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Uterine/Endometrial Cancer

Please just reply if you have had 5+ Bracky
I had to have 2 Brackys - 4 in 2017;4 more in 2018 so vaginal wall is very scarred. I am also on blood thinners for another year. Dilator causes bleeding to the point that I am considering not doing it. I have talked to my gyn 0nc and she says if that is what I want to do, she will depend on scans, etc. for spotting…
Those taking Metformin (Recap of Lost Posts, Topic Created by oldbeauty on Nov 02, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/18. While there have been a number of posts about taking metformin on this board, this discussion topic covered several subjects, notably the difference in the costs of metformin depending upon one's insurance coverage. There are also…
How long to recover from vaginal brachytherapy? (Recap of Lost Posts, Topic Created by zsazsa1 on Ja
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Jan 08, 2019 - 5:23 pm I just had round 4/6 of carbo/taxol/herceptin, and I'm beginning to see the possibility of a vacation after chemo is over. Even if I were to have to extend chemo to every 4 weeks for the last two…
Lost discussions
What an unfortunate happenstance!
New TV Show, Old Memories
Anybody watching the new hospital drama called New Amsterdam? Tonight an oncologist who likes to fundraise and travel for the hospital was forced to come home and see patients. In her office was a woman who had a random few strands of hair left, who had to be told her chemo wasn't working and they were going to start…
More Problems with Website
Now more people's photos are gone. How did that happen overnight??? WTF?? It's important to see faces of those who've chosen to use a profile photo, or their avatar if they haven't; it adds to the 'real person' factor. Is this damage ongoing?
MRI Update
My doctor and I reviewed the results of my January 9th MRI this week, and the results were concerning but not entirely alarming. The overall tumor size continues to shrink and it's now mostly necrotic tissue from what I can tell. However, there's a 'bad' place within it that lights up and has actually grown, almost…
How many lymph nodes? (Includes Recap of Lost Posts)
I found the variety of approaches taken by different doctors regarding lymph nodes very interesting, as reflected in the responses to Ribbons' original question posted on November 9, 2018. So I'm posting this recap for future reference. Please note that I couldn't recover any responses that appeared on "page 2" of this…
cryotherapy gloves and slippers to prevent neuropathy?
Anyone have any experience or advice with this? There was a recent study that came out that had people wearing them on their dominant side, and then compared the incidence of neuropathy from the side kept cold vs the side that wasn't kept cold. Results showed that the cryotherapy DID help. I would like to try this, but the…
New "Sticky" Post about CSN Data Outage
You'll see that I added a new post entitled "Information on the Uterine Board Content Lost in CSN Outage." It repeats information I've shared in other posts, but all in one place. I've asked CSN to make this a read only, "sticky" post so that it remains at the top of the list for a while until we decide it's no longer…
First step completed, now more waiting
I went in for my hysteroscopy and D&C this morning and am already home. This really is not a difficult procedure for any of those who haven’t had it done and are feeling anxious. I had a great anesthesiologist and by the time I was wheeled back to the OR, I was floating on a cloud. I don’t remember anything until waking up…
Avastin been denied by insurance (Recap of Lost Posts, Topic Created by LadyMox on Dec 03, 2018)
There was a lot of good information shared under this topic during December, 2018 and January, 2019 that I hadn't remembered seeing in previous posts about Avastin. So I'm posting this recap for future reference. LadyMox Dec 03, 2018 - 12:19 pm During all this I'm going though, now my insurance is denying paying for…
Tumor Testing
While this was mentioned in an earlier thread, I wanted to make this it's own topic. In case anyone reading this don't know I am on the chemo/surgery/chemo route and I am on my third chemo this Thursday for a diagnosed Stage 4B Endometrial cancer and at last check had a 5x5x4inch tumor near my ovary in my pelvis, I am…
Just came from second opinion at Sloan Kettering MMT carcinomasarcoma
Some of you may remember me, I started posting about 5 weeks ago. My sister in law Kelly was diagnosed with Uterine carcinomasarcoma 3c1. She was diagnosed in California and had a complete hyst. We were told that it was all the way thru the myometrium and was in one of 24 pelvic lymph nodes, also there were cells in the…
Listing of Lost Posts
I used Google's web cache function to create a list of the discussion board topics that were lost. This list was taken from a Google web cache, as of Jan 29, 2019 18:30:28 GMT, so posts made after that time were not captured. I thought this listing would be a helpful reminder of the topics that were discussed recently. If…
