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Endometrial Cancer Recurrence
Hello Everyone, I’m here for my mother. She was diagnosed with Stage 1A Grade 2 endometrial cancer in November 2021 and had hysterectomy the next month. We were told no chemo or radiation was needed since there was no lymph node or other organ involvement. We took my mother to the ER September 2022 and they found the…
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Rise in CA125 in 6 months after last chemo
Has anyone experience a rise in CA-125 in 6 months after the last chemo. Mine jumped from 9 to 40 and I’m alarmed. I’m having CT scan of the chest, abdomen, and pelvis next Friday, 9/23/22. I felt some pressure in my lower abdomen that is going away now . I was off from zejula for about a month because of the side effects…
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Four years after mixed serous/clear cell uterine cancer, and no evidence of recurrence.
When I was first diagnosed, I found hope here in the postings by long-term survivors of this highly aggressive cancer, in addition to the amazing companionship and support from the women on here who were so generous in sharing their time and their experience and their advice. I'm now four years out from diagnosis, probably…
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Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
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Saturday 9/17/22 Online 3rd Annual Chicago Gynecologic Cancer Researcher-Survivor Summit
All - missed this email in my inbox but this is tomorrow and via Zoom and is free to register. Saturday, September 17 Chicago Gynecologic Cancer Researcher-Survivor SummitThe 3rd annual virtual event will bring gynecologic cancer survivors, clinicians, researchers & community advocates together for education &…
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Realize it is a good problem to have...
...but looking for feedback from everyone. So I moved to Texas and was given the name of a gyn onc down here from one of the long-time ladies on this board. I just called and found out that the doc would not take someone not in active treatment and just following up. I realize that this is a very fortunate problem to have,…
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Anxious After First Colonoscopy Tomorrow Morning Since Surgery/Treatment
Not my first one and never had any problems in past except for a few pesky polyps removed but super anxious about the one I have tomorrow morning. Maybe it's the hunger pain setting in and the fear of prep to start in 5 hours but honestly nervous as it's the first one since my hysterectomy and brachytherapy last year and…
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Help! Sentinel lymph node biopsy? Endometrial cancer level 1
Wonderful to find this website! I've been sitting around alone worrying and wondering. In a few days I am having a full hysterectomy due to endometrial cancer that has "probably" advanced to left adnexa, per CT scan. My doctor wants to do sentinel lymph node mapping removal and biopsy, but if that is unsuccessful, she…
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Scared it could be uterine cancer
I’m only 41 and not had menopause yet. However, I’ve had irregular bleeding for a few months before telling my doctor. I thought it was normal and changes were normal due to my age so I didn’t worry about it. Then I went in for my annual exam and had a Pap smear. Everything was normal, even the Pap smear but gynecologist…
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Questions about Brachytherapy
I have uterine cancer and had a complete hysterectomy in November of 2021. On my 6 month checkup the cancer was back. Only 3% of patients have a recurrence of the cancer. I started radiation treatment on August 10th. I am scheduled to start brachytherapy next Wednesday September 7th, and three additional treatments, along…
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Uterine Cancer Stage 4
Good Morning; Last week I had a complete robotic hysterectomy. We received the pathology report and met with the surgeon this past Thursday. The findings were that the cancer has moved from my uterus to the fallopian tubes and on the surface of the ovaries. The biggest finding was the it has also spread to the omentum and,…
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Metastasis Stage 4 High Grade Serous
Hello all, is there anyone out there that got initial diagnosis with stage 4 uterine cancer with metastasis? My mom of 67 was diagnosed with Stage 4 High grade serous adenocarcinoma 4 months ago. The Pet scan found it on liver and mostly lymphnodes throughout abdomen. A few lymphnodes in the chest/neck area. No other organ…
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Spouse with cancer?
