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robotic surgery for prostate cancer
I had the robotic laparoscopic removal of my prostate in 2010 and it went fantastic. I was 58 years old and some doctors had recommended radiation but on a second opinion, they said I was too young for radiation when I was done everything worked. No ED no incontinence. No bowel problems 10 years later, it has come back a…
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Bladder Cancer
Having a hard time excepting the fact that I have stage 4 bladder cancer!!
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Testimonial on how phototherapy helped this patient with Follicular Lymphoma
I was diagnosed with Follicular Lymphoma in 2015 and after chemo and Rituxan treatments I went into remission. This past year my PET scan showed that the disease had returned. My doctor put me on a two year plan of Rituxan every three months of which I am half way through. I'm thankful that these treatments continue to…
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35 year old husband just received diagnosis
I'm beyond devastated. It was only 2 weeks ago we were living the most full, happy, loving life. We've been married for only 9 months now and never anticipated he'd be diagnosed with Stage IV stomach cancer. The horrific prognosis we've seen all over the internet are making our worst fears feel more realistic. I feel like…
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Cancer Survivorship – Patient Education on Post-Treatment Care
Hello everyone. Survivorship is not always easy but we persevere. There is help out there in many places these days. Here is something I found on the American Head and Neck Society (AHNS). It is a long list of post-treatment issues you can click on and it takes you to a page covering that subject, explaining how to…
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Loss of swallowing after radiation therapy
Welcome, I hope you are fine, Ask about the veterans who lost swallowing after IMRT, and how long did the problem last? What are the solutions before us? My father, after 5 months of IMRT, completely lost his ability to swallow and fluids began to come out of his nose. And now we are very disappointed Loss of swallowing…
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Update on throat cancer journey.
I posted some info about my throat cancer journey and the potential for neuropathy in my hands. I play several instruments and I was very worried. Luck was with me and I had no neuropathy at all. I did use cold therapy every time I had chemo. I don't know if that is what helped but it's how I dealt with it. I did have an…
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prostate cancer recurrence
10 years after prostatectomy the psa has gone from 0 to 0.4 (from 0.2 to 0.4 in last 6 months). The pet/ct test was negative. To be safe my urologist feels I should get radiation in the area where prostate was removed. He does caution about quality of life issues after the treatment. I am athletically active at 75. I am…
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New Life, New Dad, New Cancer
Hi there. My Dad moved in with my Husband and I back in June. We knew he was sick and that he was moving out here to be with us towards the end of his life. It's been touch and go emotionally, but until recently it's been manageable. His lung cancer has doubled in size since September and he also has severe centrilobular…
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Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of oxaliplatin. I am scheduled for 11…
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22 years later still Cancer Free!
Good Morning CSN Family, Just wanted to share hope and inspiration to anyone just starting this journey. Brief History: Surgery March 20,2002. Stage3C Rectal Cancer, 10 out 14 positive lymph nodes. Treatment: Chemo & Radiation. At the time my young son was 10 years old, today he is a 32 year old school teacher. I have been…
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Chest Port and Exercise Concerns
has anyone had any concerns about exercising their upper body with the chest port in place? Are there any restrictions to activity?
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Decision time following decipher
I was Dx with high grade prostate cancer 01/05/24. I had one of twelve biopsied sections showing 2% with a 4+4, leading to a Gleason 8. I'm 53, single, 3 kids. My PSA started at 7.4 in November of 2023 and is now 10.4. My PMSA shows no spread, fully contained, as of February 2024. I just got my Decipher test back and it…
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Choosing where to get treatment
So it's getting real. Yesterday I met with the medical oncologist, today I meet the radiation oncologist. As I had thought, it is a stage 3 cancer. Yesterday I decided to get a second opinion next week. I am fortunate to have easy access to two academic medical centers. While the diagnosis won't change, and I doubt the…
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Whole Body PET CT scan vs. PSMA PET scan
I asked my urologist to write a script for a PSMA PET scan. Which he said he did. I went for the scan, but upon viewing the results it was listed as Whole Body PET CT scan using F-18 FDG radiotracer. After reading a bit, sounds like I should of had 68GA-PSMA-11 radiotracer? I'm trying to be absolutely certain of no…
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High TG 6 months post-op
I’m mid 40s, had severe hypothyroid symptoms for about a year, then a partially obstructed airway which led me to this diagnosis: papillary thyroid cancer (follicular variant) diagnosed post-op. Thyroidectomy in September 2023 and just got my TG results. It’s 5620 ng/dL, which is much higher than expected range. I don’t…
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Is this it or there is hope? Treatment resistant cancer and mutations CHECK2, ESR1 and more.
