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What does neuropathy feel like? Could this be it?
Zsazsa the Ice Queen needs to know if this could be the beginnings of neuropathy. I had treatment 5 of Carbo/Taxol/Herceptin a little over a week ago. About 16 yrs ago, I had a nerve taken out of my left foot, between the 3rd and 4th toes, because I had a chronically inflamed neuroma from compression. After the 4th…
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Happy Galentines Day!
Sending a lot of love to the group of gals who understand me better than anyone in my life. I can't thank you enough for all the support, information and friendship. I'm really scattered right now and haven't been able to keep up with the board for weeks, but I think of all of you daily and I'll be back as soon as I catch…
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Lymphedema
This probably is a stupid question, but how do I know if I have Lymphedema ? I have gained a little weight lately and now my legs are feeling weird and I feel they are getting larger especially the thighs . My legs just don’t feel right. It almost feels like my neuropathy is moving up my legs. I’m out of town for two weeks…
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Interesting article on immunotherapy side effects
https://blog.aacr.org/what-are-the-side-effects-of-immunotherapies-and-how-do-they-arise/?utm_source=social&utm_medium=linkedin&utm_campaign=blog&utm_content=Immunotherapies&sf98732065=1
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What would you do?
Thank you I realise this is not the place to post this.
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Second opinion
I went ahead and had a second opinion yesterday with a medical gyn onc at the other major medical center in town. Before the visit, she reviewed all my records and also went over my scans with the radiologist at her institution. She felt that it would be reasonable to do a post treatment CT sacan, and then scans every 6…
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Advice pls-Hard, Enlarged uterus-ultrasounds today
Hi Everyone, I have ultrasounds today at radiology because I have a grapefruit sized pelvic mass. My lower abdomen sticks out when I'm lying on my back and my doctor said my uterus is hard and enlarged. Does this sound like fibroids? I'm hoping for fibroids, but I have light periods that come like clockwork. I am 46,…
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Restoration of Lost Posts
I've restored as much of the content from the posts that were lost during the CSN data outage from 10/29/18 to 1/30/19 as I was able to find online in cached web pages. In some instances, I added the content to topics that existed before the data loss, but in most cases I created new discussion threads. I included the user…
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Everolimus (Recap of Lost Posts, Topic Created by Lulu7582 on Dec 27, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Lulu7582 Dec 27, 2018 - 12:11 pm Good morning ladies, Hope everyone had a lovely Christmas / Holiday with family and friends. Just wondering if anyone else is on everolimus. Just started 2 weeks ago (love my new gyn/onc) and hoping…
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Five year post treatment from UPSC (Recap of Lost Posts, Topic Created by joannewtta on Jan 26, 2019
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. joannewtta Jan 26, 2019 - 3:11 pm I was diagnosed with UPSC Stage 3, 3b in June 2013. I underwent 18 chemos of taxol and carbo plus four brachytherapies finishing in Feb. 2014. Surgery was in July 2013 about two weeks after my…
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Waiting with questions (Recap of Lost Posts, Topic Created by bfrank65 on Jan 23, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. bfrank65 Jan 23, 2019 - 4:53 pm Hello, I found This discussion board while I am waiting on further tests and Inhave questions. I know everyone is different, but sometimes learning everyone else’s experiences can help in planning and…
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3d recurrence decision tree (Recap of Lost Posts, Topic Created by oldbeauty on Jan 05, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. oldbeauty Jan 05, 2019 - 1:41 pm My living well/survivorship doctor, who is a medical oncologist specializing in BC, sent me for a pelvis/abdomen/chest/neck CT to investigate a cause for apparently worsening anemia that showed up in…
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Cancel brachytherapy after starting? (Recap of Lost Posts, Topic Created by Badyear2018 on Jan 28, 2
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Badyear2018 Jan 28, 2019- 8:12 pm hi has anyone stopped bracytherapy after start ? like many others, the uncertainty of side effects being worse than waiting . Figo 1 staged at 1B ONLY because I am 57; no other evidence of disease.…
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USPC/Clear Cell ? (Recap of Lost Posts, Topic Created by Ribbons on Jan 20, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 20, 2019 - 2:20 pm I get confused by these labels. What exactly is the difference between USPC and clear cell cancer? Or are they the same?? My pathology report said mostly clear cell Forherself Jan 20, 2019 - 3:10 pm…
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Endometrial cancer (Recap of Lost Posts, Topic Created by lab44 on Jan 19, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. lab44 Jan 19, 2019 - 1:26 pm Hi, My story....diagnosed w DCIS breast cancer in 2010, had bi-lateral mastectomy in 2011. Just diagnosed w endometrial adenocarcenoma figo grade 1 with tubulopapillay & mucinous features, in background…
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Bracky and blood thinners (Recap of Lost Posts, Topic Created by Donna Faye on Jan 18, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Donna Faye Jan 18, 2019 - 7:17 am Dear Ladies,I need some information from any who have walked this particular path. I had 4 bracky in 2017;then a recurrance on the vaginal wall in 2018, so 4 more Bracky. Know my wall is very thin…