Just wondering if any of you are in a marriage where both of you have cancer? My husband has metastatic prostate cancer 4B which is responding well to chemo. He was diagnosed in February. So my diagnosis this month was… a lot to process. Our kids are adults, but we still have work and a home… and I’m trying to process how…
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Cryotherapy May Help Prevent Neuropathy Caused by Taxol Chemotherapy
I am not sure this article has been posted before, but I thought I would post it. We uterine cancer patients get treated with the same types of chemo. Might be a good article to show to your treatment group if they balk. https://www.breastcancer.org/research-news/cryotherapy-may-prevent-taxol-neuropathy For people…
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Treatment of recurrent or metastatic endometrial cancer
Treatment of recurrent or metastatic endometrial cancer - UpToDate 3/14/17, 1:11 PM https://www.uptodate.com/contents/treatment-of-recurrent-or-metas…e=see_link§ionName=First-line%20chemotherapy&anchor=H8007524 Page 1 of 22 Official reprint from UpToDate www.uptodate.com ©2017 UpToDate The content on the UpToDate…
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Reproductive cancer concerns
I’m new here and have been reading the posts which are helpful. I’m facing increasing concerns over my period abruptly stopping after 2 days and never passing clots anymore- as soon as the bleeding stops I feel like my abdomen is gonna burst and severe nausea. Complete exhaustion after working hospital shifts etc.. I’ve…
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bladder issues as a symptom
Hi - I am just wondering if anyone who was diagnosed with uterine/endometrial cancer had any bladder issues early on (prior to treatment). I am having post menopausal bleeding, which I am having explored (ultrasound showed thickened endometrium and some type of mass). However, back in March I had a routine urinalysis which…
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What do you wish someone had told you?
Hello, everyone. I've spent quite a bit of time this afternoon reading through past messages. You're a wonderfully supportive group and it looks like I'm going to need that. My gyn called today to tell me I have endometrial cancer (don't get angry at her for calling - I asked her to call if the biopsy results came in…
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Endometrial Cancer - IIIb - grade 1
I'm 67. After a completely hysterectomy (they took the Fallopian tubes, too), doing well--minus the cancer, of course. (My current CA125 is 15.5, down from 24.9 pre-surgery.) I'm hoping y'all will give me your opinions--pro and/or con--as regards chemotherapy and/or radiation. Given the prognosis even if I pursue such…
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Brachytherapy
I am scheduled to see the dr. Friday to start brachytherapy. I am nervous. I hope it isn’t too painful. I. Do they give you something for pain?
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Stage 3 Uterine/endometrial cancer
Call me Sandy, Jeremiad came on here to find support and information. Thanks for all you do. Here goes...... 61 years young, think of myelf as very healthy. I feel great physically. After my Hysterectomy June 1, I was told that "they got it all" by the surgeons chain of command. On June 13, they got ahold of me from the…
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Endometrial cancer
Hoping to find some support here. I'm not a cancer patient but I am a caregiver for my mother, who was diagnosed with Stag 3A Endometrial Cancer, an aggressive less common type, high grade uterine serous carcinoma. I didn't take my mother's cancer diagnosis really well. It's all very sad =( Long story short, my mother, was…
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I have just been diagnosed with uterine serous carcinoma
I have my first visit with the specialist on August 2nd. Had an ultrasound yesterday. Any good words out there.
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Anyone have osteoporosis because your ovaries were removed also??
I had my hysterectomy with ovary removal 1 year ago and have already been diagnosed with osteoporosis. Anyone else have the same experience??
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Sad news about Dak82
I’m sorry to report that our dear friend, Dak82, passed away on June 12, 2022. Even after retiring from a very distinguished career in the U.S. Air Force, she continued to work as a military contractor. She also loved the challenge of participating in endurance sports like triathlons. She tried more therapies than most of…
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Uterine Cancer
I am new here and so overwhelmed right now. I have uterine cancer that has spread to cervix and is aggressive. Theu cannot confirm 100% but do believe it is in my lymph nodes. My tumors are too big and surgery is not an option. I ha e to do chemo first to try to shrink tumors but still not sure surgery can be done. I'm a…
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Zejula
I was declared in remission in March 2022 after 6 rounds of chemo , total hysterectomy, clear CT, and CA125 of 9. This week I received my 3rd month of zejula. I take 2 (100 mg) tablets. My side effects are rash, insomnia, and constipation. The worst part is my platelets were trending down every month to 10 yesterday. I…
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Hair Loss
Hello, I started Taxol/Carboplatin a month ago (2 treatments so far). My hair was definitely coming out when I ran my fingers through it. I shaved. After 2nd it became really patchy. I shaved it even tighter. It seems like in areas it's growing back. Does this happen? My underarm hair is gone and my legs are stubbly, but…
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New Dx
Hello - I am a new member as I found out yesterday I have endometrial cancer stage 3C1. Still have to have a CT to confirm it has not spread outside the pelvis. As I am sure everyone was I’m scared. Any advice for the road ahead. Thank you
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I'm still hanging in there...
So May 8 is roughly 3 months past my surgery date. My body still doesn't feel quite right lol. It's hard to describe though. My stomach still feels kind of mushy and I feel like a busted can of biscuits most days. I am doing more of what I used to do; work my horses, do more chores outside, take care of my rabbits…