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Hip and Knee pain 2 years after chemo
My dad is almost 2 years out from chemo (he finished on 5/25/2021) and he’s been having horrible hip and knee pain as soon as he puts any pressure on it. He still walks around but he’s in pain all the time. He was due for a follow up and so doc ordered PET and a bone scan, and I’m just a horrible mess of nerves. I know I’m…
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Food and fluid residue coming out of the nose
Hello all, Four months later, I was two years old when I had a total laryngectomy, and swallowing food during this period went through some fluctuating stages. But these days I have noticed a new condition, which is that when I swallow food (soft food with liquids), I feel it rising into the nasal cavity. For example,…
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Oral Cancer
Hello everyone. I first would like to wish all of you good luck with your treatments and such. August 31st I found out I had a tumor between my lower jaw and inner cheek. After the dentist, the oral surgeon and all my scans I found out I had stage 3 because it spread to the lymph node right under the jaw and the tumor is…
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Feeding Tubes for Head and Neck Cancer (Short Video)
Hopefully, this may help someone now or later... Christy, Jean, Bill, and Terry shares their stories with getting feeding tubes while getting treatment for head and neck cancer. They also share advice on weaning off a feeding tube. Visit https://www.cancersupportcommunity.or... for more information on feeding tubes and…
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Keytruda
Back in Aug 2023, I tried to find folks being treated with keytruda for prostate cancer. No luck at that time. Let’s try again - anyone out there on keytruda?
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Whipple procedure for 70plus
my father is facing the tough decision of weather or not to undergo the Whipple procedure this month. He has completed two rounds of chemo and the doc says that the tumor has shrunk enough to remove it surgically. He is 70 years old and in good health otherwise. He was diagnosed with stage 2 pancreatic cancer in July 2023.…
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Hello…wife needs help!
Been reading thru a lot of posts and so much info! I am new to this site and was hoping to get some feedback. My husband had the robotic RP in 2018 and has been getting PSA checks every 6 mo since. It’s pretty much all this time outside of about 3 months post surgery being 0.00, hovered in the .03, .04, .05 all these last…
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Benign biopsy. Confirm MDX test results: 21%< =G6; 15%>=G7
I had a MRI fusion transperineal biopsy. 26 cores benign. My urologist ordered a Confirm MDX test. Results show: Likelihood of prostate cancer on repeat biopsy: 36% 21% likelihood of detecting Gleason score < = 6 cancer 15% likelihood of detecting Gleason score >=7 cancer It is recommending for a second biopsy. I guess I…
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Unknown Primary, what to do?
My mother, 72, recently had a liver biopsy because a lung xray showed a mass on her liver. The mass measures 9cm x 7cm. Her PET scan shows this to be cancer but no other cancer can be seen anywhere else. Her oncologist says the biopsy shows it it secondary cancer with unknown primary and referred her to a liver surgeon.…
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New Member
Hello, 84 yr old Mother diagnosed with Stage IV metastatic colon cancer. Has decided not to receive chemo. She is still active and determined to continue on.
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cost of anti-nausea meds vs benefit
Hi- I was just put on a new anti-nausea med called (Emend)sp? Anyway, I was SHOCKED at the price. I have really decent insurance and all my meds have only been a dollar or two. My cost was $54.00 for 2 pills! WOW..that is expensive. I hope it works. I was soooooo sick for the first week. It would be worth the money to feel…
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Anyone have any recent info on this?
I have seen this mentioned off and on for at least 10 years. Just wondering if anyone has been in trials for this therapy or discussed it with their treatment team. ***************************** Epub 2023 Jan 26. Targeted Lymphoma Therapy Using a Gold Nanoframework-Based Drug Delivery System Manpreet Bariana 1, Beilu…
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2 year update
It's been 2 years since my last radiation treatment for Endometrial Cancer stage IIIa. I highly recommend probiotics with many different strains to help get stools back to normal. I had severe diarrhea on and off for a little over 1 year before I did this. I'm totally back to normal and can eat normal food again without…
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Osteosarcoma limb salvaging procedures
We are trying to weigh options for my 9 year old niece who was recently diagnosed with Osteosarcoma of the distal femur. She is being treated at M.D.Anderson and they are advocating rotational plasty as an option due to increased functionality. I am looking for information regarding the "growable"/extendible endoprosthesis…
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PSA Value at 0.54 on 1/24/24
I had Prostate Cancer in 2018 and had radiation treatments all was good but now my value is all over the place since then on 11/17/21 V @ 0.7, on 3/15/22, 1.84 on 3/30/23 0.38, on 8/7/23 0.26, 1/24/24 0.54 is this common?
