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Afraid to hope
I am early in this process. I have my second opinion appointment at Hopkins on Monday. After that, the hysterectomy will be scheduled. The first Gyn oncologist I met with earlier this week seemed confident that I would only need surgery (praying this is the case). The logical side of my brain says I should just focus on…
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Newly diagnosed stage 4 uterine serous upsc
Hi all Just after some advice as this is all new to me. Three weeks ago my mother who is 62 was having bad stomach pains. We went to emergency room at the hospital and they found ascites and drained 4 litres. It was malignant. She had an endoscopy and colonoscopy which were clear. She had a ct which they said didn't show…
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Three years ago today
Three years ago today I had my hysterectomy. I went into it thinking it was an early stage, low-grade cancer. After the complete biopsy, I was Stage II, Grade 3 UPSC. My oncologist/gynecologist thought he got it all but he didn't take any lymph node, so who knows? I consider that day, my first day of NED. I only made it…
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Is it possible to see an individual's profile, I thought i read that you press their photo! Unfortun
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Anyone going to the race this year?
Hey ladies! Is anyone going to the National Race to End Women's Cancer this year? It is in DC on Sunday, November 4 (which is daylight savings time BTW) I couldn't go last year but have already bought my airline ticket and hotel room. Here is the link: https://endwomenscancer.org/
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Hormone Replacement Therapy
I have to have a full hysterectomy in the next week or two. I’m 37 and not close to menopause. My doctor has told me that I’ll to begin hormone replacement therapy, both to ease symptoms and to replace what I will no longer produce. Does anyone have any experience with this? thank you!
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WBC Count as marker
My mother had a RadicalHysterectomy recently. For some years before this, her WBC count was shooting up and the doctors could never really figure out what that pointed to. In the last 3-4 years it went from around 6000-7000 to about 14000 a couple of months back. After the surgery, within a month I got her to do the tests…
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Got my final path report mmmt
Hi ladies got mu final path report today st 2 Grade 3 mmmt cervix involved nodes and omentum all neg.I have Focal ANGIOLYMPHATIC invasion Have any. Of you encountered this.? I still plan to start my chemo the week of 2/19. had hysr 1/19. does this mean it has already spread? Pleas help I need your expertise. Thanks so much
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Immunotherapy Side Effects
I don't know how many of us are on immunotherapy now that Lou Ann is gone, so I thought I'd post an update on my side effects in case anyone finds it useful. Reactions to immunotherapy are unpredictable; the FDA just approved it for us last year, so there's not much to compare it with whereas the [regrettable] effects of…
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MRI Results
I got my MRI results this week and am pleased to report that I'm no longer Stage IV uterine, or apparently any stage uterine at all. The retroperitoneal lymph node mets were killed off by the CyberKnife treatments I had in January and nothing new has come up, so I'm guardedly optimistic on that count. In other news, the…
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New research on birth control pills and ovarian cancer
Interesting recent article about ovarian cancer prevention by using birth control pills. https://www.medicalnewstoday.com/articles/323199.phpy
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Question on neo adjuvant treatment on stage iv uspc
Hi all I posted last month on my mum's diagnosis of stage 4 uspc. She has done 2 chemos. Her ascities has dried up which is good. The plan was 3 chemos, then surgery for hysterectomy then last 3 chemo. Our medical oncologist (he is not a gynaecological oncologist) has actually said to do 6 chemos and then do surgery then…
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Just diagnosed.
I just received word that I have Grade 1 endometrioid carcinoma. My head is spinning. I’m terrified.
