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Interested in speaking to people have had the prostectomy and post op Hormone therapy and radiation
I'm 54 years old. Diagnosed at 52. Had the prostectomy in July 2022. Only to find out ther was still cancer present. 0.22 PSA, followed up treatment with hormone therapy and radiation. Radiation ended in January 2023. My last hormone injection was February of 2024. Looking to connect with people have had the same path.
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Rhabdomyosarcoma survivors
Hello, I'm 22 year old rhabdo survivor (embryonal). Looking to see how many of us there are and to connect!
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PTC recurrence?
I had a ultrasound today and it is showing this: LYMPH NODES: Right level 3 node measures 1.6 x 0.3 x 0.9 cm. A left level 2 node measures 2.7 x 0.5 x 1.1 cm. None of my other past scans say this. It’s also recommending an iodine scan. I haven’t had one in 10 years. This is just the radiology report and all my drs are out…
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Follicular lymphoma transformation experience
Hi all, I am posting this as a response to a request in a different thread instead of hijackin that one. The request was for me to share my experience with transformed FL and treatment etc. Some bullet points for background knowledge: Male, 56 Lives in Denmark Kidney cancer survivor since 2010 Diagnosed with FL in 2019.…
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Lumpectomy Recovery
Hi. I had a lumpectomy on my right breast with some lymph nodes removed on Friday. They did put in a drain as well. I did not handle the anesthesia well. I woke up dizzy, nauseous and threw up all the way home. Three days later, while im not in pain, I am still woozy and get faint by mid day. I feel the best in the morning…
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Triple Negative Breast Cancer
I was diagnosed with a more rare form of breast cancer called "triple negative" which means my cancer is not fed by hormones therefore the only treatment recommended is chemo. I have already had a bilateral mastectomy and all my scans came back clear and my genetic test was negative. I thought with surgery and scans clear…
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Radiation+Lupron: wicked one-two punch
PCa diagnosed 9/2015, LRRP performed 11/2015 at MD Anderson in Houston (the mothership). 50+ lymph nodes removed, with three having cancerous cells. Post-op PSA <.1. Incontinent for about 1 year but then bone dry. Sep 2019 PSA increased to .2. In Feb 2020 doctor referred me to Radiology, where I underwent one year of…
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Dendritic Cell Therapy
Hi. My father has stage 4 high grade urothelial carcinoma with lung metastasis. He had a radical cystectomy in 2013. He also has only 1 functioning kidney. In 2016 we detected a tumor in his lung along with a few small nodes with SUV uptake. He underwent 6 cycles of chemotherapy, which he completed in end of August. The…
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Appointment wait time
My name is Retha and i have a question. My husband recently had an MRI and was told he had 2 lesions with PI RADs of 4 on each and that they needed to be biopsied. That was on the 7th of October, its now the 1rst of November and we haven't heard from anyone about an appointment for the biopsies, is this normal .
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Leg/Hip weakness/stiffness
I am 15 year post anal cancer. The last few years I have been experiencing leg and hip weakness so bad that I can' get up off the floor when I get down to get something out of the cabinets or cleaning the floors. Has anyone experienced or experiencing this also. I really think it's from treatments, I had both chemo and…
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Diet confusion
I am having my kidney and adrenal gland-removed Dec. 5th because of 9cm cancerous mass. My estimated GFR is 37 Dr said not great but ok. But could go up after the one kidney is removed. My good kidney is smaller. My question is: what is the best reference for a diet. The internet is all over the spectrum I don’t trust it.…
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Weary of Horror Stories - Aromatase Inhibitors
I will be starting Arimidex next week. All of my research and conversations about this drug seem to result in "horror stories" about the nasty side effects. I would like to hear from those of you have taken aromotase inhibitors and are having or had good luck with them. I guess I'm just weary of hearing all of the…
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Post Chemo Neuropathy Pain
My wife has had 2 surgeries: an emergency colostomy for an endometrial mass that blocked her descending colon at the sigmoid loop, and a successful reversal surgery 5 and a half months later to remove @ a third of her colon along with the mass which was believed to be benign based on blood tests. It wasn't. Cancer cells…
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Support for Breast Cancer
I just recently had a mastectomy of my left breast in August. I seem to be handling it fine but people tell me I am just in denial. I have nightmares and freak out when anything comes near my chest. I just want to find people that I can talk to
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Finished IMRT, now what?
