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Metastatic Cancer with Primary Uterine Malignancy
Hello everyone! I am writing this on behalf of my mother -- she is 85 y.o, diagnosed with Metastatic Uterine cancer in July 2022 and just completed 6 months of chemo. Her most recent PET scan (after 6 months of chemo) shows about 20% of the cancer still remaining. So we are starting the 7th cycle of chemo this week. She…
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Good article on Endometrial cancer
This article is clearly written and comprehensive. I can't find a date on it, and I think the survival rates are lower than other articles so be aware. Otherwise it is good information.
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Risk factors for blood clots and svc syndrome
Hi, I am fully recovered as I write this, but I want to share my experience. I am in remission for metastatic endometrial cancer after 2 recurrences. The cancer is er+ and pr+ and her2- and I am on 100 mg of Ibrance and anastrazole for over 5 years. Because the drs know that this cancer will eventually return (and some of…
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Recent Endometrial Adenocarcinoma Grade 1 diagnosis
Alright here goes…found out two weeks ago that I have endometrial cancer. It was diagnosed from an endometrial biopsy I had done in preparation for a hysterectomy to remove my uterus because of fibroids. I have at least 7 fibroids, two of them measuring 6-7cm. Also a complex cyst on my right ovary. And since I am talking…
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Uterine cancer
How to post. I’m a new member
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18mm endometrial lining
Asked this on the gyn forum and then saw this one may be more helpful. I guess I'm just trying to see what I'm headed for... I'm turning 50 in a few months, and have had three full years of crazy periods from so heavy I was frightened and almost a month long, to missing period for months, to pink for days. Strange…
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Sweating
Silly question. Has anyone noticed sweating a lot more during their cancer treatment? If yes, does it go away after chemo is done? Drinking a cup of hot tea makes my head sweat now. Maybe it always did but I never noticed because I had hair (lots of it). Now with a bald head, the sweating is very obvious. Such a strange…
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Great Cooking and Recipe Website
Stumbled across Cook For Your Life. Lots fo healthy recipes and easy ways to drill down to sepcific needs. Bon apetit! https://www.cookforyourlife.org/recipes/
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Worries
I am 18 years old and a virgin, vaccinated against HPV. I have some symptoms of abnormal vaginal bleeding and pain in the lower back. Could it be symptoms of cervical cancer? I am very worried and scared.
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Nyquil for neuropathy?
It's been almost three years since I was first diagnosed with Stage II, Grade 3 UPSC. After three chemos, I stopped. I had many, many bad side effects but the one that has lingered is very painful neuropathy in my feet. There have been nights I have walked the floor for hours in tears. I have tried all kinds of painkillers…
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Surprise extreme exhaustion
I've entered my 4th week post-radiation, and have made a trip with my wife and two pups to the Oregon Coast to celebrate and start to recover from the losses I've endured over the past year. The first thing I noticed glancing out at the ocean was true relaxation in my body, and tearful gratitude at seeing my little family…
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PARP Inhibitors for UPSC
Good evening. I need to make some insurance decisions during open enrollment, and I'm wondering if anyone on the board is on a PARP inhibitor for UPSC. I have a choice between private insurance through work and Medicare, and since I think PARP inhibitors are not yet standard of care for uterine cancer (although they are…
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Recurrence stories
Ladies, Without a major symptom, how does one discover that they recur? Those of you who have recurred, how did you discover it? CT, PET, physical symptoms? Bleeding? Other? How soon after your last treatment did you recur? I am curious because of the very different opinions about scans that we get from our medical teams.…
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Follow-ups and counting
I'm wondering when the actual counting of "how many months NED" begins. Is it the day after surgery? After the "no residual cancer" report shows up after a post-surgical PET scan (which I received "out of an abundance of caution")? After post-surgical treatment wraps up? Or at the first follow-up appointment after…
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Shy by nature. Reaching out.
