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MD Anderson vs. Mayo Clinic
I live 5 hours from Mayo and I would have to fly to MD Anderson but I do not care so much about the commute as I do about getting the right doctor and best gyn/onc Dept. for UPSC . I am stage 3 and just had surgery for a recurrance, the doc was not sure if it was an isolated port site metastasis or systemic. My gyn/onc…
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how long did you keep your port in.
Just wondering how long every one kept their port in after treatment. Thanks love, Janae
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Dear ladies
I have some great news; the pathology of my cancer is Endometrioid Adenocarcinoma, stage 1A. I am very happy! Follow up every 4 months in the beginning, but the 1st visit is in 3 weeks. Thank you to everyone of you who prayed for me and shared your sentiments. It was a lifesaver during such a trial period. I will be…
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What Type of Ongoing Treatment
It has been 2.5 years since I was diagnosed with Metastasized Uterine Cancer. Surgery, Radiation, Chemo, Letrozole, and now Avastin. My question is this, what are some medications each ofyou have been on (such as Letrozole) that you have been given, side effects, how long taken, and what you are currently on. After Chemo…
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Financial Toxicity of Cancer on patients
“(Reuters Health) - U.S. doctors must realize that many cancer patients battle “financial toxicity” along with their disease, researchers say. The costs associated with treatment, even for those with insurance, often create hardship and distress, according to a new study in the journal Cancer. “ This article talks about…
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bowel issues and colostomy
Good day to everyone. Anyone experienced bowel issues or a recurrent perhaps in the bowels requiring a colostomy? My niece is a 4b and she is having some bowel problems. Her gyn-onc ahs already suggested another round of chemo but putting a colostomy to get her nutrition better is being floated. I wonder whether anyone has…
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Palliative care for stage IVB uterine serous carcinoma
Hi there, I am new here. I signed up for my mom who was diagnoised with stage IVB uterine serous carcinoma last year, Aug 2017. She's currently 70 years old. She underwent total abdominal hysterectomy and bilateral sapingo-oophorectomy, peliv and periaortic lymph node dissection, omentectomy, appendectomy, tumor debulking,…
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Stage 1 Grade 3 Serous Endometrial Carcinoma
I had a hysterectomy 3 weeks ago and on my post surgery follow up was told by my surgeon I need chemo and radiation since mine is serous , I’m not sure what to do my sister in law is a nurse and says I should get another opinion . I have a appt tomorrow to see the oncologist about chemo.
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Negative biopsy but still not reassured
Hi everyone, I am post menopausal x over 4 years now but have been bleeding pretty steadily since the end of May. I had a TVUS June 5 and a ”fibroid” was seen in a precarious place in my uterus. My lining was not thick enough to alert my doctor who agreed with me to just watch and monitor, however, I kept bleeding, even…
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Book: "I'm Dead, Now What?"
I'm also an child, divorced, no kids, live alone, and closest family is 2+ hrs away, so I do worry about slippage in the gears if I were to...ahem...fall into a ditch sometime soon. Or become incapacitated. Eldri's post reminded me of that, and of a book I got for $10 on Amazon. The title, "I'm Dead, Now What" appealed to…
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Looking For New Gyn/Onc For UPSC - Need Suggestions
Hello all - I have been checking this board since I was first diagnosed with stage III UPSC in March 2017. I have found this board to be such a help in every sense of the word - thank you everyone! This will be my first post as I am looking for a new gyn/onc. Had Robotic total hysterectomy + BSO, 6 rounds carbo/taxol and…
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Waiting for biopsy, have a questions...
Hi, first I would like to thank all of you! I joined this group after days of reading discussion threads, everyone is so supportive, brave and honest- it made me feel safe to join. As I am waiting for my biopsy and I do not have any answers, I have no intention of saying anything to my family and friends. So again,…
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Kvdyson?
Hi! Anyone heard from Kvdyson - Kim? I have not been on board for a while and when reviewing the roll call of old & new members, Kvdyson came to mind. She has not been online since February. I’ll update my status in roll call thread soon, thanks for srarting Eldri and I agree with DeMarus on updating your About Me profile.…
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Christmas in July
My dear sisters, I got my NED ,for now, on July 3 and while trying to think of a way to pay it forward, remembered the young lad, 2 years old ,who was undergoing radiation every day at the same time I was there. His tiny cries of,"I want to go home." brought me to tears every day. His parents were staying at the Ronald…
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Has anybody heard from Kaleena (Kathy)
I see she hasn't been on the board since May. I know she was going through a lot of things but hoping all is ok!! Love, Eldri
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Stage 1a endometrioid
I was grade 2 on D&C but the final pathology report mentions grade 1 Can anybody explain the downgrade? Believe me, I am not complaining. Which kind of tests will I have for a follow-up? Could I request a Cat Scan for my peace of mind? If yes, is it a CT from the whole body? Thank you for your help
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Update from IV-ville: Radiation WORKS
I'm super tired but wanted to check in and thank you again for your many kind messages. Unless I'm in the hospital or my computer's busted, I do check in every day - usually several times a day - but haven't had the energy to post just yet. Like Donna Faye and, I imagine, many others, I always check our regulars for the…
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Anyone taken cisplatin chemo?
