Neuropathy (Recap of Lost Posts, Topic Created by Ribbons on Dec 14, 2018)

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This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19.


Dec 14, 2018 - 4:50 pm

I’m at my treatment today and I have ice paks they furnish for my hands and feet, I have not had any neuropathy, 

but I have an interesting question. I have Reynauds in my hands and and toes, I’m wondering if that actually helps protect from neuropathy? The nurse said that is very interesting, might try to research that?



Dec 14, 2018 - 6:26 pm

Hi Ribbons

My best friend used to have a horse named Ribbons.  I have two now, and I am an RN.   For the record Stage 1A UPSP.    I think your Raynauds may well decrease neuropathy since it is a reduction in blood flow to the hands and feet.  My first post.  I have been reading for awhile.



Dec 16, 2018 - 10:21 pm

it might just help

It is strange that you mention the Reynauds and neuropathy. Reynauds affected my fingers, mainly my thumbs before chemo. During chemo the tips of my fingers were just slightly tingling, but nothing bad (I didn't know about icing at the time). Now that I am 19 months past chemo, I don't have neuropathy, and my fingers no longer get numb or hurt from cold. I hadn't really thought much about it until you posted this. Could the chemo of actually helped the Reynauds?



Dec 17, 2018 - 11:31 pm

I think the cancer reset my "thermostat"

I too have always had very cold hands and feet ever since I was a teenager.  But I noticed when I got cancer (before I even had the surgery), I seemed to be running on hot, with warm hands.  Of course, it wasn't winter yet - had my surgery in early October.  But even after surgery, and chemo, it seems my circulation to my hands and feet is better - and I'm afraid that it's a symptom of cancer, that my body is just running on high because I have cancer.

I have been keeping my hands and feet immersed in ice water during my infusions in an attempt to prevent neuropathy.  So far, so good.  No significant neuropathy after 3 rounds of chemo.