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6 year checkup
Hello, everyone. Last Wed I had my 6 year checkup, and all is good. A week from Friday I'll have a CT neck scan done for no other reason than I haven't had one since finishing up with treatments. I still have a little dry mouth, but Act dry mouth lozenges as needed during the day, and one XyliMelt tab at night is all I…
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Input on Orgovyx + Zytiga
Hi All....I'm looking for info and advise from folks that have used Orgovyx + Zytiga. I'm probably going to be on it for about 48 weeks or so in the near term...as I await other treatments... Thank you, BD
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Tips for surgery and after?
Dear wonderful people on this discussion list, I so appreciate all the tips I have received so far! I am facing surgery this Friday--laparoscopic and robotic. I should go home the same day. I have every confidence in the surgical team and have been assured by a doctor friend that Kaiser here is the best for this kind of…
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Wife's pathology for endometrial cancer
My wife recently had a D and C because of some post menopausal bleeding which we assumed was because of the diet drug she is talking. Yes, the drug can trick the body into acting younger and having a menstrual period. After the D and C the doc said they removed a polyp as well. We were told the pathology came back…
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Husband has Prostate cancer and other symptoms
Hi all. My husband was diagnosed with PC two years ago with a gleason score 6 and PSA of 4.6. He is on active survelliance. He's only had 1 bisopsy done blind, no MRI. Could his cancer have metastasized with these numbers? His PSA is now at 5.7 and the Dr's aren't worried. But he's lost 25 pounds in the last 6 months, has…
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acute lymphoblastic leukemia
Thank you all for sharing your life stories. As a mother whose 6-year-old son has been diagnosed with ALL, I understand the need to be strong for him. It's natural to question why this happened, especially when we've been so careful. When my son asked me in the middle of the night if he has cancer, I was at a loss for…
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How is the Gleason score summed?
Hi everyone. I just received a diagnosis of prostate cancer and have a question about how the Gleason score is summed up. Is it the score of your worst biopsy core or the sum of ALL of your cancer-positive cores? For example, in my case I have 3 positive cores. 3 + 3 3 + 4 4 + 3 Would my overall Gleason score be 4 + 3 or 3…
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Small tumor long scar
I recently had a Lumpectomy to remove a small Stage 1 IDC tumor (which I named Bad Boy) and have a 3.5 inch incision. ?? Just wonder what other women's experience was. Thanks! ☮️💕🙏 to you all!
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Does anyone have scar tissue or lumps under their lumpectomy scar?
I have noticed that I have one lump under my lumpectomy scar. It might have been there for awhile and I just didn't notice it. Is it probably just scar tissue? Do the rest of you have any scar tissue or are your incisions free of it? Leeza
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Primary Treatment Focal IRE Nanoknife Procedure completed
Well, I finally had it done yesterday at Fox Chase Cancer Center. It was stressful making this decision, 6 months of wavering on what to do first. I'm glad it is done. Anxiety level has lessened from having made the decision and to have gone forward. I am feeling a bit beat up today. My voice is weak I think mostly due to…
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Hi, new member here. Having issues more than 2 years out.
So, back in Jan '21 I had a cramp in my small intestines area. Got worse over several days and I ended up in Hospital. Turned out to be a large mass 10cm. Surgery was performed, got infection and after about 2 weeks in hospital ,the oncologist came in and stated it was Lymphoma, bulky mass (DELCL). Leaving the hospital,…
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couple of questions: survival & avoiding radiation (x-rays, etc) post treatment
completed tx 12/21; SCC-HPV+,BOT - Stage 1; full rads, ended chemo 1 session early due to blood clots from the chemo and Tors on tongue & 21 lymph node dissection in neck. The docs have said that if I get to the 2 yr mark (12/23) it is "exceedingly rare" for a return. Has anyone else ever been told that with similar…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 5-9
I have throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So I am going to do that in hopes it helps someone having to deal with this. Take Care, God Bless Russ
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Just diagnosed with melanoma in lymph nodes
I was just diagnosed with melanoma cancer in my left lymph nodes and to be honest I am a nervous wreck right now. I can't believe this is happening and I was hoping for any info and what kind of support groups are out there near Riverside, CA. thank you very much for any help anyone can offer.
