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Research needs data (Recap of Lost Posts, Topic Created by NoTimeForCancer on Jan 14, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. NoTimeForCancer Jan 14, 2019 - 4:00 pm Good afternoon all. I am not sure everyone is aware, but I am a patient advocate on the uterine task force with NCI. I am honored to serve, and represent all of the women out there who have/had…
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Mental attitude? and some humor about the weather (Recap of Lost Posts, Topic Created by Ribbons on
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Jan 13, 2019 - 12:00 pm I'm not sure what the explanation is, but now after my 4th treatment, I felt better quicker. I posted on here about how I didn't know if I could do all 6 treatments and how this 4th one was harder,…
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Tamoxifen and megace v. Tamoxifen only (Recap of Lost Posts, Topic Created by paris11 on Jan 11, 201
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. paris11 Jan 11, 2019 - 12:10 pm Hello dear friends, I have been taking tamoxifen and megace for forty months. The stage 4. uterine cancer is stable. I would like to stop the megace and just continue with tamoxifen. Are there any…
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How long before the port is removed? (Recap of Lost Posts, Topic Created by Canary on Jan 09, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Canary Jan 09, 2019 - 6:04 pm I know that each individual is different and each cancer is different. I was diagnosed with uterine cancer, serous, and had six treatments each three weeks apart. I had a CAT scan three weeks after my…
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Aromatase inhibitor side effects (Recap of Lost Posts, Topic Created by Tamlen on Jan 08, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Tamlen Jan 08, 2019 - 1:04 pm Hello - My gyn onc put me on anastrozole (Arimidex) in October. The side effects I initially experienced were some relatively minor fatigue, some cognitive impact, and some bone and muscle pain. Lately,…
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MD Anderson (Recap of Lost Posts, Topic Created by Lulu7582 on Jan 05, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Lulu7582 Jan 05, 2019 - 1:23 pm Good morning Ladies, Is anyone being treated at MD Anderson Cancer Center in Houston TX? Surprisingly my husband's insurance covers the gyn/onc at MD Anderson so if my local doctor at Davis is…
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Large retrospective analysis out of Stanford supports use of standard chemo/brachytherapy for USPC a
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Jan 05, 2019 - 12:06 am I cannot get at the entire article. Is anyone associated with a university that might have a medical library tha would have access to the entire article? Here's the link, and below it the text. There…
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Remembering Lou Ann M (Recap of Lost Posts, Topic Created by CheeseQueen57 on Jan 01, 2019)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. CheeseQueen57 Jan 01, 2019 - 9:09 am Opened my Facebook this morning and was reminded that this was Lou Ann’s birthday and she would have been 72. Remembering a remarkable woman who fought hard against this dreaded disease and was…
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Anxiety...(Recap of Lost Posts, Topic Created by wolfera on Dec 31, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. wolfera Dec 31, 2018 - 7:07 am I’ve been experiencing breast pain so my GYN oncologist is sending me for a diagnostic mammogram (scheduled for this morning). I’ve never had a mammogram before and certainly not one that is…
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For All Those With Financial Hardships & Who Have Cancer (Recap of Lost Posts, Topic Created by linm
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. linmk Dec 28, 2018 - 10:22 am I'm thinking of you, federal workers and GM employess and many others who are underempolyed and/or unemployed, you are in my thoughts. I hope that your cancers and financial situations improve for the…
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Discharge post Brachy/Internal Radiation (Recap of Lost Posts, Topic Created by BNT on Dec 28, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. BNT Dec 28, 2018 - 12:30 am Over the last six months my mother went through total hysterectomy. < 50% UPSC penetration in the uterine walls. UPSC was also found in one of the 17 lymph nodes so went through 4 rounds of Carbo/Taxol.…
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Bone scans (Recap of Lost Posts, Created by Wannabeatit on Dec 28, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Wannabeatit Dec 28, 2018 - 9:45 pm I had double knee replacements Oct 19th 6 months after my last chemo. Two weeks before I had it done I got a pain in my leg that felt like Sciatica but disappeared 4 days before the operation.…
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Chemo round 4 delayed because of low platelet count. Has anyone had this? (Recap of Lost Posts, Topi
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Dec 28, 2018 - 12:59 pm I was supposed to have carbo/taxol/herceptin round 4/6 today, but oncologist said I had to delay it for at least a week, because my platelet count was 88K. Before treatment began, my platelet count…
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Neuropathy (Recap of Lost Posts, Topic Created by Ribbons on Dec 14, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Dec 14, 2018 - 4:50 pm I’m at my treatment today and I have ice paks they furnish for my hands and feet, I have not had any neuropathy, but I have an interesting question. I have Reynauds in my hands and and toes, I’m…
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Is it working? (Recap of Lost Posts, Topic Created by Ribbons on Dec 09, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Dec 09, 2018 - 2:12 pm This is for the ladies that had a hysterectomy and the cancer was confined to the uterus. No evidence of spreading anywhere. But since mine was clear cell, we all decided I would have chemo and…
