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Uterine/Endometrial Cancer

Am I doing the right thing? (Recap of Lost Posts, Topic Created by Ribbons on Nov 10, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Ribbons Nov 10, 2018 - 7:34 pm I guess I just need some reasurance that I made the wise choice. I was diagnosed with clear cell, it was mostly clear cell with some serous cell. I had a total hysterectomy, ( uterus, tubes, overies…
Cervical Cancer Statistics on TV (Recap of Lost Posts, Topic Created by pinky104 on Nov 09, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. pinky104 Nov 09, 2018 - 2:03 am I heard something on TV last night about statistics from a study that was done in England on cervical cancer patients. They found that patients who had laparoscopic surgery or robotic surgery for…
High dose brachythetapy (Recap of Lost Posts, Topic Created by Denise66 on Nov 07, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Denise66 Nov 07, 2018 - 10:30 pm I just finished my 3rd treatment of high dose brachytherapy. I've been feeling a little off since my second treatment. Sometimes when I wake up in the morning I feel lightheaded. During the day I…
No miracle today (Recap of Lost Posts, Topic Created by evolo58 on Nov 06, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. evolo58 Nov 06, 2018 - 5:36 pm I wish I could say the news was good. It wasn't. I knew the possibility of this being a non-cancerous CA-125 spike was not a strong one, but I kept hoping till the end. It looks like I have small…
Update on my mom changed diagnosis (Recap of Lost Posts, Topic Created by Minimee33 on Nov 05, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Minimee33 Nov 05, 2018 - 12:55 pm First I want to thank all of you ladies who replied to me back in August when I was so distraught and confused, it really helped a lot and I have been praying for all of you. I wanted to give you…
Metformin vs Megace (Recap of Lost Posts, Topic Created by LadyMox on Nov 05, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Nov 05, 2018 - 8:44 am I am trying to figure out the difference between Metformin vs Megace. I notice some of you take one or the other to help slow/prevent reoccurrences. Do you know why you were prescribed each? Once I get…
Is it normal to have slight nausea even ten days after chemo? (Recap of Lost Posts, Topic Created by
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Nov 05, 2018 - 11:49 am I'm recovering well from the first round of carbo/taxol, but I'm still having mild nausea. I have to eat starchy stuff, like ravioli with sour cream or fettucine alfredo, to calm my stomach. That was…
Got the CT scan done today (Recap of Lost Posts, Created by evolo58 on Nov 05, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. evolo58 Nov 05, 2018 - 12:37 pm Got the CT scan just a few moments ago. PLEASE pray and hope that whatever caused the bottle-rocket CA-125 spike, it's benign and fixable. I was looking at CA-125 elevations for ovarian cancer, which…
Blood clot in neck from portacath - slept on right side (Recap of Lost Posts, Created by zsazsa on N
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Nov 04, 2018 - 6:55 am Yesterday it finally dawned on me that the persistent tenderness in my right neck could be from a blood clot from the portacath. I tend to sleep curled up on my side. I tried to avoid sleeping on my…
Augmentative treaments? (Recap of Lost Posts, Initiated by Meggie67 on Nov 04, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. Meggie67 Nov 04, 2018 - 9:03 pm Hello Ladies, I'm new to this discussion board and wanted to thank you all for sharing your experiences, wisdom and feelings, When I got endometrial cancer stage 3c in 2016 after 3 bouts with breast…
Pelvis Slightly Sore (Recap of Lost Posts, Topic Created by LadyMox on Nov 03, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Nov 03, 2018 - 8:09 am I have noticed since a week after the second chemo (no surgery yet) that my pelvic area has been slightly sore especilly a week or so after chemo. It's not much at all and no need for pain meds, more…
High-Dose Radiotherapy/Stereotactic ablative radiation-research (Recap of Lost Posts, Topic Created
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LisaPizza Nov 01, 2018 - 2:38 pm Interesting research: ASTRO 2018: High-Dose Radiotherapy Improves Survival Substantially in Patients With Oligometastatic Cancer http://prac.co/l/y8te7pgo…
Didn't quite clear that last hurdle (Recap of Lost Posts, Topic Created by evolo58 on Nov 01, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. evolo58 Nov 01, 2018 - 2:44 pm CT-125s are 770 now. They were NEVER that high in the past. Time for another CT scan and a session of doctor-go-round. Problem is, except for constipation which is clearing up, I don't feel anything…
CA-125, Does it really mean anything? (Recap of Lost Posts, Topic Created by LadyMox on Oct 31, 2018
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. LadyMox Oct 31, 2018 - 8:31 am Since I am anxious about my next scan in a few weeks I have been getting paraniod that my CA-125 is responding so well that it don't mean anything; Especailly siince I haven't had surgery yet. Of those…
