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Surviving UPSC
In August of 2025, at 63, I was diagnosed with uterine cancer. On September 30, 2015, I had a complete hysterectomy and was diagnosed with Stage III, UPSC. I came to this board a little bit after that looking for answers. I only made it through three chemos of carboplatin and taxotere. In December of 2015, I had a stroke…
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Radiation as a Child for Enlarged Thymus
As an infant I was radiated in 1946 for an enlarged thymus gland in the mistaken belief that this would prevent SIDS. The amount of radiation I absorbed was equal to ten common CT studies today. This treatment was commonly used in major hospitals and even pediatricians’ offices across the country. Thousands of infants and…
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I am a Grade 3 Anaplastic Ependymoma Survivor: Survivorship Story
Hello. I learned about this group during my most recent clinic visit. I want to connect with others who have undergone or can relate to my treatment story. In 2016 I turned 18 years old. Three weeks later I was diagnosed with a Grade 3 Anaplastic Ependymoma. I had attributed 6 months worth of daily headaches to being a…
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Anyone using Fulvestrant or another SERD?
Looks like I may be changing from anastrozole (an aromatase inhibitor) and Ibrance to fulvestrant or imulestrant and staying on Ibrance. I'm in remission after two recurrences, and it looks like I can stay on the lower dose of Ibrance, but all my research points to changing the ai to a serd. I would like to hear the…
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Follow up
I had surgery and lymph nodes removed and was told all was clear. A year later colonoscopy was clear. I have been wondering about cancer showing up in other places and have tried to get some answers about this but can’t seem to find a way to do it. I had a consult at Sarah Cannon right after surgery and have reached out to…
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NED UPSC for 10 years!
I joined this board in October 2013 shortly after receiving my diagnosis. In December 2013 I had surgery at Moffiitt Cancer Center in Tampa Fl followed by chemo and internal radiation therapy. I am one of the very few lucky survivors to have never had a recurrence and am still NED today. I don’t think I realized until…
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Cervical cancer
I have just recently been diagnosed with cervical cancer and I am very scared for what is to come.
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Anaplastic Large Cell Lymphoma ALK Positive
Anyone on the boards have this besides me?
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Radiation therapy
Now have PC and plan to take radiation therapy, but have heard of incontinense with radiation when I thought it was more of an issue with removal. Anyone have experience or comments
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ROLL CALL 2024
How is everyone doing, I hope all is well with each of you. I hope you are recovering nicely from your cancer treatments and are returning to your life as it was prior to your diagnosis. Well, this will be my last time running the entire Roll Call by myself. Over the past few years I have continued to fall further behind…
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How long to worry about clots and strictures
If I have surgery, how long are blood clots and possible contractures a thing to look out for? Do people still have to pass daily thin catheters through to keep things open for a period of time? I'm wondering if it is advisable to travel overseas within three months of surgery, if all goes well. I know it depends on how…
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Biofilms: A DEADLY Complication from Implanted Medical Devices. ESSENTIAL Trach Tube Info!
Here is a video from a young lady I follow on her channel. She always has good information in short easy to understand videos. Here is one recently about something I have never heard of "Biofilms", never knew such a thing existed. This may be helpful to some of our members with trachs and it apparently can affect…
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Effectivity of second RAI treatment without second operation?
Hi! So I was diagnosed with papillary thyroid carcinoma in 2017. Had a total thyroidectomy with bilateral neck dissection for some cancerous lymph nodes in July. RAI (105 mci) in August of the same year. Did a whole body scan in 2018 and it showed that the ablation worked. Haven’t had any symptoms ever since then. However,…
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Advanced Cancer and waiting...
I've been watching my score go up this year (surgery early 2010 and salvage late 2015). My PSA is now .310 up from a .207 in March and .210 in July...I continue with a good and mostly plant base diet, which I believe has helped me over the years (outcome could have been aggressive but it hasn’t to date). Some days I hate…
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scientific American Article
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Katie's Story - There is #lifeAhead After Your Cancer Diagnosis
Listen to Katie Drablos tell her story of how she was first diagnosed with Oral, Head and Neck Cancer (OHNC), and overcame her journey by continuing to fulfill his passions and dreams. Katie's Story - There is #lifeAhead After Your Cancer Diagnosis Take Care, God Bless Russ
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Frank's Story - There is #lifeAhead After Your Cancer Diagnosis
Here is an uplifting inspiring story to say there is hope beyond the diagnosis. Listen to Frank Marcovitz tell his story of how he was first diagnosed with Oral, Head and Neck Cancer (OHNC), and overcame his journey by continuing to fulfill his passions and dreams. Frank's Story - There is #lifeAhead After Your Cancer…
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Is this normal in my mouth or?
