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Uterine/Endometrial Cancer

Let's do a roll call!
It's been awhile since we've done a roll call and we have a lot of new ladies. Name or Nickname: Type of Cancer: Grade & Stage: Date of Diagnosis: Treatment: Where Treated: Outcome: Anything Else: I'll go first! Name or Nickname: Eldri Type of Cancer: UPSC Grade & Stage: Stage II (oncologist's best guess), Grade 3 Date of…
Recurrence MMMT after chemo treatment. What´s next?Apparently nothing
Dear warriors, I wrote a post to thank you for your support and all the information you passed me but the outage has deleted everything, including my initial post telling my mum´s story. Just for those who did not read it I am going to summarize the situation: my mother, 73, had an anal tumor 8 years ago (treated with…
CT Scan
I have just finished my 6 rounds of chemo. I was stage 1A and grade 3 for clear cell. Had a CT Scan a few days ago. I have a couple of tiny lung spots but they are not new and not related to my uterine cancer. (Biopsy done) I had a CT right before the hysterectomy and now this one. Everything is now looking normal so I am…
Sort of good news
Ok so the PET scan report was released to my patient portal and the little beasts are responding to the everolimus. Still have some active disease in the lungs but the other lesions in my bones, lymph nodes have less FDG SUV uptake thingy!! There was no discussion of activity in my ribs and some other bone areas so I take…
Wondering if anyone else experienced necrosis After radiation
i had chemoradiation for 28 sessions before I started my carbo/taxol chemo. As it turns out I ended up with a complication from the radiation - necrosis In the tumor that got the radiation. It's been very uncomfortable and almost worst then the side effects of the chemo. I am wondering if anyone else has experienced this?
Endometrial
My Recurrence Story
Although I still visit this site, I haven't posted much because I didn't feel that I had a lot to add since my Gyne-Oncologist said that my "garden variety" cancer was caught early and I wouldn't need to have further treatment other than surgery. That was October 2014. Today, I met with my new Gyne-Oncologist (this was…
Anyone who had chemo AND external beam? Long term side effects?
I'm having trouble making a decision between vag brachy and external beam to pelvis. I have UPSC/clear cell, which was in the upper end of the uterus and isolated cells found in one of two sentinel nodes. Wash and omental biopsy negative, no gross evidence of disease, no other nodes sampled. I was originally read as a Ia,…
Microscopic Colitis (aka not all that runs is radiation)
We have lots of symptoms we have to live with after treatment, and doctors don't always get it or believe it's treatment related, or sometimes don't believe or suspect that it *isn't* treatment related. I found this guideline from the UK (so not all tests translate to the USA or other countries), but I thought it was so…
FDA: Robotic surgery "unapproved" for cancer
I'd posted a link to some research published last fall that cast doubt on the wisdom of robotic hysterectomy from a cancer spread / survival length point of view. I think that link got lost in the hacking/crashi this site had a few weeks back. But apparently the FDA had similar concerns about that research: "Patients and…
I declined last dose of Taxol due to beginning of neuropathy in feet
Saw my oncologist today before 6th round of carbo/taxol/herceptin tomorrow. Based upon the beginnings of neuropathy in my feet, and my fear that it would get a lot worse with a subsequent dose of taxol, I had to choose between full dose taxol, 60% dose of taxol, or no taxol. I chose no taxol. I'm pretty worried, because so…
feeling hopeful
Sharing a hopeful thing. I finished my last round of chemo this past Friday. Still recovering from that, but this time I can keep on recovering, my treatments were 3 weeks apart. Funny that the thing I am most excited about right now is that I do not have to go for weekly blood tests anymore! WooHoo! I have a check up in 3…
Chemo hair loss
I was wondering if there's anyone out there that has had Taxol/Carbo that hasn't lost their hair? I know that's one of the main side effects of Taxol but I thought that maybe there was someone who had beat the odds. I'm resigned to losing my hair and it's due any time now. Does it fall out all at once? Or does it take a…
Oncologist offering reduce dose of Taxol for 6th round because of neuropathy foot
I posted about this earlier, that I had developed a little bit of neuropathy in my left foot after 5th round of carbo/taxol/herceptin. I have some numbness on the bottom of the ball of my foot, and one night had 3 sharp stabbing sensations in my big toe over about a ten minute period of time, none since. My oncologist is…
Making decisions
If you are reading this, you have all had to make decisions about your doctors, your treatments, etc. I have made a decision and if any of you want to chime in, you are welcome - good or bad. As many of you know, I am 79 years old(April), have had BC in 1997; uterine, 2017: recurrance,2018. Because of the recurrance I had…
