wake up from for the past two months since we got the news that my husband has stage 4 RCC and due to a tumor in his spine, is…
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Throat cancer survivors
I could use some positive help to reduce stress regarding a recurrence.
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Church-Based Cancer Support Ministries
Because of my cancer journey, I am motivated to start a Christian cancer support ministry at my church. I would like to hear from anyone who has had experience with a cancer support ministry at their church and get thoughts and reactions about the idea. Thanks for your input!
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PORT & pleural effusions
Can a PORT still be placed if there is large right and moderate left pleural effusions? Husband is getting the Port put in tomorrow morning.
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Throat Cancer Survivor (Radiation and Chemo Treatment)
Am available as a resource for emotional and/or mental health support for cancer patients and families in general and specifically for throat cancer patients and survivors. We are not alone.
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Memory Problems
My husband has stage IV kidney cancer and has horrible memory problems. He's gone through the removal of his tumor and kidney, other biopsies, IL-2, an experimental drug, Sutent, and is now on Nexevar. I think it's definitely due to the chemo. Has anyone else had their loved one experience memory loss? Mostly short term…
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Looking for (non) hormonal treatment experiences
My 67 year old partner was diagnosed with prostate cancer (Gleason score 4+3). We chose radiation as a therapy method, however are very sceptical about the 6 month hormonal treatment, which the docters recommend. Can anybody share their experiences choosing hormonal or no hormonal therapy after radiation? many thanks in…
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Punch biopsy for suspected melanoma for spouse
I am a retired RN, and despite working in medical field for 51 years, I simply cant get a decent appt for spouse. Frankly to me it looks like melanoma but of course may not be. But it does have the characteristics ( the most notable being new growth of dark area with irregular borders, unable to measure diameter due to…
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Parotid Cancer
I was diagnosed in 1998 with acinic cell carcinoma in my left parotid gland. I have heard that this is very rare, especially in children. I was 15 at the time, and judging from the size of it, it could have gotten there as early as when I was 11-12, maybe even 10. I was wondering if anyone else knew anything about this or…
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Start of a New Journey
I had just undergone a Radical Prostatectomy on February 7th. Right at a month in, this is frustrating, but yet I am alive with a long road ahead.
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New Diagnosis Preliminary T3N2Mx
61 year old female. Endoscopy yesterday with a preliminary finding of T3N2Mx. Completely stressed out, as my father died from esophageal cancer in 1999. This was not really on radar as I have never smoked, seldom drink, and I am pretty healthy overall (My father had a smoking history although he had given it up many years…
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Ovarian Cancer
I have to do a project on ovarian cancer for Bryan School Of Nursing and present it to my class. I first need to find someone who has experienced ovarian cancer and interview them. This is really important because i want to be able to give them as much information on this silent cancer so they understand why people may get…
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NavDX Test-Can Be Misleading-Readings Can Be Opposite Condition-Giving False Hope Or Doom
Hello folks, I came across this on another forum of a fella who was getting Good NavDX Test readings and in fact, excellent NavDX Test readings but suddenly a recurrence showed up in his life again. I am reposting it here for informational purposes and discussion. vpf143 says on Oct 3, 2023 • 3:22 PM NAVDX - can be…
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Head & Neck (cancer in tonsil's) Stage 4A, 12 years ago & now another Cancer
Has anyone experienced another type of cancer after beating their first Head & Neck cancer? Hubby had cancer of tonsil's and cancer free for 12 years. Now he has an aggressive fast growing type of T Cell Lymphoma.
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Worried about 17yr old son
Hello, for the past few months my son has been dealing with horrible night sweats. He said they happen about 3-4 times a week and are severe. He sleeps in his underwear but his sheets are completely drenched through. I don’t know if I’d say he has other symptoms that are new. He’s always tired but he’s a teen and has…
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Taxol schedule
Hey all, I'm currently going through dose dense AC - 4 sessions over 8 weeks. I'll follow this up with Paclitaxole. I have the option of doing dose dense Taxol every other week, 4 sessions over 8 weeks, or doing Taxol weekly for 12 weeks. What have you guys done? From what I understand weekly Taxol gets rid of the highs…
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Anyone with blood cancer has related to this
Yesterday I had pain in my ribs and back like I got kicked then it felt like I was on one of those rides that spins so fast you stick to it. After I slept for 14 hours. I've had bad days but nothing like this has anyone been through this?
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Looking for Direction
My spouse has recurrent prostate cancer after prostatectomy in 2014. The scan revealed that the prostate bed and two lymph nodes “lit up.” He is a heavy smoker but otherwise very active and strong. I am terrified he has metastatic cancer. We have an appointment with the radiation oncologist 10/24. Just looking for some…
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hydroxyurea
Is anyone on this medication and can you tell me your experience please?
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PTC with a +BRAF V600E mutation
I'm currently 21 and will be 22 next month. Was diagnosed with PTC a little over a month ago after waiting nearly a year for a biopsy to be scheduled (issues with department shut down and people not wanting to do their job.) Ultrasounded in February and didn't get in for a biopsy until August. I came back positive for…
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Radiation causing food to taste rancid.
Hubby is having radiation to both sides of his neck. He just completed treatment 19 of 25. When he first puts food in his mouth, he can taste it and then as he chews it, he says, "It taste rancid or like a dirty wet gym sock" He does not have any mouth sores, just a very inflamed throat with a little white on it.…
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Newly Diagnosed with Gleason Scores of 9 and 10
Hello...I am a very worried wife whose husband was diagnosed with prostate cancer yeseterday. I have been feverishly reading all I can to understand what he/we are facing. I read through a number of forums last night and found them helpful so I am hoping to get that help and really hopeful for hope! My husband had 14 core…
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Permanent hair loss due to Taxotere
I’ve just signed up on this sight, so forgive me if I’m not going about this the right way. I’m 73 years, diagnosed with stage 3 endometrial cancer in October of 2022. Had a total hysterectomy in November and began chemo in January of this year. I did half the chemo, paused that and had 32 radiation treatments, then…
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(Vent) My mom has bone cancer and is acting differently
I’m 19 years old, I watch over my mom, 49, who has bone cancer. She has diabetes and multiple issues with her lungs and heart, and many surgeries with unclogging arteries, removing a hernia, and has survived a diabetic coma in the past. Whats worse is, people had given her COVID 3 times. My mom survived each time she…
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Mental Health Support
Hello, I’m new here and seeking help. I’m a 28 yr old in remission now from Stage 3C Ovarian Cancer. I was diagnosed November of 2020 @ 26 years old. Is anyone from the Massachusetts area who have or recommends a psychiatrist or therapist who specializes with working with cancer patients/survivors? Any help would be…
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1 Year Update
Good morning everyone, I wanted to post a status update as I hit my 1-year post diagnosis for stage IV rectal cancer. I just finished my 23rd treatment with Folfiri and Cetuximab. A couple weeks ago I had a PET scan and consults for liver resection and even liver transplant. Unfortunately, the pet shows some spots still in…
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Is anyone taking letrozole and have side effects
I was diagnosed with breast cancer last year, had a mastomy in June last year. I have been on letrozole since August. I have gain about 20 pounds, joint and bones ache, and very depressed. Has anyone had similar side effects? My husband also was diagnosed with lung cancer in Dec 2012. He also battles with side effects of…
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Hello. New Stage 4 Prostate Cancer Patient
Hi, new to the forum and new to having stage 4 cancer. I'm 64 and had my prostate removed in May due to early detection. Went this past week to a radiologist thinking I would start a radiation regiment to remove the remaining cancer. Instead was told I the cancer reached the bone and I am in stage 4. I was in shock and…