I am new here. Stage 4 MBC. HR+/ HER2-. Double mastectomy w reconstruction. Mutations CHECK2, ESR1 RNA fusion gene, PD-L1 =10, TP53. Mets in bones, liver, breast, lymph nodes. 11 month on Palbociclib + Fulvestrant and Zometa - progression, 5 month on Ribociclib + Letrozole - progression to liver, currently on Elacestrant.…
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Insurance
My sister was diagnosed with MM in June 2020. She has gone thru chemo and a car t cell transplant. She has to go on remvilid for maintenance. She has to go on medicare in May because she is turning 65. I am trying to find the best insurance plan I can because the treatment is so expensive. I was wondering if anyone knows…
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Introduction to Skin Cancer – For Patients - This Covers It All - Very Extensive Guide
Below is a very extensive guide on skin cancer from the "American Head & Neck Society". I believe it covers every kind of skin cancer with pictures for comparison and identification and printable handouts along the way you can print out. As we all know the sooner and smaller we get any cancer taken care of the better. I…
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Easter 2024-Easter Greetings and Blessings to Everyone
We have come to that Blessed time again called Easter. The whole week has been building up to it. “Christ is risen! He is risen indeed, alleluia!” Easter Week (also known as Holy Week or the Passion Week) commemorated each day of remembering Christ’s journey to the cross, His suffering, and His rising from the tomb. The…
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Throat Cancer From A Virus-Facts You Should Know
Below is a link to a small quick chart for information on the subject and is a PDF. you can download and print it out if desired. Take care, God Bless Russ
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Squamos Cell Carcinoma
Has anyone ever experienced squamos cell carcinoma? If so, where was it located. My boyfriend has just been diagonsed. Age 48.
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D day is coming ..
Got to admit, starting to get nervous if I come out of this with having no detectable cancer it’ll be a miracle. I don’t think I’ve heard anybody on this board have a reoccurrence that is Gleason eight crib form and get treated nine months later like I said it’ll be a miracle, but Monday, April 1 I will be having salvage…
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Second Biopsy results
Last November at 67 after an MRI my first fusion biopsy was done transrectally at local hospital. It indicated (as far as I could figure) a single tumor residing in the right side of my prostate. I had a NM bone scan in January which did not show any bony metastases. Also a Prolaris test which indicated for single modal…
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Advisable prostate cancer treatment for 87 year old?
I am 87 years old with with high grade organ confined prostate adenocarcinoma . T2b Gleason 4+5 PSA 11.63 Biopsy results 12 cores 7 with Gleason 4+5 ranging from 50 to 100% of the respective core involved with malignancy, 1 core Gleason 4+4, 3 cores with Gleason 4+3, and 1 core with Gleason 3+4 CT and Bone scan both do not…
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Krukenberg tumor
Hi all - Last year, I (57) was dx'd with a Krukenberg tumor in my colon that had metastasized to an ovary, omentum and lymph nodes. Had hysterectomy, appendectomy and removal of 90 lymph nodes (only two were malignant). Three months later had CRS/HIPEC bowel resection. Did three months of natural methods which worked until…
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49 and on active surveillance
Ok so last February I went for a physical and had low T. I was recommended to go to a urologist for TRT. While there my urologist was concerned about my 2.09 PSA. He did a DRE and felt a small spot. Subsequent MRI was inconclusive so I had a biopsy in June . The results came back with slow growing Gleason 6 and my doctor…
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Zometa Infusions
Going for my first zometa infusion and would appreciate any feedback on experiences.
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Any Pancreatic Neuroendocrine Cancer Patients in active surveillance?
If this is not the right forum, please excuse my post. For Pancreatic NC people: How long have you been scanned and how often? Do you worry about the radiation needed to scan or the dyes needed? This is my third cancer, but it is so different from my rcc. It is a subset of pancreatic cancer and a subset of neuroendocrine…
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High grade brain tumor treatment side effects
Hello. My husband had a partial resection of his brain tumor and radiation 10 years ago. It was a low grade Glioma at that time. For the past 10 years we have just monitored with MRI's. Minor growth until recently. Now it is growing fast and presents as either anaplastic astrocytoma or a glioblastoma. The doctor said it…