New to the sisterhood
Hello to all you brave women. I was diagnosed in December 2019 with endometrial cancer . Had my surgery on January 16th had a robotic complete hysterectomy. Cancer confined to uterus and slightly into cervix. All lympnodes tested were negative. Pelvic wash negative. Stage 2 Serous carcinomais the reason…
Catheterizing
After having a radical hysterectomy 2//2/18 & 25 external radiations I’m left with a weak urethra and a poorly compliant bladder. I have constant leakage After seeing my urogynocologist recommended Botox injections to my bladder and collagen injections to my urethra which would mean catheterizeing 5/6 times a day The…
Foods to eat during chemo
Staring chemo soon and was wonderful about others experience with foods that can be tolerated. I know we are all different but need some suggestions .
CT done today
I've been having problems since December. I had diarrhea a number of times. I ended up in the ER one night a few days before Christmas. I had several bouts of diarrhea and my heart started beating fast and my BP went up. The ER gave me fluids and I felt a little better, but the diarrhea came back a week or two later. I…
Integrative Cancer Doctor in Los Angeles area?
Hello everyone. Does anyone know of a good integrative cancer doctor in the LA or surrounding area? My mother is currently in remission and want to keep her immune system strong as well as help her recover from the chemo and radiation she had last year. Thank you for any recommendations!
Discharge 7 weeks post brachy
I’m back again with the same issue. My vaginal cuff tore a little bit back at the end of December. As a result I was having a lot of tanish yellowish watery discharge. I was seen by the radiation oncologist that confirmed it was as a result of the cuff. ok, the discharge has significantly gotten better. However, I still…
9 years
Hi every one, just “stopping by“ to say hello and let you know that I’m doing fine. It’s going to be 9 years since my surgery. Cancer is still in my mind but hopefully it’s gone from my body forever. Wishing you all the best.
DFCI Newsletter
Just thought I'd share some interesting articles from Dana Farber's newletter I found interesting. https://blog.dana-farber.org/insight/2019/02/can-immunotherapy-be-combined-with-chemotherapy-to-fight-cancer/?utm_source=newsletter&utm_medium=email&utm_content=Can immunotherapy be combined with chemotherapy to fight…
Benefits of lemon and lemon oil for cancer
I decided to post a new thread after reading some of the older comments on lemons as well as some of the new ones. Let me say congratulations to bea-mil on your nine year anniversary. I am very happy for your success. For those that know my story, I was healed from metastatic cancer using integrative oncology, a…
Having a bad day
So I haven't posted in a while. Honestly, Im having a pity party and have no one to attend it with me today. I actually feel a little guilty. So many of you have been through so much with the disease and side effects of treatment. Unitl now honestly, I felt like I was pretty much skating through. Radiation I had a little…
Keytruda Efficacy
Greetings All. I’ve been a member since 2016. I have been on immunology for a year and a half and wanted to share my experience. First, my backstory/ treatment history: I was diagnosed in Fall of 2015 w stage 3c2 endometrial adenocarcinoma, I had a radical hysterectomy, followed by six rounds of carbo / taxol, followed by…
Lumps popping out all over (Recap of Lost Posts, Topic Created by KatnHat on Dec 19, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. KatnHat Dec 19, 2018 - 7:51 pm Hi all, haven't posted much since I found out my cancer spread 6 months after completion of treatment last year (hysterectomy, chemo, radiation). When I did post, I was so depressed to hear EditGirl…
Lemon (Citrus) - a miraculous product to kill cancer cells
Institute of Health Sciences, 819 N. L.L.C. Charles Street Baltimore , MD 1201. This is the latest in medicine, effective for cancer! Read carefully & you be the judge. Lemon (Citrus) is a miraculous product to kill cancer cells. It is 10,000 times stronger than chemotherapy. Why do we not know about that? Because there…
Year later moving backwards.
i finished radiation last February and have very slowly regained some of my strength and health. However in the past month my health has taken a turn for the worse. I feel almost as bad as I did during treatment. The pain has become worse and my energy is lapsing again. Is it normal to fall back a year later?
Waiting biopsy results
I am 9 days post hysteroscopy and I am waiting for my biopsy results. It's the start of a 3-day weekend which means I probably won't learn anything until Tuesday at the earliest. I have researched that based on my symptoms I probably have a 10 to 15% chance of being diagnosed with endometrial cancer. I also know that that…

Uterine/Endometrial Cancer

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