I was diagnosed with stage 4a prostate cancer gleason 9 (4+5) a few months ago. Spread to a couple of pelvic lymph nodes. I went through HDR Brachytherapy in late July followed by 25 sessions of IMRT. I just finished my last session on Thursday. I am on orgovyx and zytiga for 2 years. My last PSA test was .10. So, as I…
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there is hope for stage 4 lung cancer read
this is my cat scan after 2 rounds of chemo.. my tumor was 5 to 6cm.. and one node was 3.4cm. i did have my 3 round of chemo 2 days before the scan. there is hope for everyone.. i feel good and didn't lose my hair.. going on my 4th round now with alitma and avastin.. FINDINGS- There has been dramatic improvement in a left…
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Prostate Cancer Survivor, Regrets
So. I had it out in 2019. Nothing has been the same. I have had neuropathy quite bad right after the surgery for months (doctor rejected my claims of pain and weakness in the leg for whatever reason and said my cure from cancer outweighed whatever), zero sexual anything and serious problems peeing for five years. I have…
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Multiple primary melanomas
Hello! I write to hear others stories, because I don't know anyone who's had melanoma. In the last 2.5 years, I have had 3 melanomas (2 insitu and one 1a). I've also had one basal cell. In an effort not to devastate myself, I didn't goggle anything. But thought to seek the experience of others. Anyone else traveling a…
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Never Ending Urine Tests
I've never seen this posted before and have a concern I can't figure out. I had a RALP six years ago. My PSA was very low, but I didn't care I just wanted the cancer out of me. The surgery went fine but I am probably incontinent for the rest of my time above ground. Every six months I go in for another urine sample and…
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PSA Test with Covid
My PSA went up from 1.9 to 7.6 within 6 months. But that second test was a few days after having Covid. Has anyone had a PSA test with Covid? I'm worried I might have an aggressive cancer with such a fast rise (it runs in my family). Will make doctor appt next week. Thanks.
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please interpret my ct scan results
hello all, i'm a 50-year-old male and would appreciate it if someone could help interpret my ct scan results. thanks so much for your time and help. Impression 1. Indeterminate complex exophytic lesion in the lower pole of the right kidney. Recommend renal protocol MRI for further characterization. 2. Punctate calculus in…
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PTC Tumor in One Lobe, Benign Cyst in Other - Completion Thyroidectomy?
Greetings. This is my first time on here. It doesn't feel right even calling myself a cancer survivor. So many people have it way worse than me. I feel my experience is nothing compared to what they are going through. My heart aches for them. Last fall, a "mass" was detected on my thyroid by accident. MRI for another issue…
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Stage 1 Endometrial Cancer - Now what
Hello everyone, I am new here. I just had surgery for Endometrial Cancer. The pathology report came back as stage 1. The GYN oncologist said I am cancer free and that I should return every 3 months for 3 years and then every 6 months for 2 years and then once a year for life. That is all he said. I feel like there should…
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9 Years NED Today
Hi all, I've been away and/or occupied most of this summer, so I haven't been by to check on the blog, for what has been the longest period I can recall. Finding out we've lost Abita, and reading some of the new stuff, reacquainting myself with the ongoing heartache and need in this place, is still quite emotional, which…
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4.5 cm nodule discovered by ultrasound
I was scheduled for a biopsy the initial biopsy showed atypia but had limited cellularity so they wanted to do a rebiopsy with pathology present to verify sample this came back suspicious for a follicular neoplasm hurthle cell type bethesda category 4 they recommend referral to ent which is scheduled what can i expect…
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Stomach cancer sucks
I just need to vent and get my grief out. My wife was diagnosed and died in less than a month. She had symptoms but were masked by medication. She had stomach cancer that apparently was leaking blood she was diagnosed as anemic so she started taking iron pills. If you look online and look up iron pill stools, they are very…
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Everolimus, Anastrozole, & Metformin for ER+ PR+ HER2- PIK3CA EC/UC
Anybody on this combo? What side effects are you having? This may be the next treatment for me. I know that I am just a voice in the wind, but I figured I'd ask here for the fun of it. The answers of course will come when I talk to people with breast cancer who have my molecular profile. BTW about 30 to 40% of ec/uc…
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Multiple skin cancer removals at once
I was recently diagnosed with 3 basal cell skin cancers. I’m feeling really anxious about the surgery as previous Mohs surgeries have been really painful. I was hoping to get all 3 taken care of at the same time, but most places around me only do one at a time. I did find one location that would do 2 at a time . I’m just…
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First Visit
Hello, I had my first meeting with the oncologist today for my endometrial cancer. She was very thorough and personable. My best friend and sister were with me. I do not have a husband or children. My one daughter passed away in 2020. I was happy to have their love and support. It was a very long day that started at 4:00…
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Treatment / Survivor Contacts
Hello All — I am trying to find out and speak to patients / survivors going thru treatment similar to me. I connected with several friends who went thru BC but each one had different stage or bio marker than mine. Any patient/survivor here with HER2 +ve bio marker who went thru chemo & TCHP before surgery?