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Tumor has doubled in size (Recap of Lost Posts, Topic Created by LadyMox on Nov 27, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Nov 27, 2018 - 12:45 pm After all that good CA125 response my large tumor has doubled in size. They will try doxil-avastian, though seems quite hopeless now :( LadyMox Nov 27, 2018 - 12:50 pm It's in the mesentary so they…
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Doxil-avastian (Recap of Lost Posts, Topic Created by LadyMox on Nov 27, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Nov 27, 2018 - 2:22 pm Has anyone taken doxil-avastian? What were your side effects and did it work? cmb Nov 27, 2018 - 11:04 pm Different Chemo Cycles I haven't taken Doxil or Avastin, but my front line treatment consisted…
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My bladder problems (Recap of Lost Posts, Topic Created by SF73 on Nov 20, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. SF73 Nov 20, 2018 - 12:56 pm Sorry, this post is a bit long. For the last month I have been going to the bathroom very frequently. First I saw my PCP, she ordered a urine sample which revealed some WBC. She concluded that it must be…
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Will I be well enough 6 days after chemo to go to Thanksgiving? (Recap of Lost Posts, Topic Created
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Nov 15, 2018 - 3:28 pm I'm looking for advice from those who have been through carbo/taxol chemo (and they're adding in herceptin tomorrow). My first round, I had chemo on Friday. I felt fine the next day. The day after…
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IP Chemo (Recap of Lost Posts, Topic Created by LadyMox on Nov 15, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Nov 15, 2018 - 10:12 am I'm considering since my Endrometral cancer is mainly in my now overswollen ovary in my pelvis to take a page from ovarian cancer and discuss the idea of IP Chemo with my doctor in hopes it might slow…
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Doxil (newer type) and Avastin (Recap of Lost Posts, Topic Created by evolo58 on Nov 15, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. evolo58 Nov 15, 2018 - 2:37 pm Anyone on these? I don't mean the older Doxil, which wreaks havoc on your system. I like my new doctor so much better. She told me that with a such a short progression, things could be more difficult,…
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Wish me luck! Update 11:32 pm. Thank you all! (Recap of Lost Posts, Topic Created by BluebirdOne on
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. BluebirdOne Nov 12, 2018 - 1:12 pm Wednesday is the big day to find out if my treatment worked. Blood work, CT scan, oncologist. I am optimistic for a good post treatment outcome. Denise Update: my first scan was NED! My old friend,…
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Just need to vent (Recap of Lost Posts, Topic Created by Donswife48 on Nov 11, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Donswife48 Nov 11, 2018 - 6:54 pm I don't post often, but I do read the discussions often, and am sad to see so many new names since my initial diagnosis and treatment almost 3 years ago. I'm doing fine, even though I am UPSC stage…
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Ultrasound for detection of metastases - has anyone had this for following masses? (Recap of Lost Po
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Nov 10, 2018 - 3:37 pm https://obgyn.onlinelibrary.wiley.com/doi/full/10.1002/uog.10054 Above is a review article from 2011 about the use of ultrasound for staging of GYN cancers. I'm curious about its utility. I know that…
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Am I doing the right thing? (Recap of Lost Posts, Topic Created by Ribbons on Nov 10, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Nov 10, 2018 - 7:34 pm I guess I just need some reasurance that I made the wise choice. I was diagnosed with clear cell, it was mostly clear cell with some serous cell. I had a total hysterectomy, ( uterus, tubes, overies…
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Cervical Cancer Statistics on TV (Recap of Lost Posts, Topic Created by pinky104 on Nov 09, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. pinky104 Nov 09, 2018 - 2:03 am I heard something on TV last night about statistics from a study that was done in England on cervical cancer patients. They found that patients who had laparoscopic surgery or robotic surgery for…
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High dose brachythetapy (Recap of Lost Posts, Topic Created by Denise66 on Nov 07, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Denise66 Nov 07, 2018 - 10:30 pm I just finished my 3rd treatment of high dose brachytherapy. I've been feeling a little off since my second treatment. Sometimes when I wake up in the morning I feel lightheaded. During the day I…
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No miracle today (Recap of Lost Posts, Topic Created by evolo58 on Nov 06, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. evolo58 Nov 06, 2018 - 5:36 pm I wish I could say the news was good. It wasn't. I knew the possibility of this being a non-cancerous CA-125 spike was not a strong one, but I kept hoping till the end. It looks like I have small…
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Update on my mom changed diagnosis (Recap of Lost Posts, Topic Created by Minimee33 on Nov 05, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Minimee33 Nov 05, 2018 - 12:55 pm First I want to thank all of you ladies who replied to me back in August when I was so distraught and confused, it really helped a lot and I have been praying for all of you. I wanted to give you…
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Metformin vs Megace (Recap of Lost Posts, Topic Created by LadyMox on Nov 05, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Nov 05, 2018 - 8:44 am I am trying to figure out the difference between Metformin vs Megace. I notice some of you take one or the other to help slow/prevent reoccurrences. Do you know why you were prescribed each? Once I get…