Aggressive atypical fibroxanthoma

celia703
celia703 CSN Member Posts: 1

Hello,

I’m new here and just wondering if anyone else had a weird skin cancer diagnosis.

Long story short I had a long and invasive slow MOHS to remove the tumor (?) and while they felt confident they got it all, they said that it was a cancer that hadn’t been identified before so they couldn’t predict what would happen next. The pathologist identified the AFX but there were another cancer that hadn’t never been identified. Apparently it kept mutating. Just writing that makes me feel sick.

All scans are clean, and I have to have regular checkups. I know I’m blessed, but I feel like I know next to nothing about this stupid cancer and I’m wondering if anybody else has had it.