Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Uterine/Endometrial Cancer

Tumor Testing
While this was mentioned in an earlier thread, I wanted to make this it's own topic. In case anyone reading this don't know I am on the chemo/surgery/chemo route and I am on my third chemo this Thursday for a diagnosed Stage 4B Endometrial cancer and at last check had a 5x5x4inch tumor near my ovary in my pelvis, I am…
Just came from second opinion at Sloan Kettering MMT carcinomasarcoma
Some of you may remember me, I started posting about 5 weeks ago. My sister in law Kelly was diagnosed with Uterine carcinomasarcoma 3c1. She was diagnosed in California and had a complete hyst. We were told that it was all the way thru the myometrium and was in one of 24 pelvic lymph nodes, also there were cells in the…
Listing of Lost Posts
I used Google's web cache function to create a list of the discussion board topics that were lost. This list was taken from a Google web cache, as of Jan 29, 2019 18:30:28 GMT, so posts made after that time were not captured. I thought this listing would be a helpful reminder of the topics that were discussed recently. If…
Potential new treatment - NO publications, unfortunately
https://www.timesofisrael.com/israelis-claiming-cancer-cure-say-they-cant-afford-to-publish-findings/ Unfortunately, it seems that their claim was probably made to raise more funding. They're now saying they can't publish because they can't afford to. Scientists don't PAY to get studies published - they submit them to…
slight chest discomfort
Upsetting that everything was lost, but I think we will find our way back here. Last night at one of the times I usually wake up to go to the bathroom, My chest felt kind of different, and my neck was a little bit odd feeling. Since I get paranoid about this, I took some aspirin, but then went back to sleep. I wouldn't say…
Stereotactic body radiotherapy SBRT
For those of you considering SBRT (Cyberknife is one brand), here are the results of a large-scale study on its use to extend life for Stage IV folks like me. I'm a candidate and the moment the mets in my lungs start growing again, I plan to zap the suckers with SBRT. "...our question was, could we use highly focused…
Hand tremor
Just reposting this topic that was lost in the CSN outage: Near the end of chemo (around infusion 4 or 5 of 6), I developed a noticeable tremor in my writing hand. It mostly occurs when I'm holding something, like a glass. After chemo ended, it did not go away. It hasn't gotten any worse either, 4 months post-chemo. I…
MMMT complications (met @ bone)
Hello everyone. I'm keeping this short for now because I'm currently emotionally overwhelmed by my mother's diagnosis. But hello -- I am a new member of this board. My mother was recently diagnosed with stage 3c MMMT, grade 3. Had total hysterectomy and we were told that it had spread to 3-4 lymph nodes (all affected parts…
Heavy bleeding after pelvic ultrasound,
I had a pelvic ultrasound yesterday and had heavy bleeding afterwards. The ultrasound was performed late (6:00pm) on the 4th day of my period, so I was having some bleeding, but definitely tapering off and almost finished with the period, as they typically end on day 5. But within 20-30 minutes after the scan, I flooded…
Circulating tumor cells
Has anyone had their circulating tumor cells measured? If you had circulating tumor cells, what was prescribed to reduce them.
Any advice on keeping my nails?
I met with a chemo nurse today, and she recommended that I put tea tree oil on my cuticles twice a day throughout treatment. She implied that this could save me from losing nails. I'm already planning on icing my hands and feet for the chemo, so I'm hoping that with less penetrance of the carboplatin/taxol to the nailbeds,…
Advice on wig and other head coverings - when to shop for one?
I'm starting chemo in 3 days. My oncologist gave me a scrip for a wig. I was thinking I wouldn't go shop for one until the hair fell out, but now, reading about how people say that the hair loss is very physically uncomfortable, I'm thinking maybe it's best to do it now. Any advice on when to shop for a wig? Advice on…
More tests ... Breast issues this time
Freakin' crap. Freakin', freakin' crap. I went for a mammo last week, and they want me to come in for additional testing. They want me to come in on NOVEMBER 7TH! Seriously? What madness is this? You make me wait more than a week, never tell my oncologist at the other facility, who really should have been the one to tell…
Portacath placement was very easy
I just had a portacath placed today, and I cannot believe how easy it was to have it done! I was a little bit worried about it, had been considering toughing it out with IV chemo, but my oncologist really encouraged the portacath to prevent extravasation (leakage into surrounding tissue) of the chemo, so I went ahead and…
D&C tomorrow-what to expect?—Update
So, I have my d&c hysteroscopy tomorrow. Starting to feel nervous. They are doing general anesthesia. Just wondering how I will feel afterward--will I be really tired? Will there be a lot of bleed ing or cramping? Just wondering what to expect. Any idea how long I'll have to wait for the pathology report? How quickly I'll…