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Good news after a rough 2 years (Recap of Lost Posts, Topic Created by Donna Faye on Jan 15, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Donna Faye Jan 15, 2019 - 6:33 pm Had my CT and exam today and got another NED. After 2 years of thinking I was not going to hear this, it is good news. I have had good care on the whole and have very little to complain about as the…
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Research needs data (Recap of Lost Posts, Topic Created by NoTimeForCancer on Jan 14, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. NoTimeForCancer Jan 14, 2019 - 4:00 pm Good afternoon all. I am not sure everyone is aware, but I am a patient advocate on the uterine task force with NCI. I am honored to serve, and represent all of the women out there who have/had…
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Mental attitude? and some humor about the weather (Recap of Lost Posts, Topic Created by Ribbons on
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 13, 2019 - 12:00 pm I'm not sure what the explanation is, but now after my 4th treatment, I felt better quicker. I posted on here about how I didn't know if I could do all 6 treatments and how this 4th one was harder,…
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Tamoxifen and megace v. Tamoxifen only (Recap of Lost Posts, Topic Created by paris11 on Jan 11, 201
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. paris11 Jan 11, 2019 - 12:10 pm Hello dear friends, I have been taking tamoxifen and megace for forty months. The stage 4. uterine cancer is stable. I would like to stop the megace and just continue with tamoxifen. Are there any…
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How long before the port is removed? (Recap of Lost Posts, Topic Created by Canary on Jan 09, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Canary Jan 09, 2019 - 6:04 pm I know that each individual is different and each cancer is different. I was diagnosed with uterine cancer, serous, and had six treatments each three weeks apart. I had a CAT scan three weeks after my…
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Aromatase inhibitor side effects (Recap of Lost Posts, Topic Created by Tamlen on Jan 08, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Tamlen Jan 08, 2019 - 1:04 pm Hello - My gyn onc put me on anastrozole (Arimidex) in October. The side effects I initially experienced were some relatively minor fatigue, some cognitive impact, and some bone and muscle pain. Lately,…
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MD Anderson (Recap of Lost Posts, Topic Created by Lulu7582 on Jan 05, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Lulu7582 Jan 05, 2019 - 1:23 pm Good morning Ladies, Is anyone being treated at MD Anderson Cancer Center in Houston TX? Surprisingly my husband's insurance covers the gyn/onc at MD Anderson so if my local doctor at Davis is…
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Large retrospective analysis out of Stanford supports use of standard chemo/brachytherapy for USPC a
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Jan 05, 2019 - 12:06 am I cannot get at the entire article. Is anyone associated with a university that might have a medical library tha would have access to the entire article? Here's the link, and below it the text. There…
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Remembering Lou Ann M (Recap of Lost Posts, Topic Created by CheeseQueen57 on Jan 01, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. CheeseQueen57 Jan 01, 2019 - 9:09 am Opened my Facebook this morning and was reminded that this was Lou Ann’s birthday and she would have been 72. Remembering a remarkable woman who fought hard against this dreaded disease and was…
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Anxiety...(Recap of Lost Posts, Topic Created by wolfera on Dec 31, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. wolfera Dec 31, 2018 - 7:07 am I’ve been experiencing breast pain so my GYN oncologist is sending me for a diagnostic mammogram (scheduled for this morning). I’ve never had a mammogram before and certainly not one that is…
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For All Those With Financial Hardships & Who Have Cancer (Recap of Lost Posts, Topic Created by linm
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. linmk Dec 28, 2018 - 10:22 am I'm thinking of you, federal workers and GM employess and many others who are underempolyed and/or unemployed, you are in my thoughts. I hope that your cancers and financial situations improve for the…
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Discharge post Brachy/Internal Radiation (Recap of Lost Posts, Topic Created by BNT on Dec 28, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. BNT Dec 28, 2018 - 12:30 am Over the last six months my mother went through total hysterectomy. < 50% UPSC penetration in the uterine walls. UPSC was also found in one of the 17 lymph nodes so went through 4 rounds of Carbo/Taxol.…
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Bone scans (Recap of Lost Posts, Created by Wannabeatit on Dec 28, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Wannabeatit Dec 28, 2018 - 9:45 pm I had double knee replacements Oct 19th 6 months after my last chemo. Two weeks before I had it done I got a pain in my leg that felt like Sciatica but disappeared 4 days before the operation.…
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Chemo round 4 delayed because of low platelet count. Has anyone had this? (Recap of Lost Posts, Topi
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Dec 28, 2018 - 12:59 pm I was supposed to have carbo/taxol/herceptin round 4/6 today, but oncologist said I had to delay it for at least a week, because my platelet count was 88K. Before treatment began, my platelet count…