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Small cell lung cancer
Hi I am 40 years old and just found out in January that I have stage 4 mestatic small cell lung cancer secondary liver cancer and they've given me 10 to 12 months to live it's in my bones my pancreas my gallbladder my ovaries. I have a 19 year old and a 2 year old and they'll keep telling me I'm dying but I don't feel sick…
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Don't see the point
Stage 4 PC.Starting Chemo. Told I will be on Testosterone inhibition for the rest of my life.No sex,no passion,no energy,no muscle mass just a blob. I am 73 but was hoping for another relationship before I die but would not put this on anyone else. Not sure I see the point in living liked this. All that I am will be gone .…
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Hemoglobin Level
My biopsy isn't scheduled until July 11. Last week, I was in the hospital getting two blood transfusions. Yesterday, I passed 8 large blood clots within a two hour time frame. Today, I am so weak. Do you think it could of lowered my hemoglobin level or am I just tired from the pain yesterday? I don't want any additional…
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My Journey begins - Navigating with Prostate Cancer
My first PSA test was at age 51 and was only taken as I was applying for life insurance. This was in 2014 and my PSA was 3.0 My next PSA was taken a month ago in November 2023 during a normal physical at the age of 59. This PSA test came back as 64 (not 6.4 but 64). I was referred to Urologist and they performed a DRE…
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Sexual therapy
Hi. New here. I’m looking for a sexual therapist. I’m a 51 year old female. Stage 4 metastatic melanoma. In remission for 3 1/2 years so far. In a committed relationship for 14 years so far. I desperately need some advice and/or therapy that’s free. I live on disability.
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Newbie with ER+ Her2+ IDC and DCI
I was diagnosed over a month ago with DCI and IDC. I am ER+ and HER2+. I just had a lumpectomy with sentinal node removal 5 days ago. None of my previous tests showed any lymph node involvement, but pathology will tell. I am to follow up with surgeon this Friday. My question?? I do not have a medical oncologist yet.…
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when to start ADT along with SBRT
Hi, due to scheduling delays I won't be able to start SBRT (cyberknife) for my Gleason 4+3 multi-focal PC until September. My PSA jumped in October last year from 2.7 to 4.6 in 16 months time. I did not get a biopsy until April which shows two localized tumors about 1 cm each. 70 percent gleason pattern 4. I would like to…
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My journey as a blog
Each individual's journey through chemotherapy and treatment is unique, of course; and many others have written blogs about their particular experiences. For myself, I've found it helpful to read about others' personal experiences; it reminds me that we're all in this together. Here's my own story, such as it is, as I…
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Tamoxifen vs Lupron
Hello - I have just begun Lupron and I will eventually add an aromatase inhibitor to my mix. I started with Lupron but I am wondering why so many people take tamoxifen instead. can anyone share with me the pros and cons of each and why someone may choose one over another? Many thanks!!!
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What to make of CA 125 in normal range for new diagnosis?
My wife has been diagnosed with 'probable' ovarian cancer with surgery scheduled two weeks out. The surgeon just ordered a CA 125 test which came back at 33 which seems to be in the normal range. What to make of this?
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I am a 35 year wilms tumor survivor
Hello Folks, I am a 35 year wilms tumor survivor. I had my left kidney taken out when I was 2 1/2 years old. On Tuesday of I will be 38 years old. I am doing great. Would like to know if there are any other wilms tumor survivor here. Thankyou
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Head and neck, what to keep an eye out for
I guess first is death of your thyroid. It's fairly important in the grand scheme of things. Get it checked at least every 3 months. Dead thyroid - exhaustion Speech therapy - who are they kidding, it's just to make sure we can swallow, do it, it's important. Baroreceptor dysfunction - usually find you have this when your…
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Expanders size
Stressed! My expanders are Allergen 500cc——Will these get to a DD? I figured I needed a 800cc to 850? Surgeon did a great job but panicking!!! I’m almost 6ft tall.
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New Here - Not Sure I’m In The Right Place
Hello all, My name is Emily and my family and I have recently joined the club no one wants to be a part of. My father was diagnosed with Stage IV Renal Clear Cell Carcinoma within the last six months and it’s been such a journey. My parents have been such warriors and I am trying the best I can to be a rock for them.…
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Stage 4 Throat Cancer Survivor Story - A Perfect Swish!