Conflicting pathology
A couple of weeks ago I was diagnosed with endometrial carcinoma, at least Grade 1 via D&C at a local hospital. I went to Johns Hopkins for a second opinion. They requested my slides from the local hospital to perform their own biopsy. I received the results. They are somewhat conflicting. The Hopkins Pathology report said…
Whoo boy do I need help
58. 7 years post menopause. Started bleeding, light colored. Stopped. Started again with what I can only describe as pieces of tissue. Stopped. Gyne appointment yesterday. Never had children so she could not get speculum open enough to get past cervix. Next up, transvaginal ultrasound then appointment to discuss those…
New drug combo for uterine serous carcinoma
I came across this today, thought some of you might be interested: New drug combo improves survival of women with rare uterine cancer
Terrified They Seem Reluctant To Do Surgery
I'm terrified that my doctor seems reluctant to do surgery unless my large tumor shrinks enough for lapriscopic surgery, will get imaging after chemo 4. I'm 42 and 242 in weight and in decent health as I've fully recovered from the Septis as far as I can tell. Granted my ca-125 has really responded to the chemo and I'm at…
HOW TO MAKE TUMERIC/CURCUMIN MORE EFFECTIVE
June 4, 2011 - 1:51pm A lot of you are asking how to use turmeric or what curcumin to take. I'd like to share what I've learned about that subject from several books and online research. According to Schreiber (in his book Anti-Cancer), turmeric isn't absorbed in our bodies unless we cook it in a bit of olive oil (organic…
1st Brachy session today and having light bleeding
I'm 11 weeks out from my hysterectomy. I did not have any bleeding after 7 weeks until today when I had my first brachy session. My first session included the fitting along with the radiation. Did anyone experience bleeding when they had Brachy? If yes, how long did it last? Thanks so much .
Mixed Response Taxol & Avastin
I have been on Taxol and Avastin for the last three months. To refresh people's memories I am Stage IVB garden variety endometrial cancer. I have had three different chemo treatments, a hysterectomy, and two clinical trials, the last one was an immunotherapy trial. I won't be able to particpate in another immunotherapy…
UPSC Stage 1 Treatment
Hello All, Sorry for this 1st time, lengthy post. I've gathered so much helpful information from reading and rereading many of your posts these last several weeks. I wanted to share a bit of information that might help others. I hope I am reading it correctly. Please chime in if I'm missing something! By ways of…
Normal to feel so weak after lap robotic hysterectomy?
I had a robotic laparascopic hysterectomy with laparascopic inspection for visible metastases about ten days ago. No mets found (and CT of chest, abdomen, and pelvis before surgery also showed no mets). The tumor is mixed serous/clear cell, and was graded 1a. One sentinal node had isolated tumor cells only, the other was…
Reoccurance Rates
While I am still going to chemo to even make it to surgery to even get past my first discovery of the cancer, I am wondering what kind of chances of reoccurance people were given by thier doctor for various stages of Endrometral cancer? I wonder how much this study vs what doctors told people. I also wonder if Uterine vs…
Up at night to urinate
I had my hysterectomy 10 weeks ago. I was put in surgical menopause. My symptoms such as night sweets came on gradually. For the past 4 weeks I'm getting them every night . This week, I'm now waking up in the middle of the night to urinate. Did anyone have this issue when newly in menopause? Being awaken at night to…
Someone knows how we feel
Just watched A Million Little Things. Two of the characters have breast cancer - one is a male. Both are having to deal with the uncertainity cancer brings into our lives. Those 3 month checks... I am facing one on Tuesday and while I am doing water aerobics the thought flies through my mind - why am I working so hard to…
Treatment Update - Radiation
After 4 cycles of carbo/taxol, now my mother has been prescribed 25 doses of external radiation (5 each week, for 5 weeks) and 3 doses of internal radiation (one each week). So total 8 weeks. She has been asked - 1) Eat Bland Food 2) No milk/dairy products except curd/yogurt 3) 3 litres of water/fluid daily I have read…
dilator and Eliqus
Any of you on Eliquis and also using dilator - also had Bracky radiation? Doctor has just told me to use - and I am getting bleeding. Not sure I want to do this if always worrying about excess bleeding. Have messages in for my hematologist and rads doc as well as Gyn. But really would like to hear from any of you in same…
Update Janae
I dont come post about me too often any more but wanted to today. I had a follow up appointment today. Its been almost two years since i finished treatment. Every thing looks good according to the physician assistant ho did my appointment. I have no new symtoms. About a year and a few months ago i had a cat scan that was…

Uterine/Endometrial Cancer

Discussion List

Discussion Boards