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Rising PSA after 12 years post surgery
Had robotic surgery at Cleveland Clinic in 2010. Gleason 3+3. Nerve sparing surgery and results indicated cancer was contained. PSA undetectable for 12 years. 2023 measured .04. 2024 measures .08. MD says to watch and wait. Don't understand why after 12 years suddenly rising.
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Problems they don't tell you about
Hello, new here and just diagnosed with thyroid cancer while undergoing eye cancer treatment. The endocrinologist recommends complete removal of the thyroid and does not expect needing any further treatment for the thyroid cancer after surgery. Many people say you can live without a thyroid, no problems. I'm looking for…
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Thyroid cancer survivor imposter syndrome.
My husband works with hospice, and I only underwent a surgery and thyroid replacement hormone. I'm left feeling it difficult to express my many emotions (diagnosed less than a week ago) because my cancer isn't as bad as what hospice patients go through. Husband says he is supportive, but I can sense some resistance to…
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New Diagnosis of Stage 4 Metastatic Uterine Cancer
Hi, I’m new here and wanted to introduce myself. My name is Heather. I’m 42 years old. After many trips over the years going to the ER over pain and being pushed away as they accused me of being a drug seeker, I found out in May of this year that I have stage 4 metastatic uterine cancer. After many tests and appointments,…
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Lymphedema after surgery
I have been reading about all the side effects of incontinence and ED after RALP but not much about swelling in legs after a RALP with lymph node dissection. My background: Age: turning 71 in Sept, My RALP Surgery scheduled mid August, nerve sparring estimated 100% one side 75% other side Biopsy early Feb. 24, 5 Gleason 6…
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Getting help after 30yrs of radiation treatment
Hello everyone, I am new to this site. This has been a crazy time for me because I am a 30-year cancer survivor. The radiation treatment that I have received during my treatment is kicking my butt. Six months after receiving radiation treatment, My small intestants became fused together. surgery was performed. Since then,…
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Surveillance Visits By NP?
Hi All - I hope this finds everyone doing well. I am not on here often anymore due to a million other life things but I am always grateful to all the support and knowledge here. Currently 3 years NED. I am curious about whether or not your GO has a NP do surveillance check-up exams? I was told by a nurse that my GO office…
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My Voice: Laryngectomy and Head and Neck Cancer Information Site Blog By Itzhak Brook MD
Here is a new find, a Blog by a doctor who is a physician and a laryngectomee and has information on it and also covers the whole H&N cancer spectrum Itzhak Brook MD. This is loaded with info about H&N cancer and Laryngectomy info. I think it is worth a look and you will find something here I'm sure. Check the menu on the…
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Wishing Everyone A Happy And Safe 4th Of July Independence Day.
I would like to wish everyone a safe and happy July 4th holiday. While celebrating remember our original founding fathers who put their lives and everything they owned on the line to start this new nation. Their lives were especially on the line because if they didn't succeed high treason was punishable by death. And since…
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2nd opinion anal cancer
I have recently been diagnosed with SCC anal cancer. Right now, it’s stage 2, CT and MRI didn’t indicate nodes or Metz. I had my first meeting with the Radiology Oncologist yesterday. I can’t stand her. No bedside manner, spoke to my husband more than me, and wouldn’t answer my questions until she was done with her schpeel…
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Cancer center experiences
Anyone else experiencing micro aggression at your cancer center? Informing our cancer team about Trauma informed radiation was a hurdle to jump over in the beginning. Experiencing homophobia 5 days a week for another 5 weeks seems to be just another part of the treatment. We plan to address this issue with the hospital as…
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Scar tissue and anal fissure
I'm 2 years remission , does anyone else have issues when passing a hard stool ,there is some blood, my Dr said that is the scar tissue causing that from a harder stool and I have a fissure , I guess I'm looking for reassurance . My last CT scan was normal , and I see my GI doctor today for my 6 month visit .