Letrozole
I met with my my gynecologist oncologist last week and she wants me to start Letrozole to help prevent a recurrence. I had endometrial adenocarcinoma, stage3a, grade 2 and it was estrogen positive. She said since I was grade 2 this has a good chance of preventing a recurrence. Letrozole has been used to help prevent…
Da Vinci Hysterectomy
Hi Ladies, I am having a Da Vinci hysterectomy in about a week and a half. I thought I took good notes at my appointment, but I can’t remember how long my oncologist said the surgery would take. For some reason I remember 4 hours. Based on experience is this about right? Also, does the 4 hours include time in recovery…
How sick might I be the day after Carbo/Taxol?
I was told that the day after, people feel okay. I certainly feel okay now in the evening, having had chemo today. I would like to go visit my kid at college tomorrow. It's a little over an hour away, an easy drive. I could go by myself in the AM, or wait for husband to drive me later in the day - but he's not sure when…
Hysteroscopy & D&C Results
Thankfully my biopsy results came back as benign, with no malignancy or pre-cancerous cells detected in the polyp and endometrial lining that was removed. I was told that this is something we will have to be very diligent about watching in the future. Development of polyps and ignoring the symptoms (post menopausal…
Test
ive been trying to post a new thread and keep receiving “error occurred” message. this Is a test.
Please just reply if you have had 5+ Bracky
I had to have 2 Brackys - 4 in 2017;4 more in 2018 so vaginal wall is very scarred. I am also on blood thinners for another year. Dilator causes bleeding to the point that I am considering not doing it. I have talked to my gyn 0nc and she says if that is what I want to do, she will depend on scans, etc. for spotting…
Those taking Metformin (Recap of Lost Posts, Topic Created by oldbeauty on Nov 02, 2018)
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/18. While there have been a number of posts about taking metformin on this board, this discussion topic covered several subjects, notably the difference in the costs of metformin depending upon one's insurance coverage. There are also…
How long to recover from vaginal brachytherapy? (Recap of Lost Posts, Topic Created by zsazsa1 on Ja
This recap includes posts that were lost during CSN's data outage from 10/29/18 to 1/30/19. zsazsa1 Jan 08, 2019 - 5:23 pm I just had round 4/6 of carbo/taxol/herceptin, and I'm beginning to see the possibility of a vacation after chemo is over. Even if I were to have to extend chemo to every 4 weeks for the last two…
Lost discussions
What an unfortunate happenstance!
New TV Show, Old Memories
Anybody watching the new hospital drama called New Amsterdam? Tonight an oncologist who likes to fundraise and travel for the hospital was forced to come home and see patients. In her office was a woman who had a random few strands of hair left, who had to be told her chemo wasn't working and they were going to start…
More Problems with Website
Now more people's photos are gone. How did that happen overnight??? WTF?? It's important to see faces of those who've chosen to use a profile photo, or their avatar if they haven't; it adds to the 'real person' factor. Is this damage ongoing?
MRI Update
My doctor and I reviewed the results of my January 9th MRI this week, and the results were concerning but not entirely alarming. The overall tumor size continues to shrink and it's now mostly necrotic tissue from what I can tell. However, there's a 'bad' place within it that lights up and has actually grown, almost…
How many lymph nodes? (Includes Recap of Lost Posts)
I found the variety of approaches taken by different doctors regarding lymph nodes very interesting, as reflected in the responses to Ribbons' original question posted on November 9, 2018. So I'm posting this recap for future reference. Please note that I couldn't recover any responses that appeared on "page 2" of this…
cryotherapy gloves and slippers to prevent neuropathy?
Anyone have any experience or advice with this? There was a recent study that came out that had people wearing them on their dominant side, and then compared the incidence of neuropathy from the side kept cold vs the side that wasn't kept cold. Results showed that the cryotherapy DID help. I would like to try this, but the…
New "Sticky" Post about CSN Data Outage
You'll see that I added a new post entitled "Information on the Uterine Board Content Lost in CSN Outage." It repeats information I've shared in other posts, but all in one place. I've asked CSN to make this a read only, "sticky" post so that it remains at the top of the list for a while until we decide it's no longer…
First step completed, now more waiting
I went in for my hysteroscopy and D&C this morning and am already home. This really is not a difficult procedure for any of those who haven’t had it done and are feeling anxious. I had a great anesthesiologist and by the time I was wheeled back to the OR, I was floating on a cloud. I don’t remember anything until waking up…

Uterine/Endometrial Cancer

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