I'm approaching the one-year mark (mid-December, 2021) from when I starting having symptoms of uterine cancer. My surgery was in late July (robotic hysterectomy, including all "parts"), and my radiation treatments ended a week ago, in mid-November. I'm just now starting to come to terms with what I've been through. This…
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Silly questions about radiotherapy
I'm starting radiotherapy in a couple of weeks..what can I wear that I don't have to take off? Can I wear long socks (only just over the knee)? It's just getting into winter here, I'm in Scotland so it's going to be VERY cold! Do I take my shoes off? Can I wear a t-shirt and just hitch it up? I definitely don't want to…
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YouTube Channel For UPSC
Hello everyone! I have not been here for a while but I am back and wanted to let you all know that I have started a YouTube channel for those diagnosed with UPSC. I am not sure I can post it here, so please remove it if I am violating any rules. I am not making money from this, I am just doing it because I didn't see a lot…
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8.5 pound uterine tumor removal/total hysterectomy
Hello to all, we are survivors! I had a 8.5 pound uterine leiomyoma tumor removal July 16th of 2021, with a full total hysterectomy, so no more ovaries or cervix, with omentumectomy where they had to remove around the vascular branches of the tumor clear up to my liver portal vein, lymphnode removal, and umbilical hernia…
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Checking in...
I just returned from my semi-annual checkup and I continue to be NED, four years! Secondly, pertaining to a conversation we were having a few months ago, when I reach my 5 year mark they will "graduate" me, their words for kicking me to the curb, cured. While I am sad that they will not continue to monitor me, I understand…
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NED appointment today, 5th NED
Hey, friends-- I'm exhausted, having had another 3-month check up today. I'm happy to report that I'm still in NED status! Such a relief, but I am so exhausted. I'm realizing that I dread these appointments. I prepared this morning by taking a bath and using my dilator. I am horrible about about routinely using it! I do…
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Pt1b endometrial cancer Figo Grade 3 myoinvasive
What does this mean?
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5 year+ survivors of endometrial cancer
Are there any 5 year + survivors of endometrial cancer in this group? If so, would you mind replying with your diagnosis and treatment you had completed? I would really appreciate it as it gives many of us hope as we charter these unknown waters....Thank you.
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Awaiting biopsy results - pre menopausal
Hello alL THANKS so much in advance for reading here. I am 46 with a long complicated OBGYN history. I have had abnormal mid cycle (every 15 day or so) heavy bleeding and spotting at other times. I have also had UTI like symptoms but UTI test is negative but they did find blood in the urine not sure if that is normal or…
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USPC Stage 3c - 5 lympn nodes after Rad. Mod. Hystorectomy - so quick!! Please read ~
Hi everyone...well, we are new to this forum. Wow, so many of you here, stupid cancer. Prayerfully, we all have great milestones and amazing stories during our journeys. My mom, 67, was diagnosed with Endometrium and Serous Cancer only 5 weeks ago so they did a Radical Modified hystorectomy very quickly and biopsied…
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5 Years NED – Uterine Carcinosarcoma (MMMT)
I saw my gynecological oncologist today and I’m happy to report that I’m still NED, five years after my treatment for Stage 3B, uterine carcinosarcoma (MMMT) ended. When I was first diagnosed, reading reports of others with this type of cancer who had survived for several years gave me cause to hope that I might have the…
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Are there any maintenance drugs after radiation/chemo treatment is done?
Some backstory: My mom was diagnosed with Stage 3c carcinosarcoma of endometrium last November, underwent total hysterectomy and bilateral salpingoophrectomy. CT scan after the surgery showed no cancer. After she recovered from the surgery she had 5 weeks of radiotherapy treatment. 1st and 4th week during the the…
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Recently diagnosed with Stage III Uterine Cancer
I was recently diagnosed with stage III Uterine Cancer; I had a complete hysterectomy 2 and a half weeks ago and I am scheduled to meet with the medical oncologist for information regarding starting chemo in the next two days. Being diagnosed with cancer was a total shock for I have been seeing my gynecologist yearly for…
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Journey
Oh man where to start. Been a member on CSN for quite a while, not active for a long time. Sorry if I babble through this post. First and foremost, I'm a caretaker for my wife. She is a ten-year colon cancer survivor (stage IIB). Everything was going so good for us. Then she was diagnosed with Stage 1B uterine cancer. The…
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Im in the waiting phase, and Im terrified.
Im new here, so I apologies if this isnt how things are done. But I really need some help from anyone who is willing to listen. Please excuse the text wall. So, a little background information ( sorry for the information overload): 1) I got my first period when I was about 9 (early periods are common in my family)...2) my…
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Lymph nodes and pressure in veins
Hello, I've was diagnosed with uterine cancer about 6 weeks ago, had a total hysterectomy along with lymph node removal, (I've not yet found out how many or if all were removed from my groin area-I will be asking at my follow-up visit in a few days). I also haven't gotten my staging yet. My question is, my right inner leg…