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Prostate Health Index
Haven't been here for several months so maybe this is an old topic. My friend has a PSA of 4 - got there slowly over many years. He's now 80. His Dr. told him his PHI indicates he has a 50% chance of having (or getting cancer) and is going to do a biopsy to sort out what, if anything, needs to be done. On my cancer journey…
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Christy's Story of Living with Head and Neck Cancer (Short Video)
Sharing to help others...maybe you can relate or find help or comfort through it... Christy, a survivor living with head and neck cancer, shares her cancer story. For more information on head and neck cancer, visit https://www.cancersupportcommunity.or.... Take care, God Bless Russ
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He4 and roma index
Hi. Can you please help me. Due longer to misssed periods and pain doctor sent me to blood tests. The marker Ca125 was within limits, and He4 was elevated to 270 pmol. It has been 9 months since then. Ca 125 remains below the limit, He4 increased to 335 pmol, free fluid is present. Ct showed no changes in the abdominal…
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Wilms tumour for my daughter
Glad to be on this platform. My daughter was diagnosed with bilateral wilms tumour at the age of 1 year and 2 months. Surgery was done. She she currently 5years old and 3 months old. Serviving on half a kidney. How do l take care of that remaining kidney. Are there people with the same condition on this platform.
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Way Post Surgery
Hello, I am a 74 YO, seven year survivor of esophageal cancer. I had an esophagectomy in October of 2017. Now I am experiencing some serious lower back pain. My surgeon is suggesting a spinal cord stimulator. He wants to schedule an MRI but I am wary of lying flat for up to an hour. Further, if I decide to proceed, the…
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MAC is not a computer!
Microcystic Adnexal Carcinoma -- Is there anyone else out there who's been affected by this? Would love to chat!! My husband had major surgery to remove this from his face in 8/16. Followed by radiation, ultrasound mist, & now hyperbaric oxygen (due to exposed skull base bone not healing over yet.) Should we be concerned…
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Question about Father's TSH and Large Nodule
Hello, Thank you for reading my message about my father. Father is 87, lives in India. Primary care Physician did a routine physical and found a very high TSH of 9.82 (0.34 - 4.25) and normal values of T3 and T4. TSH was previously measured in July 2021, and it was 4.5 and since it was borderline, no further testing was…
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Recurrent Squamous Cell Skin Cancer
Hi all, Happy to have found this forum. I had my first squamous cell lesion removed (with margins) in May 2015. I discovered it after some of the ink didn't take in a tattoo I got over a sore that had been there for over 2 years. Funny enough, the ink didn't take in part of the letter P of Pain. My tattoo was: HOPE - Hang…
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We are looking for clinics for 10 months old boy with rhabdomyosarcoma cancer
Hello to everyone! I am a volunteer. We are looking for clinics for 10 months old lovely boy Svyatoslav with rhabdomyosarcoma cancer. I will be so grateful to everyone who provides us the list of clinics over the world with effective/experimental technics of treatment or give us the advise. The boy has gone through the…
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Bladder Rhabdomyosarcoma and local contril
my my two year old son has bladder rhabdomyosarcoma that is now in the urethra. The original vac/ vi regimen didn't respond and we are doing radical bladder removal in a week. Has anyone done is or have any advice? Excuse this font! email Jeannie
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Fighting Rhabdomyosarcoma
Hello all, My beautiful 1 year and a half old son was recently diagnosed with embryonal rhabdomyosarcoma in his middle ear. We have completed 4 cycles of chemotherapy and just discovered that the cancer has progressed. At first, his tumor showed great response to chemo and reduced significantly in size after just 2 cycles.…
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R chop
Hello, My mom started mini r-chop for her lymphoplasmacytic lymphoma with richters transformation . Her first treatment went ok but she had a reaction to one of the meds which was stopped. Her white blood cell count went from 158 down to 29.5 the day after treatment. The number now is up a bit to 58 a week after treatment.…
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Colon cancer
Hi, sorry I wrote my story in one of the comments as I just signed up here minutes ago. Don’t know what I’m doing but maybe someone can share there experience! To help me through the process. I’m 41 yrs old Newly diagnosed with colon cancer. Potentially stage IV as there is spots in liver and lungs. Oncologist presumes it…
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Living with an AUS- Bikes, etc
I have had my AUS in now just over a yr. I have not ridden a bike for years and bought one this summer. I can't help but notice, riding a bike- specificly using the bike seat- causes me to leak. Life with a AUS- how is it going for you?
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Enhertu and CA 15-3
my mother has breast cancer stage 4 which has metastasized to the bone and liver. She is currently on enhertu and she did the first cycle , however when they did blood testing for the tumor markers CA 15-3 was very high. Even higher than when she wasn't getting the treatment. Is this a cause of concern and indication that…