Just want to know if anyone has taken and results thereof. Not sure I want to risk it.
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Going to surgery
in a few hours and feeling so anxious and scared. I had what I think is a panic attack while taking a shower a couple hours back. I have never had an attack before, though I do suffer from generalized anxiety disorder. It felt like a desperate feeling of impending terror and I could not breathe completely. I have been…
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Grade question and other concerns
Hi everybody, first post for me but I have been reading a lot of your stories, concerns and hope. I am 60 and post-menopausal. I was diagnosed after an hysteroscopy and D&C with Endometroid endometrial adenocarcinoma, grade 2. The lining of my endometrium was 5 mm and I had never had heavy bleeding, just discharge,…
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Good report
Just returned from my appointment that was scheduled as a biopsy for a lesion seen 6 weeks ago. The doc had decided to wait 6 weeks and see what the rads might do. Evidently the rads did their job,so NED today and now will begin the 3 mos. checks as normal for post cancer. Always a relief when one gets the NED gift. Hope…
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Clinical vs Immunohistochemistry Report
After my mom's surgery, the surgical pathology/clinical report showed that all the 16 lymph nodes taken out of left and right pelvic side were free of tumor. However when a later review was done with a detailed immunohitochemistry report, the report states that one of the lymph nodes was found with the carcinoma - "Left…
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Received message from It Happened To Me (Jeanette)
I had messaged It Happened to Me (Jeanette) and she said she's really doing good. She's four years NED and is patiently waiting for that five-year mark. I was looking at an old thread and she, along with a lot of ladies who are no longer with us, had responded. It always makes me wonder, especially when the woman was very…
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Latest update from IV-ville
I haven't posted an update lately because I don't have much to tell, but am in so much pain right now that I decided to vent anyway. Thank you for bearing with me. My lower back pain was increasing alarmingly, but I attributed it to my 'usual' sciatica. Boy was I wrong. About 3 weeks ago my right thigh went numb and…
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Stage 3A Endometrial Serous Carcinoma
Hi, its my first time posting here. My mom was diagnosed with stage 3A Endometrial Serous Carcinoma 2 months ago and has already had a total hysterectomy, and now recovering from lymph node removal surgery. Doctor said people with this same cancer have a 50% survival rate, meaning out of 10 women, in 5 years 5 of them will…
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Weakness in lower body, pain when standing from sitting position.
Hello Ladies, I'm new to this Discussion Board...and have a question with regard to the stiffness, sore muscles and very weak legs and ankles I'm experiencing lately. I had utertine cancer in May, 2016 with a total hysterectomy that August and treatment beginning that September. I had Stage 1b, grade 3 and the 6 lymph…
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Herceptin and serous endometrial cancer
My wife had some spotting (Nov. 2017), D&C showed UPSC, after hysterectomy, determined to be stage 3A with overies involved, 6 cycles of taxol and carboplatin(very painful bone pain), just finished 27 pelvic radiation treatments last week. So she just had her first treatment of Herceptin.....so my only thought is....have…
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hysterectomy, pelvic radiation sexual side effects?
Dear all ~ My partner Michelle was diagnosed a month ago with uterine carcinosarcoma/MMMT. It's been a rough journey, and only this week is she slated to begin radiation treatments after a planned surgery was cancelled at the last minute. (The tumor has gotten too big to safely perform a hysterectomy, according to her…
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Maybe a bit of comfort
My pastor asked me to share last week at our service what has helped me through the past couple years. Here‘s What I shared: Becoming a Cancer Survivor “It is the name of Jesus which, through faith in him, has brought back the strength of this one whom you see here…that has restored this one to health” Acts 3:16 Two years…
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Sometimes you have a really good day
Warriors have all kinds of days and experience all kinds of emotions. We have met through the speeding electrons flying through space in this marvelous thing called the world wide web. We make our way through this cancer journey because of eachother and we all are so grateful to know we are not alone. I had the a happy day…