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Metastasized Lung Cancer (Osteosarcoma)
Anyone out there who is surviving metastasized lung cancer? My 25 yr old daughter was originally diagnosed with Osteaosarcoma Sep 2018. Had limb salvage surgery to remove tumor in her knee Jan 2019. 2 years later the tumor re-appeared further up her femur. She had a hip disarticulation Sep 2021, to remove her full leg. Feb…
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Another set back
Hi everyone! I was hoping not to have to make another post with scary news but here we are. My dad was diagnosed with stage IIIb colon cancer and around this time like year his CEA level went up to 8 after it being normal for serval months. Thankfully all scans and colonoscopy came back clear and his CEA came back down on…
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Traveling
Every single member of my cancer care team encouraged me/us to NOT cancel our family cruise scheduled next month to celebrate our daughter's 21st birthday. Now that it's just a few weeks away, I have a lot of mixed emotions. I know I can't do lakes, oceans, public pools, hot tubs, saunas, and I have to be careful about sun…
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PET scan after 2 months of Hormone Theray
My mother had a PET scan done last Friday. This was about 8 weeks after starting the Hormone Therapy (Anastrozole). Hormone therapy was started on May 15, 2023 and she had the last chemo before on Feb 3, 2023. So essentially she did not have any cancer treatment about 12-14 weeks in between. The PET scan from last week…
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Cramping from head to toe
I had BOT 4 years ago and side affects still persist. What I notice lately is my whole body getting cramps..arms, legs, feet, chest and head. My oncologist didn't seem to worried. My Primary care doctor had me try magnesium, electrolyte drinks, potassium, eat 5 bananas a week. etc. When I get the most cramping is in bed…
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Suggestions please
need suggestions to put on weight 13 EGD procedures and esophagus is still about the size of a drinking straw i drink 10-16 bottles of Ensure per day mixed with milk,chocolate syrup,bananas,,instant breakfast and peanut butter work for me is about 3-5 hours per day and then I’m exhausted I honestly don’t want to purée food…
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My life has changed, has anyone had this happen?
Had lumpectomy April 27, 2022. I was blessed, margins clear, no lymph node involvement. July 22, 2023 will be a year since my last radiation treatment. I have had PET scans and 3 D mammogram, (hurt like the devil) and surgeon did breast exam. No cancer. I suffer from anxiety and occasional panic attacks. I just want to get…
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Please take a few minutes to watch this important video about PSMA scans
https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjlgIKAhKOAAxW6m2oFHebnCNMQwqsBegQIEhAG&url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3D-ZXDohxylg0&usg=AOvVaw2YI7sJ0VG3QjqJ4p-w0qfm&opi=89978449
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Possible secondary cancer post advanced stage Hodgkins Lymphoma w/ splenectomy. Depressed, worried
Is there a one else who may share a similar concern about my topic? It would be nice to chat w/ someone with same concerns:) I’m
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Nerve damage from radiation
I am losing the use of my legs due to 'scar tissue' nerve/muscle damage from radiation. Doctor suggests high dosage (500 mg/week) methylprednis treatment. Has anyone ever experienced this?
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Contamination from laparoscopic hysterectomy - Anyone else have this?
Hi, My 2nd occurrence was over almost 6 years ago. It was a tumor in my rectus abdominis muscle as a result of contamination in one of my scars from the laparoscopic hysterectomy. It occurred 6 months after chemo for the 1st recurrence (in 2 pelvic lymph nodes - which was found about a year and a half after the original…
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Dry Mouth
Has anyone had a problem with a dry mouth well after chemo ended? I'm 4 months out from treatment and lately my mouth is sooooo dry I can't stand it. I thought it was from the menopause, but when I asked my gyn, he said he never heard of that before. I didn't have any mouth problems from the 5-FU while in treatment, but…
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ACUTE LEUKEMIA SURVIVOR
I WANTED TO BE IN CONTACT WITH SOMEBODY WHO HAS HAD THE SAME EXPIRENCE OF ACUTE LEUKEMIA AND SIMILAR TREATMENTS.
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PSA went up in two years
Hi friends, My PSA went up from 2.2 to 4.2 in two years, I am 49. My % free PSA was 14% and now is 17%, so this metric went in the right direction. Any suggestions? I am of course concerned and will be working with my physicians for more tests. Hope a biopsy is not needed.