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Hyperbolic activity in left upper lobe
Had a PET scan on 6/4 that indicated activity in the left upper lobe measuring up to 2.6 cm with a SUV max of 7.4. I’m wondering if I need to wait for a biopsy before discussing changing my treatment plan? my concern is the SUV max of 7.4 is highly hyperbolic. my biopsy is scheduled for two weeks 6/18/2024
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Sensory Seizures after brain cancer surgery
my husband had a GBM almost kill him now 2.5 years ago. He did 7 weeks chemo/radiation, they resected 80% in the hospital the day he almost died, and 1 year of TMZ. It was on the right side of his brain only. His scans have all been normal since that terrible day thank God, but he is having these random episodes of…
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Needing advice/support for my boyfriend
My boyfriend is 24 and was diagnosed with Hodgkin’s Lymphoma. By the time they even started chemo, it was everywhere and stage four. I’ve been with him for ten months total now, eight of which he has been sick for. He’s had 9 out of 12 chemo sessions and his last pet scan came back clean, so technically, he’s in remission…
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Frequency of Biopsies
Two years ago, I had an MRI fusion biopsy which was positive for cancer, gleason of 7 (3+4) which was sent away for DNA testing which showed the cancer was slow growing. My PSA is 6.5. My doctor wants to do another biopsy. My question is: how often should I be getting an MRI fusion biopsy? When I had my first fusion…
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Throat Cancer Advice From A Survivor-Radiation Mask For Throat, Neck, And Head Cancer Treatments
What is a radiation mask? They look scary in the beginning and many people are claustrophobic, but this video helps explain the process and show that even claustrophobic people can overcome it easily. Throat cancer advice from a survivor- Radiation mask for throat, neck, and head cancer treatments. Take Care, God Bless…
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Mesonephric Endometiral Adenocarcinoma
I am wondering if anyone has had or know someone that had Endometrial Adenocarcinoma? I am trying to find a survivor of this very rare cancer, but so far I have not had any success. I was diagnosed in August 2015 with this very rare cancer. I was misdiagnosed for 6 months from various doctors treating for a UTI even though…
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What do you think about my case? Better to remove the prostate now or wait?
52 years old man. MRI PiRads 4 (10x11 mm pseudonodular lesion with ill-defined margins in Peripherical zone) Lesion located in the posterolateral segment of the lower third of the left peripheral lobe. PSA 5.33 ng/ml. Systematic biopsy and targeted (total 14 samples). 5 samples targeted to lession index (3 positives & 2…
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Just letting people know I am 5 years NED.
I don’t visit here much but I do appreciate the help and support when I was first diagnosed. I was 1A grade 3 with some clear cell. I owe my good outcome to my wonderful Dr and the great facility I went to and still go for my yearly checkup. I am very sorry that another person on here continues to give bad reviews on my…
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Issues and care years after treatment ??
Hello I had Hodgkins back in 2008 and 2012. I was treated with AVBD and ICE and an auto SCT. I also had rituximab in 2008 (study) and in 2019 for what was likely an autoimmune disease ITP or maybe B cell lymphoma. I’m sure there is a case study on that one somewhere. Never had radiation treatment. Since 2020 I have been…
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Help - Just diagnosed with Hodgkin's Lymphoma
58 year old male and was just given the diagnosis a few days ago. Meeting with Hematology and Oncology next week. What should I be purchasing for Chemo visits to make myself more comfortable and to hopefully make the side effects (sores, nausea, pain, hair loss) lessen. Also what should I be purchasing for my home. I live…
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Reccurence: Buccal Mucosa SCC
Hello everyone: I am feeling a lot of emotions right now as I have a recurrence of my cancer - just 8 months after surgery. I know this is a cancer known for recurrence, but my surgeon was confident I would do okay - my margins were clear, I don't smoke, etc. But as we all know, cancer has a mind of its own. My primary…
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Low WBC and Brain Fog after 2+ years
Frankly, I am tired of my oncologist saying "it's part of the process" and "it's different for everyone." I am still battling brain fog since chemo and radiation completed in Spring 2021. And my WBC have never rebounded either. My last test showed 2.9/uL when it should be 4.0. Does it ever get better?
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Husband was misdiagnosed
My husband is 53, urologist diagnosed him in January with bph and borderline low testosterone. Started him on testosterone injections every two weeks until May when she said he needed to stop because he could have prostate cancer, and that the testosterone will fuel the cancer. she wanted to do a biopsy immediately. We…
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WHAT TO EXPECT | Throat Cancer | Radiation Treatment To Cure My Cancer | My Reactions Day 2-4
I have throat cancer…once I was diagnosed I wanted to know more and found that YouTube didn’t have anyone documenting their journey. So i am going to do that in hopes it helps someone having to deal with this. DAY 2-4… Take Care, God Bless Russ
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Regular Scans for Watchful Maintenance - Patient Advocacy NEEDED!
Hello, I was recently made aware of the fact that many uterine cancer patients are not getting regular scans because "the research shows that they don't extend long-term survival." Those are generalized quotes that I heard from a couple of doctors. However, those same doctors tell me that liquid biopsies are not really up…
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Ladies going through chemo - how are you doing? Or those just starting or curious
Hi ladies! I know Teddi Bear, Editgirl and I are in active treatment. I thought it would be good to check in, see how you all are doing, share ideas, information etc. i am in a clinical trial consisting of Aldoxorubicin and Gemzar infusion on day 1, gemzar on day 8, neulasta shot on day 9 and start all over again on Day 22…