Hi all so I’ve noticed I’ve had a sore area in mouth for ages with my tounge it feels like a raised cut and is sore to touch - this is the little red marks seen in the photo and i took a video and caught this so I have a few red marks and the lighter patches in my mouth? I was wondering if this warrants any concern People…
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Treatment options, poorly differentiated non-small cell carcinoma?
Greetings, everyone. I had ovarian cancer 28 years ago which predisposed me to lung cancer which I now seem to have developed. It was discovered due to a mass on my liver. Additional staining on the liver biopsy sample revealed the non-small cell carcinoma to be poorly differentiated. Can anyone tell me what that means in…
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Just had MRI
Hello everyone, just had MRI because my PSA was 14. I have 3 lesions: 1.6 × 0.8 x 1.4 cm lesion left anterior transition zone at the mid gland (ROI #1). PI-RADS 5: Very high (clinically significant cancer is highly likely to be present) 1.9 x 0.9 x 2.5 cm lesion right posterolateral peripheral zone at the gland base and…
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Support for survivor teen daughter
Hello I was wondering if there are any support groups meeting in Connecticut that can help my 17 year old daughter cope. She says that nobody understands how she feels and we can’t possibly relate. I really hope to get her the help she needs here, so her life can have more meaning, and she can cope with having to relive…
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About Facial Prosthetics for Head and Neck Cancer Patients
Sometimes a cancer event takes more than we imagined but there is help. About Facial Prosthetics for Head and Neck Cancer Patients Take Care, God Bless Russ For more information about Facial Prosthetics and Head and Neck Cancer, visit www.headandneckcancer.org.au. Head and Neck Cancer is an Australian charity dedicated to…
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Jen's Tongue Cancer Story Video
I am sure there are those on this forum that can relate to this lady's story. To commemorate Head and Neck Cancer Awareness Month we'd like to share the story of one of our community members, Jen Mackay. Jen had never heard of Tongue Cancer when she was diagnosed with Stage 3 in 2022 after an ulcer appeared on her tongue.…
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4 vs 6 cycles of R-CHOP for DBC-NHL
Does anyone have any experience or research on going 4 cycles instead of the recommended 6-8 for diffuse large B cell non-hodgkins lymphoma? I found an article titled: (this site won't let me share the link but you can find it via Google search) Treatment With Four Cycles of R-CHOP Is Non-Inferior to Six Cycles in Some…
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Squamous Cell Skin Cancer
I was diagnosed with squamous cell skin cancer on the back of my left thigh in April, 2021. It was cut out and the margins were clear. I have gone every 6 months for a whole body check. My last check-up was in March 2024 and my Dermatologist said everything looks good and I don’t have to come back for one year. However, I…
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Uterine carcinosarcoma treatment experience
my mom had a recurrence of uterine carcinosarcoma after first round. It is stage IV and has spread to distant organs. Can you share your experience with this cancer, treatments (names of meds) and any other info you may think would be helpful. Thank you!
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Need recommendations- invasive ductoral carcinoma grade 3 - FISH Negative
Hi, I am recently detected with Left breast cancer. Invasive ductor Carcinoma Grade 3. Its harmone positive and Her 2 negative cancer. Fish report is negative. Cancer is spread to Lymph node. I had appointment with Surgeon and oncologist. They both have different opinion. General Surgeon recommendation is Chemo first…
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Anastrozole
Is there anyone that has decided not to continue with Anastrozole or any drug like it? I am seriously thinking of doing so after reading all the women with side effects. I went off while on vacation this past week (approval from doctor). I still have swelling in my right foot and ankle. It was much more swelling (huge)…
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Stuck In Limbo-Freaking Out
I had a CT scan 2 weeks ago due to bowel changes and pain in the lower left quadrant, definitely waited longer than I should have to go get it checked out. This scan showed I have a 8.7cm x 8.3 cm solid Adnexal Mass on the left side, and a 5.5cm thick-walled cyst on my right ovary. Went to my Gynecologist and she has me…
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What is HPV-Related Head And Neck Cancer? Explained!
Video 1 of the “Role of HPV in Head and Neck Cancer” Webinar series—Recently Dr. Bhisham S. Chera joined GRACE to discuss the role of HPV in head and neck cancers. Bhisham Chera, MD, is a UNC Lineberger Comprehensive Cancer Center member and Assistant Professor in the Department of Radiation Oncology in the Clinical…