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Bladder / Ureter Cancer
I am posting this under Bladder Cancer but I have Ureter Cancer. Diagnosed 5/29/2024 with Ureter Cancer. 70 yrs male—mass found in left ureter—Had Kidney and Ureter robotically removed (but had to be switch to open surgery lasting almost 7 hrs.) 6/13/24. Had complications and in ICU for the day after surgery. Hospital for…
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Introduction to Radiation Therapy of the Head & Neck--Video
This video is more than an introduction to radiation of the head and neck, this is a very thorough video covering not just radiation and things such as the mask but also other appointments you may have, the treatment itself, side effects, mouth reactions, mouth changes, diet changes, skin changes, fatigue and more. For…
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Block Center in Skokie, IL
Hi I’m looking for feedback and info on the Block Center. Considering going there for chemo for second breast cancer. They’re a 90 minute drive for me. At Block I’d be getting the same chemo as other places. They recommend IV nutrition the day before or the day after chemo. There are a few- vitamin C, general nutrition,…
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Basal Cell Carcinoma and Niacinamide (vitamin B3)
I am looking for others who have experience with taking Niacinamide for skin cancers. I have had skin cancer surgeries of all manner since 1987, with increasing frequency as the years moved on. Almost all were basal cell (couple squamous, and two melanoma insitu). In 2020 a radiation oncology doctor told me to use…
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Got told today that I almost certainly have cancer
Hello group, This is just a random chain of thought because I can't sleep. I'm in my early 30s and I've been feeling sick the past couple of months and on Friday night, I realized that I couldn't eat solid food and that I have this large bleeding tumor thing under my tongue. On Saturday I went to the hospital and they took…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 23-27
This is a video post from a fellow undergoing treatment and documenting it in a series…throat cancer…once he was diagnosed He wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. WHAT TO EXPECT | Throat Cancer |…
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New lab test
I was reading a study on ovarian cancer and came across this information about a lab test that is mentioned as being useful for endometrial cancer as well. This is quoted Laboratory Studies and Biomarkers Serum laboratory testing should typically include a complete blood count and metabolic profile.[7] The American Society…
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Endometrial high grade serous carcinoma grade 4B Keytruda/Lenvima
Hi all! I am new to this board. I was on the breast cancer boards for several years starting in 2010. Now I am 64 yo and I have high grade serous carcinoma grade 4B. Had a radical hysterectomy June 2023. No radiation (yet). I went thru 5 out of 6 rounds of carbo/taxol and my cancer didn't respond to it. Now I'm on…
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Small cell lung cancer
Hi I am 40 years old and just found out in January that I have stage 4 mestatic small cell lung cancer secondary liver cancer and they've given me 10 to 12 months to live it's in my bones my pancreas my gallbladder my ovaries. I have a 19 year old and a 2 year old and they'll keep telling me I'm dying but I don't feel sick…
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Don't see the point
Stage 4 PC.Starting Chemo. Told I will be on Testosterone inhibition for the rest of my life.No sex,no passion,no energy,no muscle mass just a blob. I am 73 but was hoping for another relationship before I die but would not put this on anyone else. Not sure I see the point in living liked this. All that I am will be gone .…
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Hemoglobin Level
My biopsy isn't scheduled until July 11. Last week, I was in the hospital getting two blood transfusions. Yesterday, I passed 8 large blood clots within a two hour time frame. Today, I am so weak. Do you think it could of lowered my hemoglobin level or am I just tired from the pain yesterday? I don't want any additional…
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My Journey begins - Navigating with Prostate Cancer
My first PSA test was at age 51 and was only taken as I was applying for life insurance. This was in 2014 and my PSA was 3.0 My next PSA was taken a month ago in November 2023 during a normal physical at the age of 59. This PSA test came back as 64 (not 6.4 but 64). I was referred to Urologist and they performed a DRE…
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Sexual therapy
Hi. New here. I’m looking for a sexual therapist. I’m a 51 year old female. Stage 4 metastatic melanoma. In remission for 3 1/2 years so far. In a committed relationship for 14 years so far. I desperately need some advice and/or therapy that’s free. I live on disability.
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Newbie with ER+ Her2+ IDC and DCI
I was diagnosed over a month ago with DCI and IDC. I am ER+ and HER2+. I just had a lumpectomy with sentinal node removal 5 days ago. None of my previous tests showed any lymph node involvement, but pathology will tell. I am to follow up with surgeon this Friday. My question?? I do not have a medical oncologist yet.…
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when to start ADT along with SBRT
Hi, due to scheduling delays I won't be able to start SBRT (cyberknife) for my Gleason 4+3 multi-focal PC until September. My PSA jumped in October last year from 2.7 to 4.6 in 16 months time. I did not get a biopsy until April which shows two localized tumors about 1 cm each. 70 percent gleason pattern 4. I would like to…
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My journey as a blog
Each individual's journey through chemotherapy and treatment is unique, of course; and many others have written blogs about their particular experiences. For myself, I've found it helpful to read about others' personal experiences; it reminds me that we're all in this together. Here's my own story, such as it is, as I…
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Tamoxifen vs Lupron
Hello - I have just begun Lupron and I will eventually add an aromatase inhibitor to my mix. I started with Lupron but I am wondering why so many people take tamoxifen instead. can anyone share with me the pros and cons of each and why someone may choose one over another? Many thanks!!!
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What to make of CA 125 in normal range for new diagnosis?
My wife has been diagnosed with 'probable' ovarian cancer with surgery scheduled two weeks out. The surgeon just ordered a CA 125 test which came back at 33 which seems to be in the normal range. What to make of this?