After Lupron and Radiation

schoolteacherbob
schoolteacherbob Member Posts: 1
in Prostate Cancer #1

I need help recovering strength and energy after completion of radiation and Lupron (2 x 3 months).   I don't lnow where to turn.  My Urologost is no help.  He says his only concern is keeping my PSA down.  Can anyone give me suggestions?  Thank you.

Comments

  • GeorgeG
    GeorgeG Member Posts: 152
    #2
    My Rad Onc said that after

    My Rad Onc said that after radiation the fatigue can take up to 6 months to recover. He also said that your maximum testosterone recovery will usually take 6-12 months. I'm finishing SRT this week and neo adjuvant ADT two months later so I don't have any personal experience yet with recovery. I can certainly confirm the loss of energy though which is pretty significant.

    George

     

  • contento
    contento Member Posts: 75
    #3
    Schoolteacherbob

    Bob, I had 7 weeks of radiation and , like you, I had 2 lupron shots 3 months apart. My radiation was not primary though but Salvage radiation and the protocols may be different , I don't know. I didn't see any info in your my space bio to determine your situation. In any case my testosterone level came back by my 6 month psa check. I experienced fatigue and hot flashes for about the same time frame ( 6 months ).  I do think it did take that long to really start feeling myself again but it was to be expected and it was palatable. I'm now 2 years post radiation and I feel absolutely no after effects. Hang in there ....

  • VascodaGama
    VascodaGama Member Posts: 3,707 Member
    #4
    Hypogonadism may be the cause of nasty fatigue

    I assume that your hypogonadism is the problem. Treating it may reverse the issue. Can you tell us more details about you, your health status (other problems) and the Pca history, including the time of shots administration?

    Best wishes for improvements.

    VG

  • Jpsweld
    Jpsweld Member Posts: 6
    #5
    contento said:

    Schoolteacherbob

    Bob, I had 7 weeks of radiation and , like you, I had 2 lupron shots 3 months apart. My radiation was not primary though but Salvage radiation and the protocols may be different , I don't know. I didn't see any info in your my space bio to determine your situation. In any case my testosterone level came back by my 6 month psa check. I experienced fatigue and hot flashes for about the same time frame ( 6 months ).  I do think it did take that long to really start feeling myself again but it was to be expected and it was palatable. I'm now 2 years post radiation and I feel absolutely no after effects. Hang in there ....

    I'm thankful for hearing you

    I'm thankful for hearing you bud, Ive heard only horror stories till I joined today. I just had a 1st hormone shot then radiation to follow.

    so I'm glad to hear you went through ok

  • Will Doran
    Will Doran Member Posts: 207 Member
    #6
    Hang in there

    SchoolteacherBob.

    Hey Bro, I too was a school teacher.

    I was diagnosed with a stage pt3bN1 Prostate Cancer 4+years ago.  PSA of 69, Gleason on 3+4-7.  No symptoms prior to diagnisis.  Had Radical Robotic surgery in Dec 2013, followed by two full years of Luporn and 40 Radiation Treatments to the prostate cavity area as clean up.  40% involvment of the prostate and one lymph node involved with a very smal spot that hadn't shown up in my MRI's.  My PSA went to <0.010 and as of two weeks ago my PSA is still holding at <0.5.  As my testosterone has come back to where it was, my PSA has come up a bit, but as of two weeks ago, the rate of increase has slowed to half of what it was.  It took almost a year until the weakness and feelings from the Lupron subsided.  I've been off the Lupron for two years as of October 2017.  It takes a long time for that to subside.  I assume the longer you are on Lupron, the longer it takes fro the side effects to go away.  That's what I understood from all my doctors.

    Hang in there, it will improve.  I really can't advise you on what to do.  We are not doctors here.  I just kept plugging along and exercised as hard as I could.  That seemed to help.

    Best of luck

    Love, Peace and God Bless

    Will

  • stihlbr49
    stihlbr49 Member Posts: 2 Member
    #7

    I was diagnosed in December 2023 with prostate cancer. I had one gleason score of 9 and the others were 6,7,8. I completed 45 radiation treaments at the end of May and am due for my 4th Lupron injection in a couple of weeks. What has worked for me is weight training 2 to 3 times a week and walking a golf course carrying my clubs 3 times a week. My Oncologist and my Urologist both told me to keep moving. I take in at minimum 64 grams of protein daily. My last blood test revealed a PSA of .1 and a testosterone level of 3. I do suffer fatigue and anxiety but physically I am ok. If you can, keep moving even when you don’t want to.

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