Potential new treatment - NO publications, unfortunately
https://www.timesofisrael.com/israelis-claiming-cancer-cure-say-they-cant-afford-to-publish-findings/ Unfortunately, it seems that their claim was probably made to raise more funding. They're now saying they can't publish because they can't afford to. Scientists don't PAY to get studies published - they submit them to…
slight chest discomfort
Upsetting that everything was lost, but I think we will find our way back here. Last night at one of the times I usually wake up to go to the bathroom, My chest felt kind of different, and my neck was a little bit odd feeling. Since I get paranoid about this, I took some aspirin, but then went back to sleep. I wouldn't say…
Stereotactic body radiotherapy SBRT
For those of you considering SBRT (Cyberknife is one brand), here are the results of a large-scale study on its use to extend life for Stage IV folks like me. I'm a candidate and the moment the mets in my lungs start growing again, I plan to zap the suckers with SBRT. "...our question was, could we use highly focused…
Hand tremor
Just reposting this topic that was lost in the CSN outage: Near the end of chemo (around infusion 4 or 5 of 6), I developed a noticeable tremor in my writing hand. It mostly occurs when I'm holding something, like a glass. After chemo ended, it did not go away. It hasn't gotten any worse either, 4 months post-chemo. I…
MMMT complications (met @ bone)
Hello everyone. I'm keeping this short for now because I'm currently emotionally overwhelmed by my mother's diagnosis. But hello -- I am a new member of this board. My mother was recently diagnosed with stage 3c MMMT, grade 3. Had total hysterectomy and we were told that it had spread to 3-4 lymph nodes (all affected parts…
Heavy bleeding after pelvic ultrasound,
I had a pelvic ultrasound yesterday and had heavy bleeding afterwards. The ultrasound was performed late (6:00pm) on the 4th day of my period, so I was having some bleeding, but definitely tapering off and almost finished with the period, as they typically end on day 5. But within 20-30 minutes after the scan, I flooded…
Circulating tumor cells
Has anyone had their circulating tumor cells measured? If you had circulating tumor cells, what was prescribed to reduce them.
Any advice on keeping my nails?
I met with a chemo nurse today, and she recommended that I put tea tree oil on my cuticles twice a day throughout treatment. She implied that this could save me from losing nails. I'm already planning on icing my hands and feet for the chemo, so I'm hoping that with less penetrance of the carboplatin/taxol to the nailbeds,…
Advice on wig and other head coverings - when to shop for one?
I'm starting chemo in 3 days. My oncologist gave me a scrip for a wig. I was thinking I wouldn't go shop for one until the hair fell out, but now, reading about how people say that the hair loss is very physically uncomfortable, I'm thinking maybe it's best to do it now. Any advice on when to shop for a wig? Advice on…
More tests ... Breast issues this time
Freakin' crap. Freakin', freakin' crap. I went for a mammo last week, and they want me to come in for additional testing. They want me to come in on NOVEMBER 7TH! Seriously? What madness is this? You make me wait more than a week, never tell my oncologist at the other facility, who really should have been the one to tell…
Portacath placement was very easy
I just had a portacath placed today, and I cannot believe how easy it was to have it done! I was a little bit worried about it, had been considering toughing it out with IV chemo, but my oncologist really encouraged the portacath to prevent extravasation (leakage into surrounding tissue) of the chemo, so I went ahead and…
D&C tomorrow-what to expect?—Update
So, I have my d&c hysteroscopy tomorrow. Starting to feel nervous. They are doing general anesthesia. Just wondering how I will feel afterward--will I be really tired? Will there be a lot of bleed ing or cramping? Just wondering what to expect. Any idea how long I'll have to wait for the pathology report? How quickly I'll…
Conflicting pathology
A couple of weeks ago I was diagnosed with endometrial carcinoma, at least Grade 1 via D&C at a local hospital. I went to Johns Hopkins for a second opinion. They requested my slides from the local hospital to perform their own biopsy. I received the results. They are somewhat conflicting. The Hopkins Pathology report said…
Whoo boy do I need help
58. 7 years post menopause. Started bleeding, light colored. Stopped. Started again with what I can only describe as pieces of tissue. Stopped. Gyne appointment yesterday. Never had children so she could not get speculum open enough to get past cervix. Next up, transvaginal ultrasound then appointment to discuss those…
New drug combo for uterine serous carcinoma
I came across this today, thought some of you might be interested: New drug combo improves survival of women with rare uterine cancer

Uterine/Endometrial Cancer

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