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Update on my Mom
Hi guys, I haven't been very active on this board because I've been busy with resuming life and work after my mom's cancer journey. My mom just got her latest CT scan results and blood test back last week, and she is doing well. Her CA-125 is only 11, lower than 3 months ago when it was 17. Her scans came out clean. Her…
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Symptoms
To start off, I have seen a doctor. I just don't feel his diagnosis is correct. I am 29 and started seeing brown bleeding between periods. It only lasts a day or two, but I have pelvic pain on days other than when I see the blood. One month the bleeding and pain were so bad I called My OBGYN to be seen ASAP. He felt around…
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hello
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Brachytherapy
Hi all you beautiful women! I’m new to this so hope i’m doing it right. I was dx with stage 1a/grade 3 uterine cancer. I’ve had complete hysterectomy with nagative lymph nodes. I’m to have 3 rounds of vaginal brachytherapy. Was wondering if you could share your experiences with vaginal brachytherapy with me? The side…
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1 year NED
On June 20th I celebrated 1 year NED! My birthday is the 30th and I am so thankful to have it every year now. I go every 3 months for exams and blood work, and have had no problems at all. I am so thankful and so blessed! I just want to encourage others that get diagnosed to know, there is hope! (just a brief synopsis..I…
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Waiting on biopsy results
I am a 37 year old. I went to my gynecologist a couple of months ago bc I was experiencing random heavy bleeding and basically a continuous cycle. I’ve always had irregular periods, but the bleeding got so heavy that it prompted a visit to the doctor. I immediately had an ultrasound, which showed an endometrium thickness…
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Serous Carcinoma
I was just diagnosed with Endometrial cancer 10 days ago. It hit me like a ton of bricks. Just did a CT scan and results are not in yet. Getting ready for hysterectomy on May 2. I do not know the stage yet. So I am in that scary beginning stage dealing with this emotionally. Just joined to benefit from those who may have…
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Just diagnosed with Carcinosarcoma
I was just diagnosed with Carcinosarcoma of my Uterus. I’m told it is very rare and aggressive. I haven’t had scans yet (later this week) and surgery on the 28th. Unfortunately I let it go for a long time thinking my symptoms were being cause by my fibroids. Does anyone have any experience with this?
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Bell ringing
I never thought about it this way https://www.medscape.com/viewarticle/902132?nlid=125123_3902&src=wnl_newsexcl_180919_MSCPEDIT&uac=297357CV&impID=1743376&faf=1
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My Girls!
Just got off the long bus ride from Houston to San Antonio, but I can't climb in bed without visiting my sisters here to tell them a little bedtime story of a girl who was diagnosed with Stage IVB, Grade 2 Endometrioid Endometrial Adenocarcinoma in the Spring of last year. She had a robotic hysterectomy with which she was…
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New Publication: NCCN Guidelines for Patients – Uterine Cancer
If you would like to read or download the new NCCN Guidelines for Uterine Cancer Patients publication that was just posted on 9/11/2018, see the following link: https://www.nccn.org/patients/guidelines/uterine/index.html You can also sign up for a free account with NCCN to download a copy of the complete NCCN Clinical…
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back/leg pain/numbness after hysterectomy
Hi everyone, I am a new member, and have been diagnosed with Stage 1a, Grade 3 Uterine Cancer. I am almost 6 weeks post-op from complete hysterectomy. They took everything including lymph nodes and omentum. everything was clear except fot the tumor in uterus. It hadnt penetrated the uterine wall or muscle yet. I will be…
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5 weeks post hysterectomy and urining blood after bath
I had my hysterectomy 5 weeks ago . Finally stopped bleeding vaginally a couple days ago. I traveled from AZ to PA to finish my recovery while staying with my sister . At my sister's house, I decided to take my first bath post surgery. I normally use very gentle non paraben and fragence free soap but did not bring it. I…
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Internal Radiation
My mom will have her 4th and last carbo/taxol administered tomorrow. 3 weeks from then the doctor wants to start internal radiation. He mentioned 6 weeks of internal radiation. Is that normal? Looked like a lot of sessions. Any guidance is appreciated.
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Hysterectomy vs Progesterone Therapy
Hi Ladies, I met with a gyn onc today to discuss a game plan. He mentioned that I really don’t have any of the check boxes that is common in patients with endometrial cancer, so he is surprised that my biopsy (which was conducted on a “rule anything out” basis as opposed to “suspected problem” basis due to anemia) reported…
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Chemo plus radiation vs Chemo without radiation for Stage IIIC uterine cancer?