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Stage IV
Hi there. I am new to this site and my 42 year old brother was diagnosed with stage iv pancan with lymph node involvement and there are spots in his lung that are far too small to even get a adequate tissue biopsy from. He starts his 3rd treatment of Folfirinox Wednesday. So far he has been tolerating pretty well. Any…
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BCG is killing me
Aloha, I had very small tumors removed both in December and April. 4/20 i began BCG. Last treatment was 5/25. For the most part side-effects have eased up. However I still have horrible horrible weakness in my legs. It doesn't seem to be improving. It has me terrified as my mobility is becoming impaired. Has anyone else…
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PET Scan
Just a quick update. My condition has been generally stable and I am doing pretty good. I have leftover issues from treatment as we all do like dry mouth, neuropathy, diminished swallowing, some stiffness from radiation, and some of what happens with me like a rough morning getting started and a day every now and then just…
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When can you do heavy weights at your old pace after robotic partial nephrectomy?
Hi, I'm a hard core body builder, in my early 40s, no steroids because I went every day, but I ended up having 5.2 cm of my left kidney removed because of stage 1 grade 3 kidney cancer. It was growing fast, thankfully the margins were negative... Anyway I do heavy weights. I'm one of the biggest guys at the gym. I've been…
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Ashamed but need financial help
I was diagnosed with stage 3 colorectal cancer last year. I had surgery where the cancerous portion of my colon was removed. I have had very little health or physical complications since. I honestly feel ashamed posting this because of the many here that undergoing pain and other complications. My problem or challenge is…
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confused and dazed
I was rushed to the hospital Easter Sunday, and started blood transfusion (my fourth in less than 5 years). I am 44 female. While there, the on call doc decided I needed more tests. Long story short, they found out I had sarcoma of the uterus. I had everything taken out, have nice long incision that I am recovering from.…
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Endometrium 15.90mm!? I’m 34 :/ any advice
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
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Just stopped radiation after 5 treatments
Here is my official dx copied from My Chart- Uterus, bilateral fallopian tubes and bilateral ovaries, excision: Endometrial endometrioid adenocarcinoma, Grade I of III, with the following additional features: - Tumor invades greater than 50% of the wall thickness - 0.8 of 1.0 cm, 80% - Angiolymphatic invasion identified. -…
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Psa rise after partial hifu
I had 90% of my prostate treated 1 year ago. My psa was 1.26 at 3 months; 1.41 at 6 mo; 1.46 at 9 mo; 1.53 ay 1 yr. Dr is not concerned. I am. Can ty find anything on psa increase after partial hifu. Thoughts?
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biphasic - carcinosarcoma -had been serous carcinoma in initial ln biopsy
Hi, I wrote a rather long email last night that I think got stuck in some sort of approval process, so apologize if it turns up later. I wrote a week ago to say my left groin LN biopsy came back as serous carcinoma. Everyone told me to BREATHE until I saw a gyn/onc, which I did Monday. Great guy associated with a respected…
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My wife is pushing me away
She was diagnosed with aggressive stage 2, Her2+, double negative (hormone, which isn’t apparently common) breast cancer, in Jan of ‘23. In the beginning, it was “us” and “our fight”, but has changed. After her 3rd chemo treatment, “Hell Week” was exceptionally brutal. A few days after treatment, admittedly, I was trying…
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I had my surgery today
I’m typing this post on my phone from my overnight hospital bed. Today was my Davinci robot-assisted RP, and I’m happy and relieved to finally have it over with. For those who are curious, those who may face this surgery themselves and for myself to remember while it’s still fresh in my mind, here are some of my…
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last week--high-grade serous carcinoma--this week adding in a high-grade sarcoma
Hi, folks, last week, a couple of the seniors here suggested I take a deep breath. I needed it--this week saw a respected gyn/onc here in the Philadelphia area. Very smart. Runs his shop like a clock, and is highly placed in the health system I am now going to. He said I had Stage IVB (because it had spread to the inguinal…
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Endometrial Adenocarcinoma that is involved Adenomyoma’s
I am 60 and recently diagnosed with Endometrial Adenocarcinoma. After my surgery my pathology report looked good with just a 3mm Myometrial invasion, and clear lymph nodes, fallopian tubes, and ovaries. However it also stated that In addition to superficial Myometrial invasion, the tumor involves the Adenomyoma/s…
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A Cancer Story-Short Video-A Heart Warmer And A Heart Breaker
Please take a look at this you won't be sorry. FOX5 Surprise Squad - Waitress with Dying Husband Gets $12,000 Tip! Most people would move mountains and part the sea for the people they love, the ones closest to them. For waitress and mother of four Jessica, that person is her husband, Robert, who was seriously ill with…
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Chemo or no chemo?
I was diagnosed with moderately differentiated adenocarcinoma of the descending colon in early June. I just had my colon resection 12 days ago. The surgeon removed my entire transverse colon because that is where the tumor was, not the descending colon as the GI doctor noted on his report. Luckily, he tattooed it so the…