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Update on my Mom
Hi guys, I haven't been very active on this board because I've been busy with resuming life and work after my mom's cancer journey. My mom just got her latest CT scan results and blood test back last week, and she is doing well. Her CA-125 is only 11, lower than 3 months ago when it was 17. Her scans came out clean. Her…
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Symptoms
To start off, I have seen a doctor. I just don't feel his diagnosis is correct. I am 29 and started seeing brown bleeding between periods. It only lasts a day or two, but I have pelvic pain on days other than when I see the blood. One month the bleeding and pain were so bad I called My OBGYN to be seen ASAP. He felt around…
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hello
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Brachytherapy
Hi all you beautiful women! I’m new to this so hope i’m doing it right. I was dx with stage 1a/grade 3 uterine cancer. I’ve had complete hysterectomy with nagative lymph nodes. I’m to have 3 rounds of vaginal brachytherapy. Was wondering if you could share your experiences with vaginal brachytherapy with me? The side…
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1 year NED
On June 20th I celebrated 1 year NED! My birthday is the 30th and I am so thankful to have it every year now. I go every 3 months for exams and blood work, and have had no problems at all. I am so thankful and so blessed! I just want to encourage others that get diagnosed to know, there is hope! (just a brief synopsis..I…
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Waiting on biopsy results
I am a 37 year old. I went to my gynecologist a couple of months ago bc I was experiencing random heavy bleeding and basically a continuous cycle. I’ve always had irregular periods, but the bleeding got so heavy that it prompted a visit to the doctor. I immediately had an ultrasound, which showed an endometrium thickness…
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Serous Carcinoma
I was just diagnosed with Endometrial cancer 10 days ago. It hit me like a ton of bricks. Just did a CT scan and results are not in yet. Getting ready for hysterectomy on May 2. I do not know the stage yet. So I am in that scary beginning stage dealing with this emotionally. Just joined to benefit from those who may have…
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Just diagnosed with Carcinosarcoma
I was just diagnosed with Carcinosarcoma of my Uterus. I’m told it is very rare and aggressive. I haven’t had scans yet (later this week) and surgery on the 28th. Unfortunately I let it go for a long time thinking my symptoms were being cause by my fibroids. Does anyone have any experience with this?
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Bell ringing
I never thought about it this way https://www.medscape.com/viewarticle/902132?nlid=125123_3902&src=wnl_newsexcl_180919_MSCPEDIT&uac=297357CV&impID=1743376&faf=1
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My Girls!
Just got off the long bus ride from Houston to San Antonio, but I can't climb in bed without visiting my sisters here to tell them a little bedtime story of a girl who was diagnosed with Stage IVB, Grade 2 Endometrioid Endometrial Adenocarcinoma in the Spring of last year. She had a robotic hysterectomy with which she was…
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New Publication: NCCN Guidelines for Patients – Uterine Cancer
If you would like to read or download the new NCCN Guidelines for Uterine Cancer Patients publication that was just posted on 9/11/2018, see the following link: https://www.nccn.org/patients/guidelines/uterine/index.html You can also sign up for a free account with NCCN to download a copy of the complete NCCN Clinical…
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back/leg pain/numbness after hysterectomy
Hi everyone, I am a new member, and have been diagnosed with Stage 1a, Grade 3 Uterine Cancer. I am almost 6 weeks post-op from complete hysterectomy. They took everything including lymph nodes and omentum. everything was clear except fot the tumor in uterus. It hadnt penetrated the uterine wall or muscle yet. I will be…
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5 weeks post hysterectomy and urining blood after bath
I had my hysterectomy 5 weeks ago . Finally stopped bleeding vaginally a couple days ago. I traveled from AZ to PA to finish my recovery while staying with my sister . At my sister's house, I decided to take my first bath post surgery. I normally use very gentle non paraben and fragence free soap but did not bring it. I…
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Internal Radiation
My mom will have her 4th and last carbo/taxol administered tomorrow. 3 weeks from then the doctor wants to start internal radiation. He mentioned 6 weeks of internal radiation. Is that normal? Looked like a lot of sessions. Any guidance is appreciated.
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Hysterectomy vs Progesterone Therapy
Hi Ladies, I met with a gyn onc today to discuss a game plan. He mentioned that I really don’t have any of the check boxes that is common in patients with endometrial cancer, so he is surprised that my biopsy (which was conducted on a “rule anything out” basis as opposed to “suspected problem” basis due to anemia) reported…
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Chemo plus radiation vs Chemo without radiation for Stage IIIC uterine cancer?
Hi all, My mom was diagnosed in Feb of this year with Stage III C1, grade 3 uterine cancer. They initially thought that they had found it early but during her hysterectomy, they found the cancer in 3 out of 19 lymph nodes. She recovered very quickly from her surgery and began chemo (paclitaxel + carboplatin) in mid-March.…
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I’m here and back on my feet!
Hello everyone! Sorry it took me long to check in. Thank you all for your concern. The surgery did take a lot out of me this time but I am back in my feet and back to work. I had the ileostomy reversal on June 15th and ended up 4 days in the hospital which was a little longer than I wanted. I returned to work July 9th. I…