Hi all, My mom was diagnosed in Feb of this year with Stage III C1, grade 3 uterine cancer. They initially thought that they had found it early but during her hysterectomy, they found the cancer in 3 out of 19 lymph nodes. She recovered very quickly from her surgery and began chemo (paclitaxel + carboplatin) in mid-March.…
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I’m here and back on my feet!
Hello everyone! Sorry it took me long to check in. Thank you all for your concern. The surgery did take a lot out of me this time but I am back in my feet and back to work. I had the ileostomy reversal on June 15th and ended up 4 days in the hospital which was a little longer than I wanted. I returned to work July 9th. I…
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New to this - Stage 3a Grade 1/2
I'm 52 years old. I have been having irregular periods for a while, thought it was menopause. Finally went to ny gyne on 6/29/18. She found s cyst on right ovary. Ultrasounf 7/5/18. went for results on 7/11/18, I was sitting in a Gynecologic Oncologists office on 7/13/18. We decided to do a hysterectomy. During my preop…
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Hysterectomy & Question About When Does My Doctor Get Back to Me About Stage & Grade?
Well, Ladies, I had a very rough hysterectomy last Friday, but I am home and I'm here and other than the searing pain still have my bladder and bowel function intact and my appetite is very slowly returning. What happened is they tried to do the Di Vinci hysterectomy except my uterus contained too many large fibroids to…
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Ozone Therapy for preventing cancer recurrance
Hello. I wanted to see if anyone has had success with preventing cancer recurrance or treating cancer using ozone therapy, and if so, which type (hyperbaric vs IV). My mother is in remission from an aggressive uterine cancer (MMMT) and we wanted to look into this as an option but because it's not a proven treatment we are…
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Top doctors
hello who are the top doctors in the US for Pelvic cancer?
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Newly Diagnosed, so many questions...
Hi all, I recently had a hysteroscope and biopsy, 6 months later than originally scheduled. i am 45, have very regular cycles but heavy bleeding. My gynecologist thought a fibroid could be the culprit, but found nothing. She was very surprised that my biopsy results came back showing complex atypical hyperplasia, FIGO…
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molimoli update
Hello all, It is with the heaviest of hearts that we share with you that our mother lost her battle this morning. The support you provided her with was invaluable. We really appreciate that you continually encouraged her to confide in us. In the end, we were able to spend the past month and a half supporting her, although…
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Anyone prescribed progesterone after hysterectomy to reduce risk of reoccurance ?
Had Hysterectomy in August. post op appointment I learned I was stage 1B. Doc gave me the opinion of brachy. I was not comfortable with that and doc recommended progesterone for 6 months. Has anyone been prescribed progesterone after hysterectomy?
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Something growing in my pelvic area
Hi, new member here. My backstory ; I had some post menopause bleeding 2 years ago. Dr couldn’t find s cause and I had a total hysterectom. Endometrial cancer was found , but since my cervix and womb were all removed, I didn’t need any treatments. It was early stage and didn’t spread. 2 months ago I went for a CAT scan and…
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Had TAH 3 weeks ago for stage 1B grade 2 Endo cancer
I'm totally over whelmed. Thought I was having Peri menopause heavy bleeding. Delt with it for 10 months. Was treating with a naturopath for 6 months to balance my hormones. Well, since it did not work went to MD who dx Endo cx. Had my TAH 3 weeks ago. Doc took 9 nodes which were all clean. From the anxiety of it all, I…
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Uterine carcinosarcoma
Oh boy ...the initial doagnosis prior to the complete hysterectomy in 5/30 was tough enough ...but... yesterday was a whole new kind of experience.. I had a pet/ct scan, and got the results back in a couple of hours. There are 3 tiny spots, and she said they are not visual with a cat scan yet. They still recommend the 6…
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D&C/Hysteroscopy Questions
I really appreciated the advice of this board's members. I decided to go through the uterine biopsy and hysterogram, rather than going straight to a D&C and hysteroscopy. A polyp was found and the biopsy results were benign, so the next step is a D&C and operative hysteroscopy. I am still mulling over the following: 1.…
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Words
Cyst, Polyp, nodule, mass. Polyps were removed. Soft tissue nodules. What does it all represent ? Thanks for all honest and real advice. i just want to know what to be ready for.
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Iowa City Patients out there
IS anyone out there a patient of UIHC? I have some questions about Radiology Oncologists and specifically internal radiation.