Throat cancer survivor Mike Hatfield talks about his journey with stage four laryngeal cancer. Diagnosed with larynx cancer, the one-time Omaha front man musician and playground basketball enthusiast, nearly lost the things he loved doing the most.Visit http://www.oacancer.com/throat-cancer... to learn more about Mike's…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 19-22
This is a video post from a fellow undergoing treatment and documenting it in a series…throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. WHAT TO EXPECT | Throat Cancer |…
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My daughter 28 has been diagnosed
I need advice on how to cope and be strong for her
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Intermittent dysphagia
tongue cancer survivor here. Last two weeks on a few occasions I have experienced fairly intense discomfort/ aching pain behind my breast bone when swallowed food. Food feels like it has been stuck or is passing slowly in that area. I have not coughed up food. Most meals I eat fine without these problems, however. I’m…
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I Need Advice for My Child Recently Diagnosed with Leukemia
Hello everyone, This is my first post here, and I'm reaching out with a heavy heart. My beautiful 6-year-old daughter was just diagnosed with ALL (acute lymphoblastic leukemia). It's been a whirlwind of emotions, and our whole family is trying to find our footing. I'm hoping to connect with other parents who have walked…
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Statistics of PCa left untreated?
I've had no trouble finding statistics on survivability of various levels of PCa after treatment. They'll typically show percentages for 10 and 15 years. What I haven't seen is the equivalent stats for the various levels of PCa when left untreated. Or even statistics of various levels of untreated PCa metastasizing over 10…
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15 months post robotic prostatectomy and no erections
Hi, just looking for a bit of encouragement and to see how others may have done when erections post prostatectomy continue to be absent. I had surgery 15 months ago and my surgeon expected all nerves had been spared. I have been using a pump daily and did regiments of first tadalafil and then sildenafil. Both were maximum…
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Pain Management
My biopsy isn't until July 11th. When I was in the hospital because I needed a blood transfusion the doctor gave me pain medication. Now that I am home, I only get Tylenol every 6-8 hours. Sometimes it helps, but usually only dulls the pain. Now it doesn't even seem like the heating pad helps with the pain. Any suggestions…
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Update
I decided to start a new thread. I finally have some answers on treatment plan. cT3a, cN1, cM0, PSA: 29, Grade Group: 5 is the staging. It also says stage 4a. So, i take it these numbers are not good but it is regional. Pelvic lymph node involved. We are doing brachytherapy followed by 5 weeks of external beam radiation.…
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Head and Neck Cancer | Frequently Asked Questions
Head and neck cancer surgeon, Wayne Koch, answers frequently asked questions about head and neck cancers, including symptoms, risk factors, treatment and quality of life issues.. Learn more: http://www.hopkinsmedicine.org/otolar... Take Care, God Bless Russ
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Flowmax (Tamsulosin)
I'm currently taking 0.4 mg of Tamsulosin every 12 hours prescribed by my surgeon that performed a Focal IRE Nanoknife ablation 3 weeks ago. He wants me to do this for a month then cut back to once daily after that. I'm still peeing a bit of blood at onset of urine stream, but otherwise doing well during the day. At night…
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Here's my story
I'm 61. I was on active surveillance for two years. When my 3+4 turned to 4+3 and my PSA went to 10, they told me I was no longer a candidate for active surveillance. I had a prostatectomy in early March. I wore Depends for at least six weeks, most of the time with a pad inside the Depends and sometime even with toilet…
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Waiting on first PSA after salvage surgery
everybody knows my story. I just want to thank everybody here for the support… I will be finding out today. I got to admit him I’m a bit nervous… otherwise things have been going so so incontinence is pretty rough during the dayb... so I’m also been dealing with a month-long UTI looks like I got some type of restriction…
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Prostatectomy with an AUS (artificial urinary sphincter) in place
I have been diagnosed with prostate cancer. I will likely need radical prostatectomy surgery in the near future. I have an AUS (artificial urinary sphincter) already in place. Have any of you had this surgery with an AUS? Might such surgery result in damage to the AUS or its control reservoir, which is located in the…
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2024 --Is anyone currently treating for UPSC?
I'm starting chemotherapy January 8th, and not sure how many cycles -- perhaps only three. Since I just turned 82 and my hysterectomy showed no disease, it is questionable how much therapy I should get balanced against the toxicity of the chemotherapy. I had an exploratory hysteroscopy in October (as a result of spotting…
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Starting my own journey with Hodkin's Lymphoma
I'm a 56 year old male, diagnosed last month. I've had one chemo treatment so far, and (my first?) unexpected hospital stay as a result of dealing with the side effects. So much still for me to learn! Glad to meet everyone today!