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Mesonephric Endometiral Adenocarcinoma
I am wondering if anyone has had or know someone that had Endometrial Adenocarcinoma? I am trying to find a survivor of this very rare cancer, but so far I have not had any success. I was diagnosed in August 2015 with this very rare cancer. I was misdiagnosed for 6 months from various doctors treating for a UTI even though…
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What do you think about my case? Better to remove the prostate now or wait?
52 years old man. MRI PiRads 4 (10x11 mm pseudonodular lesion with ill-defined margins in Peripherical zone) Lesion located in the posterolateral segment of the lower third of the left peripheral lobe. PSA 5.33 ng/ml. Systematic biopsy and targeted (total 14 samples). 5 samples targeted to lession index (3 positives & 2…
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Just letting people know I am 5 years NED.
I don’t visit here much but I do appreciate the help and support when I was first diagnosed. I was 1A grade 3 with some clear cell. I owe my good outcome to my wonderful Dr and the great facility I went to and still go for my yearly checkup. I am very sorry that another person on here continues to give bad reviews on my…
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Issues and care years after treatment ??
Hello I had Hodgkins back in 2008 and 2012. I was treated with AVBD and ICE and an auto SCT. I also had rituximab in 2008 (study) and in 2019 for what was likely an autoimmune disease ITP or maybe B cell lymphoma. I’m sure there is a case study on that one somewhere. Never had radiation treatment. Since 2020 I have been…
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Help - Just diagnosed with Hodgkin's Lymphoma
58 year old male and was just given the diagnosis a few days ago. Meeting with Hematology and Oncology next week. What should I be purchasing for Chemo visits to make myself more comfortable and to hopefully make the side effects (sores, nausea, pain, hair loss) lessen. Also what should I be purchasing for my home. I live…
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Reccurence: Buccal Mucosa SCC
Hello everyone: I am feeling a lot of emotions right now as I have a recurrence of my cancer - just 8 months after surgery. I know this is a cancer known for recurrence, but my surgeon was confident I would do okay - my margins were clear, I don't smoke, etc. But as we all know, cancer has a mind of its own. My primary…
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Low WBC and Brain Fog after 2+ years
Frankly, I am tired of my oncologist saying "it's part of the process" and "it's different for everyone." I am still battling brain fog since chemo and radiation completed in Spring 2021. And my WBC have never rebounded either. My last test showed 2.9/uL when it should be 4.0. Does it ever get better?
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Husband was misdiagnosed
My husband is 53, urologist diagnosed him in January with bph and borderline low testosterone. Started him on testosterone injections every two weeks until May when she said he needed to stop because he could have prostate cancer, and that the testosterone will fuel the cancer. she wanted to do a biopsy immediately. We…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 2-4
I have throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So i am going to do that in hopes it helps someone having to deal with this. DAY 2-4… Take Care, God Bless Russ
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Regular Scans for Watchful Maintenance - Patient Advocacy NEEDED!
Hello, I was recently made aware of the fact that many uterine cancer patients are not getting regular scans because "the research shows that they don't extend long-term survival." Those are generalized quotes that I heard from a couple of doctors. However, those same doctors tell me that liquid biopsies are not really up…
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Ladies going through chemo - how are you doing? Or those just starting or curious
Hi ladies! I know Teddi Bear, Editgirl and I are in active treatment. I thought it would be good to check in, see how you all are doing, share ideas, information etc. i am in a clinical trial consisting of Aldoxorubicin and Gemzar infusion on day 1, gemzar on day 8, neulasta shot on day 9 and start all over again on Day 22…
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recently diagnosed with RCC
I am a 75 year old woman, very active and always thought healthy and have been diagnosed with RCC. It has metastasized to my lungs. I am trying to find a support group to give support and to receive it.
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What the heck does triple postive estrogen mean??????
My dr told me the other day that my BC feeds off of estrogen. He said i'm triple positive. Is there other ladies in this group triple positive as well???
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Post MRI report seems bad.
