The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Endocrine disorders in Rhabdomyosarcoma patients

juldevri1
juldevri1 CSN Member Posts: 1 *
in Head and Neck Cancer #1

Hi! I am a childhood cancer survivor who was diagnosed at 4 months old. I am now in my 20s and have recently been diagnosed with Hashimoto’s disorder, which is an extreme type of hypothyroidism. I am messaging here to ask if anyone else has experienced this same path of diagnosis, as I know endocrine disorders are prevalent in survivors of head and neck rhabdo. I also implore parents of children recently diagnosed to discuss routine follow-ups to check pituitary function if your doctor has not already.

Like Care

Comments

  • wbcgaruss
    wbcgaruss CSN Member Posts: 2,637 Member
    #2

    Welcome, juldevri1, to the CSN Head and Neck discussion forum.

    I would just like to interject that my wife has Hashimoto’s disorder and it has had no major problems with it as yet and she has had it for many years. She is monitored for it and has had her thyroid medication changed at times to adjust for it but generally lives life with no major change effects because of it.

    So if you have it you should be monitored which involves blood tests to determine your thyroid level and you may need to take thyroid medication.

    Here is a link to an article by Cleveland Clinic covering it quite well if you need any info.

    https://my.clevelandclinic.org/health/diseases/17665-hashimotos-disease

    Wishing You The Very Best

    Take Care, God Bless,

    Russ

    Like Care

Discussion Boards