Had my first MRI after PSA jumped from 3.1 on April 2021 to 13.6 on Feb 2024 then a week later to 15.6. Was tested for possible infection but came back negative so the MRI was scheduled. The Report Impression: Highly suspicious lesion of the anterior right apex as above marked for possible fusion biopsy. The lesion…
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Biopsy results
My husband is 68 PSA 4 last January retest 90days 4.2 retest 90days 5.2 biopsy digital exams clear until last results firm i know the results are not good.. the urologist is scheduled to call us tomorrow I read that with the higher Gleason/grades the prostate quits putting out the PSA higher numbers.. I am thinking scans…
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1st FOLFOX treatment & im miserable
I was hoping to be able to handle the treatments and be able work on and off but this first weekend has been unexpectedly bad. I starred throwing up the Saturday I was unhooked after 44 hours of 5-FU. I I’ve been taking Zofran and/or Ativan and just feel nauseated almost all the time, thrown up 3-4 times Sunday and today.…
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Gleason 8 and Proton Therapy vs Surgery
Hi there. I was diagnosed with Prostate Cancer on the right side. This was following an MRI on 23 Feb and a Biopsy on 28 March. Had bone scan and PET PSMA scans on 18 and 24 April 2024. Met with a Urologist and two different Radiation Oncologists since then. Biopsy result was 6 of 13 samples were positive for…
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Orchiectomy vs. Hormonal Therapy
My father has advanced prostate cancer with a PSA of 160 with cancer spreading throughout his bones. He is currently on a lot of pain medication and weakening rapidly. His new urologist is recommending orchiectomy even though my father has been getting Lupron injections for 18 months. I asked my father's oncologist and he…
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Urine flow after prostate surgery
just have a question. A lot of you just had surgery with no prior radiation. I had surgery after radiation. Im about 8 weeks out My question is this I know a lot of men ,probably everyone had some degree of incontinence after surgery but when you did go on your own, was the stream normal regular flow ,that’s what I’m…
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helping with funeral arrangements
My husband has been diagnosed with terminal lung cancer which had spread to the brain and we had to remove the mass. He is in the stage 4 of cancer and it has pretty well taken over his body. He is currently going through chemo treatments but the dr is not very hopeful but that it will help relieve some of his pains. I am…
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From Stage 1A Grade 1 Endometrial Adenocarcinoma to 6 yrs NED to Metastatic Stage4B
Greetings everyone! Along with sharing my journey here and checking in to support others in theirs, I am wondering if anyone has had experience with Stage 1A Grade 1 Endometrial Adenocarcinoma recurring after 6+ years being NED at each 3 month, six month, exam. The first time I was diagnosed (at 58) it was removed (via a…
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11 anniversaries since diagnosis of stage 4 prostate cancer
Diagnosed at 63, I did not have the confidence at that time to believe I would live another 10 years. Yet, I just completed another follow-up visit in the past two weeks. My semiannual routine includes a blood draw for PSA and metabolic panel, followed by a visit to my oncologist's office. Given the many years of hormone…
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after affects of radiation
Good afternoon all. I have some questions and need some information. I was stricken with stage 4 head neck cancer April 2022. Underwent radiation and chemotherapy. About june of 2023 I started with my inner gums disappearing and causing Osteoradionecrosis. This has progressed to where I am a candidate for surgery down in…
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Breast Shrinking 10 years later.....please help
Hi there. My mom is a 10 year IDC breast cancer survivor. She was treated with lumpectomy/rads/hormone therapy. She recently noticed the treated breast has shrunk in size. Could this be a late side effect of radiation all those years ago? She had a normal mammogram last week. I am worried this could be a new problem. Any…
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Lumpectamy
As I am getting older my breast is shrinking as NY unaffected one is drooping. Where can I get a comfortable bra to combat my problem?
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Decision time on Surgery & Radiation, all test done
Thanks again for all the help in these past few weeks, my PSMA Pet Scan Results have arrived. At this point (waiting on Decipher Test) I am done with testing. At this point I am leaning towards SBRT & Hormones for 6 months. I meet with my urologist tomorrow and then Radiologist, Oncologist on Thursday and Friday to hear…
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Endometrial cancer
Just got biopsy results endometrioid Adenocarcinoma FIGO 11 not sure what it means waiting to get appt with surgeon.
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Radiation without Hormones?
In my previous posts I've spoken about only wanting surgery rather than radiation. I've been told by others (non-professionals) that it's possible to do radiation without hormones in my case given that I have favorable intermediate prostate cancer (3 + 4 with 5% involvement of 4 in only one core). Does anyone know if…
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Enhertu and gas
hello, My mother has been experiencing gas pain during enhertu and the pain stays for about 10 days or more after the treatment. She is on nexium currently but it is not enough to relieve the pain. Is there any home remedies or medications that she can take that can relieve this side effect?
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groin pain
Hello all, new to the forum. 66 year old male. Currently awaiting fusion guided transperineal prostate biopsy (next month). History of elevated and increasing PSA (last 3.8) but relatively normal sized prostate (31 cc). Just had multiparametric mri (3t) and results indicate a single pi rads 4 lesion (12 mm) in right mid…